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What Symptoms Did You Not Even Realize Were Symptoms?
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Did anyone ever experience red burning blood shot eyes? I wake up in the morning and my eyes hurt to open and are red and bloodshot. Went to the eye doctor and he did a complete exam and found nothing. Gave me some eye drops for allergies which did not do a thing. I am hoping that being off gluten will help my eyes. As a newbie here, thanks for all the great info.

Tanya

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I knew my stomach was killing me all the time, but until I went gluten free/casein free I did not realize that it affected my fertility, arthritis, chronic fatigue, cavities, nerve pain, dry skin, moods (rage right before my period), general confusion, lack of motivation, anxiety...I know I'm forgetting some things. This diet has over the past two years become very easy to maintain and thrive on (took several months) and I find it's so much easier to forage for organic whole foods and prepare every meal than try and muddle through life at 60%. That's no way to live.

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Did anyone ever experience red burning blood shot eyes? I wake up in the morning and my eyes hurt to open and are red and bloodshot. Went to the eye doctor and he did a complete exam and found nothing. Gave me some eye drops for allergies which did not do a thing. I am hoping that being off gluten will help my eyes. As a newbie here, thanks for all the great info.

Tanya

YES!! My dry eyes were terrible before going gluten-free! I would also get random attacks of episcleritis (red, burning eye that looks like pink eye without the goop). I had to use steriod drops in my eye. Since going gluten-free, I haven't had one attack, and my eyes are not dry and gritty. It's high allergy season here, too, and my eyes feel great!

I wouldn't be suprised if you have the same positive results! :D

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Besides the digestive stuff, and neuro stuff (brain fog, balance problems) that you commonly see listed, I finally stopped being thirsty all the time (I wanted to drink water non-stop, it was an effort to keep myself below 4 litres a day and if the doctor hadn't read me the riot act, I'd have continued to drink 5-6 litres); my ears stopped feeling so blocked and gunky) and my ankles stopped hurting when I got out of bed in the morning. Oh and I lost the puffy bags under my eyes.

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    • Thankyou both! I was wondering if my high levels left much doubt on the diagnosis. I don't see the GI until the 15th Sep and I don't think I can stand to eat gluten in that time. If he tells me to I will do so after then. After 25 years of symptoms I don't think there is much chance of healing my bowel In a couple of weeks. I'm actually terrified of the damage they might find. But I think I will need the endo since there may be other things going on with me. So great they didn't put your son through the biopsy! Once I have a formal diagnosis I have my kids to worry about also. I can't even stand the thought of my daughter having a blood test. I think she would need to be sedated as she is so fearful and pain sensitive. My son is not yet 2 so I don't think they will test him. I'm feeling so off at the moment. I think I have some anxiety and reflux going on complicating things quite a bit.
    • My son's antibodies were 300. Based on his extremely high levels, his pediatric GI suggested genetic testing instead of the biopsy. Genetic testing can't diagnose celiac on its own but combined with such high levels, the gi dr was confident a positive genetic test would confidently diagnose celiac. He warned that biopsies are small snapshots of the intestine and can miss damage. He said this is an approach used very often in Europe but not as much in the US. What sold me on that approach was the ability to put my son directly on a gluten free diet instead of waiting three weeks for the biopsy, during which time he would continue to eat gluten and feel terrible. I'm not sure if this is more common with younger patients though (our son is two), based on the idea that he's had less time to inflict damage that would show in a biopsy? We are very happy that we immediately started the gluten free diet and chose the genetic testing. Our son got the proper diagnosis and his recent number shows a drop to 71 after only 4.5 months gluten free! Not sure if this helps. Good luck and I hope you feel better soon!
    • We have been off gluten for a while now, and symptoms return when I've allowed gluten full meals… so something still isn't sitting right with me.  Checking with her doc about seeing a pediactric GI although I'm not sure how long that will take since we live in small town America. I know she didn't get at least one of the recommended full panel tests but maybe two, can someone help clarify, or is she missing two? DGP for sure and possibly EMA? And if I understand what I'm reading in other posts that the DGP can be more accurate? Thanks Her blood panel results: Ttg ab iga <.5u/ml ttg igg <.8u/ml aga ab iga <.2 u/ml aga an igg <.7u/ml iga 61mg/dL  
    • I was tested for the full panel, I believe. I had normal values for t-transglutaminase (ttg) igg,t-transglutaminase (ttg) iga, deamidated gliadin abs igg, deamidated gliadin abs iga, and immunoglobulin a qn serum.  
    • Going gluten free may be beneficial if you're among the roughly 10 percent of people who suffer from celiac disease, a genetic immune disorder, ... View the full article
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