Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

"glutened"? "contaminated"? What Do You Call It?
0

17 posts in this topic

A friend recently told me that the word I use when my sons or I accidentally get gluten was really scary. We say that we have been "contaminated" and it never occurred to me that could be construed as frightening until she said it. She pointed out that it was very technical or medical, almost like poison or a nuclear leak, and it freaked her out. I had never thought of it like that. It just is what it is. We get contaminated with gluten. But now, seeing it through her eyes, it makes me wonder...is there a better word out there? Something less clinical and easier for people to handle?

I don't want to dumb down what happens when we accidentally ingest gluten. I'd just like to use a word that is less terrifying to our friends who try so hard to make things safe and wonderful for us.

So what word do you use? "Glutened" has never sounded right to me, but maybe I'll start using it. It does seem less threatening than "contaminated".

edited to fix a typo

0

Share this post


Link to post
Share on other sites


Ar our house, we say that food got contaminated. When talking about our internal experience ingesting contaminated food, we say glutened.

0

Share this post


Link to post
Share on other sites

I use a wide variety of words depending on the audience and my mood at the time. Here's a nice little list for you:

I'm currently reacting really badly to something I ate

I ate something that I clearly shouldn't have

Glutened

Cross-Contaminated

CC'd

The gluten got me

Poisoned with gluten

Never again!

WAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAA!

and my most recent "I must be allergic to children I'm getting rashes ALL the time"

0

Share this post


Link to post
Share on other sites

Like Coinkey I have a bunch of phrases.

I ate some gluten and I don't feel good.

I've been gluten poisoned.

I'm having a gluten reaction.

My food was cross-contaminated with gluten.

Uh oh, I think there was wheat in that ____.

I must have eaten something that doesn't agree with me.

...and if I'm in a foul mood becasue someone lied to me about ingredients, an impressive string of swear words.

1

Share this post


Link to post
Share on other sites

Thanks for the help! I am going to work in the more gentle language. :D

1

Share this post


Link to post
Share on other sites

i say i got glutened... i heard it on here- and it stuck. my friends think it's pretty hilarious.. i like words that are kinda made up B)

0

Share this post


Link to post
Share on other sites

why dumb it down for them? You are being contaminated, if that word frightens them, then perhaps it will encourage them to be careful when parparing food for you. To say you've "been glutened" is probably meaningless to anyone but another Celiac.

1

Share this post


Link to post
Share on other sites

why dumb it down for them? You are being contaminated, if that word frightens them, then perhaps it will encourage them to be careful when parparing food for you. To say you've "been glutened" is probably meaningless to anyone but another Celiac.

That's what I think too. The only reason I would want to dumb it down is because I really care about these friends and I don't want to freak them out. The friend that said this to me had very noticeably stopped inviting us over to her home. She admitted that she was terrified of poisoning us and that was due in large part to the language I choose. The word "contaminated" really scared her. I don't want people to feel like they're going to kill us by having us in their homes. That is the only reason I want to change the word.

0

Share this post


Link to post
Share on other sites

To my knowledge I have only been glutened glutenated or contaminated once in these past six months but I do not know (and I do not intend to deliberately find out). I do not think "contaminated" is too harsh - it may be the jolt some folks need! :) It is like poison to our bodies, after all. Probably a bit better than walking around wearing a poison or biohazard symbol t-shirt! :lol:

2

Share this post


Link to post
Share on other sites

To my knowledge I have only been glutened glutenated or contaminated once in these past six months but I do not know (and I do not intend to deliberately find out). I do not think "contaminated" is too harsh - it may be the jolt some folks need! :) It is like poison to our bodies, after all. Probably a bit better than walking around wearing a poison or biohazard symbol t-shirt! :lol:

:D Funny!

My youngest is super sensitive so there has been a lot of trial and error with him. He has been contaminated quite a few times in the last year I am sad to say. Twice really horribly, and the rest were "light" contaminations but made him sick none the less. We have found that he cannot eat anything made on shared equipment with wheat and that took a long time to figure out. "But it says gluten free!" he would cry. Now that we know how sensitive he really is he gets contaminated a lot less. And sometimes I do feel like putting a T-shirt with a big poison symbol on him! :P

1

Share this post


Link to post
Share on other sites

:D Funny!

My youngest is super sensitive so there has been a lot of trial and error with him. He has been contaminated quite a few times in the last year I am sad to say. Twice really horribly, and the rest were "light" contaminations but made him sick none the less. We have found that he cannot eat anything made on shared equipment with wheat and that took a long time to figure out. "But it says gluten free!" he would cry. Now that we know how sensitive he really is he gets contaminated a lot less. And sometimes I do feel like putting a T-shirt with a big poison symbol on him! :P

Oh, poor guy. It is sad when the words "gluten free" sometimes can be so misleading. I recently saw a product state "Gluten Free" on the front but "wheat" was listed under the ingredients. I know it must be under 20 ppm but I don't care. If I can help it no wheat is going to cross these lips of mine.

Maybe we should make some bright orange poison shirts! We would all know each other on sight. :D

1

Share this post


Link to post
Share on other sites

i say i got glutened... i heard it on here- and it stuck. my friends think it's pretty hilarious.. i like words that are kinda made up B)

Hee, me too Cass and my friends find it hilarious too.

I would say "I was glutened" but if I'm worried about a food I'd say "no, I won't have any because it's probably contaminated". I want people to realise that take even the chance of a dusting of "poison" seriously. They wouldn't eat something if there was the slightest chance it was contaminated with rat poison, so I think using the term contaminated helps get across how seriously I take gluten contamination.

2

Share this post


Link to post
Share on other sites

I think of it as "gluten poisoning" because it's not unlike real food poisoning :/ I would also use the word "contamination", don't see anything wrong with that :)

"Glutening" is probably the kindest way to phrase it, if people are really that sensitive about the details. They wouldn't want to hear about the result of a glutening then I take it - also too scary? ;)

1

Share this post


Link to post
Share on other sites

I think of it as "gluten poisoning" because it's not unlike real food poisoning :/ I would also use the word "contamination", don't see anything wrong with that :)

"Glutening" is probably the kindest way to phrase it, if people are really that sensitive about the details. They wouldn't want to hear about the result of a glutening then I take it - also too scary? ;)

I really like "gluten poisoning". That gets the point across with enough seriousness but still has a softer edge to it than "contaminated". Thanks!

1

Share this post


Link to post
Share on other sites

u know- i actually use "glutened" when i talk about what might happen to me... but i DO use the word "contaminated" when i talk about the food itself... like when my mom accidentally put the leftover rice pasta in the same container with the spelt pasta- then i say- "ya, i cant eat it, cause the food could be contaminated"

1

Share this post


Link to post
Share on other sites

It's good your friend is taking it seriously. If you think she's afraid to invite you over, why don't you talk with her about it? Reassure her that you appreciate her concern for your health, and that you are comfortable visiting as long as you take the steps you need to take to be safe. For us the basics are washing hands and eating only the food we bring (usually with our own dishes, too). Maybe she just needs to know that *you* are comfortable, and that you feel safe with her, especially given her awareness.

1

Share this post


Link to post
Share on other sites

It's good your friend is taking it seriously. If you think she's afraid to invite you over, why don't you talk with her about it? Reassure her that you appreciate her concern for your health, and that you are comfortable visiting as long as you take the steps you need to take to be safe. For us the basics are washing hands and eating only the food we bring (usually with our own dishes, too). Maybe she just needs to know that *you* are comfortable, and that you feel safe with her, especially given her awareness.

I did talk to her about it and it went really well. I think she was scared to death because when my son was first diagnosed I was scared to death. I was freaked out (because he had been SO sick) and I was terrified that every little thing was going to make him sick again. Couple that with the use of a "scary" word and she got spooked. I totally understand why it happened and I'm incredibly grateful that she cares so much about us.

2

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      102,719
    • Total Posts
      914,562
  • Topics

  • Posts

    • Swanson Chicken In A Can
      The original post from here is 8 years old and the product information is likely outdated.  I would contact manufacturer on any info over a year or so old, but even then things can change.
    • Anyone done commercial testing?
      Have you subscribed to gluten free watchdog? They have some great test results and info on what tests they do and why.  If you want specific items to be tested and will fund it, you may contact them to see if you can help the community as a whole.
    • Help understanding test results??
      I am a 20 year old female. I recently had some blood work done to test for celiac disease.  The ref. range for all of the following is 0 -- 14.9 U/mL: Tissue Transglutaminase AB,IGA = <0.5 Tissue Transglutaminase AB,IGG= <0.8 Deaminated Gliadin PEP IGA= 1.3 Deamninates Gliadin PEP IGG= 242.9  Yes I have a follow up appointment with a gastroenterologist because the last panel was high. I am just hoping that someone can explain the results in a way that is easier for me to understand. Any input would be greatly appreciated!
    • I got WELL!!
      manasota, When I first was diagnosed with Celaic disease I was beginning to have Thyroid problems.  But I began studying up fortifying myself with knowledge which led me to Chris Kresser's site where he has a free book on Thyroid disorders it might be worth downloading it and reading it (I have not) but read some of his blog posts. I think of it like one of my fellow blogger's I follow Susan Hughes Healthy by Nature quoting when she says "I find the human body to be pretty amazing. It is capable of healing itself when given the proper tools to do so. These “tools” include nutrients, thoughts, rest, among other things – all dependent, to a degree, on the unique needs of the individual. Many times proof of this incredible healing capacity of the body is backed only by anecdotal evidence, which, no matter how valid, lacks the respect that formal research supporting this notion would receive." With that in mind consider what I have learned on my journey is all I ask. I will share what has made me feel better. Chris Kresser (I don't remember why) says selenium first then Iodine for thyroid problems and a lot of these fatigue issues can be tied to your thyroid. Having said that my thyroid is better by that I mean I no longer need meds for my thyroid and my chronic fatigue is better. I find two or three brazil nuts a day will give you most of the selenium your thyrorid needs.  Find a Kelp supplement for a good source of Iodine or just start putting idoine (betadine) from the drug store on your legs each night until it stains you in the morning then you know your body has enough Iodine since it readily absorbed when it lingers on the skin for more than 12 hours you have enough iodine. For the Chronic Fatigue I can not over emphasize Magnesium CITRATE in divided doses 3 to 4 times (with each meal and at bed time).  Great book on the subject called "the Magnesium Miracle".  Make sure it is a 100% Citrate though or your body will have time absorbing it. Your energy will really perk up.  Muscle cramps will improve.  Restful dreams (if you can't remember when you last dreamed) will come vividly. Search for the posterboy on this site if you want to read all my posts and see my profile if you want to know what other vitamin's or minerals I have taken to help me "get well". Good luck on your journey.  Read the topic "Still Sick 1 year after diagnosis" for  a summary of other things I have done by the poster ryan7194. Provided here for easy reference **** This is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes to your medical regimen. 2 Timothy 2:7 and 2 Cor 1: 3,4 Posterboy,
    • Stomach sore from eating gluten free foods?
      I agree.  Since the cookie was gluten free, your body was reacting to something else.  I also think it's important to not self-diagnose/test because even if you feel better without gluten, you don't know if you are celiac or just have an intolerance to gluten and/or wheat. It's better to go through the testing. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      59,768
    • Most Online
      1,763

    Newest Member
    mski
    Joined