Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Alternative Medicine
0

13 posts in this topic

Has anyone tried alternative medicine to deal with DH/Celiac? I am thinking about starting accupuncture. I have used it before for a rash that was probably DH years ago and it worked. Just wondering what anyone elses experience has been?

0

Share this post


Link to post
Share on other sites


Ads by Google:

I think accupuncture stimulates the central nervous system. That cannot help your body digest a protein it's genetically incapable of digesting. I'd be interested in hearing what an accupunturist would say. It's tricky because the person may just want your money. Definitly research this before you go.

0

Share this post


Link to post
Share on other sites

Jnkmnky:

I was thinking that because the central nervous system controls the activity of all of our organs it would help promote the function of the small intestine. I am definatly more apt to use natural medicine than go on the Dapson also. I know I am pulling at straws but I have been Gluten Free for a year and still have symptoms. I do all of my own cooking and feel confident I am not posioning myself. I don't even feed the dog anymore. That is now my families responcibility. My family hasn't seen bread in our house in 6 months.

I will post again once I have a consultation with an accupuncturist. If anyone else out there has tried this your input would be helpful. Thanks

Jnkmnky, thanks for you thoughts. You could be right, but I still think I need to try this.

0

Share this post


Link to post
Share on other sites

You're not licking envelopes when paying bills, or using shampoos with gluten, or lipstick with gluten? Have you heard of accupuncture curing Lactose intolerance? That would be sort of similar to Celiac Disease in that it's a lack of an enzyme, right? Or am I totally wrong on that? :blink: That's not a rare occurance!! I think accupuncture is great, don't get me wrong. I think for things, especially those conditions involving pain such as migrains, R.A., back injuries, etc, accupuncture is a great place to look for relief. I think that in the area of C.D. it might be a money pit. But you should certainly try it if you can. And by all means, let others know if it helps. You could be on to something that totally works. Who knows?! Good luck.

0

Share this post


Link to post
Share on other sites

The first thing that comes to my mind is are you getting any gluten in through products as mentioned by Jnkmnky. Even products like shampoos and soaps and other things can get into your mouth and cause reactions. Any avenue needs to be evaluated. I was glutening myself for a while through a lip balm that had vitamin e derived from wheat. I think you really need to look at that.

I am all for alternative medicine but do understand that the accupuncture will not cure you. You will always have celiac. Hopefully, it may help relieve some symptoms but I strongly encourage you to take a look at all products.

Think about it..if you wash your hands with soap containing gluten and then touch your food then you re getting your food contaminated. Even things like that need to be looked at.

0

Share this post


Link to post
Share on other sites




Casnco-- I am seeing an acupuncturist for the first time next week! I have fatigue, headaches and stomach aches all possibly related to Celiac. I think it's a great idea. It stimulates the circulation and sends the bodies 'healing powers' to specific areas, which is great for getting your gut back in shape. Let me know how it goes, and I'll let you know!!! :)

Jnkmnky--

Lactose intollerence is the lack of lactase... the enzyme that breaks down lactose. Celiac, however, is a different story.

In Celiacs, gluten triggers the attack of the intestines by the body. We are not able to break down gluten, and instead attack our own villi. Our antibodies read gluten as an antigen, and our immune system screams ATACK! That's why it's so dangerous to ingest gluten occasionally... the antibodies the gluten triggers continue attacking our intestines for 6-9 months after injestion. It's really bad.

My biopsy was positive, but during the endoscopy, they said my intestines looked like pipes, not carpet-shag pipes. My immune system devoured my villi until they were almost completely gone.

So, sorry for the long answer, but in my opinion, Celiac is far more severe then lactose intollerence. :)

0

Share this post


Link to post
Share on other sites

I know lactose intolerance is not as severe as Celiac disease. :)

I thought Celiac's lacked an enzyme to digest gluten???????? Like lacking an enzyme to digest dairy????? That was the association between the two I was going for. Am I wrong? I know the body immune system attacks the body with Celiac, but I thougth it was because there was an enzyme lacking to break down the gluten.

0

Share this post


Link to post
Share on other sites

I do believe in alternative medicine and I do believe that a good, well trained accupuncturist can help with many things. Its certainly worth a try.

I noticed that almost everyone here mentioned that it won't bring about a cure however from your e-mail I'm sure you know that, I don't think a cure is what you are looking for. I do agree with being sure you are not inadvertently being glutened but I have other symptoms and I'm thinking of trying some alternate medicine, I have in the past and will continue to do so and so far its always been helpful for me. It certainly well may help your gut to heal.

Good luck, keep us posted.

susan

0

Share this post


Link to post
Share on other sites

Katie, Jnmnky,ruddabega and Susan:

Thank all of you for your support and thoughts. I will keep everyone posted on my progress. Susan, you are right. I am not banking on a cure for Celiac, just reliefe of the symptoms. Although some doubt the effectiveness of eastern medicine it has worked for me in the past. It was very expencive the first time I used it. I was checking again and the cost has actually decreased! Imagine in this world of inflation something decreasing in cost!

I really appreciate the support of ruddabega and Susan. I needed to hear from those who believe in alternative medicine. However, I thank Katie and Jnmnky for their opinion. I do not want to go into this blindly.

I haven't looked at my soap. Jeeze, how could I miss that? My shampoo is fine. Katie, have you had any experience with laundry detergent? Maybe I need to look at that also. If you have any suggestions for gluten free soap I am listening.

ruddabega, good luck. I hope you find reliefe. Let me know how it goes. I have faith it will be helpful!

Again. Thanks to everyone on the board for their input.

0

Share this post


Link to post
Share on other sites

Hey! I believe in alternative medicine!! :)

0

Share this post


Link to post
Share on other sites

I've had accupuncture on my back, and it was wonderful. I suffered for years, and after 6 accupuncture treatments the pain has not returned (It's been about 4 years since treatment).

It never occured to me to try it for DH/celiac disease symptom relief. You'll have to let us know how it goes.

0

Share this post


Link to post
Share on other sites

I too believe in alternative medicine. I have got relief of many symptoms through the alternative route.

Also, laundry detergents I use Arm and Hammer or Seventh Generation. They are gluten free but ever since I was a kid I was sensitive to detergents and that has been what we have stuck to.

0

Share this post


Link to post
Share on other sites

I use Seventh Generation laundry products with no ill affects - I have read on lists before they are gluten free. I love the lavendar scent!

I could absolutely see how accupuncture could help with the symptoms. I have had accupuncture for a dog bite and my back but my seasonal allergies were much improved, as well.

STephanie

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,419
    • Total Posts
      917,670
  • Topics

  • Posts

    • Formal dinner suggestions
      You could take shrimp cocktail -- just ice it & no need for heating that then. How about following up with some coconut crusted fish with some nice veggies on the side? That could just be nuked to reheat & only takes a minute or two. Make sure when they put it in the microwave that it is covered in case there is gluten lurking on the ceiling of the microwave that can fall down into his food.
    • Formal dinner suggestions
      Hi people. I'd just like some ideas for what I can take for V to a formal family dinner. Unfortunately the restaurant has stated there is no gluten-free safe option so I have to take his meal and dessert.  I can make him gluten-free chocolate cake so thats fine.  But its a three course dinner, and I need to transport it there. Hopefully they will be happy to heat it if needed.  Something really nice and special would be good because everyone else will be eating really  nice meals.  
    • Italian pasta
      Get some celiac travel cards to print off and keep in your wallet.  Present them to your waiter.   http://www.celiactravel.com/cards/ Tell the airline that you need a gluten free meal, BUT take food with you because odds are the airlines will make a mistake.   As far as the wheat pasta.....some folks say the wheat is different.  I personally think they are kidding themselves.  There is no scientific proof that I have found to support this theory.  (Anyone want to present such data?)  Italy, from what I heard is great for celiacs.  I'll know for sure this summer!  I'll be there!   As usual, we plan on bringing some packable food, but we are good at shopping at grocery stores for food and picnicking when traveling.  I expect foods at grocery stores to be clearly marked as they were in Great Britain since they are part of the EU.  
    • Villous atrophy with negative tTG IgG/IgA, high Gliadin IgA!
      It looks like you have a few options that you need to consider pursuing: 1.  Get back to your doctor and tell him to figure out what's wrong with you.  Take a friend because it helps to have someone listen and take notes who is not the patient.  Get copies of all lab reports and doctor notes always and keep a file on yourself to share with future doctors or to monitor your progress.   2.  Ditch this GI and get a new one (SIBO is real per my celiac savvy GI).  Take a friend with you.   3.  You say you are lactose intolerant.  Experiment by going lactose free for six months -- not just a few days.  This will help to promote healing and help determine if milk (lactose or proteins) are causing villi damage and not gluten. 4.  Recognize that some celiacs test NEGATIVE to antibodies.  Per Dr. A. Fasano and Dr. Murrary, based on their clinincal experience and recent data just published, they estimate that 10 to 20 percent of celiac disease patients test negative to the serology screening test. That means consider yourself a celiac and stop your gluten intake for at least six months.  Normal vitamin and mineral levels do not rule out celiac disease.   5.  Recognize that you can multiple reasons for villi damage.  That's why a second consult with a celiac savvy GI is important.   Good luck!    
    • Continued Symptoms
      Try keeping a food and symptom diary.   She could have allergies or intolerances.  But, again, I am not a doctor!  I am healed from celiac disease, but I still react to certain foods and have allergies.  Those will probably never go away as I have been plagued with them all my life (as my siblings have too).  She could have a milk protein intolerance and not just lactose.  Eliminate all dairy too see if it helps.   Speech really normalizes by the age of 8.  I can not say if your public school will evaluate her.  My home-schooled friends are still monitored by the state and receive state funding.  So, I would assume they would receive all the same benefits.  Try calling.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,551
    • Most Online
      1,763

    Newest Member
    Cwilson2345
    Joined