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Did You Have Hair Loss From Celiac?


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24 replies to this topic

#1 Prezwilson15

 
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Posted 15 July 2011 - 04:40 AM

As I mentioned in a different post, the past several months I've lost a lot of hair. Even still this morning, there were probably 200 strands of hair that fell out between the shower and combing afterwards. Luckily, I started out with VERY thick hair so if you didn't know me, you wouldn't be able to tell.

If this continues though, people will start to notice.

So far the Doctors have tested me for a lot of things and have ruled out thyroid disease, etc. The only thing that came back up on my tests that were weird was that my iron "stores" were slightly low, a 58 (on a scale from 59-158 being normal) and my Vitamin D was slightly low. They didn't test my other vitamin levels like B, but my mom things the crack in the side of my mouth was from a B defiency.

Anyway, did anyone have hair loss from their celiac disease? If I'm putting 2 and 2 together, I seem to think my hairloss might be from (undiagnosed) gluten issues. But I don't know for sure yet. Today is only my 2nd day gluten free.

I've started on a Biotin supplement, and it's been a week and the hair loss hasn't even slowed. I took a couple of iron pills, but need to get back to that.

Any thoughts on hair loss? Did you have it? How long did it take to stop falling out and then grow back?

Thanks,
Paula
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#2 WhenDee

 
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Posted 15 July 2011 - 07:19 AM

My hair was much thinner before I found out, and grew very slowly. It's healthier now & grows pretty fast.

Also, I had vitamin D deficiency. My doctor was stumped and insisted I take a huge supplement - and said I needed to be outdoors more often. I was already outdoors for 1-2 hours per day! My body just wasn't processing it properly. I'll be tested soon & see if that has resolved itself. I never took the big supplement because I was worried what would happen if I ended up with too much of it - that can be really bad. Vitamin D doesn't just flush out of your system like other vitamins.

Are you taking any other supplements? If you're taking anything in megadoses, make sure it might not be the cause.

And have you done a gluten-free trial with a challenge to see if it is a problem? If you don't have gut problems, it might be hard because my hair didn't improve for a few months - that was just a happy side effect I noticed later.
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#3 Prezwilson15

 
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Posted 15 July 2011 - 07:41 AM

I'm doing the gluten free trial right now. I can tell you after 3 days, my stomach doesn't hurt like it did earlier in the week already.

I'm taking a "hair, skin, and nails" supplement that has 5000mg of Biotin in it. I'm hoping that helps. I just started last week. I'm also adding a Vitamin D and an iron on top of that.

I just want the hair loss to stop. At this point I don't care if it grows back right away, just stop falling out.

Paula
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#4 Diane-in-FL

 
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Posted 15 July 2011 - 11:15 AM

I'm doing the gluten free trial right now. I can tell you after 3 days, my stomach doesn't hurt like it did earlier in the week already.

I'm taking a "hair, skin, and nails" supplement that has 5000mg of Biotin in it. I'm hoping that helps. I just started last week. I'm also adding a Vitamin D and an iron on top of that.

I just want the hair loss to stop. At this point I don't care if it grows back right away, just stop falling out.

Paula



Is your supplement gluten free? You'll want to check that. My hair got thinner too. My doctor said it might take a year or more for it to be healthy again. I think it is better, but not back to "normal" yet (after about 8 months gluten-free).
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#5 IrishHeart

 
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Posted 15 July 2011 - 11:37 AM

I had massive hair loss from celiac. Really bad. I am still very thin up there and it makes me cry. (It is not my thyroid, either--as that can sometimes be the culprit.) I have read a few articles that suggest why it happens---it can be iron, folate or vitamin B deficiencies like biotin...and a deficiency of zinc and essential amino acids.

Your Mom is right! The cracks in your mouth are a B deficiency.
As your gut heals, the vitamins will absorb better and you should see a decrease in hair loss.

Everyone I ask this question of (dcotors, other celiacs) tells me the same thing---it will grow back in. I hope so. Having bald spots is embarrassing for me. :unsure:

Hope you see results soon!
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#6 Prezwilson15

 
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Posted 15 July 2011 - 11:42 AM

@Irish, how long has it been since you started going gluten free?

Has the hair stopped falling out?

Paula
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#7 IrishHeart

 
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Posted 15 July 2011 - 12:44 PM

@Irish, how long has it been since you started going gluten free?

Has the hair stopped falling out?

Paula



Paula, I have been gluten-free for 6 months. I hate to tell you this because I do not want you to be discouraged, but mine still sheds. :unsure:

But, EVERYONE is different and I have some severe vitamin/mineral deficiencies and I had undiagnosed celiac disease for MANY years, so I am going to take longer to resolve my gut issues. (remember the small intestine is over 20 feet long!)

So, you may not have the same healing time as others.

You may have resolution a lot faster! Depends on your age, too.

Most people see the hair loss cease within a few months to a year. Some take 2 years. Do not worry if it does not happen over night.
It will come back.
No worries.... okay?!...because stress will just add to the mix.
You're going to be all right! ;)
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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#8 Prezwilson15

 
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Posted 15 July 2011 - 01:08 PM

I appreciate the information. I know too that my hair could be falling out from stress. I had a really stressful couple of months so that could be the cause too.

I'm going to try this for a while and see what happens, it can't hurt, right?

I'm only 35 years old so hopefully it's not peri-menopause yet as I've been debating on trying to have another child.

I guess time will tell.

Paula
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#9 Katrala

 
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Posted 15 July 2011 - 02:18 PM

Definite hair loss for me starting when all my other problems did - about 9 months before my diagnosis with celiac. At the beginning of the summer I even noticed my scalp was sun-burned when I had my hair pulled back into a ponytail (no part.)

I've been gluten-free for 3 months now and do take vitamins (A-Z Women's, Walgreens brand with gluten-free on label) and I've noticed my hair slowly returning.

My hair began falling out a few months after other problems began and continued. It got the point where I dreaded washing/brushing my hair because I knew how much I would lose.
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#10 Brooksbelle

 
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Posted 17 July 2011 - 10:48 AM

YES! Started thinning 8 years ago after the birth of my daughter. Fortunately it was pretty thick to begin with, but I could tell a big difference. Hoping that some of it will come back now that I'm gluten-free.
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#11 aeb

 
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Posted 17 July 2011 - 07:36 PM

I have always had a lot of hair, and correspondingly loose more than most. When I started getting really sick I was loosing lots and lots, I mean shower clogging amounts. After going gluten free my hair is staying more where it belongs, on my head. However, when I get glutened my hair starts falling out a bit more. It took a while for me to notice that it wasnt falling out as much, nearly a year after going completely gluten free. Give it some time and be glad that you started with a lot of hair.
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#12 deinanthe

 
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Posted 17 July 2011 - 07:59 PM

Oh, wow yes. I lose my hair when I get into gluten, I now recognize it as one of my early warning signs that something gluten contaminated has crept into my life again. When I was finally diagnosed with celiac by my doctor, I'd been losing my hair for quite a while (among umpteen other problems which also all turned out to be from gluten). My hair started growing back soon after I pulled all the gluten out of my diet and life, and after a couple of totally gluten-free months I had crazy short tufts of hair growing all over my head from where it was finally getting a chance to grow back in! I went to see my doctor in that time, she saw my hair and said "oh, you are SO celiac". :lol:
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#13 Prezwilson15

 
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Posted 18 July 2011 - 06:30 AM

Thank you everyone!

Well between being gluten free and upping my supplements, I think the hair loss is at least slowing down. So I'm hoping that continues to a full stop.

Then it would be nice for it to start growing back. :)

Paula
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#14 acavazos2

 
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Posted 23 February 2013 - 09:51 PM



Paula, I have been gluten-free for 6 months. I hate to tell you this because I do not want you to be discouraged, but mine still sheds. unsure.gif

But, EVERYONE is different and I have some severe vitamin/mineral deficiencies and I had undiagnosed celiac disease for MANY years, so I am going to take longer to resolve my gut issues. (remember the small intestine is over 20 feet long!)

So, you may not have the same healing time as others.

You may have resolution a lot faster! Depends on your age, too.

Most people see the hair loss cease within a few months to a year. Some take 2 years. Do not worry if it does not happen over night.
It will come back.
No worries.... okay?!...because stress will just add to the mix.
You're going to be all right! wink.gif

Any hair growth improvements???


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#15 acavazos2

 
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Posted 23 February 2013 - 09:53 PM

YES! Started thinning 8 years ago after the birth of my daughter. Fortunately it was pretty thick to begin with, but I could tell a big difference. Hoping that some of it will come back now that I'm gluten-free.

Have you had luck with your hair growing back?


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