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Anyone From Tennessee
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I live north of Memphis. Just seeing if anyone is around this area or close by.

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I'm about 70 miles from Knoxville. I'm just south of Johnson City appx. 40 minutes.

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I live in Johnson City, TN. My physician just told me that my Celiac Panel was abnormal and that I had Celiac's Disease. Now, what do I do?.......Tom

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I live in Johnson City, TN. My physician just told me that my Celiac Panel was abnormal and that I had Celiac's Disease. Now, what do I do?.......Tom

Hi Tom. It sounds like you are a bit overwhelmed. I'm in Greeneville and you'd be suprised, for the area, how many options/products/stores are available. Just where I live I have access to two health food stores, two mennonite stores, and can find speciality products at Food City and Ingals. I also make trips up to JC to Earthfare. There also is another little health food store in the same shopping center as PetSmart (I don't know the actual shopping center name. I think it is off of State of Franklin.) I have also heard there are a lot of options at Kroger but I haven't been there. There was a speciality place in Kingsport that I went to a few times when I was commuting. I'll have to get back to you on the name of the place. I have sucessfully eaten at Mello Mushroom. I was really suprised at how good their gluten free pizza was.

Curious, did your doctor diagnose you based on your blood work only? Is your doctor recommending a scope? Some doctors will diagnose based on blood work alone. Rarely there is false positives, but a lot of false negatives. If you are going to have a scope/biopsy done however, stay eating a regular diet until it is over. Also it is recommended that all first degree relatives get screened for celiac (parents, siblings, children) because their risk increases from 1 in 133 to 1 in 22 having a first degree relative diagnosed.

I would start by eating things that are naturally gluten free like fresh meats, veggies and fruit. Dairy is fine unless you are having issues with it. Do you live alone or live with someone, ie roomates, wife, kids..? If you do are you going to maintain a shared house or take the whole house gluten free? Here is what I did when I was first diagosed:

-Went through the pantry/fridge and got rid of anything I couldn't eat and that the other "gluten eaters" didn't want and donated what I could to the local food bank. I dedicated a drawer in the fridge and the top shelf of the pantry for gluten foods the rest being for gluten free. I scrubbed the kitchen down and all but one small section of the counter was gluten free. I set up my husband's toaster on the small section for him and he could make his gluten sandwiches etc.

-I replaced or bought another of: toaster, wooden spoons/cutting boards, waffle iron, scratched/worn pots & plastic storage containers, pasta strainer. I kept some of the worn pots for hubby to use for gluten things.

-I rid the entire house of any regular flour. There was to much risk since it can stay airborn for awhile and then settle down on the counters. Any baking was done gluten free and if the gluten eaters wanted something I couldn't/wouldn't make, they went to the bakery.

-All shared meals were gluten free. I had no interest in cooking separate meals. The gluten eaters had their cereal and had luch at work/school. Any gluten products had to be consumed at the table on a plate and the kids/hubby had to wash afterwords so they wouldn't cross contaminate surfaces in the house.

-Let gluten eaters finish up any condiments etc that may have been contaminated and replace with new for everyone to share. They don't cross contaminate because I either bought squeeze bottles or they scoop out of the containers what they want and never double dip. We share things like cheese and lunchmeat. My husband will have clean hands and take out what he wants and put it away before touching his bread.

-replaced any baking items/spices/herbs that may have been contaminated with flour (yeah the double dipping thing, I was guilty before)

-checked all my personal care items and made sure they were gluten free. If you have a girlfriend and she is not gluten free, she will need at least gluten free lip balm and lipstick incase you kiss. Your partner, if not gluten free, will need to brush teeth before kissing too.

I know it seems overwhelming at first, mistakes will happen, but it does get easier. I wish when I had gone gluten free I had someone to help me set things up. It would have been so much easier. If you have any questions or if I can help you with anything you can PM me.

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Hey, Thanks for the reply. I was having concerns of low Testosterone (mine was 75 instead of in the normal range of 300), but I wasn't having low testosterone symptoms, plus I have been on Testosterone injections for the past 2 years, but they were not working at all. I requested to see an Endocrinologist. When I finally had my appointment (about 3 months) and after a thorough exam and blood work, my Endocrinologist called me yesterday to let me know that most of the blood work came back okay, but my Celiac Panel was abnormal. The Endocrinologist explained different symptoms, including low testosterone. After hearing and reading about Celiac Disease, I remember always having some issue areas but physicians couldn't explain. I had scopes done years ago looking for something because at some points I would have unexplained bleeding, but the scopes came back normal. My endocrinologist told me to be Gluten free for a couple of months and he will re-check my testosterone levels and blood work.

Thanks again for the information and encouragement! :)

The Adventure begins.........

Hi Tom. It sounds like you are a bit overwhelmed. I'm in Greeneville and you'd be suprised, for the area, how many options/products/stores are available. Just where I live I have access to two health food stores, two mennonite stores, and can find speciality products at Food City and Ingals. I also make trips up to JC to Earthfare. There also is another little health food store in the same shopping center as PetSmart (I don't know the actual shopping center name. I think it is off of State of Franklin.) I have also heard there are a lot of options at Kroger but I haven't been there. There was a speciality place in Kingsport that I went to a few times when I was commuting. I'll have to get back to you on the name of the place. I have sucessfully eaten at Mello Mushroom. I was really suprised at how good their gluten free pizza was.

Curious, did your doctor diagnose you based on your blood work only? Is your doctor recommending a scope? Some doctors will diagnose based on blood work alone. Rarely there is false positives, but a lot of false negatives. If you are going to have a scope/biopsy done however, stay eating a regular diet until it is over. Also it is recommended that all first degree relatives get screened for celiac (parents, siblings, children) because their risk increases from 1 in 133 to 1 in 22 having a first degree relative diagnosed.

I would start by eating things that are naturally gluten free like fresh meats, veggies and fruit. Dairy is fine unless you are having issues with it. Do you live alone or live with someone, ie roomates, wife, kids..? If you do are you going to maintain a shared house or take the whole house gluten free? Here is what I did when I was first diagosed:

-Went through the pantry/fridge and got rid of anything I couldn't eat and that the other "gluten eaters" didn't want and donated what I could to the local food bank. I dedicated a drawer in the fridge and the top shelf of the pantry for gluten foods the rest being for gluten free. I scrubbed the kitchen down and all but one small section of the counter was gluten free. I set up my husband's toaster on the small section for him and he could make his gluten sandwiches etc.

-I replaced or bought another of: toaster, wooden spoons/cutting boards, waffle iron, scratched/worn pots & plastic storage containers, pasta strainer. I kept some of the worn pots for hubby to use for gluten things.

-I rid the entire house of any regular flour. There was to much risk since it can stay airborn for awhile and then settle down on the counters. Any baking was done gluten free and if the gluten eaters wanted something I couldn't/wouldn't make, they went to the bakery.

-All shared meals were gluten free. I had no interest in cooking separate meals. The gluten eaters had their cereal and had luch at work/school. Any gluten products had to be consumed at the table on a plate and the kids/hubby had to wash afterwords so they wouldn't cross contaminate surfaces in the house.

-Let gluten eaters finish up any condiments etc that may have been contaminated and replace with new for everyone to share. They don't cross contaminate because I either bought squeeze bottles or they scoop out of the containers what they want and never double dip. We share things like cheese and lunchmeat. My husband will have clean hands and take out what he wants and put it away before touching his bread.

-replaced any baking items/spices/herbs that may have been contaminated with flour (yeah the double dipping thing, I was guilty before)

-checked all my personal care items and made sure they were gluten free. If you have a girlfriend and she is not gluten free, she will need at least gluten free lip balm and lipstick incase you kiss. Your partner, if not gluten free, will need to brush teeth before kissing too.

I know it seems overwhelming at first, mistakes will happen, but it does get easier. I wish when I had gone gluten free I had someone to help me set things up. It would have been so much easier. If you have any questions or if I can help you with anything you can PM me.

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I'm in Memphis, so I'm close to you Samie.

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I am right outside Nashville

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Samie,

Do you go to the support group meetings? I think they're on the 3rd Tuesday at Whole Foods? I haven't been to one yet and was just curious.

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no i haven't i have been thinking about going but just have not been able to go. i probaly will soon got to get another car first

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For my Memphis friends,

Huey's is now serving a gluten-free burger. It's comes on a "lettuce bun." It's wonderful. Tastes just like a regular Huey Burger. Unfortunately their fries aren't cooked in a dedicated fryer, so they're off limits. But at least we can eat their burgers.

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I am still looking for people in the Johnson City, TN area. I would like to get a group going in this area.

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I am still looking for people in the Johnson City, TN area. I would like to get a group going in this area.

What did you find out at Earth Fare? I might be intestered if more people show an interest. I'll have to see what I can dig up.

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I am still looking for people in the Johnson City, TN area. I would like to get a group going in this area.

my daughter (goes to school at ETSU) works at the ruby tuesday up there. she will feed you safely! she recently served a group that had celiac people and they were thrilled that she knew how to keep their food 'good to eat' - she was excited to call and tell me about it :)

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Okay, Great!

Thank you

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What did you find out at Earth Fare? I might be intestered if more people show an interest. I'll have to see what I can dig up.

I asked at the Customer Service area, but they did not have any information about Celiac Groups or Gluten Free Groups. The management people that I spoke with were not very friendly nor helpful.

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I live in Murfreesboro, TN. There are Celiac support group meetings as Whole Foods? As in Cool Springs?

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hello. im from mount carmel and would be interested in support group. i am gluten free now for almost a year and have enormous improvement in digestive health. im neg for blood work and biopsy but was gluten free prior to each.i was pos stool for gluten sens.the diet is tough but so worth it. so thankful God revealed to me to do this.apartfrom accidental ingestions im healthier than i have been in 25 years. would love to share recipes or eating out options locally and even physician suggestions.my md is not convinced because of the neg tests.the stool test was suggested by my dietician who helped me more in 3sessions than docs in 25 yrs.

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    • Advil (ibuprofen) is gluten-free, but can be a stomach irritant, especially if taken on an empty stomach. That said, I will also place my bet on the garlic and onions. As Raven said, eating more than once a day may also help. An empty stomach is likely to be an irritable stomach.
    • Another link: http://naldc.nal.usda.gov/download/7351/PDF
    • Thanks for posting.  I know it is difficult to talk about these sorts of things even on a webforum.  It is good thing for people to be aware though about celiac disease and that it can cause mental problems.  Gluten can cause brain damage and it can cause anxiety. If the brain does heal it may take a long time. I know that gluten can cause anxiety and obsessive thoughts.  My experience has been similar to your experience. When I first quit eating gluten I had a similar constant loop and strong negative feelings. There are lots of people on this forum who get anxiety when they eat gluten. Some people also experience gluten withdrawl where they experience anxiety after giving up gluten. It can take a long time for the body to heal and for obsessive thoughts to go away.
       It is normal for people to socialize with each other and to be comfortable about it. You said you have problems still socializing and being around people. It might be a depressing thought but it sounds to me like you still have problems with anxiety.  I would recommend considering what options you have available to treat the anxiety. When I quit eating Gluten I still had some symptoms, even though I felt much better. I have been slowly recovering over a period of about three years. I had obsessive thoughts even after I quit eating gluten.  Now I very rarely if at all think about those things. My experience is that my mind would latch on to certain things that caused me anxiety and focus on those things. Sometimes my focus would shift and I would latch onto other things. My ability to socialize has also improved greatly with time. I have made some dietary changes which I believe have helped greatly. It sounds to me like you have obsessive thoughts about things and maybe some brain damage. My experience has been that my obsessive thoughts about different things went away with time. I feel my obsessive thoughts were caused by gluten and not by what people did around me or any events. As my brain healed I became more self aware and things became less stressful.  I can't give medical advice on this forum but I can talk about my current diet and my experience with celiac disease. My experience with gluten is different from a lot of other people so it is a good idea to ask other people and to talk to a doctor.  I avoid oats and avoid almost all processed foods. I buy certified gluten free food. I eat healthy and I exercise every day. I take st John's Wort as I have read studies that say it may be as effective as some other anti-depressants for treating certain types of anxiety. It is available over the counter. I started with a small dosage and then stepped it up over time. I think it helps a lot.  This is also something that you should talk to a doctor about first. https://www.researchgate.net/profile/Martin_Mahoney2/publication/7426926_St._John's_wort/links/540d8acc0cf2f2b29a386673.pdf A lot of people with celiac disease have vitamin deficiencies.  Vitamin b deficiency can cause anxiety. Some people do not process the synthetic form of vitamin b (from normal pills)  very well, and do better on an activated form of vitamin b. I take:
      1 activated vitamin b12 daily
      1 activated vitamin b6 every once in a while. 1 regular vitamin b multivitamin
      1 magnesium pill every day.
      St Johns Wort daily.
      1 zinc vitamin daily
      I drink lots of Chamomile tea and decaf coffee. I avoid most caffeine. 
      I think each of these helps lower my anxiety level.  I eat fruit with every meal. Canned fruit from walmart is cheap and good for you. I eat salad and and vegetables and avoid dairy.  I eat frozen fish often as it has healthy proteins. Eating healthy is very important. I eat potatoes and rice. http://www.livestrong.com/article/454179-what-is-methyl-b12/ I avoid eating soy sauce, soy, cheese, aged meats and fermented foods (I do drink certain types of alcohol in moderate amounts.) These foods contain lots of Tyramine. I might (or might not) have "monoaine oxidase deficiency" and if so high Tyramine foods should be avoided.  I thought I might have problems with elevated ammonia in my blood, but I am not convinced of that anymore. I limited my consumption of meat for a while as well as dairy but I am not sure if i helped.  I have heard that Celiac disease can effect other organs besides the brain and those organs can have an effect on the brain.  My current diet is working so I am going to stick with it for now. I try not to worry about things that are outside of my control. Be patient as it took me a long time to recover.  Let me know if you have any questions. There is a lot of information on this site and people who are willing to help.
       
    • Thank you. This is really helpful. I will call around next week.  I just want to heal! 
    • My endoscopy showed i had decreased folds in my duodenum. The biopsy came back and showed that my villi were fine... i have been on a gluten free diet for 6 years because i was just told i was intolerant but never had any testing before. when i eat gluten i get sick for 2 weeks. i came down with issues of other foods in march so they were trying to figure out why and wanted to know if i had celiac are not because that would explain why dairy and fructose are a problem.. both intolerant test for both were negative but the fructose test made me extremely sick but it was negative...      Im trying to figure out why i have decreased  folds in the first place. my Gi doctor is stumped on that to why the endoscopy would show damage but the under the microscope are fine. She is going to call the dr who did my scope and then is supposed to get back to  me..    would being gluten free for 6 year make it so there was damage and then my vili are now fine but still cant be seen in the endoscope?
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