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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Diabetes Question
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6 posts in this topic

I think I may be experiencing some really low blood sugars in the morning. I just borrowed a test kit and will use it in the morning. What is the "norm" for blood sugar testing?

Some of my symptoms are sleeplessness, dry mouth even though I drink throughout the night, dizziness, nausea, using the bathroom all night long (5-6 times per night), etc....

Can someone help?

Thanks,

Wenmin

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it would be good for you to get an A1C test which is a better indicator than using the strips. Everyone is different and has a different average. It also changes with weight and over time.

good luck

I think I may be experiencing some really low blood sugars in the morning. I just borrowed a test kit and will use it in the morning. What is the "norm" for blood sugar testing?

Some of my symptoms are sleeplessness, dry mouth even though I drink throughout the night, dizziness, nausea, using the bathroom all night long (5-6 times per night), etc....

Can someone help?

Thanks,

Wenmin

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That doesn't sound like low blood sugar to me. Some of it sounds like high blood sugar. Normal blood sugar is around 80. If it goes below 70 it is low. If it goes above 110 it is high. Note that every diabetic has their own range. I am supposed to keep my blood sugar between 90 and 130.

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I agree, this sounds like high blood sugar.

For basic info - how to use your test strips efficiently and effectively and how to keep your finger tips in good shape, see www.bloodsugar101.com There's also a book from the website, if you prefer. You need your own lancet for a borrowed kit.

For support from diabetics, there are several online forums, but consider checking out the Bernstein Diabetes Forum. Bernstein is low carb, so many there are very low in gluten and some are truly gluten free and have additional food intolerances. You can learn a lot there even if you do not go as low in the carb department.

Anytime blood sugar goes above 120, you are damaging your body. In the long run, this is the cause of "diabetic complications" such as retinopathy or neuropathy. You can develop these complications without ever becoming diabetic, however.

http://www.phlaunt.com/diabetes/14045678.php

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I realize I need a physicians opinion. I was just trying to gather data before seeing the Doctor. I have an appointment to get my blood levels checked (cholesterol, thyroid, blood pressure) in a couple of weeks. I was just trying to get some data to bring with me. Once I eat breakfast, I feel a little better and as the day goes on, I get better and better. Therefore, if I bring this information with me, he can see that I am running low or high and let me know what can be done about it.......

wenmin

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I realize I need a physicians opinion. I was just trying to gather data before seeing the Doctor. I have an appointment to get my blood levels checked (cholesterol, thyroid, blood pressure) in a couple of weeks. I was just trying to get some data to bring with me. Once I eat breakfast, I feel a little better and as the day goes on, I get better and better. Therefore, if I bring this information with me, he can see that I am running low or high and let me know what can be done about it.......

wenmin

I think is would be a good idea to test if/when those symptoms interfere with your sleep. Everyone's different but I can go quite high and a bit low without meds or insulin and have slow onset T1. After 2 years managing my BG I just recently realized that I am going low in the early a.m. I feel so uncomfortable I can't sleep. If I power through and get up at the appointed time my BG is often back to normal because my body eventually adjusts up but if I keep a meter by the bed and force myself to wake and test when I feel that way, I find myself a bit low. You may be a bit high as some suggested. The only way to know is to test. An A1C is a good overall test for your general BG condition and would be good to get done but you should test those night/morning times to see what's up. That's the only way to know. A one time fasting blood sugar, which the docs often use to screen/dx is not always a good measure. Many people slip through the cracks with it. I have slow onset T1 and can still pass a fasting test without insulin. I was dx with an oral glucose tolerance test and later on antibody test(all per my request). The more data you can get the better.

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    • Gluten ataxia...?
      I was explaining that some people have other trouble that is immune related and caused by eating gluten, but doesn't effect the gut in a noticeable way. According to the paper that I quoted there are some people which have different types of brain problems but don't have inflammation when tested by a biopsy.  The author used the term "non-Celiac gluten sensitivity" to refer to anyone who has any brain trouble that can be traced to gluten but without obvious gut inflammation.  There are a lot of different possible ways gluten can effect the brain some may not be related to the gut.  It could still be an immune system problem.  Normally "non-Celiac gluten sensitivity" refers to just a food intolerance.  Withdrawal symptoms are not normal and could be indicative of an immune system response of some sort, but I don't know for sure.        
    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
    • Confused
      I have not. I'll talk to my doctor about it
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