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How Do I Know If I've Been Glutened And What Is Causing It?


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8 replies to this topic

#1 Newbee

 
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Posted 27 July 2011 - 03:36 PM

I've been on the gluten free a week and I'm wondering if I'm doing it right or if maybe I'm eating things that have been cross contaminated. Should I be able to see changes in how much I poo yet? I'm still going about 3 times a day like I did before. And if I am getting cross contaminated how can I tell what is doing it? Like if I have to go to the bathroom right after I finish eating should I be suspicious of what I just ate? And what if it isn't right after a meal? What should I be looking for then? I read food labels. Thanks.
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#2 Coinkey

 
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Posted 27 July 2011 - 03:43 PM

After a week you probably won't be able to tell the difference. On top of reading labels, you need to ensure that you aren't cooking your food on contaminated crockery, there are also many processed foods that don't have any suspicious ingredients but are notorious for cross contamination because of being made on the same lines as other foods. Stick with whole foods for a month, then reintroduce processed foods so that you are able to tell what it is that is causing the problems.
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Self diagnosed as gluten free as all tests were negative and the doctor was completely useless.

Gluten Free since June 2010
Suspecting soy and milk as of June 2011


#3 Newbee

 
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Posted 29 July 2011 - 02:17 PM

Thank you for your response. How long should it take before I should notice a difference? I probably should mention it looks like I've had this a long time (37 years) and my doctor mentioned it would take longer for me to heal because of it. He didn't say how long before I should notice a difference.
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#4 PadmeMaster

 
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Posted 30 July 2011 - 05:07 PM

a tip: I lived off potatoes, Hormel Chili (It's the with beans that's gluten-free, and it says it on the can) and M&Ms for the first month and a half. After that, I added in Hamburgers (from Hardees. We lived in a hotel so I was limited). I don't personally advise fast food, but potatoes and chili, maybe smoothies (Just fruit, the milk of your choice, and the green of your choice. My fav way is Kale, frozen Mixed fruit, and Vanilla soy, but some have issues with Soy, so you might try Coconut or Almond) would be good and they are all whole foods that are healthy. (Well, the Chili is less so.).

I've also read along here that cookware can be contaminated, but that the dishwasher cycles are great help to prevent that. So you might do that or just buy some plastic ware and not cook until you can afford a new set of dishes. Or a dishwasher ;)

If you aren't feeling better, some things I was told when I was a (more of a) newbie is to watch out for shampoo, makeup, body wash, etc. I've not actually found a shampoo with gluten other than high dollar ones (or oatmeal ones), but I have found that the head and shoulders is clearing up my dandruff that I've had for years. (It didn't work when I wasn't gluten free. I only tried again because Treseme and Aussie shampoos don't get along with my hair).

If you're disliking the gluten free breads etc, just remember, you'll get used to the taste! I accidentally ate a graham cracker (stupidity, as everyone knows that smores, even in snack form, have graham crackers) and it was nasty to me. But I've liked every gluten free food I've eaten except Annie's bunny crackers (and Udi's bread, but I think that's because I refrigerate instead of leaving frozen OR unfrozen.).

Eating pure will be the easiest. I've glutened myself in the last week and have no clue what from (probably CC even though I'm the one cooking dinner) because I'm not eating pure. Just be careful. If you can avoid CC, do it! :)
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---
~Padme
Big Sister to John (16), Princess (5), Dino (4), Munchkin (3) and whoever else happens to join us while their parents can't care for them!

Gluten-free myself since Aug 2010; Not diagnosed Celiac
Daughter to wonderful parents!

#5 T.H.

 
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Posted 30 July 2011 - 08:39 PM

I was diagnosed at 38, and I noticed a change within days. Some here don't seem to have any change for weeks, however.

But if you are having the runs right after you eat, I think that might possibly indicate that you're getting something that's making your body unhappy. It could be gluten or could be lactose (many of us are lactose intolerant when we're still healing, because the damaged villi don't make lactase as well. Or could be something else - a lot of us discover that we have food allergies we never knew about. Not the type that give us hives, but foods that make our stomachs hurt, give us the runs, give us headaches, etc....

Keeping the foods simple and keeping a food journal of foods you eat, and how you react, and the timing for each, may help you figure out what is getting you, if anything is. And if nothing is and it's just healing, then the journal would show a slow progression of symptoms getting better, yes? :-)

It might help to get a new pot or pan and a new cutting board, and just use them for a week, see if it helps.

Oh, do you have any children or a significant others? If you do, if you kiss their lips, tummies, and so on - those need to be gluten free, too. :D
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T.H.

Gluten free since August 10, 2009.
21 years with undiagnosed Celiac Disease

23 years with undiagnosed sulfite sensitivity

25 years with undiagnosed mast cell activation disorder (MCAD) 

 

Daughter: celiac and MCAD positive

Son: gluten intolerant
Father, brother: celiac positive


#6 domesticactivist

 
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Posted 30 July 2011 - 09:12 PM

I wrote a big post about being 100% gluten free that might help you find some of the potential sources of contamination. You can find it from the blog linked on my profile.
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Our family is transitioning off the GAPS Intro Diet and into the Full GAPS Diet.
Gluten-Free since November 2010
GAPS Diet since January/February 2011
me - not tested for celiac - currently doing a gluten challenge since 11/26/2011
partner - not tested for celiac
ds - age 11, hospitalized 9/2010, celiac dx by gluten reaction & genetics. No biopsy or blood as we were already gluten-free by the time it was an option.
dd - age 12.5, not celiac, has Tourette's syndome
both kids have now-resolved attention issues.

#7 AVR1962

 
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Posted 30 July 2011 - 11:02 PM

When I first started I cut out pasta and bread but wasn't looking at all the ingedients listed on packaging. I did continue to have black stools. What I noticed though was the gas and all the racket it my stomach left. I did this for about 6 weeks, then tried a plate of pasta and saw the difference and knew I was gluten intolerant. Tightened my diet, started looking at all ingredients, keeping my diet simple so I could tell what was and was not affecting me. Doc then wanted me to also stay away from dairy to see if that may be giving me issues. I ate alot of salads, veggies, fruit and meat. Then I got dosed.....not from wheat, only thing it could have been was highfructose and it made me as sick as from eating any gluten product. After about 6 weeks off dairy I went back on, had a slight intolerance but am taking daily aide that works. I have since been trying recipes replacing wheat flour with gluten free flour, mixes, ect and I am doing real well. It took me about 4 months to get my system corrected where I no longer had bowel issues.

There are people who are alot more senstive than myself that cannot eat products with corn or rice. Oats, or any other kind of grain should be labeled gluten free, otherwise don't buy them.

You are having absolutely no symptoms from a dose of gluten? There's some issues I was having that at first I was not connecting to the glutens, perhaps something will ring a bell for you: blurred vision, foggy/forgetful memory, problems with depth perception, balance issues, turmoil in stomach, gas, bloating, bowel issues, tired, muscle spams and twitches.

The twitches were due to a lack of potassium my body was absorbing so I started eating lots of potassium rich foods. Started taking vit B12 for the memory, added Lysine to my diet which is a digestive aide, started taking a probiotic and with a clean diet my health slowly improved. Now if I get dosed I have a bit of a headache, stomach issues, tired, balance issues and memory problems. It's the hidden stuff you have to look for like marinades, BBQ sauce.

I hope that helps!
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Yesterday is not ours to recover but today is ours to win or lose!

Miscarriage, Kidney stones, Anemia, Pneumonia, Migraines, Restless leg, Bone fractures, Blurred/Double vision, Extreme fatigue, Bone & Joint Pain, Thyroid nodule, Celiac diagnosed 2011, Spine and leg bone loss, GERD, Vitamin deficiencies, Malabsorbtion, Neuropathy issues, Ataxia, Raynaud's Syndrome. Currently on diet with limited grain and sugar.

#8 Fairy Dancer

 
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Posted 31 July 2011 - 12:51 AM

I noticed a change in bowel symptoms after around 5 or so days. The improvement was gradual. The fatigue however continued on for a little bit longer but is gradually improving.
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#9 Newbee

 
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Posted 31 July 2011 - 10:52 AM

Thanks for everyone's responses! Sounds like it really varies as far as when people start feeling better. I'll try and eat more natural and be patient and hopefully it will all start getting better soon.
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