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Hydrocortisone Cream

Kquad

By Kquad
in Dermatitis Herpetiformis

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Kquad Apprentice
Kquad
Posted

I was diagnosed with celiac in march. Almost immediately, I also cam down with bronchitis and was on prednisone for a month. When I came off, I developed what I thought was hot tub rash ( folliculitis) around my trunk from the nipple line to the belt line. I then got glutened an became very sick, found I had gluten ataxia ( MRI showed cerebellar damage). I could not work, so I put myself on steroids (which really helped the ataxia) and the rash went away around them. I am now coming off the steroid ( 5mg a day) and the rash is back. It itches moderately ( but I am still on steroids) has very small acne like look on some some are just red. I am trying cortisone cream on one area and it seems to be helping. I can not be sure it is DH and I am tired of seeing doctors. Does cortisone cream help anyone?

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pricklypear1971 Community Regular
pricklypear1971
Posted

Yes and no.

It made the lesions smaller and dryer but it seemed to interfere with healing. Almost like tgey were in a frozen state.

If you want to test if it's DH, go on a low-iodine diet. That healed mine in 2 weeks when nothing else would touch it.

Also, prednisone is nasty stuff. You may be chasing your tail for a while as your body adjusts.

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Kquad Apprentice
Kquad
  • Author
Posted

Yes and no.

It made the lesions smaller and dryer but it seemed to interfere with healing. Almost like tgey were in a frozen state.

If you want to test if it's DH, go on a low-iodine diet. That healed mine in 2 weeks when nothing else would touch it.

Also, prednisone is nasty stuff. You may be chasing your tail for a while as your body adjusts.

Thanks, it does look like some of the early pics of DH and some are starting to blister. I will try the low iodine. Is there any symptom of celiac I have missed? I do not want any symptom to feel left out. I am so turned off to doctors now, I just can't see another.

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eatmeat4good Enthusiast
eatmeat4good
Posted

I have used cortisone cream on my lesions and it helps with the pain. But as PricklyPear says it doesn't help the healing.

I was on Prednisone for a long time and I did flare with my lesions when I came off of it. Avoiding iodine and gluten very strictly is what helps. Any little mistake and the lesions flare.

Walgreens Pain Reliving Ointment is Benzocaine and it takes the sting out temporarily but does nothing for the healing.

I've heard moist tea bags applied can help too.

And there is a Cromolyn cream that people with chronic hives use to help with healing. I haven't tried it, but some say it helps dry up the lesions. It is made using Nasalcrom (over the counter) and a cream base. I am going to try it on my most recent outbreak from a glutening last week.

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Even though the conditions are not the same, I have found this site helpful information and avoiding histamine foods can sometimes help as well. The Cromolyn recipe is on this site if you want to try it to dry the lesions. May not work, but we gotta try.

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Kquad Apprentice
Kquad
  • Author
Posted

Thanks, Cromolyn is an awesome mast cell stabilizer. I will try it if needed. As I am not off steroids yet, the itching is tolerable. Is there a place to get info on avoiding iodine, beside being careful with table salt?

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eatmeat4good Enthusiast
eatmeat4good
Posted

Yes, you can google low iodine diets.

There are many.

It is used temporarily by people who are going to have their thyroid radiated with radioactive iodine.

But it is perfect for the temporary limiting of iodine like those of us with DH need to do.

Here is a good one.

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Kquad Apprentice
Kquad
  • Author
Posted

Yes, you can google low iodine diets.

There are many.

It is used temporarily by people who are going to have their thyroid radiated with radioactive iodine.

But it is perfect for the temporary limiting of iodine like those of us with DH need to do.

Here is a good one.

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Thanks, reading as I am eating a tunafish sandwich. Avoid fish. Starting next meal and the areas not covered with cortisone are really starting to itch!

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pricklypear1971 Community Regular
pricklypear1971
Posted

Thanks, reading as I am eating a tunafish sandwich. Avoid fish. Starting next meal and the areas not covered with cortisone are really starting to itch!

I read about iodine as I was cooking shrimp etoufee. I said a few nasty things about my ancestors at that point.

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