Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

He Keeps Getting Sick! So Frustrated!
0

6 posts in this topic

My husband was diagnosed with celiac two summers ago, via the blood test and an elimination diet. He never went for the biopsy (which I regret now as he wavers between believing he has and not). In October he decided that he didn't need to be gluten-free anymore and went on an all out splurge. :rolleyes: Beer, pizza, sandwiches. After about a month it finally caught up with him but for some reason he still doesn't fully believe he's Celiac (or at least has gluten intolerance). We believe he has DH on his scalp as well (he's gone to over a dozen derms with no diagnosis and the only thing that has improved the condition is going gluten-free).

Anyway, since Glutenfest 2010 we've had several incidences of him being glutened. He hasn't been as careful as he was when he was first dx'd. And, I have to admit, I got a little lazy myself. Our budget had us in a real squeeze so I started trying different products (I always checked the labels but I wasn't as diligent as I thought). Before he went gluten-free he used to get bronchitis every year that lasted for weeks. This past winter was the first one that he wasn't sick at all. He has been glutened at least every other week for a few months. And it's finally caught up to him where he has bronchitis again and just can't get rid of the celiac systems (constant bloating, diarehhea, pain and TERRIBLE moodiness).

I'm just not sure what to do with him. We have a celiac center here and I'm trying to get him in for the 1/2 day session (they do an eval and classes). He just has not accepted the fact that he has to be careful and be a "pain". He hates that he can't be "normal".

I'm just really frustrated with him. This illness has put a major strain on our marriage. His moodiness (from the celiac and due to his embarrassment from the DH) has really made it unpleasant to be around him. Has anyone had an experience like this? I'm so :( that he won't take care of himself!

1

Share this post


Link to post
Share on other sites


Ads by Google:

I had this problem with my husband, but it was with his diabetes. He was diagnosed at 19 and was not happy.HeI had all the proof right in front of him, but just couldn't except the diagnosis. It was really hard for him to change his diet as well. Unfortunately it took years of harping on him and reminding him of the damage he was causing to his body as well him actually experiencing a blocked bowel and eye sight changes to help him realize that the diabetes was affecting his entire body. He used to not even take his medication. He is type 2 and got to where he was having to take insulin as well. He is 28. We have just got him to where he doesn't have to take the shots because he is doing so well taking care of himself. Sometimes it takes the constant and gentle reminders of what can happen to their bodies if the diet is not followed as well as your love. I know it's a struggle I've been there, not with the celiac but I know it affects your entire system as well. I am just now finding out that I have gluten intolerance after many years of misdiagnosis. I have no choice to follow the diet though because if I get the slightest bit of gluten my entire intestines revolt and it takes days to recover. I hope that things start to look up for the both of you and that he finds it easier to except as times go by (but not too much time) also after I found I was gluten intolerant two weeks later I also found I was reacting to eggs, at first I thought I had ate something contaminated. Damage to his intestines can cause him to react to other foods. Ive read that once your body recovers most people are able to reintroduce them back into their diets with no I'll effects, not the gluten though of course. Best wishes to the both of you!

1

Share this post


Link to post
Share on other sites

My husband was diagnosed with celiac two summers ago, via the blood test and an elimination diet. He never went for the biopsy (which I regret now as he wavers between believing he has and not). In October he decided that he didn't need to be gluten-free anymore and went on an all out splurge. :rolleyes: Beer, pizza, sandwiches. After about a month it finally caught up with him but for some reason he still doesn't fully believe he's Celiac (or at least has gluten intolerance). We believe he has DH on his scalp as well (he's gone to over a dozen derms with no diagnosis and the only thing that has improved the condition is going gluten-free).

Anyway, since Glutenfest 2010 we've had several incidences of him being glutened. He hasn't been as careful as he was when he was first dx'd. And, I have to admit, I got a little lazy myself. Our budget had us in a real squeeze so I started trying different products (I always checked the labels but I wasn't as diligent as I thought). Before he went gluten-free he used to get bronchitis every year that lasted for weeks. This past winter was the first one that he wasn't sick at all. He has been glutened at least every other week for a few months. And it's finally caught up to him where he has bronchitis again and just can't get rid of the celiac systems (constant bloating, diarehhea, pain and TERRIBLE moodiness).

I'm just not sure what to do with him. We have a celiac center here and I'm trying to get him in for the 1/2 day session (they do an eval and classes). He just has not accepted the fact that he has to be careful and be a "pain". He hates that he can't be "normal".

I'm just really frustrated with him. This illness has put a major strain on our marriage. His moodiness (from the celiac and due to his embarrassment from the DH) has really made it unpleasant to be around him. Has anyone had an experience like this? I'm so :( that he won't take care of himself!

Wow, a Celiac Center, Where at? If only we could all be so lucky to have a celiac center,Terri

0

Share this post


Link to post
Share on other sites

That sounds soooo familiar! My mom doesn't have celiac but she does have food allergies and is supposed to avoid wheat and nightshades because of her arthritis. She has told us this countless times. Sometimes she has even told us not to let her eat these things. But then when we do say something she gets a bad attitude and says it is none of our business.

Time and time again she eats the things she shouldn't and then complains and wants sympathy because she is sick. And she always doesn't know why she is sick! It makes us really angry because we are so careful with our diets. She also tends to make fun of us for the way that we eat and says that eating the allergens won't hurt us. Uh huh.

In her case I guess I have to cut her some slack because she is elderly and I suppose she might be forgetting what she is allergic to. Really hard to say.

0

Share this post


Link to post
Share on other sites

Thank you everyone! He also has a hard time understanding that it takes time for his body to heal after being beat-up with gluten for 30+ years! He did agree to go to the celiac center and we are signed up for 8/22 (BTW we are in Pittsburgh and the celiac center is part of West Penn Allegheny Hospital). So I'm excited about that. I'm going to spend the weekend cleaning out the kitchen again and going through our cabinets. Thanks for the support! :)

0

Share this post


Link to post
Share on other sites




the biopsy could have had a false negative so even that might not have been a total help. also cannot change the past. seems to me the bigger issue is his acceptance especially since there are limitations to all the tests. gluten seems so addictive people going on splurges like a drug user goes on a binge or has a relapse. and having withdrawals when you go off it. perhaps thinking about it that way will help you in helping him.

you know him best does he need some tough love and confrontation or does he need love care and concern in a softer approach. even though i might be hurt or upset about my sucky health i appreciate my loved ones observations because they can notice things i miss and ultimately it can help me find the road to better health. after you all talk that might be great to go to the celiac center for some ed, support, and evaluations.

there is so much that goes into eating selecting food, cooking, eating. so i think it takes some care and planning for anyone. it is just a question of what one chooses and why. medical/disease, religious, personal preference, practical, financial, etc. i can relate i feel like a pain sometimes but i have to take care of myself and i try to be real gentle. often times people feel bad they do not see me as a pain they love me and want to have food for me to enjoy. i do not see myself as abnormal. my body does not want gluten so that is what is normal and healthy for me. i see it as a poor person environment fit to live in a gluten based society. i am not abnormal i am me and i am wonderful the way i am. in addition, from what i understand the human body was not meant to digest gluten it does not seem natural. i feel a little blessed to know it is not in my best interest to eat it. i wish i had known years ago. wish i never had any gluten.

since he still is having gluten it can cause him to be irritable, illogical, and quite unpleasant to be around i know i was horrible before i got diagnosed and off gluten.

perhaps seeing a counselor would help since it would be a neutral third party who could help you communicate and work through this difficult issue.

has he read some people's stories. i never was properly diagnosed but from what i understand i think i had dh and it would effect my scalp. i also had horrible warts and headaches and problems going the bathroom. i went off gluten and it was a complete 360 and i felt so much better.

what are his feelings and thoughts? what stops him from staying gluten-free? what makes him binge? what makes him want to go gluten-free?

best wishes!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,683
    • Total Posts
      921,740
  • Topics

  • Posts

    • Hello, I see you posted this a long while ago, and perhaps--I hope-- it's no longer a matter of concern, but I thought I'd mention that shortly before I was diagnosed for celiac's, I had distinct yellow blotches on the corners of my eyelids toward my nose. Some months after I had stopped eating gluten, the yellow gradually went away, and--as it just reappeared now several years later, I googled the issue again.  I am only speculating here, but I do believe it is related to liver problems, which, in turn, are related to celiac's. I don't think liver function tests cover all aspects of liver health. I say this because when I was pregnant I developed a temporary liver condition called interhepatic colestasis of pregnancy (ICP), but my liver function tests had been fine. (The condition is diagnosed based on bile levels in the blood, not on liver function). I discovered upon some research that (of course!) ICP  can be associated with celiac's disease.  My hunch is this-- that celiac's presents two problems to the liver: 1) the malabsorption of nutrients--esp. Vit. K2-- that are vital liver health; 2) since gluten registers as a toxin to the immune system (I think?), perhaps the liver gets overloaded processing so much toxic material. Or perhaps there's some other reason. At any rate, poor liver health and celiac's do seem to be linked, according to a few articles I've found. Anyway, hope your problems are resolved now.  
    • my daughter did stool test from enterolab but this gluten sensitive blood test is from http://requestatest.com/tests/search    
    • OK, was your daughter tested by a doctor or did you do one of these order online stool tests? And the same question goes for your tests. Can you give a link to the company?
    • NO. Approx. 1/3 of the population carries the genes for celiac but that does NOT mean they will ever present with celiac. Only a small percentage of them will. A gene test is really used more to rule out celiac rather than to diagnose it. What I meant was that since your daughter is diagnosed and IF you carry one or both of the celiac genes then there is a greater chance you are celiac or "early stages" especially in light of your symptoms. All 3 of those factors weighed together was what I was referring to.
    • by the way, I do find the lab who does the gluten sensitive test Gluten Allergy IgE Test This test is used to determine if a person has an allergic reaction to gluten, a protein found in wheat, barley, and rye.  Roughly 1 in 30 adults and 1 in 40 children suffer from a Gluten Allergy.  An IgE test looks for antibodies which develop in a person who has a particular allergy.  Gluten Allergy can display symptoms similar to other conditions such as Celiac Disease.  Unlike an allergy, Celiac Disease can do permanent harm to the body if left untreated.  Allergy testing when a person is experiencing symptoms can help identify or rule out an allergy as the cause.

      Gluten Allergy is typically less severe than other Gluten related conditions like Celiac Disease.  People with Gluten Allergy will often experience abdominal discomfort, bloating, gas, constipation, or diarrhea when they eat products containing gluten.  These symptoms usually stop when a person cuts gluten out of their diet.

      A Gluten Allergy IgE test can be ordered to help determine if someone allergic to gluten.  This test can also be ordered when a person is testing for Celiac Disease and has had negative results on Celiac specific antibody tests.  An allergy test can also be ordered prior to Celiac testing to rule out Gluten Allergy as a likely cause for a person’s symptoms.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,685
    • Most Online
      3,093

    Newest Member
    jhc
    Joined