Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Where Your Contribution Counts!
    eNewsletter
    Support Us!

There Is Nothing Left To Eat.


jackay

Recommended Posts

L-C Rookie

Yes I have silver (mercury) fillings and figure they may be a problem. However, I have a whole mouth full of them and can't afford to have them replaced. I often wonder if I have to live in this agony for the rest of my life because of them.

The main reason I asked is that I was wondering whether to bring up a potential sulfur intolerance. Mercury toxicity often causes a sulfur intolerance, and common symptoms are fatigue, insomnia, depression, brain fog, etc. I have this myself. Read here: Open Original Shared Link

If you do have a sulfur intolerance, limiting or eliminating those foods should help you feel MUCH better, even if you can't ever get your fillings out.

Hope that helps.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jackay Enthusiast

When I find food that is as clean as I can find it, and then wash it myself with gluten-free soap, I can usually eat it now. Almost all the foods I reacted to every single time have turned out to be a coating or spray that is commonly used on these, instead. Or a pesticide, or a soap, that sort of thing.

One way to check if this might be an issue for you, as opposed to a histamine-type issue, would be to grow some of this yourself. If you grow it without any fertilizer/manure/pesticides, and you get sick, you'll know that it's something inherent to the food itself - whether that's something like a histamine or the plant's protein. If you grow it at home and can eat it just fine, then you'll know that you are reacting to something contaminating it, like a pesticide or allergen or gluten.

I know this is not a short term fix idea, but it might be worth checking on. For me, my headaches and brain fog go away when I'm very careful like this. I was unable to take supplements and medication too, for corn reasons. I tried for a few days, but it makes me so sick now I can't take it. So I am certain I am vitamin deficient a bit now, still working toward a nutritionally complete diet with the help of a nutritionist. But right now, that's better than how bad I felt with all the vitamins and bad foods, honestly.

Oh, and have you checked your water supply? I've met a few people who have had issues with ingredients in their filters, and a couple more who ended up having issues with bleach, of all things. They have to get special water where no bleach is added.

Thanks for your suggestions.

My head is just spinning with everything that I could be doing wrong. I buy filtered water for drinking and cooking so hope that is safe. I don't seem to do any better with fresh foods from our garden. No pesticides on that.

As far as giving up my supplements, I don't feel safe doing that. I had hyperthyroid issues in the past and need to supplement with lots of supplements for that. I had most of my parathyroid glands removed. The hyperparathyroidism could come back and if I need my remaining parathyroid removed, I'll need to supplement with even more calcium.

I only got about 2 1/2 hours of sleep last night. This is going to be another long unproductive day.

Link to comment
Share on other sites
L-C Rookie

L_C

I have been checking so many different diets and got oxalates mixed up with histamines. It has been suggested that histamines may be a problem, too.

Am I correct that I can still eat walnuts on the oxylate diet? How about sunflower seeds? I tried doing a spreadsheet of different diets-histamine, oxylate, salycilates and lectins. I may have gotten some of the foods into the wrong columns.

For info on the oxalate content of foods, it's best to join the Yahoo group called Trying_Low_Oxalates. They have tested a lot of foods and have a spreadsheet in their files. I think all nuts are high oxalate. I think sunflower and pumpkin seeds are medium or low?

L_C

How long did it take you to feel better after starting the Low Oxalate Diet? A couple foods stuck out that I should be avoiding. Green beans seem to cause insomnia. I also question blueberries. These are two foods that tested safe. I started eating peanut butter and almonds almost every day for the calories. If I cut out those four foods, I'll be oxalate free.

This will be my first try before eliminating histamines, lectins or salycilates. I can incorporate that into my diet low in foods that breed candida.

The fact that green beans cause you insomnia makes me think sulfur intolerance. If I were you I would try a sulfur exclusion diet first (see my previous post).

Blueberries are both low sulfur and I think low oxalate so I'm not sure about that...

I started the LOD about 3 months ago, I think, and just over the past 2 or 3 weeks I have noticed a reduction in my food allergies. I have "true" food allergies though, which cause throat irritation, hives, sneezing, etc... so I'm not sure if this diet would help you with your particular issues... although I'm guessing that anyone with leaky gut would do well to limit oxalates.

By the way, you can't cut out oxalates completely because they are in basically all non-animal foods. The point is just to minimize them.

Link to comment
Share on other sites
jackay Enthusiast

For info on the oxalate content of foods, it's best to join the Yahoo group called Trying_Low_Oxalates. They have tested a lot of foods and have a spreadsheet in their files. I think all nuts are high oxalate. I think sunflower and pumpkin seeds are medium or low?

I've joined the group and am waiting for approval. From online research, I found that blueberries are high in oxalates but the only nuts that were are peanuts, almonds and cashews. I'll see what I find in the group's spreadsheet.

The fact that green beans cause you insomnia makes me think sulfur intolerance. If I were you I would try a sulfur exclusion diet first (see my previous post).

I eat a lot of broccoli and cauliflower so am getting a lot of sulfur from those veggies. I do eat some peas which would be the only other high sulfur food I eat. Cauliflower is one food that I tested intolerant to. Both broccoli and cauliflower are good for a candida diet so that is why I ate lots of these veggies.

By the way, you can't cut out oxalates completely because they are in basically all non-animal foods. The point is just to minimize them.

I know I can't cut out oxalates completely. It would be the same with sulfur, salicylates, lectins, etc. I can cut down and hope for the best.

Link to comment
Share on other sites
Skylark Collaborator

What about trying FAILSAFE?

Open Original Shared Link

As far as yeast, I never tried to control it with diet when I had problems. I took a good probiotic called ThreeLac and Zand Candida Cleanse. It worked pretty well. You will never get yeast under control without adding bacteria to grow in its place.

Link to comment
Share on other sites
viviendoparajesus Apprentice

i can so relate. i tested with a bunch of allergies. but after some reading it made sense. since gluten destroyed our digestion food leaks out and that includes proteins so the body thinks they are going to hurt us like a virus instead of realizing it is just food that needs digested and got away from where it should be. then we have allergic reactions. we need to heal our digestive system because properly digested food is rendered non-allergenic. yay there is hope for us.

i was told to heal the gi tract i should eat an anti-inflammatory diet (pretty restricted but on average i think people often only need to do it for a few months) and to take supplements to support gi healing and reduce inflammation as inflammation hinders healing. i was told to do apex energetics' repair vite (can buy online and people seem to like it and the related clearvite product), pro thera's gastro thera (got through my dr i have not found it for general population to buy; i liked the ingredient list since i had heard good things about them and it made it convenient to have all the ingredients together), apex energetics' gi synergy (to help keep from getting sick while trying to heal - i was not impressed with it), apex energetics nitric balance, vit D (apex energetics ultra d), gluthione cream (apex energetics oxicell), glutathione recycler (apex). i was not particularly impressed with the supplements especially given the price, but i read about a ton of people who were really helped by them. i think u have to do what works for u. i think experimenting and cing what makes u feel good or at least less awful might be the best approach. we both need to find a way to heal our guts and that will minimize or eliminate our allergies allowing us to have a broader diet. i agree sometimes i wish i could survive on water alone but even water can be peoblematic for people myself included.

i agree what conventional medicine considers normal is not necessarily optimal health in additional. conventional medicine only checks tsh but that misses so much of the thyroid picture. especially with hashimoto's or other autoimmune thyroid problems. i would definitely check it out since it can have symptoms effecting mood and sleep.

i love the book why do i still have thyroid symptoms when my lab tests are normal by kharrrazian (it address autoimmune problems and gluten intolerance and celiacs don't let the name food you). i also love allergies by carolee bateson-koch.

i think u might want to try to avoid the foods that bother u instead of trying to do a bunch of different diets because while there are some similarities to follow several would likely take u back to having nothing u can eat. if fish is a culprit u might want to avoid it for now. u could try another source of omega 3 such as flax. if u know something is a problem it might be best to avoid it right now. in regard to the anti-candida diet. i know ppl who love it and benefited from it. but my boyfriend and i did it and it did not help. at this point i do not see it as the priority. i agree with skylark though to add a probiotic. i would get one that is not dairy based. covenanthealthproducts.com often has coupons and they have klaire labs probiotics including pro5. i take one a day so it lasts 2 months and it does not have dairy.

craving mayonnaise makes me think u might have malabsorption. when i have it. i crave fat and that is alot of what mayonnaise is.

wow th brought up some good points. i still wonder though if u need to heal ur gut first before u can get accurate results. though how can u heal without knowing what is safe to eat? what a nasty dilemma.

ornithine might help u sleep it helped me.

if u do not have the money to get rid of metal fillings u can focus on ur diet and things u can control and try to fix. but make that a goal for when u do have money.

best wishes!

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Help Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Larzipan's topic in Related Issues & Disorders
      16

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    2. - Julie Riordan replied to Julie Riordan's topic in Traveling with Celiac Disease
      3

      Any ideas for travelling

    3. - Nedast replied to Larzipan's topic in Related Issues & Disorders
      16

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    4. - trents replied to SuzanneL's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Weak Positive Test

    5. - SuzanneL posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Weak Positive Test


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,498
    • Most Online (within 30 mins)
      7,748

    Kim.cervone513
    Newest Member
    Kim.cervone513
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Thank you for your post, @Nedast, and welcome to the forum. It is interesting to read of your experiences. Although I've not had TMJ, from time to time I have had a bit of mild pain in my jaw, sharp stabbing pains and tingling in my face which appears to have been caused by issues with my trigeminal nerve.  I read that sometimes a damaged trigeminal nerve in coeliacs can heal after adopting a gluten free diet.  I try to keep out of cold winds or wear a scarf over my face when it is cold and windy, those conditions tend to be my 'trigger' but I do think that staying clear of gluten has helped.  Also, sleeping with a rolled up towel under my neck is a tip I picked up online, again, that seems to bring benefits. Thank you again for your input - living with this sort of pain can be very hard, so it is good to be able to share advice.
    • Julie Riordan
      I am going to France in two weeks and then to Portugal in May   Thanks for your reply 
    • Nedast
      I made an account just to reply to this topic. My story resembles yours in so many ways that it is truly amazing. I also suddenly became lactose intolerant, went a little under 10 years attributing all my symtoms to different body parts, never thinking it was something systemic until much later. I had the same mental problems - anxiety, depression, fatigue, etc. In fact, the only real difference in our story is that I was never formally diagnosed. When I discovered that my myriad symtoms, that had been continuous and worsening for years, all rapidly subsided upon cessation of consuming gluten, I immediately took it upon myself to cut gluten out of my diet completely. I live in America, and had lost my health insurance within the year prior to my discovery, so I could not get tested, and I will never willingly or knowingly consume gluten again, which I would have to do in order to get tested now that I have insurance again. But that is not the point of this reply. I also had extreme TMJ pain that began within months of getting my wisdom teeth out at - you guessed it - 17 years old. I was in and out of doctors for my various symptoms for about 5 years before I gave up, but during that time I had also kept getting reffered to different kinds of doctors that had their own, different solutions to my TMJ issue, an issue which I only recently discovered was related to my other symptoms. I began with physical therapy, and the physical therapist eventually broke down at me after many months, raising her voice at me and saying that there was nothing she could do for me. After that saga, I saw a plastic surgeon at the request of my GP, who he knew personally. This palstic surgeon began using botox injections to stop my spasming jaw muscles, and he managed to get it covered by my insurace in 2011, which was harder to do back then. This helped the pain tremendously, but did not solve the underlying problem, and I had to get repeat injections every three months. After a couple of years, this began to lose effectiveness, and I needed treatments more often than my insurance would cover. The surgeon did a scan on the joint and saw slight damage to the tissues. He then got approved by insurance to do a small surgery on the massseter (jaw) muscle - making an incision, and then splicing tissue into the muscle to stop the spasming. It worked amazingly, but about three months later it had stopped working. I was on the verge of seeing the top oral surgeon in our city, but instead of operating on me, he referred me to a unique group of dentists who focus on the TMJ and its biomechanical relationship to teeth occlusion (i.e. how the teeth fit together). This is what your dentist did, and what he did to you was boderline if not outright malpractice. There is a dental field that specializes in doing this kind of dental work, and it takes many years of extra schooling (and a lot of money invested into education) to be able to modify teeth occusion in this manner. Just based on the way you describe your dentist doing this, I can tell he was not qualified to do this to you. Dentists who are qualified and engage in this practice take many measurments of your head, mouth, teeth, etc., they take laboratory molds of your teeth, and they then make a complete, life-size model of your skull and teeth to help them guide their work on you. They then have a lab construct, and give you what is called a "bite splint." It looks and feels like a retainer, but its function is entirely different. This is essentially a literal splint for the TMJ that situates on the teeth. The splint is progressively modified once or twice per week, over several months, in order to slowly move the joint to its correct position. The muscles spasm less, stress is taken off the joint, as the joint slowly moves back into its proper position. The pain reduces each month, each week, sometimes even each day you go in for a visit. The joint has to be moved in this manner with the splint BEFORE the modification to the teeth begins. They then add to your tooth structure with small bits of composite, to keep the joint in its proper place after it has been sucessfully repositioned. Subtracting from your teeth, by grinding down bits of your natural tooth structure, is done very conservatively, if they have to do it at all. This process worked for me - after six months, my face, jaw, neck all felt normal, and I had no more pain - a feeling I had not had in a long time. It also made my face look better. I had not realized the true extent that the spasming muscles and the joint derangement had effected the shape of my face. The pain began to return after a few months, but nowhere near where it had been before. This immense reduction in pain lasted for a little over two years. The treatment still ultimately failed, but it is not their fault, and it is still the treatment that has given me the most relief to this day. Later on, I even went about three years with very, very good pain reduction, before the joint severely destabilized again. This field of dentistry is the last line treatment for TMJ issues before oral surgery on the TMJ. There aren't as many denists around who practice this anymore, and the practice is currently shrinking due to dentists opting for less espensive, additional educations in things like professional whitening, which have a broader marketability. Getting this treatment is also very expensive if not covered by insurance (in America at least). My first time was covered by insurance, second time was not, though the dentist took pity on me due to the nature of my case and charged like a quarter of usual pricing. Most cases seen by these dentists are complete successes, and the patient never has to come back again. But occasionally they get a case that is not a success, and I was one of those cases. A little over a year ago, I began seeing the second dentist who keeps my TMJ stable in this manner. The first dentist retired, and then died sadly. A shame too, because he was a truly amazing, knowledgable guy who really wanted to help people. The new dentist began to get suspicious when my joint failed to stay stable after I was finished with the bite splint and his modifications, so he did another scan on me. This is ten years after the first scan (remember, I said the surgeon saw "slight" damage to the tissue on the first scan). This new scan revealed that I now no longer have cartilage in the joint, on both sides - complete degeneration of the soft tissues and some damage to the bone. The dentist sat me down and had a talk with me after these results came in, and said that when he sees damage like this in cases like mine, that the damage to the joint is most likely autoimmune, and that, in his experinece, it is usually autoimmune. He has sent patients with cases like mine to Mayo Clinic. He said he will continue to see me as long as the treatment continues to offer me relief, but also said that I will probably have to see a dentist for this type of treatment for the rest of my life. He is not currently recommending surgery due to my young age and the fact that the treatment he provides manages my symptoms pretty well. I still see this dentist today, and probably will see this kind of dental specialist for the rest of my life, since they have helped with this issue the most. I did not inform him that I am 100% sure that I have celiac disease (due to my complete symptom remission upon gluten cessation). I didn't inform him because I thought it would be inappropriate due to not having a formal diagnosis. I was disappointed, because I had believed I had caught it BEFORE it had done permanent damage to my body. I had never suspected that my TMJ issues may be related to my other symptoms, and that the damage would end up complete and permanent. Luckily, I caught it about 6 months after my other joints started hurting, and they stopped hurting right after I went gluten free, and haven't hurt since. I of course did the necessary research after the results of the second scan, and found out that the TMJ is the most commonly involved joint in autoimmune disease of the intestines, and if mutliple joints are effected, it is usually the first one effected. This makes complete sense, since the TMJ is the most closely related joint to the intestines, and literally controls the opening that allows food passage into your intestines. I am here to tell you, that if anyone says there is no potential relationship between TMJ issues and celiac disease, they are absolutely wrong. Just google TMJ and Celiac disease, and read the scientific articles you find. Research on issues regarding the TMJ is relatively sparse, but you will find the association you're looking for validated.
    • trents
      Welcome to the forum, @SuzanneL! Which tTG was that? tTG-IGA? tTG-IGG? Were there other celiac antibody tests run from that blood draw? Was total IGA measured? By some chance were you already cutting back on gluten by the time the blood draw was taken or just not eating much? For the celiac antibody tests to be accurate a person needs to be eating about 10g of gluten daily which is about 4-6 pieces of bread.
    • SuzanneL
      I've recently received a weak positive tTG, 6. For about six years, I've been sick almost everyday. I was told it was just my IBS. I have constant nausea. Sometimes after I eat, I have sharp, upper pain in my abdomen. I sometimes feel or vomit (bile) after eating. The doctor wanted me to try a stronger anti acid before doing an endoscopy. I'm just curious if these symptoms are pointing towards Celiac Disease? 
×
×
  • Create New...