Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Spices
0

13 posts in this topic

I've been on a strict gluten free diet for 18 months now and I'm still getting sick on a regular basis.

My latest blood test came back strongly positive for Coeliac disease so it seems like the problem is that I am getting exposed to gluten somehow rather than some other food intolerance.

I am very careful about what I eat. However I do eat out a lot. So for the last few weeks I haven't eaten out at all - and I've gotten sicker.

So now i think that there must be something at home that I am eating on a regular basis that is making me sick. SO I've been going through my kitchen trying to figure out the problem.

I live in Australia where we have extremely strict food labelling laws (products labelled gluten free must test < 3ppm and wheat/barely/rye/oats must be declared on labels). So it is unlikely that products that are labelled gluten free are making me ill. I figure it must be something that is gluten free by ingredient but is contaminated during processing.

I don't eat much processed foods. But I do like to cook and I use a lot of single ingredient spices. So I went through all my spices and turned up a few packets that say in very fine print, "May contain gluten due to shared equipment".

So I rang all the major spice companies and they all process their single ingredient spices on the same equipment they use to make their seasonings (which contain wheat starch and wheaten cornflour). They all say they wash the equipment between different products but who knows how controlled that process is.

So my question is... would that be enough to make me sick or am I being paranoid? Could I be eating enough minute amounts of gluten for it to have a cumulative effect? I don't get very sick but I do feel low level crap a lot of the time and something is definitely keeping my antibodies active

0

Share this post


Link to post
Share on other sites


Ads by Google:

Depends on how sensative you are. If you think it is affecting you, remove it and go for ones that aren't on shared lines.

0

Share this post


Link to post
Share on other sites

So my question is... would that be enough to make me sick or am I being paranoid? Could I be eating enough minute amounts of gluten for it to have a cumulative effect?

If you are sensitive enough, or the gluten cc is high enough, it certainly could be an issue.

Currently, some members of my family can use spices, but I haven't found any so far that I can have without having a reaction. :(

Although I'm now growing a huge herb garden to make up for it. Works out okay, although I really miss cinnamon! :)

0

Share this post


Link to post
Share on other sites

If you are sensitive enough, or the gluten cc is high enough, it certainly could be an issue.

Currently, some members of my family can use spices, but I haven't found any so far that I can have without having a reaction. :(

Although I'm now growing a huge herb garden to make up for it. Works out okay, although I really miss cinnamon! :)

Damn! Even salt and pepper?

I never though I was super sensitive because I've never had a major reaction. But I just keep feeling bad a lot and I'm starting to think that it shouldn't take this long for my antibodies to return to normal levels.

0

Share this post


Link to post
Share on other sites

I do have a problem with spices. I even had to be careful about my salt and pepper. I have a salt which seems to be safe and for spices I grow my own. I do O.K. with carefully sourced garlic and onion. For awhile I tried getting my spices whole and washing them, then grinding, but I wasn't very successful at that, and I am so sensitive that washing often isn't enough. That might be something which you would like to try though.

I don't think that you are paranoid to consider this possibility. It is easy to test. Just leave them out for a few days. Then it may be time to search for safe spices or grow your own.

I hope you feel better soon.

0

Share this post


Link to post
Share on other sites




No, I don't think you're being paranoid.

I grow my own spices (a few basils, flat leaf parsley, chives, sage and thyme, rosemary on my front porch in a big pot). It gets eastern exposure.

The sum total of my efforts is filling whatever is left in the bottom of my coffee pot in the morning with water, and dumping it in the potted herbs, being careful to avoid watering the rosemary because rosemary likes to be dry.

Sometimes I toss more water on the basil in the summer, in the afternoon. When I get tired of having to baby the basil I make pesto without cheese. It's delicious on fish or poultry.

Can you get McCormick's seasonings? They report that they're gluten-free. I hope you feel better soon. I would have thought you were getting gluttened from eating out, never would have suspected herbs and spices. I don't know if you have any Indian grocery stores around you, but I've never felt bad from Indian spices.

0

Share this post


Link to post
Share on other sites

Damn! Even salt and pepper?

Yeah. Pepper always seemed to be a problem now. Although a lovely gal who lives in CA had access to a pepper tree, which isn't real pepper but makes berries that are used as red pepper corns. She let me have a bag of the berries. Those, totally unprocessed and untouched, I have no trouble with.

I had to drop two different salts. One was when I couldn't seem to get well and my dietician mentioned that iodized salts contain corn and could be contaminated. Changing to sea salt helped with that.

And then the salt I used, that seemed really gluten free, I had to drop after the company made a change and I suddenly started getting sick. Once I dropped the salt, my health improved again. The next day.

I couldn't say for sure what it was, but my symptoms were the same I get when I get gluten (not gut, for me) so I think it was the salt. I have a different salt now that seems to work, so I'm going with 'gluten issue' for the moment. :-)

0

Share this post


Link to post
Share on other sites

I live in Australia where we have extremely strict food labelling laws (products labelled gluten free must test < 3ppm and wheat/barely/rye/oats must be declared on labels). So it is unlikely that products that are labelled gluten free are making me ill. I figure it must be something that is gluten free by ingredient but is contaminated during processing.

When we travelled to Australia earlier this year, I was a bit shocked to find gluten free labels on some of the imported food. I noticed one manufacturer had a "wheat free" label on their product instead of the "gluten free" label that they carry on their American package, and I wondered if that was a way to avoid the "gluten free" Australia regulations. But I saw American "gluten free" label imports that are only tested to 10 PPM according to my previous calls to their facility. I recently came across this page for Coeliac Australia: http://www.coeliac.org.au/professionals/index.html , and they claim endorsement requires, "1.Tested to have gluten levels <20ppm (considered suitable as per the Codex standard for gluten)" and some other things. That testing statement seems more aligned with the imported products that I was finding when I looked in our shopping there. I was also pretty shocked at the lack of awareness in many of the restaurants that we went to. I often found the "gluten free" stuff in the same food case as gluten (and sometimes even on the same plate - thus turning a "gluten free" item into a "low gluten" one). I was shocked to find that most (maybe even all) times, there would be gluten foods on shelves OVER the "gluten free" foods. And we have also found that eating significant quantities of even really low level contamination adds up quick for us, so we have found eliminating all the processed foods to really have a positive impact on our health and wellness.

And we had to get rid of all of our spices. I have found a salt that seems safe for us using recommendations from other super sensitives. I use a pepper that I buy whole in bulk and test to as high a degree of sensitivity as possible (using the whole peppercorns, and they are coming from a GFCO certified supplier as well). We do use some other spices on occassion that we buy whole, wash extensively, dry and grind ourselves. I managed to relieve many of my lingering issues when we took the no spice/seasoning route. We do use whole herbs, garlic and ginger that we wash and process ourselves.

I hope you can get it figured out quickly!

0

Share this post


Link to post
Share on other sites

Yeah. The Australian Coeliac Society has decided to endorse products that test under 20ppm because they think our food labelling laws are too strict and dramatically limit the choice available to Coeliacs in Australia. A lot of the major gluten free brands can't be sold in Australia because they can't meet the less than 3ppm requirement.

And I agree that while Australia has a very high general awareness of gluten free and there are lots of options when you eat out.... the finer points of the diet elude most people.

0

Share this post


Link to post
Share on other sites
.

I hope you feel better soon. I would have thought you were getting gluttened from eating out, never would have suspected herbs and spices. I don't know if you have any Indian grocery stores around you, but I've never felt bad from Indian spices.

That's what I thought too. But I haven't eaten out at all for three weeks now and I've been feeling worse. So that's made me think that there must be something at home that's getting me.

I live in a completely gluten free household and I've thrown away everything (food, kitchen equipment, storage containers, etc) that were used prior to my diagnosis.

So I think whatever is getting me must be something processed that is gluten free by ingredient but made on the same equipment as gluten stuff.

0

Share this post


Link to post
Share on other sites

That's what I thought too. But I haven't eaten out at all for three weeks now and I've been feeling worse. So that's made me think that there must be something at home that's getting me.

I live in a completely gluten free household and I've thrown away everything (food, kitchen equipment, storage containers, etc) that were used prior to my diagnosis.

So I think whatever is getting me must be something processed that is gluten free by ingredient but made on the same equipment as gluten stuff.

Is your significant other gluten-free? Are they careful about kissing, hand washing, etc if they eat gluten outside of the house? for example: I have gotten sick from the car steering wheel after my husband ate fast food and then drove without washing his hands.

Any pets?

Any hobbies that could use gluten containing materials?

0

Share this post


Link to post
Share on other sites

Is your significant other gluten-free? Are they careful about kissing, hand washing, etc if they eat gluten outside of the house? for example: I have gotten sick from the car steering wheel after my husband ate fast food and then drove without washing his hands.

Any pets?

Any hobbies that could use gluten containing materials?

My girlfriend eats a bit of gluten outside the house not much because she's wheat intolerant. We are very careful about kissing if she's eaten gluten.

I've checked the cat food and kitty litter.

I do ballroom dancing so I probably occasionally dance with people who may have just eaten gluten but not on a regular basis.

0

Share this post


Link to post
Share on other sites

I had to drop two different salts. One was when I couldn't seem to get well and my dietician mentioned that iodized salts contain corn and could be contaminated. Changing to sea salt helped with that.

Wow, I never knew that. Hope you are doing better!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,636
    • Total Posts
      918,422
  • Topics

  • Posts

    • Celiac Night Vision
      Scotomas returned for the 7th year on the 24th February despite liver pâté and have varied since with 3 brief gaps. I have always had migraine, latterly occurring more than once a month, usually of basilar or retinal type with aura (but no headache) lasting less than 5 minutes. A recent bout looked like a TIA and led to a CT scan which revealed clear major vessels but old cerebellar infarcts, so maybe migraine accounts for poor memory too. The scotomas are very different from migraine eye symptoms - stationary, irregular in shape and lasting hours. I think food is excluded as the cause but seasonality, gaps, variation with wind direction and rain mean that pollen is still a possibility. Scott Adams did a marvellous thing founding this site so celiacs could enlighten each other. Please post if you have anything like these scotomas!
    • healthy bread recipe?
      Eat what you eat at lunch or dinner.  I am happy with a fried hamburger patty, fish, or chicken (I know it needs to be fresh or frozen for the histamine diet).  Yes, I eat veggies for breakfast!   Wanted to add that I was glutened in July (GI ordered follow-up antibodies testing and it was high)  and it took me 3 months to recover.  Picked up a histamine intolerance and became lactose intolerant again.  Luckily, when I healed, the histamine thing went away (or  Diminished ) and the lactose intolerance resolved.    I was getting hives, rashes and itching (not DH), vomiting, etc.  So, her intolerances may be just temorary!  
    • Could this be celiac or is it really just IBS?
      Are you sure you had the complete celiac panel?  Here are the tests:   -Tissue Transglutaminase (tTG) IgA and (tTG) IgG -Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG -EMA IgA  -total serum IgA and IgG (control test)     -endoscopic biopsy - make sure at least 6 samples are taken   VERY IMPORTANT:  Keep eating gluten daily until ALL testing is complete or the tests can be inaccurate.     (Source: NVSMOM -- 😊)   Here is more information from a reputable site (and not just info from a crazy cyclist on the Internet!):   http://www.cureceliacdisease.org/screening/   IBS, in my opinion, means "I Be Stumped!"  It is just a cop out!  So is the "stressed" thing.     I also had my GB out too.   It was a non-functioning (0% per HIDA scan), no stones, and rotting.     You seem to have many celiac disease symptoms.  Verify (obtain copies of your lab tests) to see if you got the complete panel. You might just have had the TTG IGA and TTG IGG tests.  Good for screening but it does not catch all celiacs.  My TTG tests are always negative even on follow-up testing.  The DGP test catches a positive for me.  My biopsies revealed moderate to severe damage.  If my celiac-savvy GI did not order the complete panel, my celiac disease diagnosis would never have been caught.   if celiac disease is really ruled out, research mast cell disorders.  The flushing and GI upset sound familiar!  You can have more than one thing going on!  But I would put my money on celiac disease!            
    • tightness in throat after eating gluten?
      I've noticed that if I accidentally eat gluten, for the next few days I have this tightness in my throat. It feels like my throat is closing. It's not constant, but comes and goes throughout the next 1-3 days. My hands have also been itchy. Is this a normal symptom for celiac or gluten intolerance, or could it possibly be an allergy? I haven't been tested or diagnosed with celiac or anything yet, so I'm still not entirely sure. All I know is that gluten makes me very sick.. But especially with the itchiness and tight throat.. I'm allergic to acetaminophen and my reaction is similar, so it just makes me wonder. What do you think?
    • Diagnosis and Test Results
      I am sorry that you are sick!  😔.  I think you need to find out which celiac antibody tests were given.  Often just the TTG Is ordered for initial screening.  This test catches most, but not all celiacs (like me!)   You also need to see if they gave you the igA deficency test too.   Here are the tests:   -Tissue Transglutaminase (tTG) IgA and (tTG) IgG -Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG -EMA IgA  -total serum IgA and IgG (control test)   -endoscopic biopsy - make sure at least 6 samples are taken   VERY IMPORTANT:  Keep eating gluten daily until ALL testing is complete or the tests can be inaccurate.     (Source: NVSMOM -- 😊)     http://www.cureceliacdisease.org/screening/ You can go gluten free, but knowing if you have an autoimmune disease is helpful.  celiac disease is genetic (you have the genes, but so does 30% of the population and that's why the gene test is used only to exclude celiac disease and not diagnose it).   All family members should be tested even if they are symptom free.   I hope you figure it out and I am sorry that you had such a horrible experience.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,727
    • Most Online
      1,763

    Newest Member
    Kal
    Joined