This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity
Thanks for the information. I had some blood testing back in July.
TSH: 2.680 (.450-4.500)
T4, Free (Direct) 0.81 (0.82-1.77) [It's a tad low, but none of the doctors who looked at my tests have been concerned.]
Iron (ferritin): 34 out of a 15-150 reference range.
Magnesium: 2 out of 1.6-2.6
My B12 was low normal, but after 3-4 weeks of B12 shots, my level is now around 800. Unfortunately, the shots didn't help at all (in fact, my numbness/tingling got worse during that month). It did fix my anemia though (I had B12 related anemia).
My vitamin D was really low at 23%, but my doc had me supplement 4000 units a day from July to October. I only stopped when I went gluten-free since I didn't know what sort of extra junk might be in them. I have no idea what my level is now, but it should have gotten better. Just like with the vitamin D though, the numbness/tingling in my extremities appeared during this time (though my left quad had already been having issues for a year and a half).
In any case, I'm supposed get my B12, vitamin D, and blood tested again on Dec. 7th.
Sorry you're having problems with doctors. I don't really understand the British system of private insurance, but you'd think they'd be smart enough to invest in preventative care (not that our system is any better with that). Spend a little upfront to save a lot more later. I don't understand why these people are so short-sided.
When I was diagnosed with celiac disease I had terrible tingling and buzzing going on in my extremities, particularly in my left foot. It very gradually got better after sticking to a gluten free diet but also supplementation - iron (ferritin); B12 (sublingual methylcobalamin) and vitamin D. I would get those levels checked if I were you as if you are out these can cause all sorts of weird symptoms. I have been told B12 in particularly shouldn't just be borderline normal but in the 500s to avoid tingling. I got muscle twitching too and read that I should be supplementing magnesium and I think that probably helped.
The odd thing is from time to time these things come back and I really don't know why. I live in Britain and our national health service, which is free to all, is under a lot of pressure and so there isn't a lot of money to spend on lots of proactive investigations. My private health policy isn't that brilliant either in this regard so I don't know whether I will ever find out why I get these symptoms returning - sometimes for weeks or months at a time. It has been suggested to me that it could be thyroid related.
But having read around it a lot on dr google I think what might be happening in my case is cross-contamination, as careful as I try to be. I also have just found out that my iron levels have dipped again so perhaps I am still not completely healed and need to supplement a bit more again (and I was dx'd in 2013, although as a woman low iron can be due to other factors).
I would say it is early days yet but if you can get your levels tested at least you can see if you have any deficiencies - a good starting point.
No you cannot eating gluten containing stuffing. You can't eat the turkey it was cooked in, either. There is no way to be sure no stuffing gets in or on the turkey. You could make a gluten-free stuffing. And, from a general food safety issue, you shouldn't cook the stuffing in the bird.
Six weeks ago, I went gluten-free. I only eat veggies (except nightshades), fruits (except bananas), and meat. Most of my symptoms have resolved on this eating plan. I'm fairly regular now. My stools look normal compared to the Bristol Stool Chart. My intestinal gas is now mild and rare. My mild and intermittent abdominal pain is gone. I'm sleeping eight hours a night. I no longer have any shortness of breath or breathing problems. My memory problems are no longer so awful, and I can concentrate just fine again. My period seems to be getting back to normal, too. It was still light this month, but it lasted 5-6 days rather than 3-4 and my cramps were back in full force. I'm almost off the bipolar meds too, which is good, since I'm pretty sure I never had bipolar in the first place and they are the major cause of my low sodium levels.
I still have a couple of problems though, and I'm not sure what to do about them. I'm still having some mild, intermittent numbness and/or tingling in my left quad, both hands/fingers, and both feet/toes. Don't get me wrong, it's a LOT better than when I was ingesting gluten. But at times, my hands/feet will feel kind of warm and tingly...or cold...like they *might* fall asleep, even though they rarely do these days. On the other hand, my left quad still falls asleep nearly every day. However, the muscle isn't so horribly dead like it used to be when it happens and I get sensation back quite soon. I was trying to connect it all to food I've ingested, but I'm starting to wonder if it's not just background radiation (so to speak) until my body heals up.
A second troubling symptom has appeared recently too. I seem to have developed some joint aches and pains in my fingers, wrists, elbows, knees, and ankles. They're SORE and weak, especially when I wake up. My muscles are a bit sore too. Is it even gluten-related? Is it something else?
I guess my questions are these:
1. Is continued mild neuropathy and/or the joint pain a sign of ongoing damage?
2. I've believed that being glutened is much worse than what's going on with me right now. This seems rather mild, so I'm not being glutened somehow, am I? I ask because I live with three roommates, and though we do not share ANY food or cooking pans/utensils, they don't clean up after themselves in the kitchen. I've been careful.
3. Could this just be background noise as my body heals, and should I stop trying to associate it with the foods I'm eating (unless it's a incredibly obvious bad reaction)?
4. Is it normal for joint pain to just appear after gluten-free? I thought gluten-free diets relieved joint pain!
5. If it's not normal, what other sorts of things could it be? I really don't think I have MS, lupus, or Lyme disease.