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Last Question: Do I Request Specific Test For 6Yo?
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Bear with me, new to this...but I seem to be gleaning from this forum that there are some tests better than others for Celiac (and I could be wrong!).

I'm taking 6yr old in tomorrow AM for test. Do I trust the ped to know what to do, or do I just tell them the exact test we would like done? My little guy is deathly afraid of needles, so there is NO way I want to have to do this twice.

Anyone have the lowdown on latest greatest test?

Thanks.

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Bear with me, new to this...but I seem to be gleaning from this forum that there are some tests better than others for Celiac (and I could be wrong!).

I'm taking 6yr old in tomorrow AM for test. Do I trust the ped to know what to do, or do I just tell them the exact test we would like done? My little guy is deathly afraid of needles, so there is NO way I want to have to do this twice.

Anyone have the lowdown on latest greatest test?

Thanks.

The most up to date test for Celiac is the DGP (deamidated gliadin peptide) antibidy screen AND the tTG (tissue transglutaminase) antibody screen. The DGP is replacing the older gliadin antibody tests, which some docs may not be aware of.

I would tell the ped the exact tests that you want. Write it down and show him:

1) DGP antibody screen

2) tTG

3) Total Iga

4) HLA DQ2 and DQ8 genes

These are the tests my doc recently ordered for me, and she said that they were the standard screening tests now. Somebody else may have another test to ask for, but these 4 are a good start. Remember, he is working for you! Good luck! B)

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Bear with me, new to this...but I seem to be gleaning from this forum that there are some tests better than others for Celiac (and I could be wrong!).

I'm taking 6yr old in tomorrow AM for test. Do I trust the ped to know what to do, or do I just tell them the exact test we would like done? My little guy is deathly afraid of needles, so there is NO way I want to have to do this twice.

Anyone have the lowdown on latest greatest test?

Thanks.

Did I read in another post that you are in NYC? perhaps the people at the Celiac Disease Center at Columbia can offer some help for you? http://www.celiacdiseasecenter.columbia.edu/CF-HOME.htm

If his blood work comes back positive,or in the 'weak' positive range I'd absolutely contact a place like that with experienced pediatric gastroenterologists who are knowledgeable in this area.

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The most up to date test for Celiac is the DGP (deamidated gliadin peptide) antibidy screen AND the tTG (tissue transglutaminase) antibody screen. The DGP is replacing the older gliadin antibody tests, which some docs may not be aware of.

I would tell the ped the exact tests that you want. Write it down and show him:

1) DGP antibody screen

2) tTG

3) Total Iga

4) HLA DQ2 and DQ8 genes

These are the tests my doc recently ordered for me, and she said that they were the standard screening tests now. Somebody else may have another test to ask for, but these 4 are a good start. Remember, he is working for you! Good luck! B)

Thanks! Written down.

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Did I read in another post that you are in NYC? perhaps the people at the Celiac Disease Center at Columbia can offer some help for you? http://www.celiacdiseasecenter.columbia.edu/CF-HOME.htm

If his blood work comes back positive,or in the 'weak' positive range I'd absolutely contact a place like that with experienced pediatric gastroenterologists who are knowledgeable in this area.

Yes, nyc....I had thought about going to them, and may still.

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    • Thanks for posting this Adrien, it's a great list and I and others will appreciate the effort and the thought behind it. I loved my time in Malaysia and I'm glad I sampled all the food I could whilst I was still on an unrestricted diet. The good thing is that, like you say, some of the nice Malay foods are still ok. As a backpacker I survived on a lot of nasi goreng and laksa, nice to think if I return there I could still do the same Terima kasih!
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