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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Keep Your Hands Off My Glass!
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We went out to dinner tonight at a place where we dine a couple of times a month. They don't have a gluten-free menu but they can make a plain chicken breast for my daughter and she gets it on a taco salad minus the dairy. They don't put their salad in the big flour tortilla bowl. Instead it comes with chips.

So they we were, when all of a sudden her dad started putting his hands all over her glass! Why? Who knows. He was eating a burger on a bun.

She got really mad at him and told him to keep his wheaty hands off of her glass. She was diagnosed just over 7 years ago and he still doesn't get it. *sigh*

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The last time I ate out I noticed the waiter handed out bread baskets then brought our water glasses.....handed the glass to me...with palm over the top of the glass....and fingertips touching where I would be drinking from. ARRRGH! I thought...can that put gluten in me? Paranoid of trace gluten...just not worth it to me. I didn't drink the water...

Sorry her dad did that! But she is right and I'm glad she spoke up.

Keep your wheaty hands off my glass!! Good for her!

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The last time I ate out I noticed the waiter handed out bread baskets then brought our water glasses.....handed the glass to me...with palm over the top of the glass....and fingertips touching where I would be drinking from. ARRRGH! I thought...can that put gluten in me? Paranoid of trace gluten...just not worth it to me. I didn't drink the water...

Sorry her dad did that! But she is right and I'm glad she spoke up.

Keep your wheaty hands off my glass!! Good for her!

Because I used to waitress, I am a very critical customer. And this is my pet peeve! I KNOW that a server's hands have been handling money and dirty napkins, as well as gluten filled products. If a server brings my drink that way, I politely point that out to them, then ask for a new drink. Even then, I always use a straw.

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We went out to dinner tonight at a place where we dine a couple of times a month. They don't have a gluten-free menu but they can make a plain chicken breast for my daughter and she gets it on a taco salad minus the dairy. They don't put their salad in the big flour tortilla bowl. Instead it comes with chips.

So they we were, when all of a sudden her dad started putting his hands all over her glass! Why? Who knows. He was eating a burger on a bun.

She got really mad at him and told him to keep his wheaty hands off of her glass. She was diagnosed just over 7 years ago and he still doesn't get it. *sigh*

I'm trying to imagine why someone would do something like that. Was he trying to be funny? Good for her for standing up for herself!

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I'm trying to imagine why someone would do something like that. Was he trying to be funny? Good for her for standing up for herself!

With him? Who knows. He does all sorts of things he shouldn't do or that make no sense.

Once when we were first married I went to his grandma's house for Christmas Eve dinner. His family is Italian and the tradition is that all the women gather together to make the dinner. I had offered to help but was told I could not. I did help prepare some things in advance at his parent's house. They do use specific recipes and his mom hovered over me to make sure I did things right. Alas she gave me the wrong peppers for stuffing. His dad grew them and later pickled them. He grew two kinds. Sweet and hot.

So there I was, cutting the ends off of these little round peppers and taking out the seeds like she told me to. But my hands were on fire! She wound up getting really mad at me. I was almost in tears. I ran out and stuck my hands in the snow trying to cool them. I know now that isn't the thing to do. And after she took over the job after getting really angry with me, she apologized. Now her hands were on fire.

I tried soaking my hands in milk and even putting butter on them and wiping it off. Nothing would take the burning away for two whole days.

So then we went to the family dinner. I drink diet soda and only diet soda. I can't stand regular soda never could. And now I am diabetic so it isn't even an option. I already knew that his family only ever had regular soda with their meals. So I brought my own can of diet soda.

His mom announced that she had used the wrong peppers for the stuffed peppers and to eat them with caution because they were really hot. Well... He wasn't listing to her. Took a ton of the peppers and stuffed his mouth with them. Then his mouth was on fire. And he had consumed all of his drink. There were two 2 liter containers of soda sitting right behind him. He could have easily refilled his glass. But instead, he took my can and drank it all. I was horrified. He didn't even ask! And there I was, left with nothing to drink. We were eating in the basement. There was no faucet down there. No water. Just the regular soda.

He does have ADHD. So that may be the reason why he does the sorts of things that he does. But it is greatly annoying!

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    • Will my doctor test me? So many symptoms...
      Remember that you have to be eating a normal gluten diet for the testing so don't cut back & don't stop eating it. Make sure they do the full, current celiac panel: Anti-Gliadin (AGA) IgA
      Anti-Gliadin (AGA) IgG
      Anti-Endomysial (EMA) IgA
      Anti-Tissue Transglutaminase (tTG) IgA
      Deamidated Gliadin Peptide (DGP) IgA and IgG
      Total Serum IgA   
      Also can be termed this way: Endomysial Antibody IgA
      Tissue Transglutaminase IgA 
      GLIADIN IgG
      GLIADIN IgA
      Total Serum IgA 
      Deamidated Gliadin Peptide (DGP) IgA and IgG
    • Will my doctor test me? So many symptoms...
      Yep, get tested for celiac.  You have plenty of digestive symptoms to indicate it.
    • Weird Reaction
      Hi Richie, It definitely sounds like you got glutened.  Over here in the USA they can't label foods gluten-free if they are made from gluten ingredients, period.  So your barley drink would not be labeled gluten-free here.  A while back I read something about the testing for gluten in foods not being as accurate for detecting barley hordein as it is for wheat gliaden.  So the gluten-free testing (if they do any) that your drink maker does may not be reliable. Celiac disease is an autoimmune condition.  So the immune system starts reacting when it detects gluten and damages the gut lining.  An immune reaction is not like a food poisoning event, where most of the damage is only while the food is actually in your system and then ends.  An immune reaction can continue for weeks to months.  The immune system is really quite serious about protecting our bodies.  And since it is designed to detect and attack micro-organisms it reacts to tiny amounts of gluten. Wheat, barley, and rye are the main gluten grains that affect celiacs.  But some celiacs also react to oat gluten.  
    • Weird Reaction
      Hi Richie,  Glad you are feeling better. I wondered have you been officially diagnosed with coeliac disease? Just wondering as you say you are anaemic, that is one of the symptoms of coeliac disease, along with other general malnutrition. You don't need to eat meat for iron though, you can get it from non-heme foods, like spinach or parsley. Just be careful with the drink with barley, it may be that you only start to have symptoms if you consume a lot of it, but if you have coeliac disease the damage is still been done to your gut regardless of whether you have symptoms or not, which will ultimately lead to malnutrition as well as other things.
    • Weird Reaction
      I think, if all this is caused by glutening, it could be that it takes a while to work its way out of your system. I should explain about what I said about organic broccoli.   I don't have a problem with organic food,  in fact, I buy organic milk and carrots all the time, but I don't want to try organic broccoli in case it is the broccoli that is the problem, not the insecticide.    I meant to ask, are you a coeliac or is it non-coeliac gluten intolerance that you have?   I wonder what sort of support you get in Australia for these conditions once diagnosed?   Here in the UK I think the understanding is that if new gastro symptoms have lasted for more than six weeks it needs to be investigated.   I have found this very helpful advice because I do get odd twinges of pain and sometimes changes in bowel movements (sorry if tmi) but they rarely last more than a couple of weeks.   If they do persist I mention it to my gastroenteroligist and he follows it up.  I recently had a sigmoidoscopy for left sided pain and they found nothing.  Turns out it was to do with lactose intolerance, but I always imagine the worse!    
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