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How Long After Gluten Before Reaction?
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My oldest ds just went gluten-free for 10 weeks and started back on gluten yesterday. He was fine yesterday, but having diarrhea today (about 24 hours after gluten exposure). Does this sound like a gluten reaction? I was expecting a quicker reaction if gluten was the problem, but I don't really know how quickly someone with celiac might react to gluten either.

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It's taken me as long as three days to have my anxiety reaction to gluten, and it usually takes at least six hours for my GI effects to appear. 24 hours is well within the realm of normal.

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Used to take me about a day. Now it seems to be ~3 hours.

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A reaction to gluten depends on the individual. I notice a reaction as soon as a couple of minutes of being exposed but can still feel the effects of the glutening a couple of days later. I'm newly gluten free though, so I've got no idea if I'm continually glutening myself without realizing, I'm still learning about it all.

Your son's reaction seems fairly typical from what I've read. My doctors are still finding out whether I have an allergy to wheat as well as an intolerance, so my instant reaction could be more allergy related.

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Thank you for your responses. My biggest worry was not having a clear gluten-related reaction and still feeling like we don't know for sure. We have a pretty clear reaction. Ds has had diarrhea all afternoon, barely making it to the bathroom at times. He's never had anything remotely like this before, so I'm pretty sure it's the gluten.

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One member lost her brother when he was 15 to celiacs...and a perant I beleive...people just don't realize!

Thank you for your responses. My biggest worry was not having a clear gluten-related reaction and still feeling like we don't know for sure. We have a pretty clear reaction. Ds has had diarrhea all afternoon, barely making it to the bathroom at times. He's never had anything remotely like this before, so I'm pretty sure it's the gluten.

Not to be harsh...but WHY would anyone with Celiacs PURPOSELY POISON THEMSELVES or why would you allow it!(if hes a minor...you weren't clear on that)

ITS POISON!!! :blink::blink::blink::angry::huh:

Take it from me and all those of us who were unkowingly poisoned from an early age and now have Really BAD nerological side affects...we'd have given ANYTHING to have been diagnosed EARLY..BEFORE the LONG TERM DAMAGE THAT DOES"NT SHOW UP TILL YOUR OLDER...BELEIVE ME!!!!

WTF...YOUR HIS MOM!!! sorry to be harsh...but THIS IS REALLY IMPORTANT....MAYBE EVEN LIFE CHANGING!!!

If Someone had even THOUGHT to test me for food alergies...let alone GLUTEN...MY life definatly would be different!!! It may olnly be diarrea now...but later if not checked...who knows..are you willing to take that chance...hes your BABY!!! :blink::D

One of the members lost her brother at the age of 15 to celiacs...and a parent too I think...but you get my point! :huh:

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One member lost her brother when he was 15 to celiacs...and a perant I beleive...people just don't realize!

Not to be harsh...but WHY would anyone with Celiacs PURPOSELY POISON THEMSELVES or why would you allow it!(if hes a minor...you weren't clear on that)

ITS POISON!!! :blink::blink::blink::angry::huh:

Take it from me and all those of us who were unkowingly poisoned from an early age and now have Really BAD nerological side affects...we'd have given ANYTHING to have been diagnosed EARLY..BEFORE the LONG TERM DAMAGE THAT DOES"NT SHOW UP TILL YOUR OLDER...BELEIVE ME!!!!

WTF...YOUR HIS MOM!!! sorry to be harsh...but THIS IS REALLY IMPORTANT....MAYBE EVEN LIFE CHANGING!!!

If Someone had even THOUGHT to test me for food alergies...let alone GLUTEN...MY life definatly would be different!!! It may olnly be diarrea now...but later if not checked...who knows..are you willing to take that chance...hes your BABY!!! :blink::D

One of the members lost her brother at the age of 15 to celiacs...and a parent too I think...but you get my point! :huh:

Calm down! Sounds like they didn't have the positve tests to prove he has celiac so they were testing it via dietary response. Lots of people here have to do that when they are trying to figure things out. I'm sure they plan to keep him gluten-free for good now that he has a clear reaction. No need to accuse people of poisioning their kids. ETA: This is the PRE-diagnosis forum. And based on her siggy her son is 5 with negative tests. Dietary response and positive genes is all some people have to get a diagnosis.

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Staceyshoe: It does sound like a very clear reaction. My reactions take anywhere from 24 to 48 hours to manifest themselves so his delayed reaction is normal as others said.

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Calm down! Sounds like they didn't have the positve tests to prove he has celiac so they were testing it via dietary response. Lots of people here have to do that when they are trying to figure things out. I'm sure they plan to keep him gluten-free for good now that he has a clear reaction. No need to accuse people of poisioning their kids. ETA: This is the PRE-diagnosis forum. And based on her siggy her son is 5 with negative tests. Dietary response and positive genes is all some people have to get a diagnosis.

SOOOOOORRRRRY......... :(:(:( !!!

Bad cougar!!!! :unsure:

Now I'm SAD!!!...I'm going to go pout now!!! :(

Find a good ROCK to crawl under!!! :(

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SOOOOOORRRRRY......... :(:(:( !!!

Bad cougar!!!! :unsure:

Now I'm SAD!!!...I'm going to go pout now!!! :(

Find a good ROCK to crawl under!!! :(

It's okay girl! I'm with you on gluten being poison, but sometimes you need to learn all the details before you pounce on someone. This a friendly board--we try to give people the benefit of the doubt. Some people do come here and admit they can't stop eating gluten (or can't stop their kids from sneakign it) even though it makes them sick. Those people need help. Scolding them isn't going to help them. Giving them the facts about what it's doing to them might help. Giving them ways to deal (like suggesting gluten-free alternatives) can help too.

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It's okay girl! I'm with you on gluten being poison, but sometimes you need to learn all the details before you pounce on someone. This a friendly board--we try to give people the benefit of the doubt. Some people do come here and admit they can't stop eating gluten (or can't stop their kids from sneakign it) even though it makes them sick. Those people need help. Scolding them isn't going to help them. Giving them the facts about what it's doing to them might help. Giving them ways to deal (like suggesting gluten-free alternatives) can help too.

Sniff...sniff....OK !! :(

After every thing I've read, Learned, been through and discovered latley.....It kinda FREAKED me out that after ALL the HORROR stories...someone would KNOWINGLY give a kid that they KNEW was celiac...gluten...especially after the poor kid just went 10 weeks without! I mean...REALLY! :blink:

I'm sorry I've only been on this site for 2 weeks or so.... and am still detoxing myself!!! Its making me a little HYPER..and overly sensitive...I'll have to watch that..I didn't realize what a spaz I've been lately..!!!

I was diagnosed 8/3/11 . :(

I'll be more careful...

I'm still sad and very depressed though!!! :(:(:(

I promise..No Pouncing... :unsure:

I'm still going to pout though! :(<_<

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I'm sorry Staceyshoe...I was out of line! sorry to be so harsh! :blink::(:(

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I took mine to a bakery for a few minutes yesterday which was enough obviously to make her sick :(

We went in and I bought one of the loaves that they have out already in the bag then paid then left.

This afternoon my poor baby has been really sick :'( all because I told my mum I'd pick up bread for her on the way home!

But yeah it took about 20 hours before the complaint started but I know she'll be really vague for the next few days and irritable too.

No it wasn't on purpose! I won't have it in the house normally but it was for my mum who threw it at me after a 10 hour shift to pick it up on the way home otherwise we haven't been into a bakery all year.

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On ‎9‎/‎18‎/‎2011 at 1:45 PM, Skylark said:

It's taken me as long as three days to have my anxiety reaction to gluten, and it usually takes at least six hours for my GI effects to appear. 24 hours is well within the realm of normal.

I know this was from 5 years ago but my reaction is the same I get bloated and tummy troubles with in a few hours but crazy anxiety about 48 hours later. Skylark how long before your anxiety stops this last time it took almost 5 days before I started to feel like myself. Is there a way to get the gluten out of our system faster so we don't suffer for days?

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    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
    • I like your plan Cara, I may have to include it in my sons.    Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 
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