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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Good Gi In Seattle?
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I talked to my PCP a few days ago and she gave me a referral to a GI. I'd like to go because I like concrete diagnoses and such, AND I want to get some testing done to make sure I'm on track with my nutrient levels.

Is there anyone here who can recommend a GI in the Sea/Tac area that knows her stuff about celiac disease/gluten intolerance? Preferably at one of the Swedish Hospitals, as I have financial assistance with them, but I'd rather get someone who is going to be really helpful and pay a little bit for it, if necessary. I do have insurance that allows me to do pretty much whatever I want, I don't need a referral to see a specialist, so I'm flexible.

Thoughts?

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I talked to my PCP a few days ago and she gave me a referral to a GI. I'd like to go because I like concrete diagnoses and such, AND I want to get some testing done to make sure I'm on track with my nutrient levels.

Is there anyone here who can recommend a GI in the Sea/Tac area that knows her stuff about celiac disease/gluten intolerance? Preferably at one of the Swedish Hospitals, as I have financial assistance with them, but I'd rather get someone who is going to be really helpful and pay a little bit for it, if necessary. I do have insurance that allows me to do pretty much whatever I want, I don't need a referral to see a specialist, so I'm flexible.

Thoughts?

After many years of misdiagnoses from Group Health doctors, I ordered Enterolab tests to diagnose gluten intolerance, casein and soy allergies. When I continued to have gut symptoms, despite abstaining from those 3 allergens, I went to Stephen Wangen, ND, who founded the IBS Treatment Center in Seattle. He accepted my Elab test results as proof of celiac disease. Then he tested me for more allergies and intestinal infections (bacteria, candida and/or parasites). So we found 4 more allergens, which caused my symptoms, and 8 different gut bugs over a period of 4 years. He treated the gut bugs, but never considered why I kept getting those infections.

So I finally went to the Tahoma Clinic (run by Jonathon Wright, MD) where I saw Wendy Ellis, ND. She tested me for stomach acid production with the Heidelberg capsule test and ordered blood tests incluiding CBCs, Vitamin D levels, and thyroid hormone levels. My results explained why I was so vulnerable to infections: I had low stomach acid (which should kill food borne bacteria and/or parasites), low vitamin D levels, low white blood cells, and low thyroid hormones, esp. T3 (caused by Hashimoto's thyroiditis related to gluten intolerance). One year later I'm doing very well after taking LDN to increase my white blood cells, vitamin D supplements and thyroid supplements (both T4 and T3).

If you just need diagnoses of gluten intolerance or other delayed reaction food allergies, I'd recommend Dr. Wangen. His IBS Treatment Center is located in North Seattle. However, if you have gastrointestinal (or other) problems caused by many years of misdiagnosed or undiagnosed gluten intolerance, I'd suggest you see doctors at the Tahoma Clinic. They're very good at finding causes of symptoms, rather than just treating symptoms with drugs. There's a Tahoma Clinic South in Renton and a Tahoma Clinic North in North Seattle.

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I go to a Dr. a little further North. Dr. Robert Chaffee. My dad also sees him as does my friend and as did her mom when she was alive. He has offices in Edmonds and Mill Creek. But I see that his practise also has an office in Seattle.

http://pugetsoundgastro.com/

I have had my Endoscopies done at Swedish Edmonds by him but I don't know his exact connection to them.

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I like Virginia Mason as they did biopsies for celiac when the doc thought I had an ulcer. Who knows how much longer I would have been diagnosed (30 years is enough!).

My doc isn't very good but the doc who did my colonscopy was great. Susan McCormick at Virginia Mason. I am going to switch to her because my doc didn't think I needed to be tested for colitis in my colonscopy and the first thing Dr. McCOrmick said to me was "We're going to do some biopsies because celiacs have a higher incidence of complications including colitis." Good call (thankfully I didn't have colitis).

Good luck to you.

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    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
    • Confused
      I have not. I'll talk to my doctor about it
    • High Positive Test Results - Your thoughts please...
      With blood results like these, your husband most definitely has Celiac Disease.  The biopsy is just to check to see how much damage.  Keep in mind that even with high, high test scores like these, damage can still be patchy. Although I would be very surprised if they didn't find enough with numbers like these!  Thank goodness he was able to have a definitive diagnosis and reason for his symptoms!  Good luck!
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