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When You First Went Gluten Free, Did You Lose Weight?
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On the contrary! I was diagnosed w/in 2 months of symptoms so there was no unexplained weight loss for me. And after I was diagnosed, I was so upset at all the food I could no longer have... I OD'd on all the foods (translate carbs) I could have and gained 40 lbs. in the first year!!

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I actually gained about 25 pounds. But they were 25 good (muscle) pounds. For years, my body was robbed of its ability to absorb the lean protein that I was consuming. That also goes for the multiple protein shakes that I was drinking.

While gaining those pounds I also was able to decrease my body fat percentage (hovers right around single digit these days).

I will admit, when the doctor first told me that I had Celiac and attached the word "disease" to it, my heart nearly stopped. But today, I feel blessed to live a gluten free lifestyle. I do NOT miss those empty wheat carbs at ALL. :)

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I will admit, when the doctor first told me that I had Celiac and attached the word "disease" to it, my heart nearly stopped. But today, I feel blessed to live a gluten free lifestyle. I do NOT miss those empty wheat carbs at ALL. :)

I was the same way! I was pretty freaked at first but now I embrace it. I pride myself on making gluten recipes gluten-free. It's like a game for me. And the fact that I feel so much better is amazing!

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I was the same way! I was pretty freaked at first but now I embrace it. I pride myself on making gluten recipes gluten-free. It's like a game for me. And the fact that I feel so much better is amazing!

I told a woman at the gym this morning that I had Celiac Disease. She said "oh... I'm SO sorry".

My reply "Don't be sorry for me, it's been nothing but smooth flying AND body building".

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I lost in the neighborhood of 35 pounds in the first two months gluten free. It was scaring my wife but I felt so much better. I was weak and skinny fat. I looked like a typical "healthy" American middle aged male before being diagnosed but I knew how weak I had become. It didn't help that I had rheumatoid arthritis as an excuse for my immobility, etc. I lost so much body fat that it revealed just what muscle mass I had left. Bottomed out in the low 130's. I was able to workout more and more as I healed and started to absorb nutrients. Contrary to what many contend here, I consume plenty of fats, including whole fat raw dairy and plenty of raw eggs. I am up to a very lean 150 pounds now and have never been stronger. The thing I noticed once I started adding fats like coconut oil and fatty meats was that I feel much younger uh.. shall we say.. hormonally. I eat a very low carb diet with a few servings of fresh fruit and a select group of non nightshade veggies and greens (turnip, mustard, collard.) I eat good sized meals every day and am finally not starving all the day long like I was at first.

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I actually stayed about the same after going gluten-free at first but did gain some lbs after a while. But my appetite changed a lot and I found I was staying at basically the same weight but eating much less food after going gluten-free. I just wasn't as hungry all the time like I Was before. I could stand to lose a few pounds now, but I never had a weight problem at all before gluten-free. I guess I Wasn't absorbing a whole lot of the nutrients I Was eating. I was kind of thin my whole life but always ate plenty of food, more than my brothers who were heavier than me. Except for my youngest brother who had Crohn's, he was even skinnier than me. Both my remaining brothers are fairly heavy now though. They are big boys. :)

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I didn't just go gluten-free - we did GAPS. I lost 20 lbs almost immediately, then stabilized. I was around 145 at 5'6 and went down to about 125. I was concerned because if I got any smaller I'd be too thin, but it seems my body was just finding a new normal. This is actually the size I was before I had kids (about 13 years ago!)

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I Wasn't absorbing a whole lot of the nutrients I Was eating.

That's the beauty of being diagnosed... your body absorbs the protein and nutrient that has been lacking. If you're trying to gain muscle and just newly diagnosed, prepare for take off!

"Houston... we DON'T have a problem!"

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Three months into the gluten-free lifestyle...I have not gained nor lost a pound. In the year before I went gluten-free, I had a lot of stomach troubles and gained about 30lbs--mostly because I didn't feel good and quit exercising. I also turned to comfort foods.

As soon as I feel comfortable with the diet (and this heat wave breaks); I'll look into resuming my active lifestyle

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This is so interesting. I have been gluten free for 1 month now and the nutritionist told me to be careful because I will probably gain weight due to absorbing more of the food I am eating. All I know is I used to run religiously and even completed 2 half marathons and was around 195-200 pounds which is very heavy for a runner since I am only 5'10. After I got a bad sinus infection in January the symptoms I always had magnified and I felt horrible all the time and didn't exercise at all. Everything I ate seemed to floor me and my weight dropped from 204 to 188 with no effort of my own. Now after being gluten free for 1 month, I feel great and my weight has gone from 188 to 179. First time since college in the 170's. I started exercising again which could explain some of that. I think it is interesting that so many people lose weight when I was told not to be surprised if I started gaining weight. 25 pounds since the first of the year, not bad considering I haven't made a conscience effort to lose.

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I've been gluten free for 6 months and I've lost 20 pounds, without exercising! So far I'm not gaining any back, either.

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I couldn't lose weight no matter what I tried before, but since juicing and eating fruits/vegetables/meat/rice I've been losing 1 pound a day. I was 5'5" and 260 when I started so I have fat to lose. I'm going this to feel better though!

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This is so interesting. I have been gluten free for 1 month now and the nutritionist told me to be careful because I will probably gain weight due to absorbing more of the food I am eating. All I know is I used to run religiously and even completed 2 half marathons and was around 195-200 pounds which is very heavy for a runner since I am only 5'10. After I got a bad sinus infection in January the symptoms I always had magnified and I felt horrible all the time and didn't exercise at all. Everything I ate seemed to floor me and my weight dropped from 204 to 188 with no effort of my own. Now after being gluten free for 1 month, I feel great and my weight has gone from 188 to 179. First time since college in the 170's. I started exercising again which could explain some of that. I think it is interesting that so many people lose weight when I was told not to be surprised if I started gaining weight. 25 pounds since the first of the year, not bad considering I haven't made a conscience effort to lose.

Just for the heck of it, you should go to a gym (or somewhere) and see if you can get your body fat tested. I wouldn't be surprise (and your shouldn't either) if you are dramatically decreasing you body fat percentage.

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Yes I did! With the help of exercise and discipline. Along with the weight, I also noticed that I haven't had migraine attack for quite a long time. I use to wake up feeling dizzy and light headed but not anymore since I started with my gluten free diet. :)

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Yes, I lost weight. I dropped 50 lbs over the course of the first year or so. The weight loss stabilized on it's own. I just stopped losing once I reached a certain weight, even though I didn't make any further changes. I've maintained for almost 2 years now. I've seen a few other comments on here from people who said that they couldn't lose weight prior to eliminating gluten and I fall into that category as well. Once gluten was eliminated, the weight seemed to fall off on it's own until my body reached a weight that it was comfortable with. My appetite also regulated itself.

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So I thought that my weight stabilized after losing 30 lbs in 3 months, but I started losing again and at 6 months have now lost 70 lbs and I'm still losing some.

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I haven't weighed...but I starting dropping immediately (I was also moving so very active). then I hit the gluten-free processed foods and was stationary. Now I'm losing again, don't have s scale but when I hit a new clothes size I'll know for sure.

I have a lot of personal training appts. Left at LA Fitness - I'm going to try to use them soon since the DH is disappearing and I can stand to get sweaty again.

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I went Gluten Free about 3 months ago and I have gained weight. I constantly feel hungry. I've heard that many have lost weight. I'm hoping that I get this under control and lose weight as well. Hang in there. That's all we can do.

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I made the mistake after my diagnosis of buying a lot of gluten free processed foods, because it was easy and I was so overwhelmed. I ended up gaining about 10 pounds the first year. It was only when I thought "healthy" instead of "gluten free" (and of course consistent exercise) that the weight started coming off. I've been gluten free five years now, I'm 46 and feel in the best shape of my life. Celiac does have its assets :)

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You are totally right gluten dude. Lots of gluten free pre-made foods are very high in sugar, carbs and fake additives to make up for the taste and lack of gluten. I'm starting the specific carbohydrate diet Oct 17th.. I'm sure I'll lose weight and feel even better on that.

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I was hoping that would be the case for me...but unfortunately I have not lost an ounce...gained about 4 pounds though. I am not 100% sure I am totally gluten-free though, I have to wait for my next blood test, since I have no symtoms!!

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I was only diagnosed 6 days ago, and have been gluten-free for...6 days! :P As soon as I was diagnosed I've had SEVERAL people tell me "this will be good for you - you'll gain weight!". Problem is...I'm terrified of gaining weight. Right now my BMI is 19.6, and I have actually gained 8 pounds over the summer because I got so sick I wasn't able to work out anymore. So right now I'm at the maximum weight I would want to be. I really really really hope I don't gain....

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Went gluten-free in July and have dropped nearly 20 lbs--before that I had been steadily gaining weight because I was so sick and wasn't active at all. I think I have gained muscle mass as well because I'm able to do yoga again and move around a bit. I am worried about falling underweight now though--I'm always starving, and I can't eat much because I have hypo and a nightshade intolerance, too. Pretty limiting. I think the weight loss is partially just from those restrictions, I can't just grab a snack off the shelf or drive through McDonald's. But I've wondered whether it is also related to some other changes in my body (absorption, reduced swelling, etc). The reduction in abdominal swelling was the first thing I noticed, I dropped a full pant size in a very short period of time, but I'm also losing weight and dropped almost another full pant size since then. I feel like a skeleton!

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I haven't eaten gluten/wheat for 6 weeks now. I dropped 8 lbs. before I went gluten free because I was sick. The sickness is what prompted me to go gluten free. I expected to gain the 8 lbs. back once I was no longer sick, but the sickness stayed away and so did the pounds. It is my best guess that I would have lost them on the gluten free diet had I not lost them due to sickness first. I am glad to lose those pounds because I had gained them in the past year. That being said, I don't have many other extra pounds to lose (maybe 5 or so). If I lose more than that I will be concerned.

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    • I get these crazy cravings for some things I can not eat anymore. Not only am I diagnosed with celiac but I also have a allergy to corn, olives, sesame, peanuts, and intolerance to yeast, soy, dairy, and a very low tolerance for carbs/sugars, Top it off with I can not digest meats or egg yolks, they just give me the burps and come up later.
        To deal with these I find myself turning to Republic of Teas (They have a great desert tea line up all certified gluten-free) and sweetening them with monk fruit extract, or stevia. And I find myself making Puddings bases that I use for shakes, dips, and ice-cream for meals. The puddings are normally a blend of cashew, or almond milk with a thickening agent like agar agar, pectin, or knoxx gelatin, blended with a sweetener like xylitol, swerve, stevia, monk fruit or a combination. And flavored with Lor Ann Oils (all gluten-free certified and you can find the kosher ones listed as such) super strength flavors or fountain syrups to match something I can not eat normally a combination of two flavors (Strawberry Cheesecake, Banana and Carmel, Cookies & Cream, etc) Then I add a fat that matches best, like almond butter, cashew butter, hemp butter, ground flax seed, coconut flour, chocolate, Pumpkin seed butter or a combination) These bases are normally blended up and consumed with 1-2 scoops of protein powder and eaten with steamed vegges as a side dip or loaded into a ice cream maker for a desert after my meals.      Also found myself making desert soups....like a pumpkin soup that taste like pumpkin pie. I am sure we all have our little quirks but this is one of mine for getting that sweet craving taken care of. Most premade items are off my list due to the allergies and it seems most companies use the oils, starches I am allergic to as non stick or thickening agents, Even the semi safe ones tend to put way to much sugars in them and I find myself only being able to nibble . There is also my little binge issues with almonds, pumpkin seeds, and, cocoa but that was explained to me as normal And on my most craving for peanuts I have found sancha inchi powder to work great, The Powder itself taste like the girl scout peanut butter cookie sandwich from my childhood, And is great mixed with a bit of almond milk into a butter or used in baking and smoothies. Before this I have been making Artisan blends of almond butter for years and even made a market selling them to pay  for my own consumption. Baked goods wise I have a bunch of recipes I make for others and sell at markets and this allows me to nibble on a sample to check it, as most contain a bean or gluten-free Harvest Oats/Flour in them and the carbs from that and the coconut sugars bother me. Still helps with cravings there, I only have 2 recipes that sell good and are safe for me to eat full servings of but are so expensive as they use almond and coconut flours, low sugars/xylitol and are paleo that I only can afford to make them once a month. Posting to hear about some odd and out there ways others deal with substitutions and cravings. Please do not bash mine as odd as they might be as they keep me from going crazy. (Yes I know DROP THE OATS, fact is I only get them when tasting stuff and they are gluten-free Harvest, the only ones I have never gotten glutend with)  
    • After suffering pretty much all year with one illness after another I've finally managed to get a diagnosis and it turns out to be celiac. After my doctors consistently failing to even consider the possibility it might be that (as opposed to "IBS" or "stress") I kept pushing for the Iga TTg test and it was off the charts with a score of >128... may as well fail it in style I guess. So here I am at the start of what feels like the end of my life as I know it. Been doing nothing but reading for the past week and frankly it's terrifying. Here's a few things that are going round in my head and I'd really appreciate your thoughts with. Apologies if it's a bit of an essay  Diagnosis I'm still furious at my doctors for not even entertaining the thought that celiac could be the root cause of all my ills. Given the blood test is so simple it feels almost negligent that they don't run this right at the start to rule it out. Instead I got subjected to poisons like Omeprazole which made me even more ill, whilst being told the physical symptoms were all in my head. Just as well I knew better and kept hitting up Google until my self-diagnosis was proved correct... to think these people get paid highly to be so incompetent makes my blood boil. Does feel good having outwitted the so-called professionals though. Seems 9 months is comparatively quick from symptoms to diagnosis compared to some others that have gone years with the problems so could be worse I guess. Food and diet I'm male vegetarian (non-negotiable) which makes this even harder as so many of my protein sources are now ruled out. Seems many with celiac were having trouble losing weight whereas I'm in the opposite situation. Already lost best part of a stone in the past few weeks and it's becoming noticeable now. The MyFitnessPal app reckons I need 2600 calories a day to maintain \ gain weight - no idea where that's going to come from. On top of that I read sites like Gluten Dude where even the Gluten Free foods are seen as poisons and going on extreme diets like Paleo \ SCD are the only real way forward. Again being veggie makes that practically impossible and if I'm unlucky enough to end up with the dairy issues as well I'm well and truly stuffed. Right now I'm trying the gluten-free Quorn products to see how I go, as well as more eggs etc. Porridge has been my go-to breakfast in the mornings for a while after I cut out bread whilst self-diagnosing but depending on where you read even that's a potential problem (currently using gluten-free porridge oats and seeing how it goes) Seems many gluten-free people have to go right back to basics and cook everything from scratch. That's a problem for me as I'm utterly hopeless on that front and time doesn't permit waiting hours just to prepare one meal. Seems nigh-on impossible to do day-in, day-out. Health Rightly or wrongly right now I see this diagnosis as a death sentence long-term. Looks like it brings other associated illnesses with it and this particular article really scares me: http://scdlifestyle.com/2012/03/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/ I've only really had noticeable symptoms for the past year or so but wonder how long this has been going on for and what damage has already been done. All seems to have started from when I turned 30 (knew I was dreading that age for a reason) and right now I wonder how long I'm going to last before the really bad stuff starts. One of the other illnesses I'd considered as a possibility before getting diagnosed was Hashimoto's Thyroiditis; now it seems that's closely linked with Celiac so may not be out of the woods with that yet either. Just seems to be one big list of illness all triggered from the same point One positive change I've noticed thus far since cutting out gluten is that bloating seems to have gone down and bowel movements are better. Still getting headaches and muscle twitching, which could be as much a withdrawal symptom from gluten as anything else.  Some sites were suggesting stopping exercise whilst withdrawing but I can't face that as it's the only thing keeping me going at present. Again will keep going as-was and see what happens. Then to top it off it sounds like the next step is the biopsy - I'm scared of being put out for the procedure as a member of family went into hospital a few years back for something supposedly routine and never came back out. From what I've been told it's important to have done though as it shows just how broken the villi are so another thing to worry about in the meantime. Social life Seems like despite there being some gluten free options in certain restaurants (granted better now than years ago) I'm going to be hugely limited in food options. Either sitting on the side looking on or just plain not able to go out much anymore. Already had the first hitting-home moment watching colleagues eating pastries that were brought in while I just have to look on... then it dawns that this is never going to get better... urghhh Family life I'm really struggling to accept this lifelong illness and loss of health and it's taking a toll on the people around me at the moment. They won't be going gluten-free so will have to take my chances with the mixed kitchen environment; already gone with split toasters etc. so can't do much more than that. Dating Basically seems game over on that front, unlike many who are diagnosed with understanding partners \ spouses I'm still in the dating game, which is judgemental enough as it is without all the complications that the gluten issues bring. I'm reading even kissing someone with lipstick \ make-up is apparently a big no-no... once any date hears that they won't be coming back... forever alone status confirmed is how it looks right now. Overall feelings I still can't quite figure out if this illness was in me all along and just hasn't flared up enough to notice until now or whether the extreme stress I've been under for the past year or so has triggered it. If the second scenario is correct I can't stop thinking about the events that all led up to this almost year-long bout of ill health and life-changing diagnosis. Can celiac be brought on by stress alone or realistically was I always a ticking timebomb just waiting to be set off? For every person I see that's had a positive change after cutting out gluten (and getting by with reasonably achievable adjustments) there seems to be 10 others with horrible side-effects and long-term complications. Right now the future feels rather bleak - like all hope just been taken away. Help???
    • It sounds like you're doing great. That's amazing that your anxiety has decreased like that. You're obviously doing something really good for your health. With the other things I'm sure they will get better in time. After I gave up gluten I had a bad year but overall it got better. Things like anxiety and insomnia massively improved over time with being gluten free. However, going Paleo (which you are on your way to with the no dairy too) really helped my anxiety, as did running and self-taught acupressure. In particular I found processed gluten free foods were awful for my mood. I know you have to find your own way but I really want to encourage you to see how you feel without that if you haven't already. I also can't afford therapy but when I did have it, that helped too but just being well, gives you the chance to sort your own thoughts and feelings out even without a therapist. Good luck
    • Thank you so much guys. Reading that last response and those from forum members who seemed to be mind-bogglingly sensitive to gluten at times helps me feel like less of a freak  Perhaps worse than the symptoms themselves was my fear that I'm the only person on earth who has gone through this and that if it continues, I will end up with all of my friends and family washing their hands of me because it would look to them like I'm the only one with this and so I must be crazy. It's really good to hear that the sensitivity can go down too. I've been holding onto this idea through the tough times, reminding myself that I also had really bad hayfever for a few years, and asthma at a different time and they both got better.  It has been a whole month since I had a bad reaction to gluten. It has also been two weeks since I even had a small reaction and I'm feeling SO much better. I'm still going to take every precaution I can but this feels worlds away from how it was. At my most risk averse, I had a day on holiday where I only ate bananas and avocados because I could eat them without them having been touched by human hands, even my own! (This was straight after getting sicker and sicker and hunting down what it was that made me ill. I found the refill bottles of soap in the house where I was staying and read that they had wheat in them - not an airborne reaction I imagine but when I washed my hands to prepare food it was probably contaminating my food. Plus because I didn't speak the language, I couldn't be sure the new soap I bought was gluten free.) Now, I am still avoiding environments with lots of gluten and staying clear of grains, but I have reintroduced rice using the food challenge method as directed by my dietician (since I understand that rice is, according to Dr Fasano, the lowest risk of gluten contamination of all the grains) and I am building my weight back up. My Paleo+Fasano diet has been assessed by a registered dietician to include every nutrient and micronutrient that I need so I guess having a really good diet is helping too. My husband has been able to see also that the last time he cooked gluten in the house was the last time I got ill. So it is reassuring for him to see that the sacrifice he is making is making such a difference to me. I also took the advice about new cooking utensils - thanks! I have my fingers crossed for me. I want this better health to continue but right now I'm happy to know that there is a break in the clouds and to know that I can feel like me again. A lot of the steps I have taken to avoid gluten would be seen by some as over the top but I can say that for me, when I introduced these steps, that's when I stopped getting reactions and it's all worth it. Good luck to everyone, sensitive or not, who gets into a bad place with managing their reactions. Hang on in there!        
    • Hello all  I have been living gluten free now for 6 months, as directed by my family doctor after a 6 week elimination diet revealed that I may be celiac or gluten sensitive. I was tested by blood work,  which showed nothing, and am awaiting a specialist to get a biopsy done. I am no where close to getting into see her as it is cased as a non emergency. I have been constantly having bowel problems, rashes all over my body, low iron, weight fluctuations, no energy, depression  and anxiety now for 6 years. Have been a huge nuisance(imo) to my doctor requiring constant antibiotics for this,  creams for this "mystery rash" and either laxatives for constipation that would sometimes go on for over a week to diarrhea that would keep my home- no in between . It hasn't been easy, especially whenever doctors are so quick to blame all symptoms as mental illness. Even though I have continuously told them I feel my issues are something simple...  not a mental illness. Anyways long story short, after going gluten free I have had somewhat Nnormal bowel functions, less rashes around my stomach, been able to cut back drastically on my depression medications and anxiety meds, and energy has taken a huge improvement  which all is great! But .... I am constantly HUngry have gained 20 lbs and can no longer fit into most of my clothes. This is really bothering me because I am afraid I am approaching a weight problem.  At only 5'5" weighing 165lbs is large to begin with. Especially whenever I have two children and have only EVER weighed this much while being pregnant with them. I am 26 years old and just tired of not being myself. I am physically healthy and just would like my body to act it. Any help would be greatly appreciated, as I said I am only 6 months into my journey and have definitely re exposed myself to gluten (accidently) many times in between. Much love. 
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