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Cross Contamination - More Sensitive After gluten-free Diet
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Hi I have been gluten free less than 2 months now and although my symptoms have definately improved I feel I'm more sensitive now than before diagnosis is this normal? Before being diagnosed with coeliacs, although constipation was bad along with stomach pain and gas diareah only occurred with consumption of beer/some spirits. However since being gluten free I am now super sensitive, the past 2 times I have eaten out in restaraunts although I have been very careful not to eat gluten I get diareah about 20 minutes after. Is it normal to be this sensitive to cross-contamination? And to have debeloped this hightened sensitivity after going gluten free. My biopsy showed almost total villous atrophy.

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Yes it is normal. Now that your gluten free when you get even the smallest amount of gluten it will cause those antibodies to flare. You need to be as careful as possible and take precautions to prevent cross contamination. Do not cook with gluten flours for others, if fact many of us find that we can't allow gluten flours to be used in our homes at all because the flour particles will be airborne for hours. Do get a dedicated gluten free toaster and replace any scratched non-stick cookware, wooden utensils, cutting boards and strainers. Try and go with as much whole unprocessed foods as you can and if you must eat in a restaurant try to go to one that is knowledgable about gluten. I hope your feeling better soon.

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This is totally normal. In my first six months of being gluten free I got sick after playing with Play Dough with my kids and making Christmas cookies, things which I was able to do on a regular basis without symptoms before going gluten free. I also reacted strongly to cross-contamination in the foods I ate; I would feel sick after eating foods with no gluten ingredients, only to call companies afterwards and find out that all of the products I reacted to were actually made on shared lines.

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Yeah, me too.

Increased sensitivity is maddening and we must be ever more vigilant about gluten.

I get sick with exteme symptoms from trace gluten where before I ate it every day. I had chronic muscle and joint pain and migraine headaches that went on for days.

Now I get those just from accidental trace gluten. Like helping sister's kids with their plates when we go to a buffet where I do not eat...just drink. But there is enough gluten around to end up making me sick. I wouldn't dare eat in a restaurant now whereas when I was first diagnosed (by me thanks to Celiac.com) I thought Oh I can do this! I'll just order meat and vegetables...but time and tide have proven no way! No Way I want to spend my birthday playing Russian Roulette with the whole next week just to eat a meal out. Ugh...after a year...I am still super-sensitive. :ph34r:

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    • I like your plan Cara, I may have to include it in my sons.    Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 
    • Despite it being a nightmare, I did wait for my kids to get biopsies. At one point I had one severely ill child gluten-free and two more waiting having to eat it. It was worth the wait though and I think long term a biopsy may be worthwhile, especially for school. I have already had issues with schools and camps so having a firm diagnosis has been helpful. 
    • Knowing that the reaction to gluten in celiacs is an uncalled for immune system reaction, I was thinking of how a cure would be possible. Maybe a medicine that somehow turns off the immune system. The only thing that i've heard do that... HIV.  obviously that's way worse than celiac. Just some food for thought.
    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
    • I'm glad I found these forums!  I will spend some more time this evening reading through them.  But I wanted to get my question out there just to see if anyone else might have answers quicker than I can sift through the forum for them.      I've been feeling terrible for about a year, and after an elimination diet last month, figured out that if nothing else, gluten/wheat is a problem.  After lots of research, I abandoned the elimination diet and added gluten back in, so that I could get tested for Celiac.   I was off gluten for 3 weeks, from mid-June until early July.  I've had it back in my diet for almost 3 weeks now.    My question is this: Since I was off gluten for 3 weeks, and now back on for almost 3, is that enough time on to yield a positive Celiac blood test, if that indeed is what I have?  All the research I've done says 4-6 weeks for a gluten challenge, but is that really necessary if I was only not eating it for 3 weeks?  I am desperate to get this testing done and over with.  I feel terrible all the time and getting through the day is a struggle.  My doctor ran allergy panels already and everything came back clear except for a mild wheat allergy.  So if nothing else, I'll have to give up wheat for sure at the end of all this.  I get the feeling she doesn't know a ton about Celiac though, so I'm doing a lot of the research on my own. Any advice or information would be so appreciated! 
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