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What Symptoms Did You Not Even Realize Were Symptoms?
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I think I'm at the very beginning of this process, so I'm kind of trying to get a feel for where everyone else started out. I've felt subpar for quite awhile, but I don't know that I'd go all the way to calling most of the little annoyances "symptoms". I'm sitting on a bunch of "mild" diagnoses (narcolepsy without cataplexy, vertigo/Meniere's, IBS) and I'm wondering if I should really be so bold as to hope this could fix them all.

From what I understand, it's usually something like digestive problems (loose stools, bloating, stomach pains, reflux) that convinces a doctor to check for celiac/gluten intolerance (not sure I know the difference yet), but once someone stops eating gluten, a whole bunch of other things get better as well.

What other ways has your health improved that have surprised you or that you weren't expecting when you first eliminated gluten?

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The most surprising for me was my daughter's gag reflex going away. She is finally able to eat yogurt and mashed potatoes without throwing up:)

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At the time I did not realize it but I strongly suspect that all my miscarriages were due to celiac disease. My tooth enamel is much stronger than six months ago (had dental appointment last week). My teeth are no longer sensitive at all. I also used to have ridges in my fingernails and they are now smooth so I am absorbing nutrients properly! :)

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My brain fog and low stamina went away. I knew nothing about celiac - except it was a "stomach thing". I attributed those symptoms to Hashis. My hands got steadier - had no idea gluten did that.

Ironically, I struggled with C a long time (again, assumed thyroid) and now I'm having a hard time determining normal potty routines because I have no frame of reference. life was C or D - no in between. I'm having a lot of in between, and quite frankly don't know what to do with it.

Also, my eyesight changed. Dint know if it's better or worse because I haven't been to the dr. yet - but it is different.

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Are there any medical conditions that aren't on that list? Whoa...

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Bipolar illness and canker sores in my mouth were my surprises.

The list is so long because vitamin, mineral, and trace element deficiency can really mess people up!

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At the time I did not realize it but I strongly suspect that all my miscarriages were due to celiac disease. My tooth enamel is much stronger than six months ago (had dental appointment last week). My teeth are no longer sensitive at all. I also used to have ridges in my fingernails and they are now smooth so I am absorbing nutrients properly! :)

Never thought about the tooth enamel. I am soo new to this. I have very sensitive teeth. And the nails thing. Wow!!! Things just keep adding up.

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The extreme mood changes before my period. My husband would comment that I was a whole different person and down right not fit to be around. In the past I wasn't like that. Since gluten free it is no longer an issue.

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I had suffered from chronic pain in my neck and around the base of my skull since a car accident some 9 years ago. This pain vanished 24 hours after going gluten free and has not returned. A recent blood test had also shown post-menopausal levels of estrogen (the level was extremely low). My cycle restarted shortly after going gluten free. I also haven't had any migraines in the last month of being gluten free, which I had also not expected.

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I was just happy to get rid of a constant D that even would wake me out of a sound sleep but was surprised when I stopped getting migraines, my off and on depression ended, I was eventually able to walk unaided, my kidney problems resolved and my arthritis that was so bad I couldn't hold a cup, pen or at times walk resolved, I became able to speak normally and remember things like the names of objects and strings of numbers, my skin rashes went away, my asthma and chronic broncitis went away along with most of my allergies and even after almost 9 years I never catch a cold or virus (knock wood). It amazes me even now how many systems can be impacted.

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I learned how to spell diarrhea.

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I learned how to spell diarrhea.

LOL true story !!

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I learned how to spell diarrhea.

....and dermatitis herpetiformis!

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Looking back now I think several things were clues: mono twice as a child, continual infections with acne as a teen, being able to peel off layers of my nails, repeated strep throat thru 20's and 30's, lifelong anemia, then came the migraine headaches, blurred and sometimes double vision, constantly tired thinking it was a light deprivation problem, stomach stuff that I couldn't pinpoint. All the while docs telling me it was age, and told there was nothing wrong, no tests ran. It wasn't til I landed in ER sicker than a dog that docs started realizing something was going on.

What was first thought of as parathyroidism has proved itself to be celiac. My blood calcium levels were above high without taking supplements before I went off glutens which is a good indicator that my parathyroids are messed up. Then low and behold, I went off glutens and my calcium levels dropped to borderline low levels which is absolutely amazing and pretty much summed up and more questions for the docs. That pretty much sealed my diagnosis, as if I were not Celiac and had gone on a gluten-free diet and had parathyroid disease my calcium would have continued to rise.

It's taken a long time as my system was a mess but I finally feel like I am getting my life back!

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I didn't realize that my unexplained migraines and unexplained depression as a teen were most likely the first signs that I had celiacs. Even then I was only diagnosed because my GI doctor couldn't figure out why I had constant side pain and some random GI symptoms. The doc said "I don't think you have this but I have nothing else I can test you for" and even he was a little baffled when they blood work came back positive.

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I also think my infertility and miscarriages were indirectly caused by Celiac. After the third one I was tested for various things that cause miscarriage and had the AntiPhospholipid Antibody Syndrome (an autoimmune syndrome) test come back faintly positive. On my next (and last) pregnancy I injected myself with blood thinners every day and had a succesful pregnancy. The autoimmune disorders are all so closely tied together, perhaps the celiac triggered the APAS.

The most unexpected results I have had have been the return of my libido and the lessening of my PMS symptoms. I don't vomit when I ovulate or when I have my period anymore. My breasts don't ache to the point where I can't wear a bra for almost 2 weeks and my night sweats aren't as severe. Obviously there has been a major evening out of hormones for me.

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vertigo, ear aches, and headaches are gone. I used to get sick constantly, nearly every month. I have had one cold in 2 years of being gluten-free. Carpal tunnel and plantar fasciitis went away. Numbness in toe went away. Nerve pain in both arms, and down both legs is completely gone. A little twinge left in my neck if I hit it wrong, but it is steadily improving, so I have faith that it'll go away eventually, too.

Injuries that never quite healed finally did. I had a bum knee, a bum ankle, and a couple teeth that never recovered from having cavities filled. All are better now.

Depression disappeared. Insomnia went away, and so did that exhausted feeling in the mornings.

I used to feel overwhelmed by sounds and touch in a crowd, get really irritable and just want to scream and get somewhere that no one could talk to me or touch me. Lights at night were very harsh and too bright. I loved sweet things and anything bitter was extremely unpleasant. That all changed. My senses seem to go a bit hyper on me if I get 'glutened.' Without gluten, though, crowds aren't a big deal, the taste of food is different and less bitter, and night time lights are not a big deal. That one really floored me - so weird!

I used to feel the urge to pee all the time, and that left, too. At first I thought maybe I finally healed up a low grade infection, but it pops back into being every time I get glutened, so I'm thinking it's a symptom for me, too.

Memory issues and ADHD like concentration went away. The anxiety that used to make social occasions much more painful is now gone, too.

Honest to god, huge aspects of myself, from what I liked and what bothered me, to how I thought my body 'just was,' have turned out to be the results of gluten. I feel like a totally different person since the diet.

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This can affect your teeth? Oh my. I am newly diagnosed and the last few weeks I am noticing my teeth are VERY sensitive.

I have numbness in my hands and feet. Its driving me crazy! I really hope this is also part of it and it goes away.

My body literally 'crashed' the end of June (long story) and since being on a gluten-free diet for 4 weeks I am already doing SOOOO much better.

I miss my energy. The vertigo was awful.

Ok, rambled enough. Thanks for listening.

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This can affect your teeth? Oh my. I am newly diagnosed and the last few weeks I am noticing my teeth are VERY sensitive.

I have numbness in my hands and feet. Its driving me crazy! I really hope this is also part of it and it goes away.

My body literally 'crashed' the end of June (long story) and since being on a gluten-free diet for 4 weeks I am already doing SOOOO much better.

I miss my energy. The vertigo was awful.

Ok, rambled enough. Thanks for listening.

It sure affected my teeth. They have been sensitive for years and to be honest I thought nothing of it. So what? But about two months ago (after being gluten-free four months) I noticed no zaps whilst eating a popsicle. Now neither hot nor cold bother them whatsoever. A small perk, but I'll take it! :)

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I had suffered from chronic pain in my neck and around the base of my skull since a car accident some 9 years ago. This pain vanished 24 hours after going gluten free and has not returned. A recent blood test had also shown post-menopausal levels of estrogen (the level was extremely low). My cycle restarted shortly after going gluten free. I also haven't had any migraines in the last month of being gluten free, which I had also not expected.

Wow - that is incredible! I would do ANYTHING to alleviate my severe chronic and debilitating pain. I've been strictly gluten free for six months, dairy free maybe five weeks and soy free a few weeks and my back has, in fact, become progressively worse (when I didn't think that was even possible). Consequently my chronic insomnia is running rampant as well. It would be a miracle even if my pain decreased by 30%. One can always hope! :)

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I used to feel overwhelmed by sounds and touch in a crowd, get really irritable and just want to scream and get somewhere that no one could talk to me or touch me. Lights at night were very harsh and too bright. I loved sweet things and anything bitter was extremely unpleasant. That all changed. My senses seem to go a bit hyper on me if I get 'glutened.' Without gluten, though, crowds aren't a big deal, the taste of food is different and less bitter, and night time lights are not a big deal. That one really floored me - so weird!

That describes my experience as well. Any noises, lights, people, sounds... they used to drive me crazy, to the point I would either run away or zone out to avoid the overload.

I also was surprised to find my migraines, which were accompanied by nearly constant vomiting for 20+hours, disappeared. My mood improved, and my nails and hair are stronger and healthier.

Also, I've got a bigger butt, too. I still have a "pancake butt" as one of my friends calls it, but it has grown a bit bigger since going gluten free. I don't look as strange anymore. ;)

The numbness in my arms and hands has gone away, as have the muscle cramps in my feet and legs. My hands and feet don't get as cold anymore. And my knees and ankles have stopped "popping" and "cracking" as much (still happens every once in a while, but before it was almost constant).

This is all in addition to my chronic D, dizziness if I closed my eyes, skin rashes, acne, bloating, stomach aches, constant headaches...

And I wasn't even diagnosed by a doctor. I discovered all of this by deciding to try an elimination diet.

Go figure!

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Love2travel - I am sorry you are suffering such pain. It really makes things hard. I see from your signature that you developed conditions which are not as fixable as mine. Most of my spinal pain after the accident was alleviated by physical therapy, but I didn't really get a grip on it until I found a PT who adapted pilates exercises, and this has been something I have kept up, with just my neck/head remaining stubbornly painful. However this year I developed shoulder problems and systemic inflammation which I now know was worsening celiac symptoms. These problems prevented me from obtaining any benefit from exercising, no matter how gentle, as I was just too sore and stiff. I hope that soon I can get back to it, but don't feel up to it just yet.

BTW I saw on another thread that you spend time in Croatia. We went there on holiday this year and loved it! It is just so beautiful. Best wishes.

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Love2travel - I am sorry you are suffering such pain. It really makes things hard. I see from your signature that you developed conditions which are not as fixable as mine. Most of my spinal pain after the accident was alleviated by physical therapy, but I didn't really get a grip on it until I found a PT who adapted pilates exercises, and this has been something I have kept up, with just my neck/head remaining stubbornly painful. However this year I developed shoulder problems and systemic inflammation which I now know was worsening celiac symptoms. These problems prevented me from obtaining any benefit from exercising, no matter how gentle, as I was just too sore and stiff. I hope that soon I can get back to it, but don't feel up to it just yet.

BTW I saw on another thread that you spend time in Croatia. We went there on holiday this year and loved it! It is just so beautiful. Best wishes.

Thanks, Gail. I am in the middle of nearly agonizing pain at the moment - I cannot walk on my own, nor can I sit. My SI joint is out and keeps popping out nearly daily. We are to leave for our house in Croatia next Saturday so I am in a panic. Plus my sister who has never been to Europe before is to come with us - she got her passport, bought luggage, clothes, etc. just for the trip and cannot go at any other time. So, we had the talk today - I told her it is highly unlikely we will be going and she is devastated and I do not blame her. Glad you were able to spend time there - we love it so much! Our house is in Istria, just a 3-hour drive from Venice.

It is SO hard when desperate pain prevents one from doing things. I cannot tell you how much I anticipated this trip and not being able to go is difficult mentally. It is what I look forward to most.

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I used to get random blurry vision, especially at night. I couldn't watch TV, read, or even see the computer screen. This totally went away when I went gluten-free. I got gluttened last night, and one of my first symptoms was blurry vision!! Now I know! :rolleyes:

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    • Did your doctor check for SIBO, H. pylori, ulcers, etc. when he was obtaining biopsies to check for celiac disease?  
    • Oh, and as I mentioned in my own post on pain, xanax. I swear. I tried it just to deal with the occasional panic I had at weird scary symptoms and clueless doctors. I am not a fan of long term use. But I recently found that .25 mg seems to aid with the neuropathic pain. It does not go away, but it helps. 
    • It does sound like a Glutening and you are just a few months into the diet.  It might help if you read our Newbie 101 thread under the "Coping" section.   Here is some information about rice milk: https://www.verywell.com/is-rice-dream-gluten-free-562354 Many, many celiacs are often lactose intolerant temorarily or permanently if you are naturally genetically inclined.  When I am glutened, I lose the ability to digest lactose for a while.   Salad?  Great but it can be rough on a sore gut!  Think soups, stews, easy-to-digest foods that you prepare yourself until you feel better.  Did your folks give you salad after a bout of flu?  Or did you stick with jello and broth?  I am intolerant still after three years to garlic and onions (the lactose resolved, thankfully).  You have a leaky gut (Google zonulin and Dr. Fasano who is a leading celiac researcher to verify that this is true) and that means you can become intolerant to anything (hopefully, just temporarily).   If you are 100% sure that you have had no access to gluten....did you eat out lately?.....then see your doctor.  Remember, celiac disease symptoms can change.  And here is the biggie.....it can take weeks, months or years to heal from celiac disease.  Two months in is nothing, really.  Why?  It takes time to figure out the diet and time for antibodies to come down.  celiac disease is an autoimmune disorder triggerEd by gluten.  once triggered it can go on and on damaging your gut especially with repeated glutenings (accidental or through cross contamination). I hope you feel better soon!  
    • I concur! I literally feel your pain as well. Like, at the moment, lol. Did you have an endo to see inflammation or damage? I am close to begging my GI for carafate or something to coat and protect. How about testing your antibodies to see if they are still rising? I read somewhere here rice milk may not be a good option.  Folks here have also suggested to me to stick with whole foods. Limit processed. Especially stuff that is not certified gluten-free, like chex. I think small amounts of gluten are in processed foids and can add up. I too reacted to lettuce the other day like I was ingesting glass. My sibling  had a food sensitivity panel done and it came back positive for a few things he had been eating a lot of. He can now eat them, but had to cut them out of his diet. Lettuce is probably on mine.  I have been drinking carrot and pomegranate juice,  dandelion root tea with hiney, aloe water, lots of squash, fish. Mild, no garlic, no onions or hot sauce. No coffee. It sucks.  Inflammation can tick off other organs, you mention a "Pain below". Not exactly sure which side, but certainly call your doc Monday. Sooner if the pain increases.
    • You should see a GI specialist before you go gluten free.  They should do a upper endoscopy to check for celiac damage.  Colonoscopy won't show anything related to celiac.  Also no you should not feel worse on gluten free, you should feel better.
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