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Celiac Cost Me Everything


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#76 yolo

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Posted 25 August 2011 - 07:12 PM

I am so happy for you!

My friend Joan picked up a poor dog nearly dead and without hair years ago and that little dog became the joy of her life and the neighborhood. It is amazing what a little TLC can do. There is something special about a dog in need and her or his new owner.

No doubt the gluten free dog food will do wonders. I like the grain free kind the best. Perhaps some cod liver oil too and gluten-free B vitamins? Many like brewer's yeast, however I don't know how gluten-free that is...

If she has mange, I found using borax with apple cider vinegar and castille soap is the best (as well as safest) remedy there is. Also excellent against fleas and mites--even chiggers.

I am certain that Maggie will be your devoted, loving dog for all her lovely, sweet life.

Bea
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Diagnosed celiac sprue as infant: failure to thrive & pneumonia-back on grains age 4. Began herbs 1971 combating chronic kidney disease/general ill health 1973. Avoid wheat family and "allergens" by 1980. Late 80's doc. diagnosed candida: cave-man diet. Diagnosed degraded myelin sheath 2006; need co-enzyme B vitamins. Discovered celiac fall 2007; finally told diagnosis as infant. Recently found I am salicylic acid intolerant. Ironically can't tolerate most herbs now. Can now eat brown rice & other gluten-free grains (except corn) & even maple syrup & now homeopathic medicine works! Am still exploring the shape of this elephant but I've made progress!

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#77 DottieB59

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Posted 25 August 2011 - 07:18 PM

Oh this is wonderful! As a pet portrait artist--these are the stories I Love to hear!!!! Congratulations to both of you. I don't know which of you is the luckiest!
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#78 fierce bunny

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Posted 25 August 2011 - 08:08 PM

Hi,
First time to post. Just realized for sure what is happening to me and appreciate the forum. So very sorry for your loss. Been through it with pets and kids. I focus on people who enjoy my company.
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#79 Marz

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Posted 25 August 2011 - 10:23 PM

Glad you found a new friend :) May she give you many years of joy and love!
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Feb 2010 - Start of continuous GIT problems and panic attacks
July 2010 - Blood and biopsy -ve, went gluten free after testing which completely relieved symptoms
July 2011 - 1 year gluten free, food intolerances (Chicken, eggs, olives, goat milk) gone!

2012 - Soy no longer a problem
*************************************************************
Gluten intolerant

#80 Skylark

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Posted 25 August 2011 - 11:40 PM

Ravenwood, I just got on the board and saw this. I'm so sorry to hear about your dog, especially since Pooh was such a steadfast companion.

I'm VERY glad to hear that you've found another furry friend (or she found you) and things are looking up.
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#81 ravenwoodglass

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Posted 26 August 2011 - 03:04 AM

We got through the first night. She will be tethered to me until the older cats get used to a new face in the family. She needs a crate for her safety right now if I am not home and to get her used to it for traveling. Still plan on visiting the kids but she will be 'surprise' who goes with me. She may already be crate trained but if not we can put up with the 'whines' until she is.
She is a pillow chewer, and here I thought it was my shoes that would be in danger, but some redirection and lot of soft toys will help with that. I will post a picture soon. Well off to give breakfast, a morning walk and to go and make her 'legal'.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#82 sa1937

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Posted 26 August 2011 - 04:35 AM

What a heart warming story, Raven! She was meant to be yours. You have a lot of love to give and I bet she does, too. I also have a Maggie...a 10-year old golden retriever/yellow lab mix that I got when she was 8 weeks old. I can't bear to think of the time I will lose her.

My Maggie hated her crate right away, too. When she was little, I used to throw her toys into the far end of the crate when we went to bed at night. If she wanted anything to play with when she got up, she had to go into that "dreadful crate" to get them. I left the door open and soon I found her going into her crate for no reason whatsoever. Now when I leave, she gets so excited when I ask her if she wants to go into her crate. It's her little den and she loves it. I know when I leave, she is safe and so is my house. Right now she is in her favorite place...right at my feet.

Best wishes to both of you...and yes, we need a picture of her. :wub:
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Sylvia
Positive Celiac Blood Panel - Dec., 2009
Endoscopy with Positive Biopsy - April 9, 2010
Gluten Free - April 9, 2010

#83 lucia

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Posted 26 August 2011 - 06:26 AM

Ravenwoodglass, my heart broke a little when I read your first post (I hadn't seen it before). As hard as it was to read, I'm still glad you posted - for my own selfish reasons. We're usually so focused here on the future which is great since the optimism here is affirming and contagious. But, like you, sickness has taken a lot from me - fibromyalgia in my young adulthood and now this autoimmune condition that I call gluten intolerance which led to a total breakdown of health 1 and 1/2 years ago from which I am still recovering. I have my moments of despair too when I contemplate all my losses, so to see that from someone else makes me feel less alone.

When I read through the rest of your posts on the thread and saw how in your grief you were still able to reach out to another suffering creature, I was amazed and inspired by your courage. Yet, I've seen that here so many times in your posts, and also been the recipient of your gentle care. That sweet creature is very lucky to have you in her life. We all are here too.
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#84 IrishHeart

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Posted 26 August 2011 - 10:39 AM

Raven,
I was thinking about how perhaps Pooh has directed you to Maggie? Not sure if that sounds crazy or not, but I was thinking this morning...my 10 year old calico Maeve took ill suddenly last August when I, myself, was quite ill and in horrific pain (did not know it was celiac yet) and we had to put her to sleep. I was in gluten stupor and agitated out of my mind, barely sleeping every night. I grieved so hard for that little rescued cat we had adopted from the shelter 10 years before, right after 9-11.

The next day, a cat showed up under our bushes---sitting in the same spot Maeve used to sit!!---and she was in rough shape. Mangy coat covered in burrs, ticks all over her, cuts on her face and paws, obviously hungry (as she was catching and eating anything she could find) and looking pretty emaciated. We caught her licking the ash on the BBQ grill pan one day!!--poor baby.

I was not ready for another pet. No way! I was still mourning Maeve, violently ill and anxiety- ridden and burning from nerve pain and muscle weakness. I was crying every day from the pain I was in... But something kept me thinking--perhaps I am supposed to care for this kitten?? We had some food left, so I started feeding her and leaving her water. She hung around all day but disappeared at night. We would hear her crying outisde our windows in the morning.

After some detective work, we found out she was a neighbor's cat, but she was not taking care of her. (we thought she was a kitten--but, no she was almost 2 years old!) No wonder she preferred our house--she was hungry anhd needed lovins!!

One day, as she cried and cried outside in the pouring rain and mud, I could take it no more. We brought her in, cleaned her up, nursed her many cuts, removed the ticks and put a flea collar on her and fed her. She had been vomitting and after she stopped, she ate and slept solidly---snuggled in one of our laps--- for 2 days. No one came looking for her. She perked up and seemed better.

In the coming weeks, she was here more than she went home. My husband was already attached to her and very upset at the way she was treated by her owner and I admit, I had been thinking of keeping her --the hell with the neighbor!---and naming her Stella or Bella...Long story short, the neighbor finally gave her to us after we offered her money for her. Imagine my surprise when the neighbor revealed her name was ...Bella. :o
Just meant to be, I guess. :)

Bella has been "ours" since last December-- and as I slowly recover from the devastation celiac brought to my body, she has been my companion. She gained some weight, her fur is beautiful and thick and she lives happily on GRAIN FREE food :)

Bella saved ME. She was the extra push I needed to keep searching for answers to my health puzzle when I was so low....I had been looking for an answer for nearly 3 years when she came into my life and I was at the end of my rope....I guess I just believe in the restorative powers of loving care. Animals give unconditional love and even when friends and family have not been as attentive or considerate, my pets have always been a source of love and companionship--and PEACE.

Enjoy Maggie, dear Raven--I am very happy for you BOTH!! Cheers, Irish
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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

“If idiots could fly, the sky would be like an airport.”― Laura Davenport

"LTES"  Gem 2014

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#85 Bubba's Mom

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Posted 26 August 2011 - 01:15 PM

It sounds like your new companion is the perfect fit? You both will help each other. :D

I've read that a lot of Celiacs are attracted to each other, even before knowing they are Celiacs. Maybe that's one of the things that brought you two together?

Shortly after we lost our beloved Basset Hound my husband and I went to a shopping mall. They had an "adopt a pet" event going on. I wasn't ready for a new pet, but we decided to just have a look. We saw a Blood Hound puppy(about 5-6mos old) in a cage. Most of his fur was gone, one eye was swollen shut, and he had pustules on his face, neck, and back. (sounds cute huh? :blink: ) He had been left in a box outside of the Humane Society. They treated him for the worst case of mange they had seen, but his hair hadn't grown back yet. He just looked pitiful. We fell in love with him!
We adopted him and found he has numerous allergies, which contributed to his hair loss and itching issues.
It took a lot of soothing baths, a grain free diet, and lots of love, but he's gorgeous now. His coat is just beautiful and he's a real sweetie pie. He helped me through my grief and I helped him get healthy.
He's terrified of going into our basement..and won't go down those stairs for any reason. He just stands at the top of the stairs if I go down, shaking like mad. He gallops up and and down the stairs to our second floor though. I sure would like to know what happened to him as a puppy.
You may never know your new friend's full story, but be assured she is lucky to have you in her life! Have fun getting to know each other. :D
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#86 kathleenp

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Posted 26 August 2011 - 06:23 PM

I'm so sorry you lost your best friend. I know what it's like to lose a pet that means so much to you. You are an awesome influence on this board. So glad you found a new friend!
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#87 notme!

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Posted 27 August 2011 - 01:55 PM

raven:

lookit the love for you in this 'tribe' :) ((((hugs)))) from me, too - and so much appreciation for the HUGE help you have been to so many of us on our crazy journey. i am not much of an animal person. that being said (also very allergic) my daughter left for college last week and 'dumped' her cat here with the agreement that he would live outside. well, he got beat up EVERY NIGHT because he is a wimpy housecat. so i let him in. we have had dogs but i can't stand cats. guess who the stupid thing follows everywhere??? yeah, i took him to get fixed, shots, etc. sleeps on my t-shirt. only comes if *I* call him... got him a brush, i am teaching him tricks. argh.. he's just so damb cute....

i told her when she gets her degree she is TAKING HIM BACK. LOLOL that's when she told me that her ultimate plan includes getting her doctorate. i'm screwed. (look at him chase that laser pointer - tee hee hee hee ! )

much love,
arlene xxoo

ps - my mom's dog was named 'maggie' i used to tell her there's some poor little girl called 'spot' because the dog stole a *people* name hahahaha
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arlene

misdiagnosed for 25 years!
just as i was getting my affairs in order to die of malnutrition...
gluten free 7/2010
blood test negative
celiac confirmed by endoscopy 9/2010

 

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have a nice day :)

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#88 IrishHeart

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Posted 27 August 2011 - 02:36 PM

raven:

lookit the love for you in this 'tribe' :) ((((hugs)))) from me, too - and so much appreciation for the HUGE help you have been to so many of us on our crazy journey. i am not much of an animal person. that being said (also very allergic) my daughter left for college last week and 'dumped' her cat here with the agreement that he would live outside. well, he got beat up EVERY NIGHT because he is a wimpy housecat. so i let him in. we have had dogs but i can't stand cats. guess who the stupid thing follows everywhere??? yeah, i took him to get fixed, shots, etc. sleeps on my t-shirt. only comes if *I* call him... got him a brush, i am teaching him tricks. argh.. he's just so damb cute....

i told her when she gets her degree she is TAKING HIM BACK. LOLOL that's when she told me that her ultimate plan includes getting her doctorate. i'm screwed. (look at him chase that laser pointer - tee hee hee hee ! )

much love,
arlene xxoo

ps - my mom's dog was named 'maggie' i used to tell her there's some poor little girl called 'spot' because the dog stole a *people* name hahahaha



Oh, Arlene, :lol:
Thank you for the laugh!...hon, as Shakespeare wrote "methinks the lady doth protest too much" :lol: ---I fear you're hooked now....you may SAY you "can't stand" cats, but you sure sound like this little guy has softened your heart!! ;) tee hee
Enjoy him!!
Cheers, Irish
  • 0

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

“If idiots could fly, the sky would be like an airport.”― Laura Davenport

"LTES"  Gem 2014

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#89 ravenwoodglass

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Posted 27 August 2011 - 03:51 PM

i told her when she gets her degree she is TAKING HIM BACK. LOLOL


I bet by Christmas she won't able to pry that cat from your arms... "Here she comes, quick go hide the cat!!!!..."Uh he ran away and don't go into the back bedroom with the four locks on the door oh and that meowing sound is a recording we got to make the mice think we have a cat. Ignore it" :ph34r:

Maggie is settling in well. She hasn't had a single accident in the house and was already crate trained. She is bonding okay with the young cat and my 26 lb kitty will now walk up to her if he can see I am holding her harness. The oldest kitty is still just being very cautious.
Maggie must have had a rough life even from the beginning as she comforts herself by 'nursing' on pillows. Thus she now has lots of soft toys and this morning I didn't wake up to a very soggy pillowcase with numerous holes. I did however wake up to her licking my feet under the covers. She is quite the burrower.
I am weaning her off the grain food and I got 3 different kinds of grainless samples at the health food store today. The first, chicken and rice was not much of a hit. She ate around it. We shall try the beef tommorrow.
Life works in mysterious ways sometimes. My heart is mending although there will always be a piece of it missing. I can't thank you all enough for your kind words and support.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#90 Jenniferxgfx

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Posted 27 August 2011 - 03:52 PM

I'm so sorry For your loss!! It's so sad to lose a family member. *hugs*

I'm sorry you don't have support from your family, too, especially when you could use it most.

Your posts and comments have been such a huge help to me, emotionally AND physically. Thank you for being here.
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glutenfree since 6/2011. sick for 30 years.

borderline blood test, negative biopsy.

SEVERELY sensitive celiac with DH. sensitive to contact and ingestion.

asthma (was severe; improved exponentially after 6/11)

spina bifida & childhood SCI at L4/L5 (possibly complicated by weak bones)

countless fractures and infections.

i once listed over 100 symptoms or conditions that improved or were eliminated after 6/11.

very vegan. and, of course, i've also discovered some other food allergies.



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