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Mcflurries?
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Getting on a strict regimen to completely eliminate corn (which is much, much, much harder than gluten because it's not regulated) made me feel the healthiest I've ever felt in my life. It's worth your effort if you have the same problem, even if you have to give away $50 worth of vitamins and eat really plain, "whole" food at restaurants.

I am not lactose intolerant (though I do primarily use Lactaid or rice milk because I was told to keep lactose under control), so if I need a dairy fix, I now go to the frozen yogurt or gelatto places that don't use corn syrup and are gluten and dextrin free. I tend to avoid the toppings since the gastro told me to be as paranoid as possible about cross contamination since really minute amounts of corn are setting off my anapyhlaxis. A little more expensive than McDonald's, but worth it. I think yogurt and kefir are low in lactose anyway? Costco's Kirkland brand ice cream is corn syrup and gluten free, I just don't like having a gallon of ice cream in the house! Otherwise, you'll find it hard to get corn/gluten-free ice cream in an avg. grocery store. Healthfood stores will work out. Just get your vanilla ice cream, a blender, and make your own flurries!

Besides corn syrup, you could also try watching your response to carmel color, corn vinegar, corn starch, and corn dextrin. It used to be mild responses for me, but one day in June, it was if all hell broke loose and I now can't tolerate any of them.

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Not sure if this has been mentioned, but glucose syrup (wheat) does NOT contain the protein that is gluten, but if you have a wheat allergy as well as gluten intolerance, stay away from their ice creams. My friend's little one was taken to hospital because they assumed "gluten free" meant "wheat free" and they bought a sundae, only to find out that it does have glucose syrup in it, making it gluten free but not wheat free. She does not have coeliac disease, so able to have gluten in other forms, just no wheat of any kind.

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Not sure if this has been mentioned, but glucose syrup (wheat) does NOT contain the protein that is gluten, but if you have a wheat allergy as well as gluten intolerance, stay away from their ice creams. My friend's little one was taken to hospital because they assumed "gluten free" meant "wheat free" and they bought a sundae, only to find out that it does have glucose syrup in it, making it gluten free but not wheat free. She does not have coeliac disease, so able to have gluten in other forms, just no wheat of any kind.

This is incorrect

Here in the uk 95% of all glucose is made from wheat, as is malodextrin. They are highly processed which means that technically no trace of gluten remains.

That technically part actually means that upto 20ppm of gluten can remain as does some wheat proteins

The same exists with distilled vodka. There should be no gluten that comes across in the distillation but proteins do, hence thoose whom are super sensitive to it cant have grain derived vodka

It was either CC or the glucose syrup, I am betting the latta

There is no requirement in the uk to specify what the glucose is derived from because of the high processing involved. I believe this is now the same in the USA and its only though companies being nice that they list it

Rubbish isn't it

Jim

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This is incorrect

Here in the uk 95% of all glucose is made from wheat, as is malodextrin. They are highly processed which means that technically no trace of gluten remains.

That technically part actually means that upto 20ppm of gluten can remain as does some wheat proteins

The same exists with distilled vodka. There should be no gluten that comes across in the distillation but proteins do, hence thoose whom are super sensitive to it cant have grain derived vodka

It was either CC or the glucose syrup, I am betting the latta

There is no requirement in the uk to specify what the glucose is derived from because of the high processing involved. I believe this is now the same in the USA and its only though companies being nice that they list it

Rubbish isn't it

Jim

What I said is correct for Australian food standards.

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There are soooo many products with the gluten free label that aren't really gluten free. I get so mad at companies just trying to jump on the gluten free bandwagon to make a buck! Check out the unsafe ingredients list on celiac.com.

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Can you give some examples of companies that are advertising that they are gluten free but in actuality are not? This is a pretty bold statement with nothing to back it up.

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I'm assuming the statement was made with regards to foods sold in the USA, because we have no regulations in effect yet to regulate the gluten free label. It is completely legal to make a gluten free claim with different levels of rigor, some of which are not rigorous enough.

Companies that make the claim that a product is gluten free, but do not test their products for gluten so cannot actually confirm that their products ARE gluten free, are not uncommon. Testing standards can differ widely. Some companies test every batch, some test batches periodically, some only test batches when the product is first being produced, some test ingredients going in and don't test the final product at all - it's all over the map.

If there is no testing or only periodic testing, contaminated batches can fall through the cracks and make us sick. Or sometimes it is 'naturally' gluten free goods that contain gluten above the 20 ppm that most people consider a gluten free standard.

Although to be fair, I've noticed more companies start testing their products over the last year or so, so that's good news.

However, as you wanted some examples, here's just a couple. :-)

Food for Life tortillas - some lots tested at an independent lab show above 20 ppm of gluten. The gal who had these tested made sure to contact the company so that they could hopefully correct whatever problem was causing the contamination, so perhaps that has been addressed now. The original blog posting regarding this has a broken link, but here is a link to another blog reporting on it: http://glutenfreemom.typepad.com/gluten_free_mom/2012/01/gluten-free-watchdog-warning-re-food-for-life-brown-rice-tortillas.html

In the above link, it also mentions a study done on naturally gluten free grains and flours, where about 32% were above the 20 ppm standard. The original article for that is no longer up on the web, either, sadly. What I do remember is that some of the flours tested were significantly above 20 ppm. One soy flour was over 2,000 ppm of gluten. 0.0 The study itself declined to mention which brands were tested, however, so we're unable to locate those particular brands.

In September, 2011, when I last contacted Boulder Canyon Chips, they tested the lines for their gluten-free potato chips during a certification period to ensure they were gluten free. After that, the chips are never tested again to ensure that they remained gluten free and uncontaminated unless there was a change in ingredients. Again, this was a little over a year ago, so that may have changed by now.

That's just a few examples, but there are others if you look. Most of the big name companies seem to be testing at least periodically now, that I know of.

However, another potential issue for those who are more sensitive is tracking down the original information for what is 'gluten free.' A great example of this is many of the Frito Lay chips - which I know many here can't eat, but it's a good example so I'll use it.

On a lot of websites with lists of gluten-free chips, they will list a whole slew of Frito Lay chips, like certain varieties of Doritos, Cheetos, Funyuns, and so on. If you hunt down the website, however, you find out that Frito Lay has not made the claim that these chips are gluten-free. Frito Lay has a few chips that they test for gluten, and then a much larger group of chips that they do not add gluten to on purpose, but do not test and do not have them in a situation to keep them as free from gluten contamination.

On their site (http://www.fritolay.com/your-health/us-products-not-containing-gluten-ingredients.html ) they list a lot of their chips in the 'no gluten ingredients' category. But this gets passed around the webosphere and becomes 'gluten free' when even the company isn't making the claim.

Also, sometimes on the sensitive section here, people get frustrated because we'd love a reality where 'gluten free' meant '0 ppm of gluten.' That's not the reality, and it's not something that can even BE a reality at the present time and with the present level of technology. But for some folks who react to less than 20 ppm in quantities they would eat during the average day, the gluten free standard doesn't adequately protect their health.

Oh, for the latter? Even the FDA has recognized that the 20 ppm standard is a potential issue for some Celiacs. In the FDA

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    • I have posted on here before. DQ2, brother with celiac, DGP iGA was the only mildly elevated test. Was gluten-free so did 6 week challenge last winter. Negative biopsy. I am gluten-free now but do go out to eat. Prior to the challenge my health was good. Since then I have: Chest pain, pain between shoulder blades, periods of shortness of breath, heart palpitations, one instance of a heart arrythmia episode, neck is tender to touch on one side (they kept saying sinuses or TMJ which my dentist vetoed) ear ache, bowels never sink. Numbness and tingling. Blood pressure variations. Could be doing chores and feel dizzy and it might be 84/52.  not super low, but not typical for me if I'm running around the house.While other days I am mildly hypertensive. Recently lost 5 lbs in 8 days without trying. Recently electrolytes were low, alkaline phosphatese was low. Ferritin started dropping so started liquid iron 2-3 times per day 4 months ago. Primary watching that, I am not anemic but we are nowhere near iron overload either.  GI doc was a dick. Did not even know DGP replaced older tests and he was very condescending When I begged him for help recently and told me to get a second opinion which is exactly what I plan on doing.  I now have pain in my upper GI area. It is tender to touch. I had my gallbladder out in 97 along with a stone and infection in my bile duct. It hurts in this area. Pancreatic enzymes look fine, liver enzymes fine. Pancreatic ultrasound fine. I will now be doing a EUS Soon to look at bile duct, pancreas and liver.   so a typical day for me is that I might feel fine for a while and then suddenly feel like I'm going to pass out. really dizzy, numbness in odd places, like my body has been hijacked. I will typically eat a bunch of food something high protein and in about an hour or so I start to feel better. However, then my upper stomach starts to hurt in place of the passing out feeling. blood sugars are also normal. After getting the " it must be panic attacks" and condescending looks a million times my primary finally ordered an ultrasound of my sore neck and there is an abnormality in my thyroid which she says looks like possibly Hashti's. Except for one time, all my serum TSH tests were normal. We have more blood work on Monday. As I have not put on any weight and there are other symptoms that are closer to Graves.  Has anyone else had any thyroid issues that followed doing a gluten challenge?  where is your stomach pain? Do you have it above or below your belly button? Mine feels like it's in the pancreas area, like 2-3 inches above the belly button and when I push on it it's tender, but not all the time. sometimes i feel it in my back. 
    • Thanks for sharing with me.  I really appreciate it.  Honestly, after a glutening last summer (still do not know what glutened me), I did not eat out for a year!  The risk was too great as my healing time took 3 months (for symptoms to subside) and six months to regain lost weight.  Our recent vacation to Europe was worth the risk  as we traveled with our entire extended family, but we were extra cautious and ate only at celiac-approved places.  Otherwise, we "dined" at markets or ate the food we brought from home.  Thankfully, we did not get glutened (at least we don't think so!)  
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