Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Reacted To Something Labeled "gluten Free"
0

11 posts in this topic

I have been gluten free for more than a year. After more than 20 years of IBS diagnosis and symptoms, going gluten free has been a blessing. I have been demoralized more than once when I thought I had been doing everything right only to be "glutened" by hidden gluten, but the overall improvement in my health has made those setbacks learning experiences.

For the last 24 hours I have eaten only food that I prepared and have had before without reaction. For dessert today I had Kozy Shack tapioca pudding, which I don't recall having eaten in the last year (straight from the container using a plastic spoon from a box I had just opened). The pudding is clearly labeled "gluten free," and I understand the product to have a great reputation for being gluten free.

You probably saw this coming, but I was knocked out with symptoms. The pain was akin to childbirth. I won't go into the details of my symptoms because you all know. So here's my question, have any of you had a reaction to tapioca? There is an ingredient in it called "inulin" that adds fiber. It appears to be gluten free, but I don't know if I could have sensitivity to that or not. Any ideas?

0

Share this post


Link to post
Share on other sites


Ads by Google:

Sorry you had such a hard time!! Been there, done that with the stomach pain! Inulin can cause problems for some people, so that is a possibility.

0

Share this post


Link to post
Share on other sites

You could have a sensitivity to tapioca. If you determine that you do, watch out for "modified food starch." It is on many celiac avoid lists due to a false fear that it could be wheat. It is, however, most often tapioca, with corn as the second most likely source.

0

Share this post


Link to post
Share on other sites

I believe inulin is derived from chicory root.

0

Share this post


Link to post
Share on other sites

I react to many items which are labelled gluten free. Some are better than others. I keep track with a food diary.

0

Share this post


Link to post
Share on other sites




It is also entirely possible that the product was contaminated with gluten.

1

Share this post


Link to post
Share on other sites

I have been gluten free for more than a year. After more than 20 years of IBS diagnosis and symptoms, going gluten free has been a blessing. I have been demoralized more than once when I thought I had been doing everything right only to be "glutened" by hidden gluten, but the overall improvement in my health has made those setbacks learning experiences.

For the last 24 hours I have eaten only food that I prepared and have had before without reaction. For dessert today I had Kozy Shack tapioca pudding, which I don't recall having eaten in the last year (straight from the container using a plastic spoon from a box I had just opened). The pudding is clearly labeled "gluten free," and I understand the product to have a great reputation for being gluten free.

You probably saw this coming, but I was knocked out with symptoms. The pain was akin to childbirth. I won't go into the details of my symptoms because you all know. So here's my question, have any of you had a reaction to tapioca? There is an ingredient in it called "inulin" that adds fiber. It appears to be gluten free, but I don't know if I could have sensitivity to that or not. Any ideas?

I am a hyper sensitive celiac and have found that many premade foods that are "gluten free" are not. Since being in this group I am learning enough to be mostly symptom free, but all of the times I have reacted is to something packaged. I think it might be that they are made in factories that are not dedicated or that the food is shipped and stored in close proximity with gluten foods and cc.

Sorry you got glutened. Hope it passes shortly. I take anti-inflammatory foods and acidophilus to reduce the time to heal.

0

Share this post


Link to post
Share on other sites

Re: symptoms.

Inulin has a reputation for causing gastro problems for people, so it could definitely be that. Maybe find a few other foods with inulin that don't have similar ingredients otherwise to test that out.

Might be good to call up the company and see how they ensure their food is gluten free, and some of the manufacturing practices. If they test every batch for gluten, it's a good bet that it's below a certain level. If they don't test every batch, then there's a low risk that they could get a contaminated batch if it's a gluten-free facility, a slightly higher risk if they have a shared facility but a gluten-free line, and a higher risk if they don't have a gluten-free facility or a gluten-free equipment line, you know?

Could be either issue, potentially....or a double whammy and you get both contamination and inulin.

Where is our 'what got me' test when we need it! ;)

Oh, and as Richard said, I believe, some people have issues with tapioca, as well, so there's that to check out, too. Although if you eat a lot of gluten-free products, you've probably run into tapioca before, so I'd think that might be less likely unless you DON'T eat a lot of gluten-free processed foods. :-)

0

Share this post


Link to post
Share on other sites

I have been gluten free for more than a year. After more than 20 years of IBS diagnosis and symptoms, going gluten free has been a blessing. I have been demoralized more than once when I thought I had been doing everything right only to be "glutened" by hidden gluten, but the overall improvement in my health has made those setbacks learning experiences.

For the last 24 hours I have eaten only food that I prepared and have had before without reaction. For dessert today I had Kozy Shack tapioca pudding, which I don't recall having eaten in the last year (straight from the container using a plastic spoon from a box I had just opened). The pudding is clearly labeled "gluten free," and I understand the product to have a great reputation for being gluten free.

You probably saw this coming, but I was knocked out with symptoms. The pain was akin to childbirth. I won't go into the details of my symptoms because you all know. So here's my question, have any of you had a reaction to tapioca? There is an ingredient in it called "inulin" that adds fiber. It appears to be gluten free, but I don't know if I could have sensitivity to that or not. Any ideas?

You may be becoming more sensitive as time goes by. I do not know if this happens as we get older or if it happens because of our gluten free diet. I went through a honeymoon period when I could cheat a lot. That lasted about a year and a half and after that I started having problems again and had to tighten up my diet. Now, I even avoid processed gluten free foods as much as I can. I have suspected tapioca from time to time. I have trouble with Namaste mixes even though they are supposed to be pretty good. I tried non-processed cassava (the root they make tapioca from) and had a lot of pain on those days, though not necessarily diarrhea. I am not conclusive about the tapioca, but the problems have happened a couple of times. When I work up my nerve, I might try again. Three strikes and it's out. Good luck in your journey. Sometimes it takes a while to figure these things out. I have gotten sidetracked a few times and started avoiding things that really are not a problem. It's all part of the learning process. Sometimes I get real down, but I have to keep reminding myself to keep a positive attitude.

0

Share this post


Link to post
Share on other sites

I tried non-processed cassava (the root they make tapioca from) and had a lot of pain on those days, though not necessarily diarrhea.

I'm not quite sure what you mean by that. Improper processing of cassava can cause acute cyanide intoxication. Be careful. http://en.wikipedia.org/wiki/Cassava

0

Share this post


Link to post
Share on other sites

I'm not quite sure what you mean by that. Improper processing of cassava can cause acute cyanide intoxication. Be careful. http://en.wikipedia.org/wiki/Cassava

Thanks for the heads up! I had read about the dangers of the bitter variety, but it appears you have to do some soaking, etc. even with the sweeter variety. It does have an unusual odor. Maybe this explains why some people need to stay away from it. I started with some frozen cassava chunks from the grocery store. The directions said to boil it for 30 mins. Maybe it was presoaked. I had been doing the same with whole cassava after I peeled it. Might need to soak it 1st. Probably not worth using it if it can cause harm if mishandled. Life is already tough enough.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,627
    • Total Posts
      918,392
  • Topics

  • Posts

    • Newly diagnosed and totally overwhelmed
      It is overwhelming at first but step by step you will begin to find food you like - new naturally gluten free 'clean' food you have never tried before, or gluten free substitutes that taste  almost as good or just as good as the food you miss.   Someone told me one just get used to gluten free bread in the end.  But there are some on the market that are so convincing now they have even fooled my gluten eating family.   (On the subject of bread, one useful tip someone gave me early on is if one toasts gluten free bread it tastes much better.  Others may disagree but I think it does - but you will need your own gluten free toaster.... )   I am also finding that as time goes on there seems to be more and more on offer for us in the shops.  The annoying thing here in the UK is one supermarket does superb ready meals for example, another does great gluten free bread, and another sells delicious gluten free Worcestershire Sauce, but it is hard to find one that sells everything you need under one roof at times.   I don't know if it is like that where you live but if it is like this you will get wise to it and end up getting used to stocking up when the opportunity presents itself. Eating out is often challenging but after not eating out for a while when I was healing I have now found a few restaurants, and a couple are chains, that I can trust.     Lastly, it is always good to have some gluten free snacks - fruits, nuts, bars etc, at the ready when the hunger pangs strike and there is nothing there for you.  I still forget and today went to a museum with my son and had to watch him in the cafe eat his cheese and ham toastie and all I had was a cup of tea!   
    • amalgam dental fillings - remove or not?
      Yes, I meant mercury not lead, thank you for the correction. That's what happens when I stay on the computer until late at night.  The symptoms I have now resemble my gluten reaction and I know it's almost impossible that I would be getting glutened. I remember someone here mentioning that he/she had amalgam fillings removed and it helped, but that was few years back. That's why I posted it here. 
    • Newly diagnosed and totally overwhelmed
      akohlman--I am exactly 1 month from being diagnosed and still going through cleaning out of all the gluten foods from my life. I have really bad Dermatitis Herpetiformis but other wise I had no reason to think I had something like Celiac Disease. That being said, I TOTALLY understand. For me... its hard to be sick and not feel sick if that makes sense.....   I'm going to make the changes. I'm going to live a gluten-free life but like you... I STILL am devastated. I'm overweight... so obviously I don't have a healthy relationship with food, LOL, so I'm DYING at the idea of never eating Pizza Hut, Chili's Pasta, Red Lobster Pasta, McDonalds, etc. I don't care what anyone says.... that is a HUGE adjustment for me and I'm still reeling from the "loss".   That being sad.... I have 3 children and a husband depending on me and I'll do all I can to lengthen my lifespan so.... Here is to new journeys.   YOU ARE NOT ALONE in your sadness!
    • puffiness in face
      The way to fix food intolerance symptoms is to stop eating the food causing the symptoms.  Dark Angel is right, there are very few tests for food intolerances.  Mostly we have to test ourselves through diet experiments.  Typically an elimination diet of some sort is used.  Eliminating food groups is one way, or cutting back to just a few foods and building from there is another.  Changing your diet is the way to go.
    • Newly diagnosed and totally overwhelmed
      Hi akohlman, It is quite an adjustment.  But it isn't a bad change.  While you have to give up some foods you may also end up finding other foods you really enjoy.  And most likely you will be eating a more nutritious, healthier diet than many of your friends do. Try to stick to whole foods you cook at home for a while.  If you want to eat out you can take food with you, or spend some time on the web searching out gluten-free restaurants on your area.  But to get started learning, it is best to cook you own food.  Meat, veggies, eggs, nuts and fruit should be the main foods you eat.  Maybe dairy will work for you, maybe not. It can take months for the immune reaction to stop and your body to heal enough to absorb nutrients properly.  It is good to get your vitamin and mineral levels checked so you know which might be low.  Even a tiny crumb of gluten can make us sick.  Cross contamination is a real problem.  And since the immune reaction doesn't stop when the food leaves your body, you have to be careful what you eat/drink.  But after you have been doing the gluten-free diet a while you get used to eating different and it becomes the new normal.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,718
    • Most Online
      1,763

    Newest Member
    Flora Simpson
    Joined