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I am very new to all of this, so please bear with me. I have been having stomach problems since my 10th grade year in high school, and I am now completing my sophomore year of college so it has been 4 years now of fairly consistent acid reflux, coming about mostly at bedtime. In the years since coming to college it has gotten progressively worse, along with more occurrences of severe gas, sometimes in the stomach, sometimes lower down the tract and sometimes everywhere. First my doctor told me to use zantac, and when that had no affect he told me to use prevacid. Still no result. I made an appointment with another doctor, which led to an endoscopy on saturday. The test showed that i had an enflamed esophagus, but no other symptoms. I am still waiting for the results of blood tests. Anyway, for all this time that i've been having what i thought was acid reflux i've been cutting out more and more meat and dairy out of my diet and replacing it with breads and pastas. After my endoscopy the doctor told me that its likely to either be Crohn's disease or Celiac Sprue. After my endoscopy i ate gluten free for the rest of the day and woke up the next morning with no heartburn. Same thing last night - i ate a big helping of rice noocles with red sauce tuna brocolli and mushrooms at 7 and went to bed at 10 - no heartburn. The last 6 months i had been stopping my food consumption at 5 and still suffering through the night even if i stayed upright until 12. Obviously i have been extatic about not having hearburn, but I am wondering 1. what i have done to myself in my unknowing gluten-gluttany, and 2. is this likely to be celiac sprue or just gluten intolerance, and 3. are they the same?


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    • I have to tell you that, about 3 years ago, I went to the International Celiac Disease Symposium.  The coffee cross-reactive myth was discussed as we were all consuming vast quantities of Starbucks coffee provided by the Sheraton.  Needless to say, it was good for a laugh.    
    • Yeah, I looked for real scientific studies on gluten cross activity and couldn't find any. I did read something about barely being found in instant coffee--so who knows.
    • Gluten Cross-reactive foods is some sort of odd internet myth.  It started with a company that wanted to sell bogus medical tests.  They have even admitted that the coffee thing isn't true - they used gluten contaminated instant coffee.  However, you have to look at the small print in a lot of nonsense in a large binder of stuff to find that fact.  I did it with one of their company reps.. anyway....   If coffee bothers you, it may just be that it is hard on your system.  Maybe you can get it back after some healing.  And it doesn't sound like you had much protein that week.   edit - just looked at the ingredients- that isn't just coffee - who knows what part of it bothered you?  ingredients on GMO Dark Roast Coffee, Chlorogenic Acid, Garcinia Cambogia 95%,Phaseolamin, Cassiolamine Green Tea 100:1 Extract, Ginseng 100:1 Extract, L-Carnitine with Chromium.
    • Thanks for pointing that out. I just learned about things that are cross reactive with gluten--that have a similar protein structure and the body reacts as if it is a gluten protein: the list of cross reactors includes: Eggs, coffee most other grains corn, potato, rice, yeast, chocolate coffee, corn, butter soy, eggplant, bell pepper and chili pepper and tomatoes. Son of a !!!! This explains a lot. I would be faithfully gluten-free and still have DH flare ups when I certain things. So I just ate sprouted rice with beans, fruit and oolong tea--and I was fine. Then last week I tried this weight loss coffee called SlimRoast which worked UNBELIVABLE (LOST 3 POUNDS IN 2 DAYS) I was eating potato soup with lots of chili paste and soon I noticed I was depressed, I couldn't focus and began to feel that crawling flesh thing I get when I know I have been glutened.  I did more research on how I could love my body and read about glutamine: "Glutamine is also a critical part of our digestive system. It is the primary nutrient for the cells of the intestinal lining where it helps regulate cellular reproduction. Through this mechanism, glutamine helps prevent and rebuild a leaky gut which is common in people with inflammatory and auto-immune conditions. For this reason glutamine supplementation has been shown to be very effective in individuals with ulcerative colitis, CELIAC DISEASE, Crohn's disease, & irritable bowel syndrome." So now have removed everything but the sprouted rice, back on fruit and beans and have added those things that are high in glutamine. Since I eat plant based I can't get glutamine from meat so lots of raw spinach beets parsley cabbage celery kale brussel sprouts and especially red cabbage --in salads and smoothies. So hopefully I am on the mend--miss my weight loss coffee but its not worth getting sick over.     
    • I got the link fine but if I recall correctly I am a member of Medscape - I believe I just plain signed up for it - I know there isn't any fee for anything I sign up for otherwise I think very long and very hard whether it's going to be worth my money or not.
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