How Did Your Doctor Tell You?
Posted 20 August 2011 - 09:00 PM
Posted 20 August 2011 - 09:37 PM
Posted 20 August 2011 - 10:04 PM
Posted 21 August 2011 - 02:31 AM
Celiac disease(positive blood work/biopsy- 10/2008), gluten free oat intolerent, Hashimoto's Thyroiditis/Disease, Raynaud's Disease
celiac disease(positive IgA tTG, no biopsy- 11/2010)
repeated negative bloodwork and negative EGD/biopsy. Started on a gluten free trial(8/2011). He has decided to stay gluten free due to all of the improvements he has experienced on the diet.
Posted 21 August 2011 - 02:47 AM
Posted 21 August 2011 - 04:32 AM
Posted 21 August 2011 - 05:42 AM
I went home and did my own research so that by the time I actually got to the dietician/nutritionist at the hospital she told me I already knew more about celiac than she did.
Living in the beautiful Ozark mountains in Arkansas
positive blood tests and later, positive biopsy
diagnosed 8/5/02, gluten-free (after lots of mistakes!) since that day
Dairy free since July 2010 and NOT happy about it!!
Posted 21 August 2011 - 08:27 AM
I haven't been back to a general doctor yet and I won't be back to my previous 2. My neighbor is a nurse so I asked her for some references of open minded doctors who are into whole body health. She gave me some places to start. I am also going to look online and see if I can find references of a good doctor locally.
If you are diagnosed by a blood test to have Celiac you need to see a GI doctor to order all the correct tests. There are so many other disorders that go along with this disease especially with the absorption of vitamins.
Don't give up if you don't like how your doctor treats you. Ask neighbors, friends, relatives if they can recommend someone. Easier said than done because I haven't found one yet but I am going to keep trying!
Posted 23 August 2011 - 12:25 PM
Posted 23 August 2011 - 01:28 PM
After my blood test my nurse called me and told me I test positive for celiacs disease, of course I asked her what that meant. She explained briefly, and then that was it. I was on my own. That's probably the reason I tried to ignore my disease for a year. She didn't stress how harmful gluten was to my body
Same here. No warning or anything - just the nurse's blunt, "Did you know you have celiac disease? You cannot eat gluten any more. Go see a dietitian for handouts." That threw me into a panic as I was not expecting that result whatsoever! Boy, have I learned a lot since then and about 98% of it from this board.
When our lives are squeezed by pressure and pain, what comes out is what is inside.
Posted 23 August 2011 - 01:36 PM
And nothing seemed to be abnormal when tested 12 months after that
Never was there a need for what the call an "official" diagnosis.
Posted 23 August 2011 - 04:34 PM
Posted 24 August 2011 - 05:21 AM
Posted 24 August 2011 - 07:36 AM
Posted 24 August 2011 - 09:18 AM
Fortunately my internist called on a GI to consult and she immedately suspected Celiac. After the positive biopsy she told me I had Celiac disease and it could be totally controlled with strict dieting.
She sent the hospital dietician to talk with me. The dietician said she didn't know much about gluten. Look on the internet. Best thing I got from her was a booklet that contained a great cornbread recipe!
I am totally thankful that the right GI was on call. She has been wonderful and supportive. She even sent me a tape of a lecture on celiac given at a medical conference she attended.
My diagnosis was almost four years ago and I am healthy and happy. Finding this sight was a God-send.
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