Jump to content





   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Ads by Google:
Celiac.com Sponsor:                                    


Photo
- - - - -

I'm So Bitter And Sick Of It


  • Please log in to reply

40 replies to this topic

#31 GlutenFreeManna

 
GlutenFreeManna

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,887 posts
 

Posted 16 September 2011 - 05:28 AM

I hear ya, Suzanna. I think a lot of us miss our old gluteny bread...and that seems to be difficult to replicate, try as we may. I'm not sure I really recall exactly what it tastes like as it's been a long while. Have you tried making gluten-free pizza yet...that is one thing I've gotten pretty good at. The cookies will probably be easier than bread and come the holiday season, I have a feeling you'll find a lot of recipes here on the forum.


I agree with Sylvia! Don't give up on making gluten-free things yet. Pizza is really easy if you can find King Arthur's multi-purpose gluten-free flour and use their recipe on their blog. On the box of flour they have a recipe for popovers that is great! The popovers taste like a small soft dinner roll to me. For your holiday cookies I suggest you post the original recipe in the recipe section here and ask for help converting it to gluten-free. There are some amazing gluten-free bakers here. Just look at what Simona has recently been able to make: http://www.celiac.co...raided-challah/ (If you search for her posts specifically you will see a bunch of other faboulous treats such as dumplings and cakes, etc.)
  • 0
A simple meal with love is better than a feast where there is hatred. Proverbs 15:17 (CEV)

Celiac.com Sponsor:

#32 Kim69

 
Kim69

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 101 posts
 

Posted 16 September 2011 - 01:03 PM

You are very lucky to have a gluten-free household. My family refuses.

My saviours are chocolate and an antidepressant (I was on it before I became Coeliac).

I have serious issues with food and see a therapist who has helped me throughout. I also have fructose malabsorption which really limits my food. I miss apples and pears.

So my advice is to see a therapist and consider an antidepressant. The ad helped me feel normal.

Hugs to you!!
  • 0
May 2010 Diagnosed coeliac via biopsy - on gluten-free diet, now not anaemic
March 2010 Still Anaemic and very fatigued, abdominal pain still (Drs had thought it was related to abdom operation)
May 2009 Anaemic - had abdominal surgery; hysterectomy to remove large fibroid
March 2009 Vestibular neuritus (not sure if related but who knows!)
November 2008 Depression (still on meds - working well)

#33 zus888

 
zus888

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 216 posts
 

Posted 16 September 2011 - 03:09 PM

I have been waffling about seeing a therapist and maybe even the antidepressants. I hate the idea of adding more drugs to what I already take (17 total daily). Plus, depression is one of the big indicators for me that something is amiss (either thyroid or getting glutened), so masking it may be masking a valid medical issue.

I would qualify myself as depressed right now, though it's not really affecting my every day living - just tainting my general world-view. I meant to call the doc today to have my thyroid tested again - I can't seem to get is stabilized.

I do have a pizza crust recipe that I got from food.com and it's pretty good. I'd rank it up there with an ok frozen pizza. But I just can't get the dinner rolls out of my head. They haunt me.

Even today, I was talking to someone about the diet, and I really had not one good thing to say about it. I did tell her that some people will say that it's not that bad, but that I hadn't found that to be true at all. I won't lie: I think it sucks. I would love to get out of that mindset because it does nothing but sabotage my whole perspective.
  • 0
Suzanna

#34 ravenwoodglass

 
ravenwoodglass

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 13,741 posts
 

Posted 16 September 2011 - 03:27 PM

I have been waffling about seeing a therapist and maybe even the antidepressants. I hate the idea of adding more drugs to what I already take (17 total daily). Plus, depression is one of the big indicators for me that something is amiss (either thyroid or getting glutened), so masking it may be masking a valid medical issue.

I would qualify myself as depressed right now, though it's not really affecting my every day living - just tainting my general world-view. I meant to call the doc today to have my thyroid tested again - I can't seem to get is stabilized.

I do have a pizza crust recipe that I got from food.com and it's pretty good. I'd rank it up there with an ok frozen pizza. But I just can't get the dinner rolls out of my head. They haunt me.

Even today, I was talking to someone about the diet, and I really had not one good thing to say about it. I did tell her that some people will say that it's not that bad, but that I hadn't found that to be true at all. I won't lie: I think it sucks. I would love to get out of that mindset because it does nothing but sabotage my whole perspective.


17 different scripts a day! Yea I would be reluctant to add another into the mix also. Do have your doctor review all of the meds and make sure that your mood issues aren't being caused by a reaction to the mixture. Many drugs can have side effects that can cause irritability and other problems.
  • 0
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#35 zus888

 
zus888

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 216 posts
 

Posted 16 September 2011 - 05:45 PM

Oh, No! Not 17 scripts, 17 pills. Actually it LOOKS worse than it is. I have 4 scripts: Rx fish oil (2 pills, 2x daily - supposed to provide anti-inflammatory effects), something to keep crohns in check (3 pills 2x daily), and another for my liver disease (2 pills 2x daily - although there are no studies to prove that it actually provides any true benefits for the liver disease), thyroid med (1x daily), OTC allergy, and OTC vitamins. So, it's a lot of pills to keep track of even though there's only 4 scripts.

I have a lot of issues going on, just like many of you. Unfortunately, none will be resolved by the gluten-free diet.
  • 0
Suzanna

#36 ravenwoodglass

 
ravenwoodglass

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 13,741 posts
 

Posted 17 September 2011 - 02:57 AM

Oh, No! Not 17 scripts, 17 pills. Actually it LOOKS worse than it is. I have 4 scripts: Rx fish oil (2 pills, 2x daily - supposed to provide anti-inflammatory effects), something to keep crohns in check (3 pills 2x daily), and another for my liver disease (2 pills 2x daily - although there are no studies to prove that it actually provides any true benefits for the liver disease), thyroid med (1x daily), OTC allergy, and OTC vitamins. So, it's a lot of pills to keep track of even though there's only 4 scripts.

I have a lot of issues going on, just like many of you. Unfortunately, none will be resolved by the gluten-free diet.


Whew, glad to hear that. Do be sure to have them do rechecks on your liver panels frequently. I don't know what liver issues you have but many of us to have liver panels that are off when we are diagnosed that resolve with no meds after we have been gluten free for a while. I had a problem finding fish oil tabs that were soy free. I don't know if you have issues with soy but if you do make sure they don't have soy in them. I finally found a cod liver oil cap that was just cod liver oil. I hope you are feeling better soon. Your allergies may also calm down. I showed allergies to 98 out of the 99 things I was tested for prediagnosis and felt like I needed to live in a bubble. Within a few months only 4 remained and they are not really severe at this point. Hopefully yours will resolve also. It can be amazing how much celiac impacts our systems and how much can resolve that doesn't seem to be related after we heal.
  • 0
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#37 zus888

 
zus888

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 216 posts
 

Posted 17 September 2011 - 08:22 AM

That's actually quite interesting. It's ragweed season up here and normally (even with shots) I'm completely miserable, but I'm not having any more of a problem than a slightly runny nose. I don't know if the pollen isn't that bad or what. I thought it had more to do with the shots and my allergy meds, but maybe I'm wrong. I have tried going off the allergy meds, and have had no luck at all with it. But, in a normal year, I'm miserable with the shots AND the meds - that's how bad I reacted. So, maybe gluten-free IS actually making a noticeable effect?

Oh, and I have been diagnosed with Primary Sclerosing Cholangitis. A study showed no difference between those who went gluten-free and those who didn't. Apparently it has no effect on the progression of the disease. I try not to think about it, though.

Going to Outback tonight for my birthday dinner and then having an almond torte from Gluuteny. Man, I really hope it's good. If not, I'll just have to make my own cake for myself tomorrow. But today, I'm NOT cooking!
  • 0
Suzanna

#38 Zaphryn

 
Zaphryn

    New Community Member

  • Members
  • Pip
  • 2 posts
 

Posted 17 September 2011 - 08:40 AM

I thought at first relief when I was told what was wrong, and the diet didn't bother me much other than it's so damn costly and there are close to no products in my country.. but at least you can make alternatives and some are better than the originals.
But gotta say, it depresses me so when I go downtown and I can't go to a restaurant with my boyfriend and he doesn't wanna be limited by me. I said before I went on the diet that I was worried how it'd bother him cause in a way it'd restrict him too, but he said it'd be no problem. It's just not how I felt lately. And when people make homebaked cakes at work and I gotta say no.. man, it kills you socially. Who knew food brought people together as much as it does. This diet basically restricts you in all sorts of food and makes you hypersensitive towards other food too .. No wonder it makes a lot of us bitter.
  • 0

#39 mushroom

 
mushroom

    Mushroom

  • Advanced Members
  • PipPipPipPipPipPip
  • 9,448 posts
 

Posted 17 September 2011 - 09:26 AM

Yeah, you have to develop a new outer skin that both makes you impervious to the dubious delights of gluten, and at the same time allows you to be super nice to people who offer it to you, and not bore them to death with why you can't eat it :lol: You also have to learn that it is the social part that counts, not the food, and focus on that, otherwise you run the risk of being ostracized. There's nothing that will turn you into a good cook more than a diagnosis of gluten intolerance. Blow them away with your gluten free goodies. Sorry I can't help with the boyfriend part. Either he gets it and will be supportive, or he doesn't and won't. :(

By the way, welcome to the forum :)
  • 0
Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

#40 Marilyn R

 
Marilyn R

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 1,484 posts
 

Posted 17 September 2011 - 02:04 PM

That's actually quite interesting. It's ragweed season up here and normally (even with shots) I'm completely miserable, but I'm not having any more of a problem than a slightly runny nose. I don't know if the pollen isn't that bad or what. I thought it had more to do with the shots and my allergy meds, but maybe I'm wrong. I have tried going off the allergy meds, and have had no luck at all with it. But, in a normal year, I'm miserable with the shots AND the meds - that's how bad I reacted. So, maybe gluten-free IS actually making a noticeable effect?

Oh, and I have been diagnosed with Primary Sclerosing Cholangitis. A study showed no difference between those who went gluten-free and those who didn't. Apparently it has no effect on the progression of the disease. I try not to think about it, though.

Going to Outback tonight for my birthday dinner and then having an almond torte from Gluuteny. Man, I really hope it's good. If not, I'll just have to make my own cake for myself tomorrow. But today, I'm NOT cooking!


I used to get a serious cold or bronchitis twice a year. Now I haven't had a cold in almost two years. It used to be a big problem, because all of the OTC cold remedies make me break out in hives. So I just sufferred through the 1-2 weeks I had the cold with homemade remedies. (Chicken soup, Vick's Vaporub.)

You're going to get some weird blood tests if you have secondary food intolerances going on. I've been dx with Mixed Connective Tissue Disease and a weird lung disease. I insisted that they repeat my blood tests and they came back normal. My guess is that something else is bugging you, like soy. Soy's in everything, like mayo and all processed foods. I'm just guessing though... could be completely wrong.

The only reason I mention this is that I noticed from previous posts that we've shared quite a few symptoms.

Hope you have a really happy birthday, and wish you the very best. :D
  • 0
Positive improvement from elimination diet. Mother dx'd by Mayo Clinic in late 1980s. Negative blood tests and Upper & Lower GI biopsy. Parathyroidectomy 12/09. Recurring high calcium level 4/10. Gluten-free 4/10. Soy & Dairy Free 6/10. Corn free 7/10. Grain free except rice 8/10. Legume free 6/11. Fighting the battle of the battle within myself, and I'm going to win!

As of 2/12, tolerating dairy, corn, legumes and some soy, but I limit soy to tamari sauce or modest soy additives. Won't ever try quinoa again!

Discoid Lupus from skin biopsy 2011, discovered 2/12 when picking up medical records. Systemic Lupus Dx 6/12. Shingles 10/12.

#41 Zaphryn

 
Zaphryn

    New Community Member

  • Members
  • Pip
  • 2 posts
 

Posted 17 September 2011 - 11:45 PM

Yeah, you have to develop a new outer skin that both makes you impervious to the dubious delights of gluten, and at the same time allows you to be super nice to people who offer it to you, and not bore them to death with why you can't eat it :lol: You also have to learn that it is the social part that counts, not the food, and focus on that, otherwise you run the risk of being ostracized. There's nothing that will turn you into a good cook more than a diagnosis of gluten intolerance. Blow them away with your gluten free goodies. Sorry I can't help with the boyfriend part. Either he gets it and will be supportive, or he doesn't and won't. :(

By the way, welcome to the forum :)


Thank you =D! And good point with the social part which is what counts instead of the food. And I think you're right about becoming a good cook cause you learn to make everything from the bottom.
  • 0




0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: