Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

New Guy Here, So Glad I Found This Place


89Mirageman

Recommended Posts

89Mirageman Newbie

I honestly feel that God led me here and I really mean that. I am a 33 y/o male and I've had issues with my stomach as far back as I can remember. They have gotten quite a bit worse over the past two years. I have a dull aching pain in my lower right abdomen, pretty much all the time. Its not as sharp when I am standing for some reason. Also I have always had problems going to the bathroom if you know what I mean. Seems I have to take stool softeners or laxitives. The Doctor told me to eat more fiber, put me on colace, told me to drink more water and eat a lot of fresh fruits and veggies. I did all of that and had zero improvement.

Also I was diagnosed as a type two diabetic about ten years ago. So if it turns out that I have this disease as well it will really cut down on what I am able to eat on a daily basis. Lately I am always tired, I can sleep for 8+ hours and get up and it seems I'm yawning again two hours later. I've also been having some headaches and pain in my left jaw. Up until lately I never got headaches. I've noticed some joint pain in my left knee as well and lower back pain. Some sinus issues too and again I've never had any problems with my sinuses.

I have been mentioning my constipation issues to doctor's in the past and they all pretty much ignore me. Also they say the lower pain in my side is probably coming from the constipation. Its frustrating to say the least. A few months ago I was hospitalized for being dehydrated. Just before that I was treated with sterroids and antibiotics for an ear infection. It has since cleared up but I still have a fullness in my ear, kinda hard to explain. They did a CT scan of my stomach and all tests came back fine, they did a ton of blood work as well and didn't find anything. An upper endoscopy showed that I had gastroparesis (slow stomach emptying), my blood sugars have been perfect for two months now and I am eating smaller meals but the stomach pain is still there which leads me to believe that I also have celiacs. After reading a ton of threads on here its like a little light bulb came on in my head. To know that its not my imagination, there may actually be a reason why I feel like I'm 80 instead of 33. Why I am plagued with all of these other health issues.

I have been gluten free for about a week or so I thought. I'm still learning and seeing that some of the things that I have eaten over the past few days probably still contained gluten, McDonalds fries and trail mix from the grocery store to name a few. Tomorrow I will start eating nothing but meats, fresh fruits and veggies and see how it goes. I'll lay off the milk, soy and nuts as well. Just wanted to introduce myself and thank everyone for putting this awesome site together. I'm not looking forward to cutting out the gluten but if it means I will feel better it will be worth it for sure. Sadly I don't have any type of health insurance at the moment because I am not working so having a lot of test done is out of the question. I'm hoping my issues will go away in time with the new diet.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

Welcome aboard,

I don't know about the trail mix, but McDonalds fries, while controversial, do not contain any detectable gluten. Look first for other possible gluten sources. If you come to the conclusion by elimination that McDonalds fries are an issue, then it is more likely that cross-contamination in the restaurant is the source than anything intentionally included in the fries.

The fryers used for potato products at McDonalds are at the front

of the shop and are tended by the window crew. Everything else is fried in the back by the grill crew.

Link to comment
Share on other sites
gluten free overseas Apprentice

I had the same issues with constipation, so I understand that nightmare. I took me 4 months of being gluten free before I was regular (well, as regular as I have been in my life... not totally there yet). Don't get discouraged if it doesn't clear up right away--it takes a while for your intestines to heal. Just be careful how many things you replace with rice flour because eating lots of products made from rice can bind you up.

Link to comment
Share on other sites
89Mirageman Newbie

Right now, everything that I eat still bothers me. I'm sure it will take my intestines a while to heal since I've been sick for so long. I read somewhere else on here about the fries at McDonalds containing gluten so that's why I mentioned it. I guess for now I still need to eat whole foods and not eat out at all until I get better. As for the trail mix I meant to say the nuts were bad and the m&m's contain milk so its probably a good idea to stay away from those at first too.

Should I run out and buy a new toaster and pots/pans just for me? I was wondering if I could line them with aluminum foil for now while baking or making toast? At least until I find out if this diet is helping me at all. Also what are you guys taking at first to help with the pain and inflammation? I'm taking zantac twice a day. Pepto helps too but causes constipation and I don't need any help with that lol.

Link to comment
Share on other sites
89Mirageman Newbie

So I went to see my regular doctor today for a checkup and decided to mention celiac to him. He knew exactly what it was but told me that caliacs don't have constipation issues, only diaharrea. I go on to tell him about this site that I ran across while searching for my symptoms online and he's like, well we can do the test the next time we need bloodwork from you. Before this I had just mentioned that I have been gluten free for about a week or so and that didn't seem to matter. To me that clearly tells me that maybe he doesn't know as much about this as he thinks he does.My plan is to stay on the diet and hope for the best.

So my next question is, how many on here had severe constipation problems? Also did your gut hurt as soon as you ate, a few hours later once it reached your intestines or what? Any other symptoms? Thanks for all the help in advance!

Link to comment
Share on other sites
anabananakins Explorer

So I went to see my regular doctor today for a checkup and decided to mention celiac to him. He knew exactly what it was but told me that caliacs don't have constipation issues, only diaharrea. I go on to tell him about this site that I ran across while searching for my symptoms online and he's like, well we can do the test the next time we need bloodwork from you. Before this I had just mentioned that I have been gluten free for about a week or so and that didn't seem to matter. To me that clearly tells me that maybe he doesn't know as much about this as he thinks he does.My plan is to stay on the diet and hope for the best.

So my next question is, how many on here had severe constipation problems? Also did your gut hurt as soon as you ate, a few hours later once it reached your intestines or what? Any other symptoms? Thanks for all the help in advance!

Yep, always C for me, very rarely D. Stomach aches my entire life - gone gluten free. It usually takes 2 hours after eating for me to know I've been glutened.

Link to comment
Share on other sites
  • 3 weeks later...
89Mirageman Newbie

Just a little update on myself. I have been gluten free for about a month now. It seems like my issues are a little better but not a lot. Still pretty constipated and the bloating/pain is still there a little while after meals. My wife and I started walking a lot and that really seems to help with the gas (lol). Tonight for instance I ate one baked pork chop and some cabbage with vinegar and about an hour later here comes the bloating and stomach pain. I have really cut down on what I eat and I went from 206 to 182 which is good because I needed to lose some weight. Also my blood sugars are a lot better but like I said I walk a lot and don't eat as much so that's a given.

Any advice on what I should do next or is a month just not enough time to see a difference?

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

I don't know how long you went undiagnosed. It can take considerable time to heal the intestines once you are on the gluten-free diet. During that healing period, symptoms may continue even though gluten has been eliminated. On that scale, one month is very little time. For me, it took more than three months gluten-free before my symptoms completely went away.

Link to comment
Share on other sites
89Mirageman Newbie

Well that's another thing, I haven't officially been diagnosed. I just knew that I had a bunch of the symptoms and decided to try the diet. Also I guess when you heal little by little you really don't notice it.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Suzi374 replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Lots of tests

    2. - Suzi374 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Lots of tests

    3. - Peace lily posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Would like to gain weight

    4. - Smith-Ronald replied to Soleihey's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Lymph nodes

    5. - Bayb replied to Bayb's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Trying to read my lab results


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,224
    • Most Online (within 30 mins)
      7,748

    Suzi374
    Newest Member
    Suzi374
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Suzi374
      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it. 
    • Suzi374
      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be better and tried a new set of probs, all the time, giving me multiple shocks which were not enjoyable lol. Anyway, he’s now ordered tests for myeloma, and all the vitaminy things that so many of you mention on here, also tests looking for autoimmune responses. I already have Hashimotos. Interestingly, to me, but maybe someone out there can relate or knows more than i do, although I was a nurse, but ED not ‘weird symptoms’  nurse. Anyway back to the interesting thing, I took duramine in 2013 to lose weight which caused a massive panic attack when I stopped taking it and half my hair fell out. I only took it for a week but it was horrible and I regret it. It triggered ongoing panic attacks which are horrendous. So I feel like I’m a bit crazy. Then in 2020 I had this sudden onset of horrible pain when trying to eat a cinnamon roll. It continued and I lost around 20 kgs. I had two gastroscopes and a colonoscopy and they were all normal. I scored a barium swallow and CT angiogram. All normal. The pain subsided a little but I was left with reflux and an awful feeling that I couldn’t get air when I ate some foods. This was not anxiety.  The anxiety was separate and I still maintain this. This was something to do with eating. It was like the air was thick but I wasn’t short of breath. I just had the sensation I was, then it triggered anxiety. Anyway, I had other weird things- couldn’t bend knees to shave legs in shower lol. Knees felt stiff and swollen but they weren’t. Knee WOUld swell up randomly but mri showed minimal issues. A bit of a meniscus degeneration but insignificant. Then the buzzing sensations in my head, the feeling like someone was stabbing me with something sharp. So now, I pre empted his tests, although I don’t think I’m celiac because it should have come up on gastroscopy, I’ve gone off gluten. Since Tuesday last week so 9 days. Since then I don’t appear to be as constipated, I realised I got through today without a nap and I’m not tired, maybe it’s just today and not related but I get very tired normally and sleep straight after work often, I can bend my knees and shave my legs lol, the buzzing vibrating has gone from my head, I had to call and ambulance as my heart decided we were off on a run, but we weren’t running and I’ve been a bit twitchy at bed time when trying to sleep, reflux is improving, I did get the weird suffocating feeling a bit when eating today but not as bad normall. Tingling and numbness still present and I felt like it moved up my legs a bit today but I’m a bit jittery. So I don’t know if it’s celiac disease or a gluten intolerance but I think, and it may be wishful thinking because my symptoms do make life a bit challenging, but maybe I’m feeling better. I don’t feel as cloudy. My thinking feels crisper. Like there’s no buzzing and I’m not fighting to break through the cloudiness now. I hope so much that this may help me feel a bit better moving forward. It would be a miracle as I really have struggled to work and parent and keep the house clean and I’m always anxious and exhausted.  If you get this far, please tell me if you you can relate to any of the above. Oh and tonsils out 5 years ago but before that antibiotics multiple times a year, sometimes intramuscular because they were so bad.  Op was meant to take 30 mins, it took 1.5 hours due to size of them. 
    • Peace lily
      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
    • Smith-Ronald
      Enlarged lymph nodes in neck and groin with celiac are not uncommon. They can take time to reduce even after going gluten-free. Monitoring is key.
    • Bayb
      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep searching for a cause? 
×
×
  • Create New...