Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Super Sensitive Please Help.
0

11 posts in this topic

I am super sensitive to gluten and recently to casein. I have just recently given up all processed foods with the exception of a select few. I thought that I was reacting to Lays Stax so I quit those. I KNOW I reacted to rice Chex. I am ok with Betty Crocker yellow cake mix. I make my banana bread with that. So other than the cake mix and bisquick which are produced in a dedicated facility and Smart Balance spread which is gluten-free and cf, I am not consuming anything processed. I has a bad reaction to Stax and Chex earlier this week and I just finished off the chex tonight with my homemaderice milk and I was in the bathroom with a reaction minutes later.

Are any of you THIS sensitive? I guess I am going to have to go with foods that I make myself. Sigh...

0

Share this post


Link to post
Share on other sites


Ads by Google:

I've been scared to try chex.

I'm afraid I am that sensitive too.

But I can't say for sure...because I just don't test things very often.

Kettle Brand Kettle chips don't bother me. Do they bother you?

I eat those and Rudy's bread and that is about it...except for some chocolate.

0

Share this post


Link to post
Share on other sites

I am afraid to try kettle chips. Once I feel better, I will give them a try. It's hard going from a person who could eat anything to someone who is super sensitive to gluten and casein. I suppose going back to basics and eating meat, fruit and veg would be the best thing for me. It seems like I keep getting more and more sensitive as time goes on.

Thanks for your help.

0

Share this post


Link to post
Share on other sites

I'm right there with you.

I used to think Oh I can do this!

I would eat in restaurants...but after a few attempts failed...I decided it's just not worth it..ugh!

Maybe there are certain products that are always safe for super-sensitives...and we will find them! Wouldn't that be nice?

Should start a list of things that never make anybody ill...ever.

0

Share this post


Link to post
Share on other sites

Yes, there are others who are that sensitive. I react to rice chex too. I haven't even tried those other things. Last winter I found that I even had problems with store bought produce. I'm trying to grow more of my own. I've been freezing stuff like crazy to last over the winter.

At least I have control over what I eat. It's harder to control exposure to environmental gluten.

My daughter got glutened yesterday when she washed her hands, but then touched a doorknob before eating her lunch. She knew it might be a problem, but didn't think that it would. Wrong! She looked 6 months pregnant last night.

0

Share this post


Link to post
Share on other sites




I am super sensitive to gluten and recently to casein. I have just recently given up all processed foods with the exception of a select few. I thought that I was reacting to Lays Stax so I quit those. I KNOW I reacted to rice Chex. I am ok with Betty Crocker yellow cake mix. I make my banana bread with that. So other than the cake mix and bisquick which are produced in a dedicated facility and Smart Balance spread which is gluten-free and cf, I am not consuming anything processed. I has a bad reaction to Stax and Chex earlier this week and I just finished off the chex tonight with my homemaderice milk and I was in the bathroom with a reaction minutes later.

Are any of you THIS sensitive? I guess I am going to have to go with foods that I make myself. Sigh...

Hi!

I saw your post today and I just had to reply because I sooooo know what you are going through. To answer your question, yes some people are really sensitive! I am definitely one of those people. It took me a long time to figure out what I can and cannot tolerate. Mostly I've figured things out by trial and error (unfortunately). It is really hard because there are so many "gluten free" products on the market now that look really delicious, but I cannot tolerate 99% of them :( I have not found a brand of potato chip that I can tolerate, and I'm pretty sure I've tried them all. I make my own in the oven now. I also have not found a brand of cereal that I can eat. I make hot cereal from brown rice that I grind in a coffee grinder though. I had really made peace with it for the most part, but now that I am pregnant :) I can't even walk down the cereal aisle at the market without wanting to cry. Anyhow, I know everyone is different in what they can and can't tolerate, and I know that some people are even more sensitive than I am. But below is a list of processed foods that I have found I can tolerate so maybe this will help you.

Tinkyada rice pasta

Silk Almond Milk

Heinz ketchup

Kraft BBQ Sauce

Smuckers natural peanut butter

Kinnikinnick white sandwich bread

Hunt's canned tomatoes

I am usually ok with the regular store brand of granulated sugar or brown sugar although I have used Domino with no problem too. Also, never had a problem with any brand of olive oil I've tried. You can make amazing peanut butter cookies from just peanut butter, eggs and sugar (if you can tolerate these foods).

Hang in there, it will get easier!

0

Share this post


Link to post
Share on other sites

I am super sensitive, too. I avoid most processed foods and cook/bake the majority of what I eat from scratch.

There are things I have never had a problem with, and then there's things that usually leave me feeling icky, even though they're supposed to be safe. And potato chips are one of them. I used to love chips, but most of the time they don't sit too well so I just avoid them.

0

Share this post


Link to post
Share on other sites

Are any of you THIS sensitive? I guess I am going to have to go with foods that I make myself. Sigh...

Yeah, lot of us are right there with you. I agree: sigh. I'm off dairy as well, too. And eggs and soy, but seriously, without dairy and gluten, most processed food is gone anyway, yeah?

I have a brand of oil and a salt that I can eat safely. I had a whole grain sorghum, but it looks like I'm reacting to it so it's outta here for a while. I just found out it shares a harvester and processing equipment with gluten grain places, so that's likely the problem.

Otherwise, I'm trying very hard to become a better cook with lots of home grown herbs, veggies and a few fruit, and a little meat. Because at this point, it looks like I'll never eat good food again otherwise and I so, so, SO miss good tasting food.

I'd better become super-whole-foods-chef soon. ;)

0

Share this post


Link to post
Share on other sites

I just found out it shares a harvester and processing equipment with gluten grain places, so that's likely the problem.

Last I checked it was just harvester and not processing equipment. They clean the harvester for 2 days and then use the first large amount (I forgot how much) for the animals. Nonetheless, I have found both corn and wheat in it.

0

Share this post


Link to post
Share on other sites

Oh thanks, Steph! I got that information second hand and didn't double check it. Ha, teach me to stop doing that! :-)

0

Share this post


Link to post
Share on other sites

I am newly diagnosed with gluten sensitivity. I have read that non food items such as hand lotion, chap stick, and lipsticks could be a problem. Are there any that are safe? If I call the manufacturers, what questions do I ask?

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,894
    • Total Posts
      919,527
  • Topics

  • Posts

    • Gluten does WHAT to the brain?
      I saw this the other day too & like Karen, wondered at the last line of the article. The article had me once again thinking about my deceased brother who was dx'd paranoid schizophrenic in his late 20's. He also had alternating constipation/diarrhea  but "they" always blamed it on his meds for the schizophrenia. We, his family, knew he had those issues prior to him being prescribed the meds but there is no telling the medical community something when you're talking about a mental patient.  Okay, I know the guy is selling something but the research noted in the article is valid: http://articles.mercola.com/sites/articles/archive/2013/06/22/gluten-grains-cause-schizophrenia.aspx We knew about this back in the 50's & going forward. They even coined the term for it "bread madness". Why have we not recognized this in the psychology/mental health/institutions community for all these many years? Why does it seem to have been just shoved under the rug like some dirty little secret?  Wondering what kind of life my brother could have had - if  he had celiac - constantly haunts me.
    • Gluten does WHAT to the brain?
      My first thought was how many people that have been labeled as mentally ill or psychotic actually have Celiac Disease and never get diagnosed?  Their whole lives spent battling these conditions, being flooded with various meds and no one looks at their diet or does other testing!  It really is tragic.  I always wondered whether Patty Duke was an un-diagnosed Celiac.  She was finally diagnosed with bi-polar and ended up dying of a perforated intestine, at the young age of 69.  Ya gotta wonder........
    • Desperately Seeking DISARONNO!
      I think the company knows what the ingredients are better than us.  If you mean Amaretto, I have had it.  
    • Gluten free before biopsy???
      My doctor required me to continue eating gluten before the endoscopy for biopsy. She did say I could let up "a little" to ease some of the terrible pain I was having, but wanted me to eat gluten-containing foods every day until the biopsy. As it turned out, they were able to get me in quickly, so it was really only a few days for me. Both bloodwork and biopsy confirmed the diagnosis and now I am happily gluten-free! It has been a challenge, but having a gluten-free kitchen, checking labels on foods and being super-careful when going out has worked wonders. I am not 100% recovered yet, but getting energy back a bit at a time as my nutrition status improves. We don't eat out much - mostly at vegan places that declare they are gluten-free (although I still eat chicken, eggs, milk, and beef sometimes at home). One day, I'll go somewhere else - but not without checking first! Best of luck to you. I think it important to always double-check with the doctor when there are any questions at all. My doctor welcomes questions and I hope yours will too.
    • Gluten does WHAT to the brain?
      Thanks for posting I was just looking at this a short time ago. Something I found interesting was the last line of the article- " The psychosis that the woman experienced was an extreme condition and very unique, Fasano said. " While not common I am not sure that it is that unique.  There is a fair amount of research that has been done on the effects of gluten on the brains and nervous systems of celiacs.  Doing a search with the words neurological and celiac at places like Lancet, PubMed and the NIH can bring up some really interesting studies. Thankfully this impact is slowly becoming more common knowledge in the medical circles. Many of us have experienced in our families or first hand the way that the antibodies can impact our mood and thinking. It does seem miraculous when the clouds finally lift. I wish more doctors would test for celiac before pulling out the prescription pad, especially with kids.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,939
    • Most Online
      1,763

    Newest Member
    vamanos25
    Joined