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Celiac Cost Me Everything
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110 posts in this topic

Losing a pet is the worst!!! Tree is nothing really that will ease that pain but time... As for the rest of your post- I think I can relate a little. I went undiagnosed for 30 long miserable years. I too understand what it is like to look back and feel awful for al of the lost opportunities... People who didn't underhand, ruined outings, lost jobs, etc. But the fact of the matter is YOU CAN'T DO ANYTHING ABOUT THE PAST. For anyone who feels like they are better off without you or you must be 'forgiven' you are better off without them in your life FAMILY OR NOT. your life strts TODAY if you choose for it to. You have answers now for your health, it's time to create the life you've always dreamed of! Celiac is not a sentence, it's an amazing opportunity. All you have to do is eat properly and you're healthy. I encourage you to embrace this and be thankful for what you do have. If that's too hard then be thankful for the worse things you DON'T have! We all know the frustrations that come with this disease but being sad or upset will do nothing but make you more sad or upset. Don't let the disease own you- I don't even talk aboutnit or tell people unless there's some sort forced dinner situation. It's only as complicated as you make it. I promise you that if you can have a positive outlook, a good attitude, and be somebody who YOU love to spend time with, then the right people are goig to fall into your life. You WILL get through this difficult time, hang in there!!!

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I am so sorry for your loss, Raven. Pets are such a comfort and joy; I'm glad you were led to your new friend so soon. Wishing you healing; you are such a source of help and comfort to so many here.

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Sometimes I feel like I am just living waiting to die. I have nothing and no one. It hurts so much.

Hi Raven,

My heart goes out to you. I am so sorry to hear about your situation. Please know you are not alone. Please know that no matter what you believe God IS with you and He has a purpose for your life. When I was undiagnosed, I didn't know what was going on. I felt so worthless, ashamed, and confused of all that was going on and I couldn't explain it. (There's nothing further from the truth.) Through it all, God is my constant Friend that I can always rely on and talk to because He never changes and is always there. This may or may not make sense to you, but I hope and pray you let the Maker of your heart come and heal it. If you would like to talk about it more, feel free to write me. Again, I am sorry for your loss as are many others. You have lots of support from this celiac forum community. Be encouraged.

Joshua 1:9

Have I not commanded you? Be strong and courageous. Do not be afraid; do not be discouraged, for the LORD your God will be with you wherever you go.

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Hi Raven,

My heart goes out to you. I am so sorry to hear about your situation. Please know you are not alone. Please know that no matter what you believe God IS with you and He has a purpose for your life. When I was undiagnosed, I didn't know what was going on. I felt so worthless, ashamed, and confused of all that was going on and I couldn't explain it. (There's nothing further from the truth.) Through it all, God is my constant Friend that I can always rely on and talk to because He never changes and is always there. This may or may not make sense to you, but I hope and pray you let the Maker of your heart come and heal it. If you would like to talk about it more, feel free to write me. Again, I am sorry for your loss as are many others. You have lots of support from this celiac forum community. Be encouraged.

Joshua 1:9

Have I not commanded you? Be strong and courageous. Do not be afraid; do not be discouraged, for the LORD your God will be with you wherever you go.

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You are an amazing person to have on this forum Raven. You are a voice of comfort and reassurance for people who are new here. I really value your knowledge and patience to answer the same questions over and over. You understand the questions are new to those who ask them.

I am so glad there is joy in your life again in the form of someone small and furry. Love to you xxx

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You are an amazing person to have on this forum Raven. You are a voice of comfort and reassurance for people who are new here. I really value your knowledge and patience to answer the same questions over and over. You understand the questions are new to those who ask them.

I am so glad there is joy in your life again in the form of someone small and furry. Love to you xxx

Thank you. I get just as much, if not more, than I give though. This forum gives me a reason for all the years of pain and makes it seem like there was a purpose for that pain and all the struggles. We have so many kind and helpful people here. Many that went through the same issues I did. It does help keep us from feeling so alone and hopeless when our doctors can be of little help at times. I just wish I had found this place when I was first diagnosed as it would have helped so much. But eventually I did find my way here and I am very glad I did. :)

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Poor Raven...you are the light in the darkness...the voice of comfort...a pat on the back and a radeiant smile! so much of you comes throgh on these pages you have no Idea! your words are sooo apreciated and looked forword to...I know I'm not the only one who feels this way! I feel disapointed if I don't see that little doggie picture as I surf the content and a feeling of warmth when I do...it allways makes me smile!

Your story is heart breaking...so sorry about your little buddy!

The worsed thing about Celiacs is like you said...people act like its OUR fault!!! Like we can control this ...like ok you changed your diet...wheres the miricle...you must be full of shit!!! Or even worse all the years of every one thinking its in your head!Doctors, family ,friends...no one really understands....they can't beleive there can be soooo many deverse symptoms JUST from eating something!!! So WE must be a bunch of hypocondreacts....even though they can see the massive PAIN we go through ( they would'nt ask a one legged man to climb a mountain but expect us to)...they get irritated because WE slow them down...WE are INCONVEINENT....and they're just plain sick of listening to something they can't do anything about! After all your "MOM" Raven...your not suppose to be sick! Children are very selfish by nature its instictual..sometimes even Adult children( but by the time were adults we'er supposed to grow out of it and become more comunity aware...but it seems to be more common in the last few generations to be late bloomers in the unselfish part recently, trust me...Its not just YOUR kids...You can see it all around us)! Usereally it takes a few LIFE events to bring them around! hopfully this will happen BEFORE you join your little doggy friend!In the mean while OUR hearts go out for you...you have alot of people who care about you here...you've made alot of friends old and new...who are greatful just to have met you...even if its only over the internet!!!

Sweetheart..if I could scoop you into my arms like a little child (even thogh you are probably older than me)..hold your head to my bossom... stroke your hair and dry your tears...hold you close for several minutes...I would, just to show you how much you've touched me in such a short time!You are very cared about...mourn..but don't dispare...be strong...you can get through this ..you've survived this long..your a fighter, look at all the warm responces...don't worry someday your children will come to their sences!

you are a wonderful person...don't forget it! :)

soooo happy to hear about your new little friend .

P.S

good for you!!!

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Raven, my first forum friend... :)

A good buddy of mine sent this to me when I lost my beloved lab, Gracie...and I am thinking you will appreciate the sentiment! So glad you are feeling better and that your new little love is settling in!

" It came to me that every time I lose a dog they take a piece of my heart with them. And every new dog who comes into my life, gifts me with a piece

of their heart. If I live long enough, all the components of my heart will be dog, and I will become as generous and loving as they are." -Unknown

That's you, kiddo... ;) generous and loving!

My best always,

IH

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" It came to me that every time I lose a dog they take a piece of my heart with them. And every new dog who comes into my life, gifts me with a piece

of their heart. If I live long enough, all the components of my heart will be dog, and I will become as generous and loving as they are." -Unknown

That is going to be printed out and placed on my frig in a place of honor right next to Rainbow Bridge. What a great thought. Thanks so much for sharing.

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    • Hi, I am 20yrs old and have had this weird stomach pains on and off for 2 years. They started by just having pains on my left side when I sucked in or pressed on my tummy. In the last 3 months they have gotten really bad, with a lot of bloating and used to occur almost every time just before bed I would get bloated, and feel constipated like I just needed a hole in my stomach to release the pressure. I have had tests for lactose and gluten, and they both came back negative. I was not having any gluten at the time of the test which I have read can affect the results. I had little help from my doctor so I went gluten free which was working really well and I would only have pain once every two weeks. The last three nights were awful, I was in so much pain I struggled to walk, and again they would go away in the morning. I looked like I was pregnant and relief was only through passing wind (sorry for the detail!). I was wondering if anyone has had similar experience, or could point me in a direction to help me. The weird thing is that I did have gluten one day and that didn't seem to affect me at all. Then I will have something like vegemite (I'm from Australia) and this is the only thing that I can think off that would set me off (it contains wheat). So I don't really know what do to or where to go, these stomach pains have been heightened since I had a horrible gastro for a week, and went to hospital. Could it be possible that my gut lining has been damaged? I have become really stuck on what I should do next, as tonight my stomach is fine, I actually feel hungry (previously I have felt super full as a result of being bloated), so I have no idea what triggered that horrible episodes before I went to bed for the last few nights. Any thoughts or suggestions would be amazing, thank heaps
    • I found when I went gluten free I started eating more dairy and that gave me worse stomach aches and bloating than the gluten did. So now I have to avoid gluten and dairy.  Maybe you have a similar problem with something you are eating.  I hope you feel better soon.  
    • Hi! I received my "official" celiac diagnosis last week. I had an endoscopy last month that was originally looking for ulcers and h. pylori, but they did some biopsies of my duodenum since they were in the neighborhood and the biopsy came back "consistent with Celiac's disease" and later. They urged me to get my blood checked and follow up with my primary doctor. My blood work came back negative, but my doctor was confident it's Celiac so told me to stay away from gluten. I've been completely gluten free (or to the best of my knowledge) for 2 weeks now, and my results are mixed. At first, I felt great! My stomach was no longer CRAZY bloated once I stopped eating pasta and bread, my acne started healing, and the red rash on the back of my arms started to fade. That was the first few days. Lately, though, my acne is once again flaring up and I've been SO EXHAUSTED. I feel so tired all the time. Even now I have fatigue in my head, limbs, and I could hardly walk or move my body earlier today. I'm overweight and I like to go to the gym, but what used to be an easy workout for me is kicking my ass! I used to go to the gym and tear it up: HIIT on the treadmill followed by 40 minutes of heavy weight lifting. Now I can hardly finish 3 reps in my first set without feeling like a nap. I can't run anymore because my body feels clumsy and heavy. Also, I'm still bloated. I don't suffer from painful, acute bloating, but I struggle to pass gas and I look like I have pregnant belly. I think I'm also retaining water all over my body, and I'm not sure if that's normal? For whatever reason, I have this belief that water is mainly retained in the core and not arms, legs, and face. Anyway, I'd love to hear what you have to say/what you've experienced. Is this typical to first going gluten free?
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