Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Milk/casein Anyone Else
0

12 posts in this topic

I kept feeling like I had been glutened. I had intestinal pain, D and gas, headache, the works. I knew that I hadn't had any gluten. I don't eat out and eat the same things over and over. I decided to cut out dairy 2 weeks ago. All of those symptoms went away. I was bored with it and sick of black coffee so I bought some cheese and Lactaid milk yesterday. I made a pizza with the cheese and used some of the milk in mashed potatoes and in coffee. This morning I woke up with a migraine, D, terrible gas pain and D, D, D...The cheese said no lactose per serving and the lactiad milk is lactose free. Is this what casein does to someone? If so, casein makes me feel as bad as gluten.

I was doing ok with no milk but I cant find any rice milk around here that is gluten free. All we have in our stores is Rice Dream. I caved and bought Lactaid now I am suffering.

Edited by GFreeMO
0

Share this post


Link to post
Share on other sites


Ads by Google:

I was doing ok with no milk but I cant find any rice milk around here that is gluten free. All we have in our stores is Rice Dream. I caved and bought Lactaid now I am suffering.

Do you have a good blender? Rice milk is easy to make! 2 cups water, 1/2 cup cooked rice (packed well but not like a brick) and some add a little sugar, honey or even vanilla to it. Blend it up for a few minutes. Keeps for 3-5 days.

We are dairy free d/t allergies but many people with Celiac have dairy issues as well.

0

Share this post


Link to post
Share on other sites

Do you have a good blender? Rice milk is easy to make! 2 cups water, 1/2 cup cooked rice (packed well but not like a brick) and some add a little sugar, honey or even vanilla to it. Blend it up for a few minutes. Keeps for 3-5 days.

We are dairy free d/t allergies but many people with Celiac have dairy issues as well.

Thanks for the recipe. I am going to try it. I have a blender that I got a long time ago that I used a few times before I knew better to make smoothies with Rice Dream. I guess I could stick it in the dishwasher to get it really clean and it should be safe that way.

0

Share this post


Link to post
Share on other sites

Do you have a good blender? Rice milk is easy to make! 2 cups water, 1/2 cup cooked rice (packed well but not like a brick) and some add a little sugar, honey or even vanilla to it. Blend it up for a few minutes. Keeps for 3-5 days.

We are dairy free d/t allergies but many people with Celiac have dairy issues as well.

Do I need to strain this or anything?

0

Share this post


Link to post
Share on other sites

I am like you, just feeling like I was still getting gluten somehow, and I am extreme in what I put in my mouth. There was no possibility that I was getting gluten. I too have stopped the dairy, and I feel good! A lot more energy, completely normal stools, my ears are not driving me insane with itching, and the roughen areas on my fingers are improving. I thought dairy was a digestive issue, but not thinking that now. I am not much on dairy anyway, so it doesn't bother me, just have to get a little more creative in my baking.

0

Share this post


Link to post
Share on other sites




If you have a really good blender, no you don't have to strain it. I have a Vita-Mix which is like a turbo jet engine :) I don't think you need to strain it though or what little body it does have will be lost. If you find it's chunky, then yes I would try it strained.

You may also want to try looking at coconut mild creamer (I LOVED it when I had to be dairy free but I am not 100% sure if it's gluten free. Turtle Hill is the maker of the one I used.) Also, if you don't have issues with nuts, there are a lot of nut "milk" alternatives out there.

0

Share this post


Link to post
Share on other sites

I am doing the same thing. I know i am not getting gluten but have not been feeling well -bloating, intestinal pain, and D. I have cut down on dairy and noticed a reduction in symptoms but really have just been strict about it for the last 2 days and I do feel better so far. I have tried lactose free coffee mate and cabot cheese and was wondering the same thing-is it lacotse or casein? How do you tell?

0

Share this post


Link to post
Share on other sites

I am doing the same thing. I know i am not getting gluten but have not been feeling well -bloating, intestinal pain, and D. I have cut down on dairy and noticed a reduction in symptoms but really have just been strict about it for the last 2 days and I do feel better so far. I have tried lactose free coffee mate and cabot cheese and was wondering the same thing-is it lacotse or casein? How do you tell?

I think that if Lactaid milk and lactose free cheese is making you sick, it has got to be casein. The same thing happened to me with lactose free creamer and cheese. If these products are lactose free, they still have casein. A lot of people here have to avoid dairy. I guess we do too. ugh :(

0

Share this post


Link to post
Share on other sites

I think that if Lactaid milk and lactose free cheese is making you sick, it has got to be casein. The same thing happened to me with lactose free creamer and cheese. If these products are lactose free, they still have casein. A lot of people here have to avoid dairy. I guess we do too. ugh :(

Well I thought I was home free being gluten free for about 2 years and I saw you have been gluten free for about the same time. I am really mad about having to give up dairy!! But now I am at the point where I will give it up and eat the front lawn if it is the only thing that will make me feel better. I have an appointment with my GI tomorrow so I will see what he has to say but I think I may have solved my problem. Thanks!

0

Share this post


Link to post
Share on other sites

After being strictly gluten free for six months, at the five-month-mark I started getting quite ill from dairy. In my case it appears to be lactose but I have eliminated dairy temporarily to be sure. It is very frustrating not to have gluten OR dairy but there are others here who must have much less. :( I hope to be one of those who is able to re-introduce dairy in the future because I REALLY miss it. LOTS.

Darn it - I teach cooking classes including various cheeses! :o

0

Share this post


Link to post
Share on other sites

Giving up dairy for me is almost harder that giving up gluten! I made the rice milk with the above recipe. It turned out great!! Thanks for posting that. :)

0

Share this post


Link to post
Share on other sites

Giving up dairy for me is almost harder that giving up gluten! I made the rice milk with the above recipe. It turned out great!! Thanks for posting that. :)

Awesome! Glad it worked out for ya! My DS (who has Celiac) is allergic to dairy, egg, peanut, tree nuts, soy and banana. We know how to work around things :)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,092
    • Total Posts
      920,314
  • Topics

  • Posts

    • WOW.  That looks eerily familiar.  Last December the temporary provider here at my local (rural) clinic gave me doxycycline to experiment with, but it was a mere ten milligrams.  Lol, no wonder it didn't help!  I'm glad you're feeling better.
    • I got cross contaminated some time ago & the rash came back pretty badly. I've attached a photo taken on June 11th of my back. It was also in my scalp, around my neck, on my front, shoulders, inner wrists and more.   Tonight I am not itching at all! I haven't itched all day long!!!! I can't take Dapsone because I'm allergic to sulfa drugs & Dapsone is a sulfa drug. Obviously that means I also can't take any of the other sulfa drugs that are used to treat dh after Dapsone is not an option. After those comes tetracycline. I really needed some relief! I began researching the dosage & particulars on tetracycline for dh. Extensive & exhaustive research did not pan out. The best I could find was treating Bullous phemphigoid. That said something like 500mg of tetracycline 4 times per day and about an equal amount of niacinimide. I really didn't want to take that much medication and in such strong doses. So my doctor (my PC doc) & I began experimenting. We tried Doxycycline 100mg twice a day. It seemed to be helping some but it just wasn't enough. Then we upped it to 200mg Doxycycline twice per day. It has taken about 5 days of that & I sit here not itching all day for the first time in a long, long time! This may not work for everyone. I did want to post it though as it is, at present, working for me. I am not thrilled at taking it but I have toughed this rash out before for years with no meds and I just couldn't do it again.
    • I laughed out loud at the 'little notebook' comment!😂 It has been interesting to see how much progress has actually been made over the past 10 years that there is even a notebook to be offered or a restaurant to eat in that will accommodate our 'allergy'. 10 years ago I feared that I would never eat in a restaurant again.  But the notebook comment is spot on.  Hopefully within the next 10 years restaurants will evolve enough to offer us a menu that clearly lists the delicious and extensive offerings that they have lovingly prepared just for us...and not just an ingredient list with nutritional values that take longer to read than War and Peace.   I am grateful that there are places to go that at least make the effort.  Who knows?  Eventually there may be restaurants which will have to offer menus with GLUTEN options available!
    • Thanks for posting this Adrien, it's a great list and I and others will appreciate the effort and the thought behind it. I loved my time in Malaysia and I'm glad I sampled all the food I could whilst I was still on an unrestricted diet. The good thing is that, like you say, some of the nice Malay foods are still ok. As a backpacker I survived on a lot of nasi goreng and laksa, nice to think if I return there I could still do the same Terima kasih!
    • I have posted on here before. DQ2, brother with celiac, DGP iGA was the only mildly elevated test. Was gluten-free so did 6 week challenge last winter. Negative biopsy. I am gluten-free now but do go out to eat. Prior to the challenge my health was good. Since then I have: Chest pain, pain between shoulder blades, periods of shortness of breath, heart palpitations, one instance of a heart arrythmia episode, neck is tender to touch on one side (they kept saying sinuses or TMJ which my dentist vetoed) ear ache, bowels never sink. Numbness and tingling. Blood pressure variations. Could be doing chores and feel dizzy and it might be 84/52.  not super low, but not typical for me if I'm running around the house.While other days I am mildly hypertensive. Recently lost 5 lbs in 8 days without trying. Recently electrolytes were low, alkaline phosphatese was low. Ferritin started dropping so started liquid iron 2-3 times per day 4 months ago. Primary watching that, I am not anemic but we are nowhere near iron overload either.  GI doc was a dick. Did not even know DGP replaced older tests and he was very condescending When I begged him for help recently and told me to get a second opinion which is exactly what I plan on doing.  I now have pain in my upper GI area. It is tender to touch. I had my gallbladder out in 97 along with a stone and infection in my bile duct. It hurts in this area. Pancreatic enzymes look fine, liver enzymes fine. Pancreatic ultrasound fine. I will now be doing a EUS Soon to look at bile duct, pancreas and liver.   so a typical day for me is that I might feel fine for a while and then suddenly feel like I'm going to pass out. really dizzy, numbness in odd places, like my body has been hijacked. I will typically eat a bunch of food something high protein and in about an hour or so I start to feel better. However, then my upper stomach starts to hurt in place of the passing out feeling. blood sugars are also normal. After getting the " it must be panic attacks" and condescending looks a million times my primary finally ordered an ultrasound of my sore neck and there is an abnormality in my thyroid which she says looks like possibly Hashti's. Except for one time, all my serum TSH tests were normal. We have more blood work on Monday. As I have not put on any weight and there are other symptoms that are closer to Graves.  Has anyone else had any thyroid issues that followed doing a gluten challenge?  where is your stomach pain? Do you have it above or below your belly button? Mine feels like it's in the pancreas area, like 2-3 inches above the belly button and when I push on it it's tender, but not all the time. sometimes i feel it in my back. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,123
    • Most Online
      1,763

    Newest Member
    ForeverYoung&GlutenFree
    Joined