Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Pictures Of My Rash
0

61 posts in this topic

Thanks for your response ravenwoodglass. I'm actually going to start the specific carbohydrate diet very soon. I'm mentally/emotionally trying to prepare myself and also get my house ready in terms of supplies. I've used rice dream before.. good to know.. I was unaware. What ingredient makes it no good?

0

Share this post


Link to post
Share on other sites


Ads by Google:

Thanks for your response ravenwoodglass. I'm actually going to start the specific carbohydrate diet very soon. I'm mentally/emotionally trying to prepare myself and also get my house ready in terms of supplies. I've used rice dream before.. good to know.. I was unaware. What ingredient makes it no good?

It is processed using barley but there is no reg that it has to be on the label so they removed that info a long time ago.

0

Share this post


Link to post
Share on other sites

As expected - damn useless. Told it's IBS and it's common - i am to go on a "low residue" diet. The rash is nothing to do with it, I can't cure the abdominal pain, bloating and nausea as well as curing the bowel issues - only one of these can be sorted and I am to remove fibre from my diet but then take fibogel to help. For a stomach guy he was very concerned with the bowel, refused to do an endoscopy will see me again in 4 months to change fibogel for something else if it doesn't work. Celiac (coeliac as it's called here) is all in my head.

I'm devastated and feel lost and very down....:( Did I mention I feel like a head case??

You are NOT a head case. I really hope the diet helps you.

0

Share this post


Link to post
Share on other sites

It is processed using barley but there is no reg that it has to be on the label so they removed that info a long time ago.

WoW... it's so frustrating that the label laws don't require full disclosure of ingredients. Very good to know. Continue to keep me informed :)

0

Share this post


Link to post
Share on other sites

And you aren't a head case.

Just to say the results of biopsy apparently showed nothing more than a scratch on the skin, except the letter I read (upside down) said more testing may be beneficial. They're now looking at Lupus regarding the rash in pics 2&4 - the ones that look like hives. Apparently Hives urticaria don't last more than 24 hours... Not what I've read. Also, they have done a RAST test for allergy to wheat... All because I stamped my feet. They now think I'm mental...

0

Share this post


Link to post
Share on other sites




Just to say the results of biopsy apparently showed nothing more than a scratch on the skin, except the letter I read (upside down) said more testing may be beneficial. They're now looking at Lupus regarding the rash in pics 2&4 - the ones that look like hives. Apparently Hives urticaria don't last more than 24 hours... Not what I've read. Also, they have done a RAST test for allergy to

wheat... All because I stamped my feet. They now think I'm mental...

I know this is incredibly frustrating.

Good news is they are looking at Lupus, which is on the autoimmune spectrum. Any chance they are sending you to a rheumatologist? Good chance a Rheumy will listen to you about Celiac and order the tests.

And that doc must be on the pipe because chronic hives can do all sorts of things, including staying around for more than 24 hours.... http://www.mayoclinic.com/health/chronic-hives/DS00980

This is a side note - I used to be obsessed with classifying my rash and upset because my dermatologist wouldn't give it a name - he said it was "caused by an autoimmune response" - which quite frankly was the BEST thing he could have said because I started looking for the autoimmune condition.

I obsessed over it being dermatitis, hives, psoriasis....he said it didn't matter because the goal was to relieve the

symptoms and NOTHING HE DID RELIEVED THE SYMPTOMS (furthermore Tge treatments were harming my adrenals). So, I had to find the cause. Perhaps having them look into Lupus is the first step to finding the cause for you.

Good luck and keep on going.

1

Share this post


Link to post
Share on other sites

have you tried going gluten free to see if it helps?

0

Share this post


Link to post
Share on other sites

have you tried going gluten free to see if it helps?

Everytime I plan and attempt it I get a glimmer of hope that dr's may test for it so I don't start it! I haven't a clue were to buy stuff in UK so it's taking a lot of time planning - I don't want to be eating salad forever. I'm also vegetarian so that's adds complications in terms of protein or lack of it as all vege stuff is loaded with gluten and wheat. I'm being referred to an immunologist for akllergy to wheat. I'm going to ask for a rhematologist - even if i play on the behcets angle... ...been a while since they checked me out anyway...

I just feel like bechets and lupos are not real - you can only manage them - not cure them... Does that make sense to anyone?

I certainly dont mean to offend anyone by that statement - My family can't accept them. They laughed when I told them.

0

Share this post


Link to post
Share on other sites

I would say that you are like many of us who suffer from DH--you simply CANNOT tolerate iodine. Now that you've seen the result of iodine ingestion, you'll need to try everything you can to eliminate any and all iodine in your diet. This may be why the blisters have not disappeared after six weeks of being gluten free. Don't eat seafood, iodized salt, salty foods, processed foods, or dairy (unless it's organic). For me, NO healing began without eliminating iodine...and then the healing was fast.

By the way, others on this forum have mentioned that Dapsone did not resolve their DH.

Thank you for the information about iodine. I am new to this site and suspect I have a problem with gluten and I also suspect with dairy and yeast as well. So much information I need to give myself some time to take it all in.

0

Share this post


Link to post
Share on other sites

Quick background to this is I was diagnosed with bechets at 16 at put on dapsone tablets - 50-100mg daily. Left to manage it on my own. I stopped taking it 2 years ago when I was pregnant and havent taken it since due to breastfeeding. Slowly symptoms of my body/stomach not liking something have come along and I also get this rash when I eat certain things. Im tired, irritable, constant stomach aches/pain, migraines, urgency for toilet and messy when I go, dizziness and bad memory. Dr's so far have put most of these symptoms down to stress and having children. But I feel different, my head is always foggy and I hate this anger that comes from no where. Rash has been treated over the years as Psoriasis, impetigo and one dr said it was because i must of left mess on me when I'd been to the toilet! Dr has done "celiac Blood test" which he says is negative but refuses to give me the actual result. From what I can tell he has only tested the "Anti-tissue Transglutonase" level? So here are some pictures of the rash I get on my face (purple marks that can be itchy but usually painfull and take months to go), bottom - (intensely itchy and burning - note the scratch marks!) and legs - these look more like hives I think. I havent included all the pictures of the rash on my beind as it's very embarassing - just imagine the last 2 pictures all over!! Everything else seems mild at the moment.

Any opinions, thoughts etc are welcome. Ive just had a colonoscopy (as Dr wants to do the cheapest procedure first) and it was clear. I have a dermatology app in 3 weeks and am seeing stomach people for first time in October.

002a.jpg005c.jpg

001a.jpg005e.jpg005d.jpg

005a.jpg005b.jpg

OMG! I get this. I thought it was just weird hives...just as itchy as hives. Is iodine (besides gluten) the answer?
0

Share this post


Link to post
Share on other sites

OMG! I get this. I thought it was just weird hives...just as itchy as hives. Is iodine (besides gluten) the answer?

For some of us, yes. I also had to cut out MSG and all the msg 'alias' ingredients I didn't know about, as well as sulfites. Some folks on here had to go with low salicylates, so we're all a bit different. If or when you go low iodine, don't cut it out for more than maybe a couple of months? I'm not an expert... but it is a necessary mineral. As we heal, our body can process it better too.

I'd start with the gluten-free and possibly low iodine, then keep a food diary to see what sorts of other things may cause an issue for you. Then you can come back here with questions or for some research. Hope you stop itching soon!

Edited to add: If you want a diagnosis, don't start a gluten-free diet until you get a DH biopsy done or blood tests done or whatever testing your doctor agrees to do. Sorry, I should have put that up front.

Edited by ciamarie
0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,644
    • Total Posts
      921,580
  • Topics

  • Posts

    • Hi Kircket, Welcome to the forum! Yes, he could be wrong.  Not everyone passes the blood tests.  And they are just one part of the diagnostic process anyway, although an important one.   Did you have the complete celiac antibodies panel? Anti-Gliadin (AGA) IgA
      Anti-Gliadin (AGA) IgG
      Anti-Endomysial (EMA) IgA
      Anti-Tissue Transglutaminase (tTG) IgA
      Deamidated Gliadin Peptide (DGP) IgA and IgG
      Total Serum IgA If you didn't have the full celiac disease antibodies test panel, I'd insist on getting it done.  There have been numerous people on the forum who tested positive on one antibody but not on others.
    • Three years ago I lost about 40kgs (Aussie lol) by better diet & exercise. All was going great til I stopped losing. I upped my exercise but bizarrely started gaining weight. One night a week of not being able to sleep soon became two, then virtually every night with either 1-2hrs tops or none at all. These weird symptoms started about two years ago, becoming worse in say, the last 9mnths. Then I started to get diarrhea. Occasionally then weirdly 2-3 days with multiple occurences then a day or two with nothing, then back to loose & offensive. My GP ran tests, including the TTga (hope that's  right) antibody blood test. Negative so he tells me that's not it. After 9mnths of this he shrugs and says, "I don't know what it is I've run out of ideas what ideas do you have?" Finally refers me to a gastrointerogist.  Private, of course and can't really afford it but we (my fiance and I) go. Stools and blood samples are ordered, basically bye, see you in a month. I have looked my symptoms up and they seem to point to Celiac. Today we went back. I have been having bloated stomach, sore back and limbs,  lovely burps, constant urination and crushing anxiety attacks folowed by depression (which I have never had before in my life). Admitted over the last weekend I didn't sleep for two and a half days and found myself hallucinating and crying to just be able to sleep. Mr fancy pants gastrointerogist says," Hey great news, the stools samples rule out parasites and Crohns!" I tell him how excrutiating the last month has been to which he replies, "It's not Celiac disease, (points at negative blood test results). Celiac doesnt present with diarrhea, anxiety and frquent urination all together." I also had a fecal occult blood test which showed positive & notes say are maybe due to a lower gi bleed, and a ct scan that says shows some damage which, in their words, could be due to a condition such as Celiac disease. He has booked me for a double scope as the next step, has a few ideas what it could be (won't tell me because he doesn't want me to be 'anxious'). Told me to consider that all these symptoms could be me just worrying and being anxious. Told him when this started I was not worried about anything, shrugged and said, It could stil have happened, hey, sometimes we never find out what causes it and your just stuck with diarrhea forever." Then as I was leaving he slapped me on the back and said, "Don't worry so much, see you soon." I need to have the scopes done but is it me or are the things I was told today not true?  I would honestly love it not to be Celiac disease but could he be wrong?
    • Sigh. I totally do love the packs of stretch pants at Costco though...
    • hey, i'm vegetarian and gluten free as well
      have you tried making any recipes with cashew nuts like cashew cheese or pasta sauce? they're really good, easy to make and an excellent way to get more protein/iron
      i can send you some of the easy recipes if you like  
    • Right, fistulas or fissures are usually associated with Crohns, but not celiac.  It is not impossible to have both conditions though.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,651
    • Most Online
      3,093

    Newest Member
    Kricket73
    Joined