Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

My Sons' Test Results
0

6 posts in this topic

Two of my sons do not have the genes for celiac. So my oldest really is just allergic to wheat (he tests IgE positive) and it is not celiac.

My other son does not have celiac but he does have a gene for it. So he will be gluten-free to lower his risk of developing it.

Actually, at home the whole family will be gluten-free, but when we're out I know I only need to watch for one child to not have gluten.

I'm happy. Of course if my wish came true then none of my kids would have the gene, but I'm not complaining. :)

I am so glad I had them tested along with the genetic test.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Did you order the genetic test and do it on your own? I am thinking I want us all tested for the gene as well, but don't know the best way to go about it? thanks

0

Share this post


Link to post
Share on other sites

What genes did your children get tested for? Approximately 1/3 of Americans of European descent are HLA DQ2 or DQ8 positive (I believe that these are the genes that are routinely tested for in commercially available testing), and obviously, not all of these people go on to develop celiac disease.

Also, there is increased recognition that there are other genes involved in the development of celiac disease which are not routinely tested for, especially in non-European populations (check out pubmed.gov for abstracts and references referring to this). So, absence of the DQ2 and/or DQ8 antigens does not guarantee that one will not develop celiac disease.

0

Share this post


Link to post
Share on other sites

I got the kids tested with kimball genetics division of labcorp. They only sent a summary to my dr but I was able to call and get the full result.

0

Share this post


Link to post
Share on other sites

I have never had the genetic test done on any of us mostly because my insurance won't cover it. I have no desire to pay out of pocket for it. However, I am curious to what genes I do have. Although without it I'm firmly diagnosed, my youngest son for the most part is diagnosed and my oldest son is not diagnosed and has been negative on blood work several times and had a negative biopsy. I've chose to put him on a gluten free trial anyway and I have noticed some changes in him already in these past two weeks.

0

Share this post


Link to post
Share on other sites




They were tested for the DQ8 and DQ2.

My one son has DQ2. My others have neither and the Dr. told me they have a 95% to 98% percent of not getting celiac but that it is possible to get it without those genes.

I had the gene test done at the Dr's office. It was a blood draw.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,352
    • Total Posts
      920,502
  • Topics

  • Posts

    • This is EXACTLY what happens to me. It has twice now and both times was after both glutening episodes but once it was the day after and the other time it was a week and a half. So I'm still not sure if it's related or strange bug bites...

      Did they stop happening when she stopped being glutened? Did you decide they were definitely related? I'm really confused by this and would love to know whether to insecticide my house or....
    • Thankyou both! I was wondering if my high levels left much doubt on the diagnosis. I don't see the GI until the 15th Sep and I don't think I can stand to eat gluten in that time. If he tells me to I will do so after then. After 25 years of symptoms I don't think there is much chance of healing my bowel In a couple of weeks. I'm actually terrified of the damage they might find. But I think I will need the endo since there may be other things going on with me. So great they didn't put your son through the biopsy! Once I have a formal diagnosis I have my kids to worry about also. I can't even stand the thought of my daughter having a blood test. I think she would need to be sedated as she is so fearful and pain sensitive. My son is not yet 2 so I don't think they will test him. I'm feeling so off at the moment. I think I have some anxiety and reflux going on complicating things quite a bit.
    • My son's antibodies were 300. Based on his extremely high levels, his pediatric GI suggested genetic testing instead of the biopsy. Genetic testing can't diagnose celiac on its own but combined with such high levels, the gi dr was confident a positive genetic test would confidently diagnose celiac. He warned that biopsies are small snapshots of the intestine and can miss damage. He said this is an approach used very often in Europe but not as much in the US. What sold me on that approach was the ability to put my son directly on a gluten free diet instead of waiting three weeks for the biopsy, during which time he would continue to eat gluten and feel terrible. I'm not sure if this is more common with younger patients though (our son is two), based on the idea that he's had less time to inflict damage that would show in a biopsy? We are very happy that we immediately started the gluten free diet and chose the genetic testing. Our son got the proper diagnosis and his recent number shows a drop to 71 after only 4.5 months gluten free! Not sure if this helps. Good luck and I hope you feel better soon!
    • We have been off gluten for a while now, and symptoms return when I've allowed gluten full meals… so something still isn't sitting right with me.  Checking with her doc about seeing a pediactric GI although I'm not sure how long that will take since we live in small town America. I know she didn't get at least one of the recommended full panel tests but maybe two, can someone help clarify, or is she missing two? DGP for sure and possibly EMA? And if I understand what I'm reading in other posts that the DGP can be more accurate? Thanks Her blood panel results: Ttg ab iga <.5u/ml ttg igg <.8u/ml aga ab iga <.2 u/ml aga an igg <.7u/ml iga 61mg/dL  
    • I was tested for the full panel, I believe. I had normal values for t-transglutaminase (ttg) igg,t-transglutaminase (ttg) iga, deamidated gliadin abs igg, deamidated gliadin abs iga, and immunoglobulin a qn serum.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,416
    • Most Online
      1,763

    Newest Member
    djs2117
    Joined