Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Reactivation Or Something Else?
0

4 posts in this topic

I've been on this forum for almost exactly two years. My daughter has been gluten free for 2 years; my 2nd year aniversary is Aug. 10.

I went gluten free to see if it would help with a perisistent, itchy rash of 10 months duration on my legs. It was so bad I couldn't wear shorts the summer of 09, and if I had to wear a dress, had to wear black pantyhose. Did that for two summer weddings - no fun!

But with time on the gluten free diet, the rash began to disappear. Early on, accidental or not so accidental gluten exposures quickly produced a reactivation in the form of new itchy blisters. As time went on, the time lapse between exposure lengthened, and the extent of reactivation of the rash decreased. So it seemed I was becoming more "tolerant". My last purposeful fall off the wagon was last Christmas time. If you remember me posting about that, I want to thank you all for your advice because it helped!

Last summer, 2010, I still had the rash tho it was much reduced and by the end of summer was pretty much gone. By this spring, even most of the purple spots had faded, so I have been comfortable and happy wearing shorts!!! good thing because has it been HOT!

Something weird happened this past weekend. Being beastly hot, Thursday and Friday I took the dogs to the beach in the evening. Only problem, was the horseflies were out and I got bit several times. Then in the garden over the weekend, there were the mosquitoes. More bites. (Two years not wearing shorts, I didn't think about spraying myself!)

The bites started to bother me on Sunday, enough to go buy a new tube of Gold Bond cream. This morning, (Monday) I was really surprised to see how bright red some of the bite spots looked, as well as a spot that was obviously a scratching place.

These areas weren't like the old rash, other than that bright red color! And today I have had the most horrible stomach. Rumbly and gassy. (Mind you, GI symptoms were not what prompted me to go gluten-free two years ago, they were minimal to none.) I didn't feel like eating anything at all until early evening, and some cheese and nuts sufficed.

I am comfortable now and the red areas are less angry but I am wondering a) was I glutened, and did that exacerbate the normal itchiness of bug bites? B) was my rumbly stomache a coincindence?

Ok over the weekend meat,veggies, fruit, cheese...good whole foods. Only questionable items were Lays potato ships, Klondike bars (original) and a grill sauce used on salmon. only questionable ingredient in that was soybean oil.

Insights, or similar experiences, anyone?

0

Share this post


Link to post
Share on other sites


Ads by Google:

Had the grill been used for anything with gluten? It is best for us to use foil under anything on a grill that is not dedicated gluten free. Another possibility- was there distilled vinegar in the salmon sauce? If so you could be one of the minority of celiacs who reacts to distilled gluten grains.

0

Share this post


Link to post
Share on other sites

Had the grill been used for anything with gluten? It is best for us to use foil under anything on a grill that is not dedicated gluten free. Another possibility- was there distilled vinegar in the salmon sauce? If so you could be one of the minority of celiacs who reacts to distilled gluten grains.

No, the grill is practically brand new, and nary a bun has touched it this summer! Also, my husband got this special tray for putting things like fish and scallops on. But, when I came home tonite, I pulled the bottle of sauce out of the fridge, and distilled vinegar was the second ingredient on the list.

I have a few questions for you!

1. This wasn't the first time we had used the sauce this summer. I've had it at least two or three times before, without feeling itchy or that rumbly tummy. but I am wondering. Last December, when I went on my little cookie binge, it took 3 nights of munching on my sister's cookies before ingesting gluten caused a noticeable reaction. Does it make sense to you that once I've gotten to the point where I have been mostly healed, that I appear to be more "tolerant", and it might take repeated exposures for me to noticeably feel ill effects? Supporting this idea is that I had the leftover salmon for lunch on Tuesday... and this morning had a couple of new itchy areas that definitely had nothing to do with bug bites!

2. Distilled gluten grains.... distilled vinegar... I thought vinegar was made from apples (white) or wine (red)? I ate salt and vingear flavored almonds over the weekend too....... Ok I can live without the sauce and the flavored stuff. Tell me, will red wine vinegar still be ok???

thanks ravenwood, I appreciate your help. Oh and guess what, even tho I'm way beyond the point where antibody or biopsy would have a hope in heck of being positive, I am having a DQ analysis done soon! should be interesting....

0

Share this post


Link to post
Share on other sites

No, the grill is practically brand new, and nary a bun has touched it this summer! Also, my husband got this special tray for putting things like fish and scallops on. But, when I came home tonite, I pulled the bottle of sauce out of the fridge, and distilled vinegar was the second ingredient on the list.

I have a few questions for you!

1. This wasn't the first time we had used the sauce this summer. I've had it at least two or three times before, without feeling itchy or that rumbly tummy. but I am wondering. Last December, when I went on my little cookie binge, it took 3 nights of munching on my sister's cookies before ingesting gluten caused a noticeable reaction. Does it make sense to you that once I've gotten to the point where I have been mostly healed, that I appear to be more "tolerant", and it might take repeated exposures for me to noticeably feel ill effects? Supporting this idea is that I had the leftover salmon for lunch on Tuesday... and this morning had a couple of new itchy areas that definitely had nothing to do with bug bites!

2. Distilled gluten grains.... distilled vinegar... I thought vinegar was made from apples (white) or wine (red)? I ate salt and vingear flavored almonds over the weekend too....... Ok I can live without the sauce and the flavored stuff. Tell me, will red wine vinegar still be ok???

thanks ravenwood, I appreciate your help. Oh and guess what, even tho I'm way beyond the point where antibody or biopsy would have a hope in heck of being positive, I am having a DQ analysis done soon! should be interesting....

It can take a few days for a reaction to show up. In myself it takes about 3 days even in the beginning when I was on an elimination diet. My doctor said that is not uncommon and was the reason he told me to eat the suspect food 3 times a day for a week, or until the reaction. If you suspect the reaction may have come from a particular item you could do a challenge with it by doing the 3 times a day for week and watch for a reaction. Since reactions can be delayed you may have had a reaction to something you ate earlier in the week.

Malt vinegar is out for us but red wine vinegar is fine. On label if it just says vinegar in the US that would be apple cider vinegar. That would be safe. Distilled vinegar is not always derived from gluten ingredients and can be derived from other grains. Heinz white vinegar is made from corn for example. I usually call the company and ask what it is made from since I do react to distilled gluten.

As for the gene testing do keep in mind that doctors usually only check for the 2 most common genes and it is very possible to have other celiac related genes. While gene testing can be helpful it is not diagnostic.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,625
    • Total Posts
      918,382
  • Topics

  • Posts

    • puffiness in face
      The puffiness in my face went down a lot after I went gluten free. Old photos shock me sometimes now! Your doctor should be able to test you for food intolerance? Here in UK I did tests for wheat, nut, mustard etc. You can do a blood test and there's also skin prick tests I think, am sure others here would know more.  Good luck    
    • glutened by lays potato chips?
      Here in the UK I can't eat Lay's owned Walkers crisps as even the ones without gluten ingredients can cause a reaction. I read it was something to do with their production processes. Looks like others have same problems too:  
    • Newly diagnosed and totally overwhelmed
      Don't apologise! Not needed here at least where people know exactly what you're going through. As Cyclinglady says, you're now in a grieving process for the former, carefree attitude to food you've now lost. You may find this helpful in understanding the psychological journey you're on: http://psychcentral.com/lib/the-5-stages-of-loss-and-grief/ It WILL get better. Eating cleanly is very good advice as you heal but you can then find the replacement snacks and treats that are safe to eat.  I now know which chocolate bars are ok, which brands of crisps (chips) are safe etc.  I don't drink now, but I did find there were some fantastic ciders that I could tolerate and you've always got wine! In fact one of the weirder discoveries post gluten was that my past (vicious) hangovers were far more about gluten reactions than the alcohol itself. A cider hangover is a breeze in comparison All the best!  
    • glutened by lays potato chips?
      I ate some baked lays last night and felt very sick all night and haven't been feeling great all day today. Other than that I didn't eat anything different from what I normally eat and there was no risk of cross contamination with anything.. These were the only thing I had that was different. They're labeled gluten free so I figured it would be okay, but I started feeling sick pretty soon after eating them. I'm not sure if it's another ingredient in them or what (and i know it's not the soy).. Has anyone else had a reaction to lays potato chips?
    • Symptoms In Toddlers?
      Welcome Ashley! Here are the current tests.  The DGP versions seem to work a bit better than the TTG in small children.  So, ask for the complete panel (and get it all in one stick....my 15 year still hates to get blood drawn ! http://www.cureceliacdisease.org/screening/ Your doctors are wrong!  They must be reading old medical text books.  Not all kids or people have failure to thrive!  You can even be symptom free!. I was anemic and had no intestinal issues when I was diagnosed.  celiac disease affects everyone differently and that's probably why so many folks are not diagnosed. Your kids (parents, siblings too) should be tested every few years (sooner if symptoms develop) per all the leading celiac researchers/doctors if a first-degree relative has celiac disease (like you!)  celiac disease can develop at any age! Hope this helps!   
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,718
    • Most Online
      1,763

    Newest Member
    Flora Simpson
    Joined