Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Any Groups In Phoenix Az
0

5 posts in this topic

Trying to find a group with others that suffer from celiac. Any out there?

0

Share this post


Link to post
Share on other sites


Ads by Google:

Trying to find a group with others that suffer from celiac. Any out there?

I've heard of this one:

http://phoenixceliac.org/

There's one down in Tucson, too: http://www.southernarizonaceliacsupport.org/

Have you checked out the gluten free bakery up there, or Picazzo's?

http://www.glutenfreecreations.com/

http://www.picazzos.com/

If you need someone to chat with, send me a private message. I'm down just past Tucson, but we head up to Phoenix every once in a while, and I'd be happy to chat. :-)

0

Share this post


Link to post
Share on other sites

There are a few support groups that I know of. One in Phoenix, one in I believe Gilbert and one in Fountain Hills.

Here is some info on a meeting this Wednesday in Phoenix that you may want to attend.

This month's program: **THE RESTAURANT TABLE**

When: Sept 7, 2011, starting at 7pm

Who: CDF: Greater Phoenix Chapter Members, Guests & Friends

(INCLUDING: Youth ages 10-19 y/o interested in forming a Youth Group!)

Where: Paradise Valley Retirement Community' s Community Room, 11645 N 25th Place, Phoenix, AZ 85028 (Please park in the street.)

All of us can be very grateful that more & more restaurants are paying greater attention to our gluten-free dining needs. Our September meeting, to be held this coming Wednesday Sept. 7 @ 7PM, will celebrate some of these delicious dining options.

Join us at one of our most popular programs of the year..."The Restaurant Table." Meet representatives from 4 Valley restaurants and learn about their gluten-free menus. Newly invited guest restaurants include:

"The Melting Pot", "Outback Steakhouse", and "Blue Wasabi". And, returning guest "Picazzo's" is excited about sharing information about their new, expanded gluten free menu.

Join fellow CDF-Greater Phoenix Chapter members & friends as we learn about these restaurants' gluten-free options, ask questions about their menus, and gain insights into gluten free dining in general.

If you can, please bring a favorite gluten-free item for our refreshment table to share with fellow attendees and our restaurant guests. Samples of protein drink mixes have been provided by "Growing Naturals"; and, "Jovial Foods" has donated some pasta and filled cookies. For concerns or questions about treats to share, you may contact our Chapter's Activities Chair, Charlene at:

bcerpelding@cox.net

As always, please bring a list of ingredients so that fellow attendees can check for possible food allergies.

AND ANNOUNCING....youth ages 10

0

Share this post


Link to post
Share on other sites

I should add that I received that in an e-mail from a yahoo celiac group.

0

Share this post


Link to post
Share on other sites

I'm in Phoenix, and newly diagnosed. I was literally at the end of my rope with undiagnosed doctors visits. Spent thousands of dollars on doctors, wife divorced me because there was never a diagnosis, lost my job in law enforcement because I was unable to absorb nutrients. Gained about 80 lbs, right in front of my doctor whom I'd been a regular for 15 years. Never once was a suggestion put forth to test for this.

So... Yeah, I'm filthy angry, but also finally have something that I can form closure around.

I have many questions, so I'll have to look into the meetings mentioned above.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,375
    • Total Posts
      920,572
  • Topics

  • Posts

    • https://www.facebook.com/groups/SingaporeCeliacs/
    • Today was the big day when I went to the GI and this is the first time I have felt heard and taken care of.  I told him about the two celiac blood tests  (in my first post) normal, he said that often happens, even with people who do have celiac and he needed to see the report and pictures from my endoscope.    I had filled out the appropriate Kaiser paperwork for Sutter to send all my medical records, but they ended up sending a disc with records to me, which Sutter said they could not use.  We also talked about gluten sensitivity v. celiac, and he said a lot of people are sensitive to gluten even if they don't have celiac. He said that my symptoms sound like classic IBS, which can be caused by any number of things.  He asked if I would try the FODMAP diet, which limits certain foods and requires no gluten. He said my symptoms sound like classic IBS, which he said can be caused by any number of things, including gluten sensitivity.  He has asked if I would try the FODMAP diet, which has restricted foods as well as no gluten because most gluten products have wheat in them.  So, since I am planning on going gluten free anyway, and I don't want another endoscope or blood tests if absolutely necessary, I am going to try the FODMAP diet and see what happens. I filled a consent form at the GI office today to have all my records sent to him so he can view the endoscope pathology report and photos.  I have an appointment with a Registered Dietician on September 30, and follow up appointment the GI in 4 months. 
    • gluten-free andee, according to an article on celiac.com  that talks about this subject see this link http://www.celiac.com/articles/24406/1/Celiac-Diease-and-Other-Autoimmune-Diseases-Equals-Low-Inflammatory-Diet/Page1.html Quoting the author "In the author's personal experience, a gluten-free diet has many limitations. The reactivity between alpha gliadin and corn, millet, oats, rice and dairy has been denounced as invalid by gastroenterologists and celiac disease researchers. While at a medical school in Missouri, biopsies did not show improvement in villous atropy until all alpha gliadin sources and corn, millet, rice and oats were removed from the diet."  Note this research is two years old but hilites the problem with non-gluten rice protein that you are having. It is the alpha gliadin sources that it causing the cross reactivity you are experiencing when you eat rice protein's. She says quoting "Celiac disease has gotten the most attention in antibody research, but the current data on cross-reactivity of antibodies is allowing a better understanding of gluten sensitivity. Antigen reactivity to alpha-gliadin can trigger immune attacks on many individuals beyond those with positive DQ 2, DQ 8 and TTG test results. She goes on to say "A low inflammatory diet customized to each person through testing for cross-reactivity or elimination diet protocols is needed to restore a state of health and well-being."  which sounds exactly like what you are doing. If you are still having problems after elminating rice a 30 day elimination of all the alpha gliadin proteins might be in order.  Corn is a common reactivity problem I hear with a gluten allergy from my friends as well as the obvious lactose problems that can be common among celiacs.  But rarely do you hear Rice allergy's brought up in context of a gluten allergy. I am glad you are making progress on finding your triggers. Read the whole article for yourself to see if there are nuggets of truth I did not highlight in my response. I hope this is helpful. Good luck on your journey to health. Posterboy,
    • One other thing - you might be able to tolerate some dairy if it's only the FODMAPs problem. I discovered that many cheese such as cheddar have effectively no lactose. And my wife sometimes makes 24 hour yoghurt, which also has effectively no lactose. Those have been fine for my tummy.
    • Celiacs got better gluten-free. Post-war, grains became available again and the same patients got sick again. 1952 the Gluten-Free Diet is officially ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,451
    • Most Online
      1,763

    Newest Member
    Chelsealarita
    Joined