4 replies to this topic

[sallyb]

Trying to find a group with others that suffer from celiac. Any out there?

[T.H.]

Trying to find a group with others that suffer from celiac. Any out there?

I've heard of this one:
http://phoenixceliac.org/

There's one down in Tucson, too: http://www.southerna...iacsupport.org/

Have you checked out the gluten free bakery up there, or Picazzo's?
http://www.glutenfreecreations.com/
http://www.picazzos.com/

If you need someone to chat with, send me a private message. I'm down just past Tucson, but we head up to Phoenix every once in a while, and I'd be happy to chat. :-)

[Jenny (AZ via TX)]

There are a few support groups that I know of. One in Phoenix, one in I believe Gilbert and one in Fountain Hills.

Here is some info on a meeting this Wednesday in Phoenix that you may want to attend.


This month's program: **THE RESTAURANT TABLE**

When: Sept 7, 2011, starting at 7pm
Who: CDF: Greater Phoenix Chapter Members, Guests & Friends
(INCLUDING: Youth ages 10-19 y/o interested in forming a Youth Group!)
Where: Paradise Valley Retirement Community' s Community Room, 11645 N 25th Place, Phoenix, AZ 85028 (Please park in the street.)

All of us can be very grateful that more & more restaurants are paying greater attention to our gluten-free dining needs. Our September meeting, to be held this coming Wednesday Sept. 7 @ 7PM, will celebrate some of these delicious dining options.

Join us at one of our most popular programs of the year..."The Restaurant Table." Meet representatives from 4 Valley restaurants and learn about their gluten-free menus. Newly invited guest restaurants include:
"The Melting Pot", "Outback Steakhouse", and "Blue Wasabi". And, returning guest "Picazzo's" is excited about sharing information about their new, expanded gluten free menu.

Join fellow CDF-Greater Phoenix Chapter members & friends as we learn about these restaurants' gluten-free options, ask questions about their menus, and gain insights into gluten free dining in general.

If you can, please bring a favorite gluten-free item for our refreshment table to share with fellow attendees and our restaurant guests. Samples of protein drink mixes have been provided by "Growing Naturals"; and, "Jovial Foods" has donated some pasta and filled cookies. For concerns or questions about treats to share, you may contact our Chapter's Activities Chair, Charlene at:
bcerpelding@cox.net

As always, please bring a list of ingredients so that fellow attendees can check for possible food allergies.

AND ANNOUNCING....youth ages 10 – 19 y/o are welcome to come along!! Tay, our new Junior Group coordinator, is planning a break-out group so that the youth can meet under Tay's direction and share their own information & concerns about celiac disease and dining out!

Following are links to our guest restaurant's sites so you can get a peek at their gluten-free menus.
The Melting Pot
http://www.meltingpo...ttsdale/welcome

Outback Steakhouse
http://www.outback.com/menu/

Blue Wasabi
http://bluewasabisushi.com/our-menu/

Picazzo's
http://www.picazzos.com/gluten-free/

(Please note that just as with all gluten-free products and services, CDF: Greater Phoenix Chapter DOES NOT ENDORSE any specific restaurant. The goal of this meeting is to learn what is available in our community so that we can each make our own choices.)

PS: A big THANK YOU for donating items for the Foothills Foodbank each month!

Submitted by:

Chris F.; Chair,
PR Committee

Hope this helps.

[Jenny (AZ via TX)]

I should add that I received that in an e-mail from a yahoo celiac group.

[RonSchon]

I'm in Phoenix, and newly diagnosed. I was literally at the end of my rope with undiagnosed doctors visits. Spent thousands of dollars on doctors, wife divorced me because there was never a diagnosis, lost my job in law enforcement because I was unable to absorb nutrients. Gained about 80 lbs, right in front of my doctor whom I'd been a regular for 15 years. Never once was a suggestion put forth to test for this.

So... Yeah, I'm filthy angry, but also finally have something that I can form closure around.

I have many questions, so I'll have to look into the meetings mentioned above.