Cool! We should start up a "I-haven't-ever-been-to-Starbucks Club"!I haven't been to one!
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Starbucks Can Kiss My ....
#16
Posted 06 July 2011 - 01:03 PM
Confirmed celiac disease February 2011 from biopsies (had both gastroscopy and colonoscopy). Strictly gluten free March 18 2011.
Diagnosed with fibromyalgia April 13 2011.
3 herniated discs, myofascial pain syndrome, IT band syndrome, 2 rotator cuff injuries - from an accident Dec. 07 - resulting in chronic pain ever since. Degenerative disc disease.
Osteoarthritis in back and hips.
Chronic insomnia mostly due to chronic pain.
Aspartame free May 2011.
Dairy free August 15 2011. Can tolerate aged cheese Jan. 2012. Cannot tolerate much cheese at all 2013 so am eating lactose free cheese and drinking lactose free milk.
When our lives are squeezed by pressure and pain, what comes out is what is inside.
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#17
Posted 06 July 2011 - 01:38 PM
Speak with the owner, the manager or the corporate office anytime you go to a store, restaurant, or coffee shop after getting bad service or being frustrated by improper or lack of labeling or unknown ingredients. To affect positive changes going forward we all have to voice what happens for a number of reasons beyond the obvious of getting a refund. Proper use of complaints will in the long run (hopefully) improve our lives as we interact with non-celiacs.
If all of us just boycott every place we get poor service from without being the voice for improvement by properly complaining to the right individual(s) we will end up having no places left to go to. So, state your mind and complain to the right person to affect positive change. Try to always lodge your complaint first with the onsite manager in a logical manner then afterwards to the owner of privately owned shops and the corporate office for chains.
In the event you are told by the owner or coporate office after you complain to stay out of their shop or don't buy their product then let us know who they are. Complaints should not be limited to just bad service but also to improper or lack of labeling or unknown ingredients.
Your voice is needed...
Enough ranting from a grumpy guy.
#18
Posted 06 July 2011 - 01:42 PM
Seizures are one of the symptoms I suffered from as well. As far as the oatmeal goes--you may "get away with it" now and then as in your body has no symptoms but that doesn't mean it's a good idea to keep eating it. It's like playing Russian roulette with your health--you just never know when you will get a heavily contaminated batch. Also for some people there is a culmulative effect of when they have had lots of little amounts of cc it adds up and all of a sudden their symptoms start full force and they cannot track down the source becaus ethey were fine the first X number of times they ate the cc food. I didn't mean to imply that you weren't taking the gluten-free diet seriously. I just wanted to let you know in case you were unaware that oatmeal and rice Krispie treats at restaurants are not usually safe unless specially gluten-free.
I agree with you on that. As I said, I only have these things once in a while. The oatmeal is for the kids mostly. Usually I eat after I have taken the kids to school and get a Jamba Juice (of wich I read the ingredients of in the available book) or some eggs and bacon. I stay away from sausage. Carolinakip & love2travel, you have to go to Starbucks if you are a coffee drinker. They know me by name at a couple of the local stores in my town
Later,
Ray
#19
Posted 06 July 2011 - 01:46 PM
I agree with you on that. As I said, I only have these things once in a while. The oatmeal is for the kids mostly. Usually I eat after I have taken the kids to school and get a Jamba Juice (of wich I read the ingredients of in the available book) or some eggs and bacon. I stay away from sausage. Carolinakip & love2travel, you have to go to Starbucks if you are a coffee drinker. They know me by name at a couple of the local stores in my town
. I even went to Starbucks when my family (Wife, kids, mother and niece) traveled to France and England. The Cafe Creme was much better than Starbucks over there though.
Later,
Ray
Not a coffee drinker (although I love the aroma of brewing coffee!) so that is the main reason I have not been to a Starbucks.
Confirmed celiac disease February 2011 from biopsies (had both gastroscopy and colonoscopy). Strictly gluten free March 18 2011.
Diagnosed with fibromyalgia April 13 2011.
3 herniated discs, myofascial pain syndrome, IT band syndrome, 2 rotator cuff injuries - from an accident Dec. 07 - resulting in chronic pain ever since. Degenerative disc disease.
Osteoarthritis in back and hips.
Chronic insomnia mostly due to chronic pain.
Aspartame free May 2011.
Dairy free August 15 2011. Can tolerate aged cheese Jan. 2012. Cannot tolerate much cheese at all 2013 so am eating lactose free cheese and drinking lactose free milk.
When our lives are squeezed by pressure and pain, what comes out is what is inside.
#20
Posted 07 July 2011 - 06:02 AM
I agree with you on that. As I said, I only have these things once in a while. The oatmeal is for the kids mostly. Usually I eat after I have taken the kids to school and get a Jamba Juice (of wich I read the ingredients of in the available book) or some eggs and bacon. I stay away from sausage. Carolinakip & love2travel, you have to go to Starbucks if you are a coffee drinker. They know me by name at a couple of the local stores in my town
. I even went to Starbucks when my family (Wife, kids, mother and niece) traveled to France and England. The Cafe Creme was much better than Starbucks over there though.
Later,
Ray
I love coffe Ray, but even after a year, too afraid to go try them. Starbucks was a 30 minute drive for me until about a year ago, then I got one in my town. I was DX by then and learning how to be gluten-free.
George Washington Carver
Blood work positive 4/10
Endo biopsy positive 5/10
Gluten free 5/10
#21
Posted 09 July 2011 - 05:31 AM
#22
Posted 09 July 2011 - 06:38 PM
You are not alone... Never been there either.As an aside, am I the only one here who has never even been to a Starbucks?
#23
Posted 10 July 2011 - 07:51 AM
You are not alone... Never been there either.
YAY! Another one of "us". Anyone else out there who has not been to McDonalds in at least a decade?
Confirmed celiac disease February 2011 from biopsies (had both gastroscopy and colonoscopy). Strictly gluten free March 18 2011.
Diagnosed with fibromyalgia April 13 2011.
3 herniated discs, myofascial pain syndrome, IT band syndrome, 2 rotator cuff injuries - from an accident Dec. 07 - resulting in chronic pain ever since. Degenerative disc disease.
Osteoarthritis in back and hips.
Chronic insomnia mostly due to chronic pain.
Aspartame free May 2011.
Dairy free August 15 2011. Can tolerate aged cheese Jan. 2012. Cannot tolerate much cheese at all 2013 so am eating lactose free cheese and drinking lactose free milk.
When our lives are squeezed by pressure and pain, what comes out is what is inside.
#24
Posted 10 July 2011 - 08:46 PM
I haven't been to one!
Me either!
Gluten free since August 10, 2009.
21 years with undiagnosed Celiac Disease.
Father, brother, and daughter: celiac positive
Son: celiac negative, but symptoms resolved on gluten free diet
#25
Posted 12 July 2011 - 07:30 AM
#26
Posted 12 July 2011 - 11:39 AM
As an aside, am I the only one here who has never even been to a Starbucks?
i never have been
arlene
misdiagnosed for 25 years!
just as i was getting my affairs in order to die of malnutrition...
gluten free 7/2010
blood test negative
celiac confirmed by endoscopy 9/2010
i'm down here in the well, looking back up at the hill
well, thank heavens i fell, i must look more like myself.
everyone is so kind, everyone looks like
a long lost friend of mine.... - 'up from under' - the wallflowers
have a nice day ![]()
Celiac.com - Celiac Disease Board Moderator
#27
Posted 18 July 2011 - 09:37 AM
As an aside, am I the only one here who has never even been to a Starbucks?
Count me in. I drink iced espresso every afternoon and when I want something special, I make a Cuban coffee in my Bialetti.
I had fully planned to give Starbucks a try when they came out with the gluten-free orange cake but before I decided to go, they discontinued it. So pox on them . . wouldn't go there now anyway.
Gluten-free since 7/19/08
Alcohol free since 6/28/10
#28
Posted 18 July 2011 - 10:19 AM
i never have been
my youngest daughter is a coffee nut - spend 6 bucks on a whaaaat? cup of coffee???? nah.
I have not had any coffee since my university days. Blech! I'd rather buy an interesting ingredient such as black fermented garlic or vanilla beans for the same price.
Confirmed celiac disease February 2011 from biopsies (had both gastroscopy and colonoscopy). Strictly gluten free March 18 2011.
Diagnosed with fibromyalgia April 13 2011.
3 herniated discs, myofascial pain syndrome, IT band syndrome, 2 rotator cuff injuries - from an accident Dec. 07 - resulting in chronic pain ever since. Degenerative disc disease.
Osteoarthritis in back and hips.
Chronic insomnia mostly due to chronic pain.
Aspartame free May 2011.
Dairy free August 15 2011. Can tolerate aged cheese Jan. 2012. Cannot tolerate much cheese at all 2013 so am eating lactose free cheese and drinking lactose free milk.
When our lives are squeezed by pressure and pain, what comes out is what is inside.
#29
Posted 18 July 2011 - 11:35 AM
#30
Posted 18 July 2011 - 12:44 PM
Asperger's syndrome
Stress issues
Celiac
Allergic to red food coloring.
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