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Celiac, Caffeine And Sweating


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10 replies to this topic

#1 Greg Rappaport

 
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Posted 16 August 2011 - 07:20 PM

Hey there folks,
In addition to some other problems I have been having recently with joint/bone inflamation & pain (very prounounced in my right foot and palms of my hands) as well as dryness/soreness in my eyes I am left wondering about caffeine.

I am 41, have been gluten-free now for about 15 years, and believe I have been managing my gluten-free diet relatively well. Of course it's hard to be 100% certain! I have increasingly noticed over the past 5 years or so that I seem to react very strongly to caffeine, even very little amounts - causing me to get very energized (sometimes anxious) and perspire heavily (underarms & chest especially). I eventually crash and burn, becoming very tired when the buzz wears off. It's more an issue of being uncomfortable sweating so much (i.e., at the office or a meeting). I pride myself knowing that caffeine is my only real vice :) , but can't afford to sweat so much. Alas, I do love coffee, and hate the thought of eliminating it altogether.

Does anybody else have any caffeine related thoughts or issues which tie into their celiac diagnosis you might be interested in sharing? Is there any rationale for celiacs to aviod caffeine, especially in those celiaces whose diet appears to be under control?

Thanks a bunch!!
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#2 yolo

 
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Posted 16 August 2011 - 11:34 PM

I honestly don't really know--except I don't seem to handle any stimulants at all--including chocolate and lately raw garlic (cooked is just fine!). I had to quit first coffee and later black and green caffeinated teas.

We already have an overactive immune system. Could that be part of it?? We just don't need it??

Now without all that, nor much herbs at all either due to a low salicylate diet, homeopathics work for me, whereas in the past they didn't (the little pill kind). A trade off perhaps??

It seems I am much more sensitive to various things than I was in the past, that is for certain. I used to love my coffee, and then my tea etc. so I know how hard it is to want to quit. But life continues and you will find other pleasures.
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Diagnosed celiac sprue as infant: failure to thrive & pneumonia-back on grains age 4. Began herbs 1971 combating chronic kidney disease/general ill health 1973. Avoid wheat family and "allergens" by 1980. Late 80's doc. diagnosed candida: cave-man diet. Diagnosed degraded myelin sheath 2006; need co-enzyme B vitamins. Discovered celiac fall 2007; finally told diagnosis as infant. Recently found I am salicylic acid intolerant. Ironically can't tolerate most herbs now. Can now eat brown rice & other gluten-free grains (except corn) & even maple syrup & now homeopathic medicine works! Am still exploring the shape of this elephant but I've made progress!

#3 Greg Rappaport

 
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Posted 17 August 2011 - 06:29 AM

Thanks for the encouraging thoughts and advice. I appreciate your feedback.
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#4 PainfulSpaghetti

 
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Posted 17 August 2011 - 06:52 AM

Greg, Caffiene works in mysterious ways with me. Some days I feel as if I could climb Mt. Everest after 1 cup, and sometimes, I feel like I could fall over and die from stomach pain, etc., after 1/2 a cup. Your symptoms though sound alot like sjogrens. http://www.sjogrens.org/ I was tested for that as well, and had a weird partial positive reading. Celiac is an autoimmune disorder, and many of us have mulitiple auto immmune diseases, that show up like bad pennies. I hope you feel better!
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#5 lynnelise

 
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Posted 17 August 2011 - 06:56 AM

Do you have these issues with all caffine or just coffee? You could have a mild coffee allergy or intolerance. I have occasional issues with coffee but can drink tons of tea without problems.

Also people with Celiac are prone to other autoimmune issues. You may want a check up just to be sure you aren't dealing with RA, Lupus, or Sjogren's (commonly causes dry eyes).
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#6 Greg Rappaport

 
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Posted 18 August 2011 - 06:47 PM

Do you have these issues with all caffine or just coffee? You could have a mild coffee allergy or intolerance. I have occasional issues with coffee but can drink tons of tea without problems.

Also people with Celiac are prone to other autoimmune issues. You may want a check up just to be sure you aren't dealing with RA, Lupus, or Sjogren's (commonly causes dry eyes).


I'm guessing it is all caffeine. Sometimes when I drink a soda I get a rash on the back of my hand. Anyway, definitly ruled out RA via blood-test. I am asking my doctor about Sjogren's Syndrome next visit. Not sure about Lupus yet. My sister-in-law has Lupus... I'll ask her some questions first. Not sure if you've seen any of my other posts, but I'm really focused right now on being able to resume normal walking and movement free of joint-pain.

Thanks for your feedback. ;)
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#7 GFinDC

 
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Posted 19 August 2011 - 05:30 PM

I gave up coffee and tea a couple years ago. I can drink soda with caffeine but not much of it, and not for 2 days in a row. Or it starts causing bad effects. So I don't really drink caffeine in soda much any more. Or soda at all for that matter.

It makes me crash hard, almost to the point of passing out. Just isn't a positive any more. I think it causes low blood pressure for me, and that's the cause of the weakness. There are several older threads about caffeine causing problems, so it is not an extremely rare issue for us. You could try another hot beverage with caffeine, like yerba mata and see if it works better.

Or you could take a No-Doz pill (caffeine) and see how it affects you.

Nightshades are one food group that seem to cause joint pain for people, and soy also.
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Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul

#8 Greg Rappaport

 
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Posted 20 August 2011 - 09:37 AM

I gave up coffee and tea a couple years ago. I can drink soda with caffeine but not much of it, and not for 2 days in a row. Or it starts causing bad effects. So I don't really drink caffeine in soda much any more. Or soda at all for that matter.

It makes me crash hard, almost to the point of passing out. Just isn't a positive any more. I think it causes low blood pressure for me, and that's the cause of the weakness. There are several older threads about caffeine causing problems, so it is not an extremely rare issue for us. You could try another hot beverage with caffeine, like yerba mata and see if it works better.

Or you could take a No-Doz pill (caffeine) and see how it affects you.

Nightshades are one food group that seem to cause joint pain for people, and soy also.


Thanks for the response. What are "nightshades"? Not sure I have ever heard of this as a food group. I am going to discuss soy with my doctor - going to see a rheumatologist next week, and will reconnect with a GI doctor soon.
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#9 yolo

 
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Posted 20 August 2011 - 11:39 AM

Thanks for the response. What are "nightshades"? Not sure I have ever heard of this as a food group. I am going to discuss soy with my doctor - going to see a rheumatologist next week, and will reconnect with a GI doctor soon.

NIghtshades are potatoes, tomatoes, peppers.

I react negatively to salicylates--which are in many foods, especially the skins, as well as in most herbs and most fruit. Salicylates are really the same thing as asperin. One can get leaky gut just from salicylate sensitivity, and it often creates joint and nerve pain etc..

So there are many possibilities.

Just one word of caution with your AMA docs. Most are not into preventive medicine. They just want to cover up the symptoms rather than overcome or better deal with the cause. If you saw an integrative medicine specialist it might help you out a lot more. Another alternative is seeing a good homeopath.

Bea
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Diagnosed celiac sprue as infant: failure to thrive & pneumonia-back on grains age 4. Began herbs 1971 combating chronic kidney disease/general ill health 1973. Avoid wheat family and "allergens" by 1980. Late 80's doc. diagnosed candida: cave-man diet. Diagnosed degraded myelin sheath 2006; need co-enzyme B vitamins. Discovered celiac fall 2007; finally told diagnosis as infant. Recently found I am salicylic acid intolerant. Ironically can't tolerate most herbs now. Can now eat brown rice & other gluten-free grains (except corn) & even maple syrup & now homeopathic medicine works! Am still exploring the shape of this elephant but I've made progress!

#10 GFinDC

 
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Posted 21 August 2011 - 03:02 PM

Thanks for the response. What are "nightshades"? Not sure I have ever heard of this as a food group. I am going to discuss soy with my doctor - going to see a rheumatologist next week, and will reconnect with a GI doctor soon.


Hi Greg,

There are actually thousands of plants in the nightshade family. most aren't used for food though. The food ones that bother me are tomatoes, peppers and potatoes. Sweet potatoes are ok though, they are a different plant family. And sweet potatoes are better for you than regular white potatoes anyway, they have more nutrients and antioxidants.
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Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul

#11 Greg Rappaport

 
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Posted 22 August 2011 - 05:35 PM

Had been off caffeine now for nearly two weeks (no soda or coffee) and broke down today and got a small diet coke at Wawa. Stomach felt horrible all evening until I came home and ate an Udi's gluten-free bagel.
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