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Entocort Prescribed But I Am Unsure.....


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#1 bonnie blue

 
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Posted 25 July 2011 - 12:01 PM

Dear friends,
I am needing some wisdom and advice here. I went to a new gastro doc today, and he prescribed Entocort 9 mg a day. Now here is why I am confused, I was diagnosed in September of 2010 did ok then got sick again in December, after many months of doctor visits and tests, we took all the steps in our home to be completely gluten free, even the dogs!!! I dont eat out or eat from other peoples kitchens, started on probiotics and my amazing B12, and basically we just eat very healthy and natural. I went back to work, my energy level isnt what it used to be, but getting better, the pain is pretty much gone, the big D still sometimes shows up, but nothing like before. The reason he is worried is my weight loss, I have lost 93 lbs in 11 months, now mind you the biggest percentage of this was when I was really sick, I am still losing but moderately, I am not underweight, I personally think I look good, but after today he said the weight loss is still a concern, and he wants to put me on Entocort, I told him I was already on this in March, and didnt do well with it, but he kept on and on about the weight loss and how I need to eat more, I told him I was eating 6 small meals a day, because it worked well for me. I do eat but I just dont eat all the crap anymore!!! I basically walked out of the doctors office completely in shock, I finally after many months feel good, and then basically he tells me I'm not ok. Someone help, I do not want to take this drug, I have done so well just going all natural, I am finally feeling good, why would he say this to me? Am I crazy or does sometimes going to the doctor make you feel worse after you see them.......
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Just takin it one day at a time :)

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#2 Takala

 
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Posted 25 July 2011 - 12:48 PM

This is a new doctor. What was the purpose of the visit, from your point of view ? When a doctor sees a patient, they typically assume that they have come to them for some sort of prescription, whether or not that is true.

More concerning is that you told him you've done this drug before, didn't do well on it, and he's still pushing it.

Entocort(Budesonide) is a prescription glucocorticoid steroid for the treatment of Crohn's disease. Have you been formally diagnosed with this, or just celiac ?
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#3 bonnie blue

 
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Posted 25 July 2011 - 01:05 PM

This is a new doctor yes, my surgeon recommended him, I was just basically going in for a new patient consultation, no issues just a meeting to let him know that I was there, and I needed a new gastro in case there was issues. My GP sent all his notes saying he was happy with my progress, and I went in feeling great and left feeling very unsure.
And no I dont have Crohn's disease, the only other diagnosis is severe gastritis and they treated that with Omeprazole.
I kept saying to him wouldnt there be some weight loss with the fact that I was eating so much better, truthfully I used to eat alot of fast food and was overweight, and now I eat a healthy diet, but he just kept plugging the Entocort, I am finally feeling good, and I tried to tell him that but he just kept on and on about the weight loss. So confused :unsure:
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Just takin it one day at a time :)

#4 organicmama

 
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Posted 25 July 2011 - 01:29 PM

Please remember that physicians give advice. Handing you a prescription is far from an order forcing you to take it. You have every right to decline to take the advice given. No one knows your body better than you.

I agree that I would be even more concerned that your doctor prescribed a drug not appropriate for your diagnosis, and one that has not worked well in the past. A medical license does not make someone a good listener or incapable of making a mistake. This might be a great indicator of the need to find another specialist. I would be quite hesitant to return for any complex issues with the apparent lack of understanding on a simpler one like weight loss.
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#5 nora_n

 
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Posted 25 July 2011 - 03:48 PM

Maybe the doctor was concerned and thought you might have this type of persistent celiac, where the gut does not heal despite of going gluten free. Steroids are known to help with this condition.
If you truly have refractory celiac disease, this is dangerous and it should maybe be treated with steroids or something else.
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gluten-free since may 06 after neg. biopsy symptoms went away and DH symptoms which I had since 03 got gradually better.
daughter officially diagnosed celiac and casein intolerant.
non-DQ2 or DQ8. Maybe DQ1? Updated: Yes, double DQ5
Hypothyroid since 2000, thyroxine first started to work well 06 on a low-carb and gluten-free diet
Lost 20 kg after going gluten-free and weighing 53 kg now. neg. biopsy for DH. Found out afterwards from this forum that it should have been taken during an outbreak but it was taken two weeks after. vitaminD was 57 nmol/l in may08)

#6 Marilyn R

 
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Posted 25 July 2011 - 04:41 PM

My gastro consistently harped about my low body weight. My FP (female) told me she thought I looked good and that tons of women in her practice would pay good money (with gastric bypasses, etc.) to be as thin as I was.

I'm putting on weight now, but it's been 15 months gluten-free. I think my gastro will be happy. I'm not sure if I am. :D

Another thing with doctors is that it seems like they need to have closure for the office visit. They need to prescibe something. Sometimes we need to direct them. Like "Can you just check by B-12 and Vitamin D levels instead, because that drug doesn't work well with me."

That said, I told a specialist that I wouldn't take Lyrica and not only did I accept samples of Lyrica but she called in a prescription to my pharmacy and they keep calling me to tell me that my rx is ready for pick up. I haven't taken the samples and I won't pick up the rx.
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Positive improvement from elimination diet. Mother dx'd by Mayo Clinic in late 1980s. Negative blood tests and Upper & Lower GI biopsy. Parathyroidectomy 12/09. Recurring high calcium level 4/10. Gluten-free 4/10. Soy & Dairy Free 6/10. Corn free 7/10. Grain free except rice 8/10. Legume free 6/11. Fighting the battle of the battle within myself, and I'm going to win!

As of 2/12, tolerating dairy, corn, legumes and some soy, but I limit soy to tamari sauce or modest soy additives. Won't ever try quinoa again!

Discoid Lupus from skin biopsy 2011, discovered 2/12 when picking up medical records. Systemic Lupus Dx 6/12. Shingles 10/12.




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