Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Where Your Contribution Counts!
    eNewsletter
    Support Us!

Update On Gluten Challenge


txplowgirl

Recommended Posts

txplowgirl Enthusiast

Well i'm 2 months in on my gluten challenge. I'm being tested on the 13th. If I don't have official Celiac, I know i'm at least gluten intolerant and no matter what the tests say i'm back to being gluten free. Almost everything that had resolved has just about come back. The nueropothy pain and tingling in the extremities, insomnia, restless legs, brain fog off an on, alternating D and C, bloating, cramps, the sores that I had on my head for almost 20 something years that went away are back, anxiety, back and shoulder pain, just that general feeling like i'm coming down with something. Alternating between feeling cold and hot in different parts of the body, Running a low grade fever, nausea and the worst of them all having not quite panic attacks but loosing my cool, feeling like i'm loosing my marbles and feeling like bugs are crawling all over my body off and on. I can't hold my temper hardly at all, lashing out for no reason, i'm back to being the snarly witch bi*ch again. Not good. And i'm gaining weight like crazy again. I'm watching what I eat, trying to eat healthy calorie and fat wise but i've already gained back 12 lbs.

Very frustrating. I'm so looking forward to the 13th.

Then I will be gluten free forever! Yaaaaa! :D

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gluten free overseas Apprentice

Holy cow! That's so awful! I'm sure you are counting the hours until you can go gluten free again!

Link to comment
Share on other sites
pain*in*my*gut Apprentice

Well i'm 2 months in on my gluten challenge. I'm being tested on the 13th. If I don't have official Celiac, I know i'm at least gluten intolerant and no matter what the tests say i'm back to being gluten free. Almost everything that had resolved has just about come back. The nueropothy pain and tingling in the extremities, insomnia, restless legs, brain fog off an on, alternating D and C, bloating, cramps, the sores that I had on my head for almost 20 something years that went away are back, anxiety, back and shoulder pain, just that general feeling like i'm coming down with something. Alternating between feeling cold and hot in different parts of the body, Running a low grade fever, nausea and the worst of them all having not quite panic attacks but loosing my cool, feeling like i'm loosing my marbles and feeling like bugs are crawling all over my body off and on. I can't hold my temper hardly at all, lashing out for no reason, i'm back to being the snarly witch bi*ch again. Not good. And i'm gaining weight like crazy again. I'm watching what I eat, trying to eat healthy calorie and fat wise but i've already gained back 12 lbs.

Very frustrating. I'm so looking forward to the 13th.

Then I will be gluten free forever! Yaaaaa! :D

Holy Cow, we could be twins!! I have all of those symptoms from gluten (except the head sores...I get mouth sores)! My biopsy is the 9th, and like you, I don't care what it says....I am going gluten free.

I look at it this way...at least we know we will feel better! We know we will get better as soon as we stop poisioning ourselves. For so long I wondered if I would ever feel better, now I know I will!! ;)

Hang in there!

Link to comment
Share on other sites
Skylark Collaborator

Wow, I can't believe you're toughing it out. I'm impressed. At least you know for sure that gluten is a complete no-go for you.

Link to comment
Share on other sites
dilettantesteph Collaborator

I hope you get through it. I totally commiserate. Especially the witch thing. I hope your victims are understanding. It is weird how you just can't help it.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,508
    • Most Online (within 30 mins)
      7,748

    Penny Lowery
    Newest Member
    Penny Lowery
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • McNish
      If you're ever in the Peoria IL area - Queen of Squash is 100% gluten-free.   Pekin (just outside Peoria) Whiskey Taco is 90% gluten-free.  The owner's mom is Celiac so they get it!   Just let your server know.   https://thequeenofsquash.com/ https://whiskey-taco.com/
    • trents
      Do you have online access to your celiac panel test results such that you could post them? tTG-IGG is kind of a secondary test. A weak positive in that one could indicate celiac disease but since it isn't as specific a marker as the tTG-IGA it is not real convincing. You could also have NCGS (Non Celiac Gluten Sensitivity) for which there is no test. Celiac disease must first be ruled out. It is 10x more common than celiac disease and shares many of the same symptoms. Some experts believe it can be a precursor to celiac disease. The antidote for both is the same: total avoidance of gluten.
    • powerofpositivethinking
      I haven't been on this forum for a long time, but it was absolutely wonderful during the diagnostic process!  My path for celiac disease diagnosis was the following: -Had normal IgA level, and my only serology positive test was the DGP IgG -Deficiencies in both Vitamins D and K that did not increase at first despite massive supplementation -Diagnosis of fat malabsorption both total and neutral -Diagnosis of severe exocrine pancreatic insufficiency (EPI) -Testing was completed to rule out causes of EPI, and the only one not ruled out was celiac. -Both traditional endoscopy and pill capsule endoscopy yielded negative results for biopsy confirmation, but my GI doctor said that both procedures simply could have missed the damaged spots. -EPI and fat malabsorption resolved after taking Creon for 6 months since my EPI was caused by celiac -23 and Me said I don't have either of the two prominent genes for celiac disease   Remember that you might not have 'textbook' symptoms, but you still may have celiac disease.   Also, I am SO incredibly grateful for this site for all the learning it has allowed me to do. I have a senior dog, and these last few weeks with her were very scary! After two hospital stays, she finally received an IBD diagnosis after having gastroenteritis and pancreatitis. I know that celiac disease is not IBD, however, through reading this site, I learned more about it. I was relieved when I found out she had IBD and not cancer this past Wednesday. I know IBD can be managed thanks to what I've learned here!  So celiac.com, not only did you help me, but you helped my pup too! Thank you ❤️  
    • SuzanneL
      It was tTG IGG that was flagged high. I'm not sure about the other stuff. I'm still eating my normal stuff. 
    • cristiana
      Thank you for your post, @Nedast, and welcome to the forum. It is interesting to read of your experiences. Although I've not had TMJ, from time to time I have had a bit of mild pain in my jaw, sharp stabbing pains and tingling in my face which appears to have been caused by issues with my trigeminal nerve.  I read that sometimes a damaged trigeminal nerve in coeliacs can heal after adopting a gluten free diet.  I try to keep out of cold winds or wear a scarf over my face when it is cold and windy, those conditions tend to be my 'trigger' but I do think that staying clear of gluten has helped.  Also, sleeping with a rolled up towel under my neck is a tip I picked up online, again, that seems to bring benefits. Thank you again for your input - living with this sort of pain can be very hard, so it is good to be able to share advice.
×
×
  • Create New...