Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Celiac And Thyroid
0

6 posts in this topic

Hey everyone im new here...Im 23 and was recently diagnosed with hashimotos disease. I immediately went on a gluten free diet and felt better after a couple of weeks but seemed to kind of platuea in my recovery. My thyroid problem is in the very early stages so Im thinking that the problem may lie somewhere else. Im starting to think that I do have celiac disease and that it will just take time to heal. My question is....does anybody else have hashimotos disease along with celiac disease? Also do you just cut out gluten or dairy/soy/etc?

0

Share this post


Link to post
Share on other sites


Ads by Google:

oh boy... yes i have celiac, hashimoto's, and graves'. its very common to have thyroid disorders & celiac simultaneously.. very common... or even other autoimmune disorders.. sometimes the same genes are involved with a predisposition.

so why do u think your Hashimoto's is only in the early stages?? i too thought that maybe mine had only been about 6 yrs old... but now i think ive had it for over 20 years.... share your thoughts, i am interested... and learning more and more everyday about the scope of thyroid disease. for example, i just learned that Hashimoto's often leaves patients with Low stomach acid, and of course slow motility ... this totally leads to all kinds of digestive problems and malabsorption. so now when i feel like i cant digest things- im like- "um, did i eat to may food intolerances??? did i get glutened? or am i going slightly hypo again??"

the symptoms can overlap for sure.

so, yes i completely avoid gluten. 2nd i do my best to avoid Soy & Corn. and 3rd i am a dairy addict- but i know i have GOT to get off it- as sometimes it makes me feel like ive been glutened. like a Casein induced enteropathy. :(((

okay brainfog.... dont hesitate to ask more questions.. i feel like ive learned a lot lately... tho i still have questions too...

0

Share this post


Link to post
Share on other sites

Hey everyone im new here...Im 23 and was recently diagnosed with hashimotos disease. I immediately went on a gluten free diet and felt better after a couple of weeks but seemed to kind of platuea in my recovery. My thyroid problem is in the very early stages so Im thinking that the problem may lie somewhere else. Im starting to think that I do have celiac disease and that it will just take time to heal. My question is....does anybody else have hashimotos disease along with celiac disease? Also do you just cut out gluten or dairy/soy/etc?

I have a growth on my thyroid which I am currently on meds to try and shrink. I am on a gluten-free, high fructose-free diet and I take a digestive defense aide for a slight dairy intolerance.

0

Share this post


Link to post
Share on other sites

The reason I think my hashimotos is in the early stages is because of all the blood tests. Last november until this april I had 3 tsh tests two of which were at 1.9 and the other at 5.5. The most recent tsh test was a 3.2 so that doesnt seem too crazy. My TPO antibodies were 203 in April and 252 in July. This is the one thing that confused me(made me think it may not be celiac and maybe just a gluten intolerance) because the antibodies went up and I had been gluten free since I discovered that I had Hashimotos in late april. Is that common? It has been around 3 months off gluten and although I do feel a lot better than before I still have lots going on with my digestive tract( stomach is in knots all the time,constipation,etc) among other lingering symptoms. Does this sound like the typical healing process for celiac or does anybody have suggestions for what else may be causing my stomach problems?

CassP: you mentioned low stomach acid with hashimotos...what are the symptoms with that and how do you go about fixing that?

0

Share this post


Link to post
Share on other sites

I have Hashimoto's in addition to Celiac's. I saw my endocrinologist yesterday and she thinks my Hashimotos has just about destroyed my thyroid. :( So it looks like I am almost totally reliant on the synthyroid ( or some other such drug) from here on out.

In addition to being gluten free,I would encourage you to also eliminate soy from your diet.

0

Share this post


Link to post
Share on other sites




The reason I think my hashimotos is in the early stages is because of all the blood tests. Last november until this april I had 3 tsh tests two of which were at 1.9 and the other at 5.5. The most recent tsh test was a 3.2 so that doesnt seem too crazy. My TPO antibodies were 203 in April and 252 in July. This is the one thing that confused me(made me think it may not be celiac and maybe just a gluten intolerance) because the antibodies went up and I had been gluten free since I discovered that I had Hashimotos in late april. Is that common? It has been around 3 months off gluten and although I do feel a lot better than before I still have lots going on with my digestive tract( stomach is in knots all the time,constipation,etc) among other lingering symptoms. Does this sound like the typical healing process for celiac or does anybody have suggestions for what else may be causing my stomach problems?

CassP: you mentioned low stomach acid with hashimotos...what are the symptoms with that and how do you go about fixing that?

interesting... ya, i think the tsh test is not a good indicator honestly... it CAN be one of the indicators for the doctors as they are working out the dose... but tsh is not always indicative of the stage of the disease or how u feel. my TSH was 4.6 in 2004 or 2006.. but i honestly think it may have started when i was 8 or 9. i had a nail condition since i was 8, and it completely disappeared after i got on thyroid medication. ive also been DEPRESSED most of my life.. and on a diet, etc... the disease can also go in and out of remission i think untill it decides to go full force- and then it's progressive from there on out.

your antibodies are certainly high enough to indicate that you've had this for some time... but dont freak out, mine are 512. going gluten free will definitely alleviate your thyroid condition- but it's not a miracle fix like it is for celiac- it will take some time to see a difference in those antibodies... the disease is progressive- so it is completely normal for you to have Celiac or Gluten Intolerance, but still have your Hashimoto's antibodies go up after 3 months on a gluten free diet. there are other environmental triggers that affect those abs besides gluten... soy, fluoride.. some say dairy, STRESS, a vitamin D deficiency, pregnancy.. etc...

u should definitely test your vitamin levels: B12, D, and a full Iron panel including Ferritin & saturation... and also check your adrenals..... in order to improve this disease and FEEL BETTER- you really have to come at all angles.

i also suggest you eat 2-3 brazil nuts every day- for the Selenium. studies show that after a year of taking Selenium- the TPO antibodies were significantly diminished. (u can overdose on selenium, and brazil nuts have a lot- hence- take only 2-3).

uh- signs of low stomach acid?? any indigestion really... when u feel like so many different foods give u a stomach ache.. or u feel you have to eat very small amounts in order to avoid a stomach ache... believe it or not- acid reflux can be a sign of low stomach acid, and also an H. Pylori infection- as they thrive in low acidity. vitamin deficiencies can be a sign of Low stomach acid. there are many ways to correct it- but it takes time- and u have to be careful too... i gotta go to bed- i'll try to remember to add more.... a real gentle way to help it is to take apple cider vinegar before meals... there's also Betaine HCI-> but it is pretty identical to stomach acid- so u really have to start out slow.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,418
    • Total Posts
      917,668
  • Topics

  • Posts

    • Italian pasta
      Get some celiac travel cards to print off and keep in your wallet.  Present them to your waiter.   http://www.celiactravel.com/cards/ Tell the airline that you need a gluten free meal, BUT take food with you because odds are the airlines will make a mistake.   As far as the wheat pasta.....some folks say the wheat is different.  I personally think they are kidding themselves.  There is no scientific proof that I have found to support this theory.  (Anyone want to present such data?)  Italy, from what I heard is great for celiacs.  I'll know for sure this summer!  I'll be there!   As usual, we plan on bringing some packable food, but we are good at shopping at grocery stores for food and picnicking when traveling.  I expect foods at grocery stores to be clearly marked as they were in Great Britain since they are part of the EU.  
    • Villous atrophy with negative tTG IgG/IgA, high Gliadin IgA!
      It looks like you have a few options that you need to consider pursuing: 1.  Get back to your doctor and tell him to figure out what's wrong with you.  Take a friend because it helps to have someone listen and take notes who is not the patient.  Get copies of all lab reports and doctor notes always and keep a file on yourself to share with future doctors or to monitor your progress.   2.  Ditch this GI and get a new one (SIBO is real per my celiac savvy GI).  Take a friend with you.   3.  You say you are lactose intolerant.  Experiment by going lactose free for six months -- not just a few days.  This will help to promote healing and help determine if milk (lactose or proteins) are causing villi damage and not gluten. 4.  Recognize that some celiacs test NEGATIVE to antibodies.  Per Dr. A. Fasano and Dr. Murrary, based on their clinincal experience and recent data just published, they estimate that 10 to 20 percent of celiac disease patients test negative to the serology screening test. That means consider yourself a celiac and stop your gluten intake for at least six months.  Normal vitamin and mineral levels do not rule out celiac disease.   5.  Recognize that you can multiple reasons for villi damage.  That's why a second consult with a celiac savvy GI is important.   Good luck!    
    • Continued Symptoms
      Try keeping a food and symptom diary.   She could have allergies or intolerances.  But, again, I am not a doctor!  I am healed from celiac disease, but I still react to certain foods and have allergies.  Those will probably never go away as I have been plagued with them all my life (as my siblings have too).  She could have a milk protein intolerance and not just lactose.  Eliminate all dairy too see if it helps.   Speech really normalizes by the age of 8.  I can not say if your public school will evaluate her.  My home-schooled friends are still monitored by the state and receive state funding.  So, I would assume they would receive all the same benefits.  Try calling.  
    • Weeks in and feeling no better
      Let me tell you that based on what people post on this forum, it takes MUCH longer to heal.  In theory,  it should just take a few week on a gluten diet to promote villi healing.  Your body is constantly regenerating new cells in your gut on a daily basis.    Why the delay?   First,  it takes a long time to really master the gluten free diet.  So, in the beginning, dietary mistakes are often made which can delay the healing time.  Second,  celiac disease is an autoimmune disorder triggered by gluten causing a "flare-up" which can be measured by the level of antibodies in your system.  Antibodies can take weeks, months or years to come down.   Third,  there's the type of damage done to your body to consider (e.g. bone damage, depleted iron levels).  Usually anything neuro takes much longer to heal. Has your doctor checked you for nutritional deficiencies?  If not, ask.  You might be really low on a vitamin or mineral.   You could be low on digestive enzymes (actually they can not be released in a damaged gut).  So even when eating gluten free foods, your body is not digesting and absorbing the necessary nutrients.  You could help the healing process by taking gluten free supplements and enzymes.   But it is best to see what you are actually deficient in.   Most of these deficiencies resolve with time. Finally, my parting words of wisdom (as passed on by many of our members), is patience.  I know.  Hard to be patient when you want to feel well, but it will happen.   Hang in there!  
    • Gluten and panic attacks
      Now if everyone out there who probably has a gluten problem adopted your attitude, they would be having a much better life.  After over 10 years gluten-free myself, who really cares about gluten pizza? I go months without gluten free pizza, which is very good by the way, and I am not an emotional wreck.  Imagine!  Glad you feel better and yes, it was the wheat!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,549
    • Most Online
      1,763

    Newest Member
    ahp
    Joined