Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Felt Great, Got Scared

swcom120

By swcom120
in Coping with Celiac Disease

Recommended Posts

swcom120 Rookie
swcom120
Posted

Been gluten free now for three weeks. I've been really sick for a few months with all the common symptoms you read about on this site. All of a sudden tonight I feel great, no pain, no headaches, this wierd light feeling overcame me. Parts of my body feel different but not in a bad way. Great right? Wrong. I started having an anxiety attack. I feel like there is something wrong with me because I don't feel bad. Does that make any sense to any of you? I have not been diagnosed officially but I have learned enough to know that I needed to go gluten free in order to get better. I dont know how long I've been sick, just know that it hit it's peak a few months ago.

Did any of you out there feel so different that it scared you? Im worried that im going to feel ways that I haven't felt and not realize it's me getting better. This migh not make any sense to some of you but this is all new to me. Unfortunately after a few hours of laying here in bed worrying, I'm starting to get a headache again. Oh well, hopefully these are the signs of recovery.

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


bonnie blue Explorer
bonnie blue
Posted

It makes perfect sense to me. When first diagnosed we tried to be a household with gluten products still in the home. But I still had my own toaster, butter, pans, etc....Everytime someone would eat bread, crackers, etc....I kind of freaked out. My doctor did prescribe some anti-anxiety meds, which did help but left me feeling out of it. So after the doctor said go completely gluten free in the house, it made a world of difference. I think because what can hurt us is so readily available everywhere it makes it really scary for us. Something that really helped me was meditation and yoga. I am so glad you are feeling better, I know that sometimes it can be scary after feeling so bad for so long, just stay positive, keep thinking about how great you feel and that you will not let this define you.

Take care and stay positive B)

Link to comment
Share on other sites
SarahJimMarcy Apprentice
SarahJimMarcy
Posted

I had a similar feeling - not related to celiac - but after a tremendously difficult year (almost lost my husband, daughter and Mom; promoted at work with three employee slots to fill, etc), I decided to declare the next year The Year of Fun. As part of that, we went to Disney World. I was sitting outside Italy at Epcot watching a parade. I felt this strange light feeling. Almost bubbly. I started to panic. What is this? Am I getting sick? Oh my gosh! ... Oh...wait... I'm feeling happy. This is happiness. It had been a while and was hard to recognize. But I sure was glad it was back!

I hope you continue to heal and more happiness comes to you.

Link to comment
Share on other sites
shadowicewolf Proficient
shadowicewolf
Posted

Yep, yep, and yep. I get panic attacks :< Not fun at all when it goes off like that.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,088
    • Most Online (within 30 mins)
      7,748
    Aventine
    Newest Member
    Aventine
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      14 year old with Celiac & EOE still suffering...

      By knitty kitty · Posted

      Forgot one... https://www.hormonesmatter.com/eosinophilic-esophagitis-sugar-thiamine-sensitive/
    • trents
      50 YO Male Recently Diagnosed with Celiac Disease

      By trents · Posted

      Welcome to the forum community, @ekelsay! Yes, your tTG-IGA score is strongly positive for celiac disease. There are other antibody tests that can be run when diagnosing celiac disease but the tTG-IGA is the most popular with physicians because it combines good sensitivity with good specificity, and it is a relatively inexpensive test to perform. The onset of celiac disease can happen at any stage of life and the size of the score is not necessarily an indicator of the progress of the disease. It is likely that you you experienced onset well before you became aware of symptoms. It often takes 10 years or more to get a diagnosis of celiac disease after the first appearance of symptoms. In my case, the first indicator was mildly elevated liver enzymes that resulted in a rejection of my blood donation by the Red Cross at age 37. There was no GI discomfort at that point, at least none that I noticed. Over time, other lab values began to get out of norm, including decreased iron levels. My PCP was at a complete loss to explain any of this. I finally scheduled an appointment with a GI doc because the liver enzymes concerned me and he tested me right away for celiac disease. I was positive and within three months of gluten free eating my liver enzymes were back to normal. That took 13 years since the rejection of my blood donation by the Red Cross. And my story is typical. Toward the end of that period I had developed some occasional diarrhea and oily stool but no major GI distress. Many celiacs do not have classic GI symptoms and are "silent" celiacs. There are around 200 symptoms that have been associated with celiac disease and many or most of them do not involve conscious GI distress. Via an autoimmune process, gluten ingestion triggers inflammation in the villous lining of the small bowel which damages it over time and inhibits the ability of this organ to absorb the vitamins and minerals in the food we ingest. So, that explains why those with celiac disease often suffer iron deficiency anemia, osteoporosis and a host of other vitamin and mineral deficiency related medical issues. The villous lining of the small bowel is where essentially all of our nutrition is absorbed. So, yes, anemia is one of the classic symptoms of celiac disease. One very important thing you need to be aware of is that your PCP may refer you to a GI doc for an endoscopy/biopsy of the small bowel lining to confirm the results of the blood antibody testing. So, you must not begin gluten free eating until that is done or at least you know they are going to diagnose you with celiac disease without it. If you start gluten free eating now there will be healing in the villous lining that will begin to take place which may compromise the results of the biopsy.
    • Anmol
      Recently Diagnosed Celiac- Need advice

      By Anmol · Posted

      Hello all- my wife was recently diagnosed with Celiac below are her blood results. We are still absorbing this.  I wanted to seek clarity on few things:  1. Her symptoms aren't extreme. She was asked to go on gluten free diet a couple years ago but she did not completely cut off gluten. Partly because she wasn't seeing extreme symptoms. Only bloating and mild diarrhea after a meal full of gluten.  Does this mean that she is asymptomatic but enormous harm is done with every gram of gluten.? in other words is amount gluten directly correlated with harm on the intestines? or few mg of gluten can be really harmful to the villi  2. Why is she asymptomatic?  3. Is Gliadin X safe to take and effective for Cross -contamination or while going out to eat?  4. Since she is asymptomatic, can we sometimes indulge in a gluten diet? ----------------------------------------------------------------------------------------------- Deamidated Gliadin, IgG - 64 (0-19) units tTG IgA -  >100 (0-3) U/ml tTG IgG - 4   (0-5) Why is this in normal range? Endomysial Antibody - Positive  Immunoglobulin A - 352 (87-352) ------------------------------------------------------------------------------------------------ Thanks for help in advance, really appreciate! 
    • Tanner L
      Bad Reaction To Regular Ruffles Cheddar and Sour Cream

      By Tanner L · Posted

      Constantly! I don't want everything to cost as much as a KIND bar, as great as they are.  Happy most of the info is available to us to make smart decisions for our health, just need to do a little more research. 
    • ekelsay
      50 YO Male Recently Diagnosed with Celiac Disease

      By ekelsay · Posted

      Today, I received the results of my Tissue Transglutaminase (tTG) Ab, IgA test. I am not sure how to interpret the results. I have left a message for the doctor that requested the test but have not heard back. The results stated that the normal range is from 0.00 - 4.99 FLU. My results came back at 92.08. Is this concerning? This seems extremely high for someone who has reached the age of 50 before finding out he has celiac disease.  The reason that I was administered the test in the first place is due to bloating issues that started about a year ago. I met with a Gastroenterologist and after a short question and answer session she wanted to test me for celiac disease and a bacteria test via the H. Pylori Breath Test. She seemed more concerned with the fact that I am a healthy male suffering from Anemia. Is it possible the anemia could be a result of celiac disease? I have been on an iron supplement for the better part of 5 years.      
×
×
  • Create New...