Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

"glutened"? "contaminated"? What Do You Call It?
0

17 posts in this topic

A friend recently told me that the word I use when my sons or I accidentally get gluten was really scary. We say that we have been "contaminated" and it never occurred to me that could be construed as frightening until she said it. She pointed out that it was very technical or medical, almost like poison or a nuclear leak, and it freaked her out. I had never thought of it like that. It just is what it is. We get contaminated with gluten. But now, seeing it through her eyes, it makes me wonder...is there a better word out there? Something less clinical and easier for people to handle?

I don't want to dumb down what happens when we accidentally ingest gluten. I'd just like to use a word that is less terrifying to our friends who try so hard to make things safe and wonderful for us.

So what word do you use? "Glutened" has never sounded right to me, but maybe I'll start using it. It does seem less threatening than "contaminated".

edited to fix a typo

0

Share this post


Link to post
Share on other sites


Ads by Google:

Ar our house, we say that food got contaminated. When talking about our internal experience ingesting contaminated food, we say glutened.

0

Share this post


Link to post
Share on other sites

I use a wide variety of words depending on the audience and my mood at the time. Here's a nice little list for you:

I'm currently reacting really badly to something I ate

I ate something that I clearly shouldn't have

Glutened

Cross-Contaminated

CC'd

The gluten got me

Poisoned with gluten

Never again!

WAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAA!

and my most recent "I must be allergic to children I'm getting rashes ALL the time"

0

Share this post


Link to post
Share on other sites

Like Coinkey I have a bunch of phrases.

I ate some gluten and I don't feel good.

I've been gluten poisoned.

I'm having a gluten reaction.

My food was cross-contaminated with gluten.

Uh oh, I think there was wheat in that ____.

I must have eaten something that doesn't agree with me.

...and if I'm in a foul mood becasue someone lied to me about ingredients, an impressive string of swear words.

1

Share this post


Link to post
Share on other sites

Thanks for the help! I am going to work in the more gentle language. :D

1

Share this post


Link to post
Share on other sites




i say i got glutened... i heard it on here- and it stuck. my friends think it's pretty hilarious.. i like words that are kinda made up B)

0

Share this post


Link to post
Share on other sites

why dumb it down for them? You are being contaminated, if that word frightens them, then perhaps it will encourage them to be careful when parparing food for you. To say you've "been glutened" is probably meaningless to anyone but another Celiac.

1

Share this post


Link to post
Share on other sites

why dumb it down for them? You are being contaminated, if that word frightens them, then perhaps it will encourage them to be careful when parparing food for you. To say you've "been glutened" is probably meaningless to anyone but another Celiac.

That's what I think too. The only reason I would want to dumb it down is because I really care about these friends and I don't want to freak them out. The friend that said this to me had very noticeably stopped inviting us over to her home. She admitted that she was terrified of poisoning us and that was due in large part to the language I choose. The word "contaminated" really scared her. I don't want people to feel like they're going to kill us by having us in their homes. That is the only reason I want to change the word.

0

Share this post


Link to post
Share on other sites

To my knowledge I have only been glutened glutenated or contaminated once in these past six months but I do not know (and I do not intend to deliberately find out). I do not think "contaminated" is too harsh - it may be the jolt some folks need! :) It is like poison to our bodies, after all. Probably a bit better than walking around wearing a poison or biohazard symbol t-shirt! :lol:

2

Share this post


Link to post
Share on other sites

To my knowledge I have only been glutened glutenated or contaminated once in these past six months but I do not know (and I do not intend to deliberately find out). I do not think "contaminated" is too harsh - it may be the jolt some folks need! :) It is like poison to our bodies, after all. Probably a bit better than walking around wearing a poison or biohazard symbol t-shirt! :lol:

:D Funny!

My youngest is super sensitive so there has been a lot of trial and error with him. He has been contaminated quite a few times in the last year I am sad to say. Twice really horribly, and the rest were "light" contaminations but made him sick none the less. We have found that he cannot eat anything made on shared equipment with wheat and that took a long time to figure out. "But it says gluten free!" he would cry. Now that we know how sensitive he really is he gets contaminated a lot less. And sometimes I do feel like putting a T-shirt with a big poison symbol on him! :P

1

Share this post


Link to post
Share on other sites

:D Funny!

My youngest is super sensitive so there has been a lot of trial and error with him. He has been contaminated quite a few times in the last year I am sad to say. Twice really horribly, and the rest were "light" contaminations but made him sick none the less. We have found that he cannot eat anything made on shared equipment with wheat and that took a long time to figure out. "But it says gluten free!" he would cry. Now that we know how sensitive he really is he gets contaminated a lot less. And sometimes I do feel like putting a T-shirt with a big poison symbol on him! :P

Oh, poor guy. It is sad when the words "gluten free" sometimes can be so misleading. I recently saw a product state "Gluten Free" on the front but "wheat" was listed under the ingredients. I know it must be under 20 ppm but I don't care. If I can help it no wheat is going to cross these lips of mine.

Maybe we should make some bright orange poison shirts! We would all know each other on sight. :D

1

Share this post


Link to post
Share on other sites

i say i got glutened... i heard it on here- and it stuck. my friends think it's pretty hilarious.. i like words that are kinda made up B)

Hee, me too Cass and my friends find it hilarious too.

I would say "I was glutened" but if I'm worried about a food I'd say "no, I won't have any because it's probably contaminated". I want people to realise that take even the chance of a dusting of "poison" seriously. They wouldn't eat something if there was the slightest chance it was contaminated with rat poison, so I think using the term contaminated helps get across how seriously I take gluten contamination.

2

Share this post


Link to post
Share on other sites

I think of it as "gluten poisoning" because it's not unlike real food poisoning :/ I would also use the word "contamination", don't see anything wrong with that :)

"Glutening" is probably the kindest way to phrase it, if people are really that sensitive about the details. They wouldn't want to hear about the result of a glutening then I take it - also too scary? ;)

1

Share this post


Link to post
Share on other sites

I think of it as "gluten poisoning" because it's not unlike real food poisoning :/ I would also use the word "contamination", don't see anything wrong with that :)

"Glutening" is probably the kindest way to phrase it, if people are really that sensitive about the details. They wouldn't want to hear about the result of a glutening then I take it - also too scary? ;)

I really like "gluten poisoning". That gets the point across with enough seriousness but still has a softer edge to it than "contaminated". Thanks!

1

Share this post


Link to post
Share on other sites

u know- i actually use "glutened" when i talk about what might happen to me... but i DO use the word "contaminated" when i talk about the food itself... like when my mom accidentally put the leftover rice pasta in the same container with the spelt pasta- then i say- "ya, i cant eat it, cause the food could be contaminated"

1

Share this post


Link to post
Share on other sites

It's good your friend is taking it seriously. If you think she's afraid to invite you over, why don't you talk with her about it? Reassure her that you appreciate her concern for your health, and that you are comfortable visiting as long as you take the steps you need to take to be safe. For us the basics are washing hands and eating only the food we bring (usually with our own dishes, too). Maybe she just needs to know that *you* are comfortable, and that you feel safe with her, especially given her awareness.

1

Share this post


Link to post
Share on other sites

It's good your friend is taking it seriously. If you think she's afraid to invite you over, why don't you talk with her about it? Reassure her that you appreciate her concern for your health, and that you are comfortable visiting as long as you take the steps you need to take to be safe. For us the basics are washing hands and eating only the food we bring (usually with our own dishes, too). Maybe she just needs to know that *you* are comfortable, and that you feel safe with her, especially given her awareness.

I did talk to her about it and it went really well. I think she was scared to death because when my son was first diagnosed I was scared to death. I was freaked out (because he had been SO sick) and I was terrified that every little thing was going to make him sick again. Couple that with the use of a "scary" word and she got spooked. I totally understand why it happened and I'm incredibly grateful that she cares so much about us.

2

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,636
    • Total Posts
      921,534
  • Topics

  • Posts

    • I have 2 insurance policies, one with my husband's company and one through mine. I also stretch out the more major work into the next year, so I can make the most use of my benefits. So, a dental implant for me takes about a year for me to complete.  I have the post put in at the end of one year and the tooth made about 6 months later. Honestly, the insurance company probably hates me because I max out my benefits every year. You do what ya gotta do!  I still have to pay for some of the work out of pocket but about 75% gets covered. If you pay cash for procedures then they usually charge a lower price. Haggle with the dentist over price. They like getting cash.
    • Did your doctor check for SIBO, H. pylori, ulcers, etc. when he was obtaining biopsies to check for celiac disease?  
    • Oh, and as I mentioned in my own post on pain, xanax. I swear. I tried it just to deal with the occasional panic I had at weird scary symptoms and clueless doctors. I am not a fan of long term use. But I recently found that .25 mg seems to aid with the neuropathic pain. It does not go away, but it helps. 
    • It does sound like a Glutening and you are just a few months into the diet.  It might help if you read our Newbie 101 thread under the "Coping" section.   Here is some information about rice milk: https://www.verywell.com/is-rice-dream-gluten-free-562354 Many, many celiacs are often lactose intolerant temorarily or permanently if you are naturally genetically inclined.  When I am glutened, I lose the ability to digest lactose for a while.   Salad?  Great but it can be rough on a sore gut!  Think soups, stews, easy-to-digest foods that you prepare yourself until you feel better.  Did your folks give you salad after a bout of flu?  Or did you stick with jello and broth?  I am intolerant still after three years to garlic and onions (the lactose resolved, thankfully).  You have a leaky gut (Google zonulin and Dr. Fasano who is a leading celiac researcher to verify that this is true) and that means you can become intolerant to anything (hopefully, just temporarily).   If you are 100% sure that you have had no access to gluten....did you eat out lately?.....then see your doctor.  Remember, celiac disease symptoms can change.  And here is the biggie.....it can take weeks, months or years to heal from celiac disease.  Two months in is nothing, really.  Why?  It takes time to figure out the diet and time for antibodies to come down.  celiac disease is an autoimmune disorder triggerEd by gluten.  once triggered it can go on and on damaging your gut especially with repeated glutenings (accidental or through cross contamination). I hope you feel better soon!  
    • I concur! I literally feel your pain as well. Like, at the moment, lol. Did you have an endo to see inflammation or damage? I am close to begging my GI for carafate or something to coat and protect. How about testing your antibodies to see if they are still rising? I read somewhere here rice milk may not be a good option.  Folks here have also suggested to me to stick with whole foods. Limit processed. Especially stuff that is not certified gluten-free, like chex. I think small amounts of gluten are in processed foids and can add up. I too reacted to lettuce the other day like I was ingesting glass. My sibling  had a food sensitivity panel done and it came back positive for a few things he had been eating a lot of. He can now eat them, but had to cut them out of his diet. Lettuce is probably on mine.  I have been drinking carrot and pomegranate juice,  dandelion root tea with hiney, aloe water, lots of squash, fish. Mild, no garlic, no onions or hot sauce. No coffee. It sucks.  Inflammation can tick off other organs, you mention a "Pain below". Not exactly sure which side, but certainly call your doc Monday. Sooner if the pain increases.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,639
    • Most Online
      3,093

    Newest Member
    NickyW_UK
    Joined