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The Gluten Challenge


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#16 peeptoad

 
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Posted 13 October 2011 - 03:49 AM

Yes it can be normal. Not everyone has a sudden return to full blown GI distess.


Thanks. That's actually encouraging to me (sounds weird I know). I was actually relived to see the skin problems return because now I know there is at least one determined cause for something going on in my body. I'm so tired of negative lab tests and being told there is nothing really wrong with me.
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#17 ravenwoodglass

 
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Posted 13 October 2011 - 04:38 AM

I'm so tired of negative lab tests and being told there is nothing really wrong with me.


You sure aren't alone there. :angry: :(

I have DH and for me the DH used to show up before the tummy issues. For me it is a three day wait for a reaction but in my particular case the GI reaction is sudden and nasty.
Everyone's body is different though and for some the build up is more gradual. Do keep your doctor in the loop and maybe do a diary of food injestion, days, and symptoms as that can be helpful at times.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#18 peeptoad

 
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Posted 13 October 2011 - 05:52 AM

You sure aren't alone there. :angry: :(

I have DH and for me the DH used to show up before the tummy issues. For me it is a three day wait for a reaction but in my particular case the GI reaction is sudden and nasty.
Everyone's body is different though and for some the build up is more gradual. Do keep your doctor in the loop and maybe do a diary of food injestion, days, and symptoms as that can be helpful at times.


I probably should keep my GI doctor in the loop... maybe will send him an email next week after I finish my challenge. I started a food diary yesterday, mainly just to keep track of what symptoms started up when and how severe (or mild) they are.
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#19 peeptoad

 
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Posted 16 October 2011 - 05:41 AM

Well, the GI symptoms gradually returned over the past 7 days, and the past two mornings I was woken up by painful abdominal cramps. Also, oddly enough, I began to feel very depressed late last week (about 5 days into my glutening). Maybe this is a coincidence, but I see no reason to continue with the challenge. That's enough to convince me that I have some sort of issue with gluten. Back to the gluten-free sanctuary! ;)
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#20 peeptoad

 
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Posted 17 October 2011 - 05:10 AM

Alright, last update:

By day 7 of my gluten challenge the following IBS symptoms returned:

abdominal cramping (painful, these woke me up both Saturday and Sunday morning)
feeling of incomplete evacuation
mild nausea
bloating
fatigue (even after sleeping 9 hours on Friday night)
heartburn, which I never get and I got it without eating/drinking anything acidic (like alcohol)
plus the "hives" that were on my legs are back (these are mild, not really a problem, but interesting that gluten seems to trigger them)


So, I'm going back gluten-free and if all of this stuff goes away again, then I have the answer to the cause of my IBS.
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