Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Coffeemate

GFreeMO

Recommended Posts

GFreeMO Proficient
GFreeMO
Posted

I have been having a lot of D since I added coffeemate to my diet last week. I know it is a gluten free product but I am wondering if anyone else has a problem with it. I guess i'll go back to adding my lactaid milk to my coffee..I will sure miss the french vanilla flavor though!

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

I have trouble with it but I can't do soy. Don't know if that is the case for you.

Link to comment
Share on other sites
domesticactivist Collaborator
domesticactivist
Posted

The two times I got creamer by accident (both before GAPS, of course) I was SO sick!!! It was awful and lasted days. Vomiting, D, dizziness, up all night with cramps. Just thinking of it brings back a bad, chemical taste in my mouth and makes me feel ill!

Link to comment
Share on other sites
domesticactivist Collaborator
domesticactivist
Posted

For flavor, add real vanilla! It's better for you and better tasting, too :)

Link to comment
Share on other sites
sreese68 Enthusiast
sreese68
Posted

I had 3 tiny sips of Coffeemate in a coffee someone else made for me. (I always drink mine black.) I had D that evening. I normally have C, so I was shocked! I put it down to some hamburger meat I ate the night before that had had a buttery smell to it. BUT I had cooked it for the kids, and they didn't get sick. Their meal was cooked for 20 minutes and in tomato sauce and vinegar while mine was plain meat cooked for a shorter period of time. I assumed the different meal preparation combined with my already sensitive stomach was why I got sick and they didn't. Now I'm wondering if maybe it was the Coffeemate!

Maybe I should test the Coffeemate some day when my C is really bad! LOL!

Link to comment
Share on other sites
domesticactivist Collaborator
domesticactivist
Posted

sreese68, all it took was a few sips and I was a total mess. I think testing when the c is bad is a good idea. Or better yet, just avoid the stuff. It's synthetic "food" no one should be eating anyway, imo!

Link to comment
Share on other sites
calgarywalker Newbie
calgarywalker
Posted

Last week i was grocery shopping and in my usual label checking routine i was shocked to see the refill bag of coffeemate now says "may contain soy and wheat". I checked the web page and it said coffeemate is gluten-free but after seeing this post and that the FDA has yet to set standards, now I'm not convinced coffeemate is gluten-free anymore.

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sreese68 Enthusiast
sreese68
Posted

sreese68, all it took was a few sips and I was a total mess. I think testing when the c is bad is a good idea. Or better yet, just avoid the stuff. It's synthetic "food" no one should be eating anyway, imo!

LOL! I'm not a fan of synthetic food either, I must admit! (And I thought it tasted terrible!) Thanks for letting me know it only took a few sips. I've never had D as a food reaction, so I'm kind of curious if I would happen again and what ingredients I could possibly be reacting to. I'm going to the place where I drank it next week, so I'll have to look at the container. If I try it again, it'd be more like a Mythbusters experiment - "Does Coffeemate cause D in our test subject, or was it the meat?"

Link to comment
Share on other sites
domesticactivist Collaborator
domesticactivist
Posted

Last week i was grocery shopping and in my usual label checking routine i was shocked to see the refill bag of coffeemate now says "may contain soy and wheat". I checked the web page and it said coffeemate is gluten-free but after seeing this post and that the FDA has yet to set standards, now I'm not convinced coffeemate is gluten-free anymore.

While we now always go for better safe than sorry where gluten is concerned, I just want to put it out there that I reacted to the coffeemate before going completely gluten and soy free. It's likely there is something else in there that is a problem for people, too.

Link to comment
Share on other sites
T.H. Community Regular
T.H.
Posted

Have you ever looked at annatto as a problem for you? Coffeemate has the food dye annatto, and it has been known to cause D and other gut issues.

There's a good website on what products contain it, as it doesn't have to be labeled specifically and can just go by 'dye.'

Open Original Shared Link

Not that it might not have been gluten, if course, but if you're getting a bit of D here and there from unknown sources, figured I'd put it out there. :)

Link to comment
Share on other sites
GFreeMO Proficient
GFreeMO
  • Author
Posted

Last week i was grocery shopping and in my usual label checking routine i was shocked to see the refill bag of coffeemate now says "may contain soy and wheat". I checked the web page and it said coffeemate is gluten-free but after seeing this post and that the FDA has yet to set standards, now I'm not convinced coffeemate is gluten-free anymore.

I agree! I am convinced that it made me sick. I now have a migraine and aches and pains. This is my typical reaction to gluten after D. Bye bye coffeemate!

Thanks everyone for the help. I appreciate it.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. plumbago
      - plumbago replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      I'm also a nurse, but one who has worked in chronic care, and to some extent, it is more satisfying to see patients through to a diagnosis (as opposed to working in the ED), but an accurate diagnosis does not occur not as often as it should! Your posting presents a lot of information. But a couple of things I can respond to. One, celiac disease is diagnosed...
    2. trents
      - trents replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      Was a biopsy done when you had your gastroscopy? Concerning your anemia, are you B12 deficient? It's nearly impossible to get sufficient B12 if you are a vegetarian unless you take supplements.
    3. Suzi374
      - Suzi374 replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it.
    4. Suzi374
      - Suzi374 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be be...
    5. Peace lily
      - Peace lily posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Would like to gain weight

      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,226
    • Most Online (within 30 mins)
      7,748
    NYKaren
    Newest Member
    NYKaren
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • plumbago
      Lots of tests

      By plumbago · Posted

      I'm also a nurse, but one who has worked in chronic care, and to some extent, it is more satisfying to see patients through to a diagnosis (as opposed to working in the ED), but an accurate diagnosis does not occur not as often as it should! Your posting presents a lot of information. But a couple of things I can respond to. One, celiac disease is diagnosed by endoscopy and biopsy of the duodenum. So, pathology will need to weigh in. It's not diagnosed on gastroscopy. (At least, not as far as I know). Two, did you get blood tests for celiac disease? You will need to be eating gluten in order for those to be accurate. Three, where was the CT angiogram (of what)? I could go on and on, but thought I'd start there.
    • trents
      Lots of tests

      By trents · Posted

      Was a biopsy done when you had your gastroscopy? Concerning your anemia, are you B12 deficient? It's nearly impossible to get sufficient B12 if you are a vegetarian unless you take supplements.
    • Suzi374
      Lots of tests

      By Suzi374 · Posted

      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it. 
    • Suzi374
      Lots of tests

      By Suzi374 · Posted

      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be better and tried a new set of probs, all the time, giving me multiple shocks which were not enjoyable lol. Anyway, he’s now ordered tests for myeloma, and all the vitaminy things that so many of you mention on here, also tests looking for autoimmune responses. I already have Hashimotos. Interestingly, to me, but maybe someone out there can relate or knows more than i do, although I was a nurse, but ED not ‘weird symptoms’  nurse. Anyway back to the interesting thing, I took duramine in 2013 to lose weight which caused a massive panic attack when I stopped taking it and half my hair fell out. I only took it for a week but it was horrible and I regret it. It triggered ongoing panic attacks which are horrendous. So I feel like I’m a bit crazy. Then in 2020 I had this sudden onset of horrible pain when trying to eat a cinnamon roll. It continued and I lost around 20 kgs. I had two gastroscopes and a colonoscopy and they were all normal. I scored a barium swallow and CT angiogram. All normal. The pain subsided a little but I was left with reflux and an awful feeling that I couldn’t get air when I ate some foods. This was not anxiety.  The anxiety was separate and I still maintain this. This was something to do with eating. It was like the air was thick but I wasn’t short of breath. I just had the sensation I was, then it triggered anxiety. Anyway, I had other weird things- couldn’t bend knees to shave legs in shower lol. Knees felt stiff and swollen but they weren’t. Knee WOUld swell up randomly but mri showed minimal issues. A bit of a meniscus degeneration but insignificant. Then the buzzing sensations in my head, the feeling like someone was stabbing me with something sharp. So now, I pre empted his tests, although I don’t think I’m celiac because it should have come up on gastroscopy, I’ve gone off gluten. Since Tuesday last week so 9 days. Since then I don’t appear to be as constipated, I realised I got through today without a nap and I’m not tired, maybe it’s just today and not related but I get very tired normally and sleep straight after work often, I can bend my knees and shave my legs lol, the buzzing vibrating has gone from my head, I had to call and ambulance as my heart decided we were off on a run, but we weren’t running and I’ve been a bit twitchy at bed time when trying to sleep, reflux is improving, I did get the weird suffocating feeling a bit when eating today but not as bad normall. Tingling and numbness still present and I felt like it moved up my legs a bit today but I’m a bit jittery. So I don’t know if it’s celiac disease or a gluten intolerance but I think, and it may be wishful thinking because my symptoms do make life a bit challenging, but maybe I’m feeling better. I don’t feel as cloudy. My thinking feels crisper. Like there’s no buzzing and I’m not fighting to break through the cloudiness now. I hope so much that this may help me feel a bit better moving forward. It would be a miracle as I really have struggled to work and parent and keep the house clean and I’m always anxious and exhausted.  If you get this far, please tell me if you you can relate to any of the above. Oh and tonsils out 5 years ago but before that antibiotics multiple times a year, sometimes intramuscular because they were so bad.  Op was meant to take 30 mins, it took 1.5 hours due to size of them. 
    • Peace lily
      Would like to gain weight

      By Peace lily · Posted

      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
×
×
  • Create New...