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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Enterolab Results Are Back. I Have Some ?s
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3 posts in this topic

I haven't posted in a while because I haven't had anything to say. Here are my lab results:

Fecal Ant-gliadin IgA 14 units(normal range is less than 10 units)

Fecal Anti-casein(cow's milk IgA) 6 units (normal range is less than 10 units)

Fecal Anti-ovalbumin(chicken egg) IgA 17 units (normal range is less than 10 units)

Fecal Anti-soy IgA 5 units (normal range is less than 10 units)

HLA-DQB1 Molecular analysis, Allele 1 0302

HLA-DQB1 Molecular analysis, Allele 2 0301

Serologic eqivalent: HLA-DQ 3,3 (Subtype 8,7)

I have one of the main genes that predisposes to gluten sensitivity and celiac sprue. I also have a non-celiac gene predispoing to gluten sensitivity.

I guess I'm a little overwhemed and don't know where to start. I went to college away from home last year as a freshman and almost failed out (2nd semester was quite rough). So I'm living at home and taking classes locally for a while.

I recently asked to be tested for thyroid disease (since a lot of women on one side of a family have problems with it), and I found out I have hashimoto's. My thyroid isn't dead yet, though, but I'd say it's not optimal. I'm going to go to a doctor who works with thyroid patients to treat my thyroid. I'm also curious to see if I also have a high amount of grave's antibodies, like I do with the tpo antibodies.

I've always had problems with motivation, attention, some anhedonia, and kind of a lack of energy/depression, oh and some ocd-ish habits to go along with that. However, this has gotten worse with age, it especially got worse around 14 and I started struggling more in school and felt more depressed. I also have pretty bad female sexual dysfuntion.

I'm just wondering where to go from here. I was really hoping eggs wouldn't be a problem for me, but it looks like they are. And whatabout the casein and soy? Might I still have problems with those even thouth the antibodies are normal? I've read that after eliminating gluten people sometimes discover intolerances to other foods, like dairy and soy.

I'm going to try and makes the dietary changes gradually, and eventually completely elminate some things. I luckily have supportive parents who are letting me live at home and take classes part time while I try and get better (although they still want me to get a job sometime during this next school year).

I guess I need advice on interpreting my results and what I should eliminate. I also am curious if any of you have mainly psychological issues and not physical ones (which is my problem). I'm also on antidepressantsbut they aren't working that well yet.

Sorry this was so long...

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Don't change your diet gradually! That may actually increase your misery, as your body starts reacting more strongly to smaller amounts of aggravating foods. Don't worry about soy or casein. Do cut out gluten and eggs (you may be able to reintroduce eggs in 6 months or so). Otherwise, try to get a healthy selection of food (you probably don't want to go overboard on any particular area) and let your body heal.

I had equal parts physical and psychological problems, and psychologically I've certainly evened out. It took a while, but I got there.

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My spouse eliminated eggs for about a year, the first time he challenged them, his main reaction was a pronounced negative mood that seemed to last most of the day. He had mood/motivation issues before going gluten free; the digestive stuff came after he went gluten free. So now, if he makes a mistake, he is edgy, anxious with D and then heartburn for about 2 days. It used to be longer, but the cleaner his is, and the longer, the better he's getting. Hope this is helpful to you.

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    • Will my doctor test me? So many symptoms...
      Yep, get tested for celiac.  You have plenty of digestive symptoms to indicate it.
    • Weird Reaction
      Hi Richie, It definitely sounds like you got glutened.  Over here in the USA they can't label foods gluten-free if they are made from gluten ingredients, period.  So your barley drink would not be labeled gluten-free here.  A while back I read something about the testing for gluten in foods not being as accurate for detecting barley hordein as it is for wheat gliaden.  So the gluten-free testing (if they do any) that your drink maker does may not be reliable. Celiac disease is an autoimmune condition.  So the immune system starts reacting when it detects gluten and damages the gut lining.  An immune reaction is not like a food poisoning event, where most of the damage is only while the food is actually in your system and then ends.  An immune reaction can continue for weeks to months.  The immune system is really quite serious about protecting our bodies.  And since it is designed to detect and attack micro-organisms it reacts to tiny amounts of gluten. Wheat, barley, and rye are the main gluten grains that affect celiacs.  But some celiacs also react to oat gluten.  
    • Weird Reaction
      Hi Richie,  Glad you are feeling better. I wondered have you been officially diagnosed with coeliac disease? Just wondering as you say you are anaemic, that is one of the symptoms of coeliac disease, along with other general malnutrition. You don't need to eat meat for iron though, you can get it from non-heme foods, like spinach or parsley. Just be careful with the drink with barley, it may be that you only start to have symptoms if you consume a lot of it, but if you have coeliac disease the damage is still been done to your gut regardless of whether you have symptoms or not, which will ultimately lead to malnutrition as well as other things.
    • Weird Reaction
      I think, if all this is caused by glutening, it could be that it takes a while to work its way out of your system. I should explain about what I said about organic broccoli.   I don't have a problem with organic food,  in fact, I buy organic milk and carrots all the time, but I don't want to try organic broccoli in case it is the broccoli that is the problem, not the insecticide.    I meant to ask, are you a coeliac or is it non-coeliac gluten intolerance that you have?   I wonder what sort of support you get in Australia for these conditions once diagnosed?   Here in the UK I think the understanding is that if new gastro symptoms have lasted for more than six weeks it needs to be investigated.   I have found this very helpful advice because I do get odd twinges of pain and sometimes changes in bowel movements (sorry if tmi) but they rarely last more than a couple of weeks.   If they do persist I mention it to my gastroenteroligist and he follows it up.  I recently had a sigmoidoscopy for left sided pain and they found nothing.  Turns out it was to do with lactose intolerance, but I always imagine the worse!    
    • Will my doctor test me? So many symptoms...
      Welcome, @iwillmoveamountain! Of course you are not wrong to pursue getting testing for celiac. My advice is to drop that doctor and find a new one, preferably one who is celiac savvy, and who will listen to you and test you for the disease.  
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