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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Any Groups In Phoenix Az
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Trying to find a group with others that suffer from celiac. Any out there?

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Trying to find a group with others that suffer from celiac. Any out there?

I've heard of this one:

http://phoenixceliac.org/

There's one down in Tucson, too: http://www.southernarizonaceliacsupport.org/

Have you checked out the gluten free bakery up there, or Picazzo's?

http://www.glutenfreecreations.com/

http://www.picazzos.com/

If you need someone to chat with, send me a private message. I'm down just past Tucson, but we head up to Phoenix every once in a while, and I'd be happy to chat. :-)

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There are a few support groups that I know of. One in Phoenix, one in I believe Gilbert and one in Fountain Hills.

Here is some info on a meeting this Wednesday in Phoenix that you may want to attend.

This month's program: **THE RESTAURANT TABLE**

When: Sept 7, 2011, starting at 7pm

Who: CDF: Greater Phoenix Chapter Members, Guests & Friends

(INCLUDING: Youth ages 10-19 y/o interested in forming a Youth Group!)

Where: Paradise Valley Retirement Community' s Community Room, 11645 N 25th Place, Phoenix, AZ 85028 (Please park in the street.)

All of us can be very grateful that more & more restaurants are paying greater attention to our gluten-free dining needs. Our September meeting, to be held this coming Wednesday Sept. 7 @ 7PM, will celebrate some of these delicious dining options.

Join us at one of our most popular programs of the year..."The Restaurant Table." Meet representatives from 4 Valley restaurants and learn about their gluten-free menus. Newly invited guest restaurants include:

"The Melting Pot", "Outback Steakhouse", and "Blue Wasabi". And, returning guest "Picazzo's" is excited about sharing information about their new, expanded gluten free menu.

Join fellow CDF-Greater Phoenix Chapter members & friends as we learn about these restaurants' gluten-free options, ask questions about their menus, and gain insights into gluten free dining in general.

If you can, please bring a favorite gluten-free item for our refreshment table to share with fellow attendees and our restaurant guests. Samples of protein drink mixes have been provided by "Growing Naturals"; and, "Jovial Foods" has donated some pasta and filled cookies. For concerns or questions about treats to share, you may contact our Chapter's Activities Chair, Charlene at:

bcerpelding@cox.net

As always, please bring a list of ingredients so that fellow attendees can check for possible food allergies.

AND ANNOUNCING....youth ages 10

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I should add that I received that in an e-mail from a yahoo celiac group.

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I'm in Phoenix, and newly diagnosed. I was literally at the end of my rope with undiagnosed doctors visits. Spent thousands of dollars on doctors, wife divorced me because there was never a diagnosis, lost my job in law enforcement because I was unable to absorb nutrients. Gained about 80 lbs, right in front of my doctor whom I'd been a regular for 15 years. Never once was a suggestion put forth to test for this.

So... Yeah, I'm filthy angry, but also finally have something that I can form closure around.

I have many questions, so I'll have to look into the meetings mentioned above.

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    • Second Panel has come back...advice?
      Update!  I went to my follow up with my gastro. He's hesitant to diagnose celiac without an endo, but said he will redo the blood work after I'm several months gluten free. My DGP IGA should drop after being gluten free, right? This could confirm the suspicion? I know the TTG levels drop, but want to be sure the DGP also drops on the diet.  Thanks! I've already replaced all kitchen equipment and pantry/fridge items. Early on I didn't realize the potential for cross contamination in restaurants. Now I do, so eating out has been put on halt for a bit. 
    • does your diet have to be like a perfection?
      Yes.  You have to be 100% gluten abstinent when you have Celiac Disorder.  It gets easier to be gluten abstinent, not because you get used to it but because of the negative effects that ingesting gluten causes when you accidentally eat something with gluten.  Nothing tastes good enough to go through a glutening.  As your system heals it will become less tolerant of your occasional lapses into gluten consumption--accidental or otherwise. You have to take this seriously.  You get used to it and there are some wonderful gluten-free options out there.  But you can't go back to gluten and stay healthy.  It just doesn't work that way. Good luck.
    • does your diet have to be like a perfection?
      I  think you need to watch where you get your medical info!    Of course you can't introduce gluten back in. And  of course you have to be strictly gluten-free and not intentionally eat gluten.   "The gluten-free diet is a lifetime requirement. Eating any gluten, no matter how small an amount, can damage your intestine. This is true for anyone with the disease, including people who do not have noticeable symptoms. It can take weeks for antibody levels (indicating intestinal damage) to normalize after a person with celiac disease has consumed gluten. Depending on a person’s age at diagnosis, some problems, such as delayed growth and tooth discoloration, may not improve. The gluten-free diet requires a completely new approach to eating. You have to be extremely careful about what you buy for lunch at school or work, eat at cocktail parties, or grab from the refrigerator for a midnight snack. Eating out and traveling can be challenging as you learn to scrutinize menus for foods with gluten, question the waiter or chef about possible hidden sources of gluten, and search for safe options at airports or on the road. However, with practice, identifying potential sources of gluten becomes second nature and you’ll learn to recognize which foods are safe and which are off limits." http://www.cureceliacdisease.org/living-with-celiac/guide/treatment    
    • does your diet have to be like a perfection?
      FlowerQueen is correct.  Once diagnosed with celiac disease, you should never consume gluten again without the risk of becoming very ill (osteoporosis, liver damage, lymphoma, etc.).   I think everyone has trouble in the beginning sticking to a gluten free diet.  That's because gluten is in so many processed foods.  It takes time to learn to read labels, make a safe kitchen, learn to eat out, get your family to support you.  I would advise reading out Newbie 101 section under "Coping" within this forum.  It contains valuable tips for becoming gluten free.  Also, check out the University of Chicago's celiac website to learn about celiac disease.  Knowledge is power!   Everyone has different degrees of damage, but I would say that learning the diet and healing can take months to a year or longer.  The good news is that this is an autoimmune disorder that is treatable -- avoid gluten at all costs!   Take care and welcome to the forum!   
    • does your diet have to be like a perfection?
      Not sure what you mean by perfecting your diet? Do you mean accidentally eating gluten?   As to re-introducing gluten again, if you have celiac disease, please DO NOT ever re-introduce gluten again. It's an auto-immune disease, not a food intolerance. It will damage your gut again if you do.  Hope this helps.
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