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Got Glutened... Prolonged Symptoms?
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Hey all,

I'm not entirely sure if this is the right place to put this post, but its symptom related so I took my best guess :P

I've been confirmed Coeliac since right before Christmas last year, and am beginning to get used to the whole gluten free thing.

My gluten symptom is usually diarhhoea. It tends to hit a few hours after I've made a lapse in gluten-free eating judgement, and be over in a matter of hours (once I get some gastro-stop into me, anyway :P)

However, I copped a gluten hit last Sunday night (unfortunately causing me to be unable to attend a musical I bought tickets for... frustrating!). Since then, I've been on and off with the D, and quite gassy.

This isn't a usual thing for me, so as you are all more experienced at this than I am, I ask of you: Is this a normal kind of thing? Or is it likely that there's something else at work here?

Slight extra info: I do NOT have any other known food allergies - the test I took for Coeliac also checked for lactose intolerance and I came up clear on that. As for nutrient deficiencies, none have been noticed in the few blood tests / checkups I've had since diagnosis, although I'm up for another (and likely another gastroscopy) in a couple of months time.

Thanks in advance for your advice!

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That is typical for me. Depending on the severity of the glutening, I have symptoms lasting up to a week or so. The minimum is about 3 days.

But since that's not typical for you, a few things could be happening. Your body might be adjusting to gluten differently now. My responses changed quite a bit over the first year. Also, as you heal, you might notice the effects more and stuff you would have brushed off before might be things you notice now.

You might be continuing to eat something with gluten in it, especially something with low-level cross contamination. You should check anything you introduced in the last week or so.

And of course, if diarrhea is your main symptoms, it could just be a bug and not celiac related.

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Oh right... wrong Sunday... I forgot what day it was :P

Its been about a week and a half. It's starting to come under control now (not quite D anymore, but still consistent bathroom runs happening more often than normal)

I also somehow forgot to point out that I take Slippery Elm Root capsules consistently as a digestive aid. I've found it generally helps greatly with my Coeliac symptoms - particularly early on when gluten or no I just couldn't stop being sick >_>

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    • I eat them with no issues and know several other Celiacs that eat them with no issue.
    • I am sorry that you are sick! i think you need to really adhere to a gluten free diet that consists of ONLY whole foods (no processed gluten-free foods) and do not go out to eat, until you start to see improvement.  Each tiny gluten exposure can set you back.  It sounds like you really became even more ill after the gluten challenge.   I was just anemic when diagnosed.  I waited seven weeks for my endoscopy due to work issues, so i took the time to consume lots of gluten.  Like a loaf of sourdough per day not to mention all the cakes, cookies that I loved.  (Okay, I just ate a few out of each package......)  by the end of seven weeks, I knew I had celiac disease.  I had a bloated stomach visible under my left rib cage, pinching when I bent over, indigestion, etc.  Not to mention some weird Fibro pain my my shoulders, tingly legs, etc.   Most resolved, but it took about two years. If you  ask for thyroid panel, be sure it includes testing for thyroid antibodies.   
    • My daughter, who is almost 21 and has celiac disease, was diagnosed with Epilepsy a year ago. Hindsight being 20/20, we realized she had been having seizure since she was a teenager but the random passing out and feelings of being 'out of it' were attributed to dehydration or poor nutrition and sleep habits during numerous trips to the emergency room. In our reading about Epilepsy, I have found some mention of celiac and gluten issue connections and even where a strict adherence to a gluten-free diet provided a lot of improve the with frequency and severity of seizures.  I would be interested to know if anyone else shares this experience.
    • I have also reacted to various Planters products, believing them to be safe because gluten is not listed in the allergens but have had almost identical reactions to yours.  It did not occur to me that I might be getting zapped from them until just recently when I ate some of their Salt and Vinegar almonds and became really ill and then recognized that I had reacted to them before. I have notice in the past few months that the 'Hermans' brand nuts, which have never mentioned wheat in their allergens now carries the 'processed in a plant that processes wheat' disclaimer.  It makes me wonder if all nuts are processed in the same manner and if all nuts and nut products should be considered unsafe? I know that I will not trust the Planters brand any longer regardless of whether wheat is listed or not.
    • I've heard some people say that they're gluten free, and some say they're not.. I had a container of planter's cashews that I ate a few days ago and I haven't been feeling that great since then. I thought I was fine, but yesterday I woke up with a headache and was feeling really gassy all day. Then since last night, every once in a while I'll have some stomach cramps. They last for a few minutes and then go away.. that has happened 3 or 4 times since last night. It seems weird that I wouldn't have a reaction right away though.. or at least within a few hours of eating them. I ate some on thursday and on friday, and I didn't really start to feel sick until saturday. It's been a while since I last got glutened though, so maybe my reaction has changed? Or maybe I'm being paranoid and I just ate too many cashews haha. But that's the only thing I've eaten in the past like 2 weeks that was different. Has anyone else had a problem with planter's nuts?
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