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Descriptions of DH "Types"


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12 replies to this topic

#1 pricklypear1971

 
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Posted 31 August 2011 - 07:34 PM

Have any of you seen the descriptions in this book: Essentials of diseases of the skin By Henry Weightman Stelwagon?

Its the ONLY description like this on the appearance of DH I've ever read.

http://books.google....iformis&f=false
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Apparently there is nothing that cannot happen today. ~ Mark Twain

Probable Endometriosis, in remission from childbirth since 2002.
Hashimoto's DX 2005.
Gluten-Free since 6/2011.
DH (and therefore Celiac) dx from ND
.
Responsive to iodine withdrawal for DH (see quote, above).

Genetic tests reveal half DQ2, half DQ8 - I'm a weird bird!

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#2 cassP

 
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Posted 31 August 2011 - 08:49 PM

Have any of you seen the descriptions in this book: Essentials of diseases of the skin By Henry Weightman Stelwagon?

Its the ONLY description like this on the appearance of DH I've ever read.

http://books.google....iformis&f=false

not exactly sure... but i HAVE always heard that it can resemble Herpes (i imagine both Herpes, & Shingles).. that's where the name "Herpetiformis" came from.. the shingles (herpes zoster) pic on wikipedia looks fairly similar to the dh i had on my stomach
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1986- Elevated Speckled ANA/no Lupus.negative Sjorgens
2008- AntiGliadin IGA/IGg~ Negative,TTG IGA/IGg~ Weak Positive, Endomysial Antibody~ Positive, IGA Deficient.
no biopsy (insurance denied)
6/2010- Enterolab Gene Test:
HLA-DQB1 Allele 1 0302
HLA-DQB1 Allele 2 0302
HLADQ 3,3 (subtype 8,8)
7/2010- 100% Gluten Free
8/2010- DH
10/2010-Hypothyroid dx-> 12/2010 Hashimoto's dx + 1/11- Graves dx :(

#3 maryphyl

 
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Posted 05 September 2011 - 02:35 PM

Have any of you seen the descriptions in this book: Essentials of diseases of the skin By Henry Weightman Stelwagon?

Its the ONLY description like this on the appearance of DH I've ever read.

http://books.google....iformis&f=false



This book looks to be more than 50 years old--scroll back to the first part and there is a stamp that says 1955.
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#4 pricklypear1971

 
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Posted 05 September 2011 - 04:19 PM

Yes, but I'm pretty sure doctors could SEE back then.

You still see mentions of how DH can look different, bit never described in this detail.

I think it's a great reference for those who think their DH must look a certain way.

I noticed mine looks different - over time and by location.

Some docs will be more concerned with a look rather than an act.
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Apparently there is nothing that cannot happen today. ~ Mark Twain

Probable Endometriosis, in remission from childbirth since 2002.
Hashimoto's DX 2005.
Gluten-Free since 6/2011.
DH (and therefore Celiac) dx from ND
.
Responsive to iodine withdrawal for DH (see quote, above).

Genetic tests reveal half DQ2, half DQ8 - I'm a weird bird!

#5 pricklypear1971

 
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Posted 11 April 2012 - 01:34 PM

When I found this I thought it was interesting there were so many descriptions and varieties of DH compared to what is commonly described and is "usual" today. Yes, it's an old resource but it's also a very respected one that is, I believe, still used today.

It does pre-date knowing what causes DH - the gluten part or salicylates or anything else.

I think it's particularly interesting that it can cause death (I'd add homicide to that, but that's just my opinion).
  • 0
Apparently there is nothing that cannot happen today. ~ Mark Twain

Probable Endometriosis, in remission from childbirth since 2002.
Hashimoto's DX 2005.
Gluten-Free since 6/2011.
DH (and therefore Celiac) dx from ND
.
Responsive to iodine withdrawal for DH (see quote, above).

Genetic tests reveal half DQ2, half DQ8 - I'm a weird bird!

#6 squirmingitch

 
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Posted 11 April 2012 - 03:06 PM

My hubs & I are just sitting here with mouths agape at this! This guy "GETS" it! He's got it all down --- he nails it. It's such a revelation to see it written about in such informed detail. I'm over the moon that you found this & posted it Prickly. This should be made a sticky & stay at the top of the dh topic.
This is phenomenal Prickly. THANK YOU!
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Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#7 pricklypear1971

 
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Posted 11 April 2012 - 03:38 PM

My hubs & I are just sitting here with mouths agape at this! This guy "GETS" it! He's got it all down --- he nails it. It's such a revelation to see it written about in such informed detail. I'm over the moon that you found this & posted it Prickly. This should be made a sticky & stay at the top of the dh topic.
This is phenomenal Prickly. THANK YOU!


You're quite welcome. I wish the same author could revisit the subject with present day knowledge. I'm sure it would change, but surely the keen observations would stay intact.

What struck me was how different the language is compared to what we find online (I haven't dug through modern medical texts). And there's so much DESCRIPTION and detail.

This book was reviewed in 2007. Look what they have to say: http://www.ncbi.nlm....ubmed/17942031/
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Apparently there is nothing that cannot happen today. ~ Mark Twain

Probable Endometriosis, in remission from childbirth since 2002.
Hashimoto's DX 2005.
Gluten-Free since 6/2011.
DH (and therefore Celiac) dx from ND
.
Responsive to iodine withdrawal for DH (see quote, above).

Genetic tests reveal half DQ2, half DQ8 - I'm a weird bird!

#8 squirmingitch

 
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Posted 11 April 2012 - 04:07 PM

You're quite welcome. I wish the same author could revisit the subject with present day knowledge. I'm sure it would change, but surely the keen observations would stay intact.

What struck me was how different the language is compared to what we find online (I haven't dug through modern medical texts). And there's so much DESCRIPTION and detail.

This book was reviewed in 2007. Look what they have to say: http://www.ncbi.nlm....ubmed/17942031/


Yes, I quite agree. I wish he were with us today so he could expound on his findings. You're right -- the description & detail are astounding. WHY haven't we seen this text incorporated into the stuff we find online? WHY?!!! It verifies what so many of us have been saying for so long simply through our own observations & chatter with each other. We knew we were right but we couldn't PROVE it with medical references. This guy did all this in 1916!!!!!!! It's amazing!
Reading his descriptions & conclusions, I felt like I was reading the story of my dh. I'm sure you felt the same. People need to print that whole part about dh out & take it to their derm when they go to see them about dh.
Quite an impressive review & even more impressive considering it was reviewed almost 100 years later!

What a find Prickly, what a phenomenal find! Great sleuthing!!!!!!Posted ImagePosted ImagePosted ImagePosted ImagePosted ImagePosted ImagePosted ImagePosted ImagePosted Image



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Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#9 pricklypear1971

 
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Posted 17 April 2012 - 02:18 PM

I was asked to add this additional info about having a rash and having a gluten issue. These are my personal observations based on my readings and experience.

1) If your rash responds to gluten, it is a gluten-related rash.
2) You can try to biopsy it, but a negative result does not mean it isn't DH or a gluten related rash.
3) Most gluten rashes have a related component: salicylates, amines, iodine, msg's, etc.
4) A gluten rash can pop up at any time.
5) Gluten rashes are trending on this board to being the FIRST sign or a LATTER sign (or both).
6) You can have more than one type gluten related rash (judging by the varying dx's on the board).
7) DH does "morph" over time. I saw it , as have many others, and this makes it very hard to dx.
  • 0
Apparently there is nothing that cannot happen today. ~ Mark Twain

Probable Endometriosis, in remission from childbirth since 2002.
Hashimoto's DX 2005.
Gluten-Free since 6/2011.
DH (and therefore Celiac) dx from ND
.
Responsive to iodine withdrawal for DH (see quote, above).

Genetic tests reveal half DQ2, half DQ8 - I'm a weird bird!

#10 Di2011

 
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Posted 20 April 2012 - 01:20 AM

I was asked to add this additional info about having a rash and having a gluten issue. These are my personal observations based on my readings and experience.

1) If your rash responds to gluten, it is a gluten-related rash.
2) You can try to biopsy it, but a negative result does not mean it isn't DH or a gluten related rash.
3) Most gluten rashes have a related component: salicylates, amines, iodine, msg's, etc.
4) A gluten rash can pop up at any time.
5) Gluten rashes are trending on this board to being the FIRST sign or a LATTER sign (or both).
6) You can have more than one type gluten related rash (judging by the varying dx's on the board).
7) DH does "morph" over time. I saw it , as have many others, and this makes it very hard to dx.

Hi Pricklypear,
My personal experience and opinion agrees with you. A great summary for new comers ! (((oh how I feel for them)))
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#11 IrishHeart

 
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Posted 20 April 2012 - 08:00 AM

The book was written in 1916 but is still a valuable resource, according to the study from 2007.

Just FYI :)

"DH was first described by Dr. Louis Duhring in 1884, four years before Samuel Gee made sense of the "coeliac affliction".

In 1967 Janet Marks of England discovered the link between intestinal biopsy and skin biopsy results of DH patients."
(Green and Jones) 
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#12 Ninja

 
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Posted 22 April 2012 - 05:41 AM

Thank you for posting this – it was extremely helpful to read. :)
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#13 psawyer

 
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Posted 05 May 2012 - 06:15 PM

If you wish to add to this discussion, please start a topic in this forum, and refer to this thread. The Multi-quote function will allow you to cite a post here in another topic. I will merge it into this discussion.
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Peter
Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000.
Type 1 (autoimmune) diabetes diagnosed in March 1986
Markham, Ontario (borders on Toronto)

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