Has Anyone Experienced One Or Some Of These Mental Health Issues?
Posted 21 January 2012 - 03:52 PM
Posted 29 January 2012 - 02:19 AM
Gluten free January 2012.
Tyramine free June 2012 - slowly getting a few foods back at a time.... scratch that
Low Histamine April 2013 - I swear this better be the last time I have to restrict my diet because giving up chocolate is the final straw
Iodine free briefly fall 2012
I like nonsense, it wakes up the brain cells. Fantasy is a necessary ingredient in living. It's a way of looking at life through the wrong end of a telescope, which is what I do, and that enables you to laugh at life's realities. -- Theodor Geisel
Posted 29 January 2012 - 08:03 AM
I'm not too knowledgeable about all this, but I've read in a few places that the gut actually deals with a lot of the body's serotonin. If this is true, then could the damage caused by celiac disease also affect the body's serotonin levels/regulation? More importantly, is this intestinal serotonin the same kind that keeps the brain stable and happy?
In answer to your questions about seratonin? YES! And all the other neurotransmitters and amino acids that are made in the gut that regulate mood.
Also, vitamin and mineral deficiencies that result from malabsorption will affect you neurologically as well.
I had anxiety and depression develop so intensely in me when I was very ill from celiac that I thought I was losing my freakin mind. I had had some depression post- multiple miscarriages many years before, but it had resolved in time. So, it was a nightmare to have all that start up again. I had to stop driving because my brain was so fogged from gluten, my reflexes were shot. I was dizzy and out of it. It caused me to become quiet and fearful. NOT at all my personality.
I had one conversation with a psych doc (upon recommendation by my PCP who gave me xanax but it just made me sick) and I told her, I am NOT an anxious person by nature --something is CAUSING this in me. Please believe me. I feel sick all the time and I am losing weight, blah blah blah.
She asked me if I had any food intolerances (I had no clue back then) and I started researching and I figured it out eventually. I had full blown celiac all along.
I called her recently and told her that celiac causes anxiety and depression and a variety of mental health issues and she thanked me for telling her, citing perhaps some of her anorexia patients were actually gluten intolerant. I said: I think it is worth investigating! I certainly did not mean to lose 90 lbs. like I did and become so skeletal.
Off gluten, all that weirdness disappears. Accidentally glutened? Comes right back with a vengeance.
"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir
"It isn't for the moment you are struck that you need courage, but for the long uphill climb back to sanity, faith and security." Anne Morrow Lindbergh
"Kindness in words creates confidence. Kindness in thinking creates profoundness. Kindness in giving creates love."
"The strongest of all warriors are these two - time and patience." Leo Tolstoy
Misdiagnosed for 25+ years; finally DXed on 11/01/10. I figured it out myself. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
Celiac.com - Celiac Disease Board Moderator
Posted 29 January 2012 - 08:38 AM
As for my mental "health:"
Bipolar including major depressive and manic episodes with suicidal ideation, delusions, and hallucinations. It was worst when I was in my late teens/early twenties. With counseling, reduction in life stress, and reduction in some other food triggers, I was able to live with it and get to the point where I only had hypomanic and depressive episodes with very occasional delusions and hallucinations which I could experience but usually realize (at least in retrospect) were not reality. I have some OCD tendencies and tendencies to get stuck thoughts. Anxiety. ADD as well. Sensory integration issues.
My son had ADHD, anxiety, and extreme dyslexia which all resolved gluten-free & on GAPS and come back when he gets glutened. My daughter, while not celiac, has seen improvement in ADD off gluten.
My symptoms got much better off gluten. They were not 100% better and I did start stuttering which I hadn't done before. Maybe some sort of withdrawal?
When I did my gluten challenge after a year gluten free and 9 months on GAPS, I could handle the physical symptoms (not fun), but within two months my mental health went so far downhill that I had to quit. People here even noticed my moods and brain function had reverted to a moody adolescent state, taking everything personally and defensively.
What you couldn't see was that when I got upset I looked like the Tourette's Karaoke guy when he has an autism flare up. My brain gets stuck on things like "needing to line everything up," I can't communicate, I lose control of my body, I repeat one word (or part of a word) over and over... My sensory issues flared up, and I felt depression coming on as well.
I've been off gluten for 3 days now and already my mind is starting to clear up! It's not completely better, and maybe never will be, but it's clear to me there is a link.
As others mentioned, the research is starting to back us up on this one!
Gluten-Free since November 2010
GAPS Diet since January/February 2011
me - not tested for celiac - currently doing a gluten challenge since 11/26/2011
partner - not tested for celiac
ds - age 11, hospitalized 9/2010, celiac dx by gluten reaction & genetics. No biopsy or blood as we were already gluten-free by the time it was an option.
dd - age 12.5, not celiac, has Tourette's syndome
both kids have now-resolved attention issues.
Posted 23 February 2012 - 05:35 PM
Bipolar Disorder: 02/2010
Celiac Disease: 02/06/2012
Posted 27 February 2012 - 02:26 PM
Anyone know how long it takes exactly for the neurological symptoms to subside?
Posted 03 March 2012 - 05:30 PM
I was diagnosed with celiac yesterday. As far as I can remember I've had terrible mouth ulcers. I've been diagnosed with Ankylosing spondylitis arthritis, Anxiety disorder, aspergers, ADHD, and now celiac.
I'm also being tested for diabetes and Crohn's.
I was wondering if-at all- how long it will take on a gluten free diet for me to experience less OCD and such? And can anyone provide me with information on how this is connected? On how gluten effects people with celiac in more ways than bowel issues, how it increases anxiety?
Posted 15 May 2012 - 12:15 AM
I was in a psych day program for three weeks when I broke out with a bad, full blown case of DH and finally it started to look like... "oh, this isn't all in my head".
My neuro/psych symptoms are the following:
* A form of dissociation. Feeling spacey or disconnected from my body.
* Feeling emotionless or numb.
* Not being able to string two coherent thoughts together.
* Bad ADHD symptoms.
* Sensory issues
* Feeling like my brain has been wrapped up in a blanket
* feeling confused and like I don't know who I am
* being able to basically sit there in a corner and stare at a wall and drool
* NO energy.
* bad coordination
* seeming like I'm drunk or on drugs
* zero libido. I didn't even figure out what my sexual orientation was for a long time because I was so "delayed" in this department. No feeling of connection to my body
I was dx'd with Asperger's, but then the diagnosis was reversed by a different professional who saw me after I'd been on Atkins for a while. The funny thing is that on Atkins, I felt completely normal.
I dropped out of high school at 15, have often had severe learning issues (sporadically - would do very well sometimes but inexplicably, badly at other times), I had trouble learning to drive and had frequent car accidents, and at 38, it's only now I'm getting control of my life (am a full time college student now, doing well) after a lifetime of failed classes and lost jobs.
When my diet is under control - I feel like a HUMAN BEING and nobody can ever believe that I've been through what I have.
The psych symptoms for me happened long before physical symptoms set in. I had suffered with those most of my life, but only had DH in 07. I now also have Graves Disease and severe periodontitis with bone loss.
Suspected DH (no biopsy)
Tested negative for celiac (after gluten free two months)
2012 - Gluten free again after suggestion it might help my thyroid symptoms. Many strange one-off symptoms cleared up. Brain fog gone.
Posted 16 May 2012 - 06:52 AM
*Mental Health Issues, lifetime.
*Gluten free in Feb. 2012. Digestion issues resolved.
*Metastatic Malignant Melanoma July 2012
"We cautiously travel through life to arrive safely at our death" - J. R. C. , my Son.
Posted 17 June 2012 - 03:30 PM
I have had all of them thrown at me at one time or another - they told me I was Bipolar for over 23 years.Came to find out I had Celiacs the roundabout way (quite a story really). I went to a wonderful Mayo clinic endocrinologist that diagnosed my Celiacs, I have horrible hypoglycemia and secondary adrenal failure. I never had much gut problem in the way of diareaha or hurling just neurological and behavioral. Later I found out I have Occipital Lobe epilepsy causing complex partial seizures (thus all the freaky stuff) and a enzyme disorder called Hyperhomocysteinemia where I cannot process Folic acid. Luckily I just recently found a wonderful Neuro-Psychiatrist and I think I cried when she told me I had never been Bipolar of Schizophrenic - and not crazy, just sick.
I do really, really well. Been gluten/grain/sugar free now for about 4 years. I take 300 mg Lamictal for seizure and now Deplin for Folate deficiency.
I honestly still harbor a pretty nasty grudge against a lot of modern psychiatry - and I wonder how many folks who are put through the psych wringer actually have Celiacs. Breaks my heart sometimes. I cannot tell you how I have been shamed and treated just monstrously, mostly by doctors who are completely ignorant of Celiacs. If you have a lot of psych/neuro issues you really have to stick to your guns, have courage, and shop around to find a really good doc.
Thanks for letting me share.
The mention of your epilepsy piqued my interest. My oldest daughter also has Complex Partial Seizures, however they found that her focal points are from the frontal lobe. (Originally they weren't sure where the focal points were since her entire brain was showing 'severe seizure activity' on the EEGs). She was diagnosed when she was 5 years old. Her seizures were mainly nocturnal, or when she was sleep deprived, but her 24 hr. EEGs showed she was having seizure activity up to 7 seconds long while awake throughout the day, but not showing obvious outward signs. At the same time she was also diagnosed on the autistic spectrum (PDD-NOS), OCD (obsessive compulsive disorder), ADHD, and ODD (oppositional defiant disorder). Interestingly, when her seizures were finally controlled, a lot of her other behaviors improved or went away (probably since the frontal lobe has a lot to do with behaviors). She has not had a seizure in years and she is no longer medicated. She still suffers from pretty high anxiety, some OCD (especially germs), and is a bit socially awkward. Oh, and she is always VERY gassy (the child farts everywhere, all the time, and does not care who is around)! We have even tried giving her Beano, but it does not help.
I have never had any idea where her seizure activity came from, we have no family history, etc. and MRIs showed nothing wrong. We do, however, have family history of bowel issues. My mother has ulcerative colitis and hypothyroidism. We have a family history of severe and chronic canker sores (I personally have 'ulcerated to the bone' on my gums) going back MANY generations. My son was just tested through partial bloodwork for Celiac due to vomiting and constipation, but since we found he has allergies to wheat and other foods we have just gone gluten-free with him. My doctor just sent my bloodwork off to test for Celiac, anemia, hypothyroidism, etc. All of my children (and myself) suffer from eczema, but my daughter also gets other skin issues. She currently has pityriasis rosea that she has had for a year now (although we are down to just one patch left). I could go on and on.
So my questions for you...Do you think the epilepsy could have been caused by gluten/Celiac? Should I insist on her being tested? Is your epilepsy currently controlled? Did the diet help? I want my daughter to try the gluten-free diet, but she is the most resistant to it. She is currently 15 and can be very difficult! I want to find ways to convince her to give it a try, but if it is not 'her idea', she would go out of her way to NOT eat gluten-free.
Posted 17 July 2012 - 12:04 PM
Posted 18 July 2012 - 01:07 PM
Blessed is she who believes what the Lord has said will be accomplished.
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