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What Symptoms Did You Not Even Realize Were Symptoms?


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28 replies to this topic

#16 moose07

 
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Posted 23 September 2011 - 11:13 AM

I didn't realize that my unexplained migraines and unexplained depression as a teen were most likely the first signs that I had celiacs. Even then I was only diagnosed because my GI doctor couldn't figure out why I had constant side pain and some random GI symptoms. The doc said "I don't think you have this but I have nothing else I can test you for" and even he was a little baffled when they blood work came back positive.
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#17 Poppi

 
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Posted 23 September 2011 - 11:31 AM

I also think my infertility and miscarriages were indirectly caused by Celiac. After the third one I was tested for various things that cause miscarriage and had the AntiPhospholipid Antibody Syndrome (an autoimmune syndrome) test come back faintly positive. On my next (and last) pregnancy I injected myself with blood thinners every day and had a succesful pregnancy. The autoimmune disorders are all so closely tied together, perhaps the celiac triggered the APAS.

The most unexpected results I have had have been the return of my libido and the lessening of my PMS symptoms. I don't vomit when I ovulate or when I have my period anymore. My breasts don't ache to the point where I can't wear a bra for almost 2 weeks and my night sweats aren't as severe. Obviously there has been a major evening out of hormones for me.
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Sara

Busy mom to 3 great kids (4, 8 and 18)

Gluten free since April 6, 2011 ~ Also sensitive to coconut, coffee and food dyes

Joint pain, mouth sores, back and neck pain, migraines, stomach pain, chronic fatigue, ADD and depression are all gone.
Wishing I had been diagnosed before celiac robbed me of the cartilage in my toes and the 3 babies we lost to miscarriages.


#18 T.H.

 
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Posted 23 September 2011 - 12:23 PM

vertigo, ear aches, and headaches are gone. I used to get sick constantly, nearly every month. I have had one cold in 2 years of being gluten-free. Carpal tunnel and plantar fasciitis went away. Numbness in toe went away. Nerve pain in both arms, and down both legs is completely gone. A little twinge left in my neck if I hit it wrong, but it is steadily improving, so I have faith that it'll go away eventually, too.

Injuries that never quite healed finally did. I had a bum knee, a bum ankle, and a couple teeth that never recovered from having cavities filled. All are better now.

Depression disappeared. Insomnia went away, and so did that exhausted feeling in the mornings.

I used to feel overwhelmed by sounds and touch in a crowd, get really irritable and just want to scream and get somewhere that no one could talk to me or touch me. Lights at night were very harsh and too bright. I loved sweet things and anything bitter was extremely unpleasant. That all changed. My senses seem to go a bit hyper on me if I get 'glutened.' Without gluten, though, crowds aren't a big deal, the taste of food is different and less bitter, and night time lights are not a big deal. That one really floored me - so weird!

I used to feel the urge to pee all the time, and that left, too. At first I thought maybe I finally healed up a low grade infection, but it pops back into being every time I get glutened, so I'm thinking it's a symptom for me, too.

Memory issues and ADHD like concentration went away. The anxiety that used to make social occasions much more painful is now gone, too.


Honest to god, huge aspects of myself, from what I liked and what bothered me, to how I thought my body 'just was,' have turned out to be the results of gluten. I feel like a totally different person since the diet.
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T.H.

Gluten free since August 10, 2009.
21 years with undiagnosed Celiac Disease

23 years with undiagnosed sulfite sensitivity

25 years with undiagnosed mast cell activation disorder (MCAD) 

 

Daughter: celiac and MCAD positive

Son: gluten intolerant
Father, brother: celiac positive


#19 KiwiBrit

 
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Posted 23 September 2011 - 04:16 PM

This can affect your teeth? Oh my. I am newly diagnosed and the last few weeks I am noticing my teeth are VERY sensitive.
I have numbness in my hands and feet. Its driving me crazy! I really hope this is also part of it and it goes away.
My body literally 'crashed' the end of June (long story) and since being on a gluten-free diet for 4 weeks I am already doing SOOOO much better.
I miss my energy. The vertigo was awful.
Ok, rambled enough. Thanks for listening.
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#20 love2travel

 
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Posted 23 September 2011 - 04:36 PM

This can affect your teeth? Oh my. I am newly diagnosed and the last few weeks I am noticing my teeth are VERY sensitive.
I have numbness in my hands and feet. Its driving me crazy! I really hope this is also part of it and it goes away.
My body literally 'crashed' the end of June (long story) and since being on a gluten-free diet for 4 weeks I am already doing SOOOO much better.
I miss my energy. The vertigo was awful.
Ok, rambled enough. Thanks for listening.

It sure affected my teeth. They have been sensitive for years and to be honest I thought nothing of it. So what? But about two months ago (after being gluten-free four months) I noticed no zaps whilst eating a popsicle. Now neither hot nor cold bother them whatsoever. A small perk, but I'll take it! :)
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<p>Confirmed celiac disease February 2011 from biopsies. Strictly gluten free March 18 2011.Diagnosed with fibromyalgia April 13 2011.3 herniated discs, myofascial pain syndrome, IT band syndrome, 2 rotator cuff injuries - from an accident Dec. 07 - resulting in chronic pain ever since. Degenerative disc disease.Osteoarthritis in back and hips.Chronic insomnia mostly due to chronic pain.Aspartame free May 2011.

When our lives are squeezed by pressure and pain, what comes out is what is inside.

#21 love2travel

 
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Posted 23 September 2011 - 05:15 PM

I had suffered from chronic pain in my neck and around the base of my skull since a car accident some 9 years ago. This pain vanished 24 hours after going gluten free and has not returned. A recent blood test had also shown post-menopausal levels of estrogen (the level was extremely low). My cycle restarted shortly after going gluten free. I also haven't had any migraines in the last month of being gluten free, which I had also not expected.

Wow - that is incredible! I would do ANYTHING to alleviate my severe chronic and debilitating pain. I've been strictly gluten free for six months, dairy free maybe five weeks and soy free a few weeks and my back has, in fact, become progressively worse (when I didn't think that was even possible). Consequently my chronic insomnia is running rampant as well. It would be a miracle even if my pain decreased by 30%. One can always hope! :)
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<p>Confirmed celiac disease February 2011 from biopsies. Strictly gluten free March 18 2011.Diagnosed with fibromyalgia April 13 2011.3 herniated discs, myofascial pain syndrome, IT band syndrome, 2 rotator cuff injuries - from an accident Dec. 07 - resulting in chronic pain ever since. Degenerative disc disease.Osteoarthritis in back and hips.Chronic insomnia mostly due to chronic pain.Aspartame free May 2011.

When our lives are squeezed by pressure and pain, what comes out is what is inside.

#22 Ollie's Mom

 
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Posted 23 September 2011 - 05:16 PM

I used to feel overwhelmed by sounds and touch in a crowd, get really irritable and just want to scream and get somewhere that no one could talk to me or touch me. Lights at night were very harsh and too bright. I loved sweet things and anything bitter was extremely unpleasant. That all changed. My senses seem to go a bit hyper on me if I get 'glutened.' Without gluten, though, crowds aren't a big deal, the taste of food is different and less bitter, and night time lights are not a big deal. That one really floored me - so weird!


That describes my experience as well. Any noises, lights, people, sounds... they used to drive me crazy, to the point I would either run away or zone out to avoid the overload.

I also was surprised to find my migraines, which were accompanied by nearly constant vomiting for 20+hours, disappeared. My mood improved, and my nails and hair are stronger and healthier.

Also, I've got a bigger butt, too. I still have a "pancake butt" as one of my friends calls it, but it has grown a bit bigger since going gluten free. I don't look as strange anymore. ;)

The numbness in my arms and hands has gone away, as have the muscle cramps in my feet and legs. My hands and feet don't get as cold anymore. And my knees and ankles have stopped "popping" and "cracking" as much (still happens every once in a while, but before it was almost constant).

This is all in addition to my chronic D, dizziness if I closed my eyes, skin rashes, acne, bloating, stomach aches, constant headaches...

And I wasn't even diagnosed by a doctor. I discovered all of this by deciding to try an elimination diet.

Go figure!
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#23 UKGail

 
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Posted 24 September 2011 - 01:51 PM

Love2travel - I am sorry you are suffering such pain. It really makes things hard. I see from your signature that you developed conditions which are not as fixable as mine. Most of my spinal pain after the accident was alleviated by physical therapy, but I didn't really get a grip on it until I found a PT who adapted pilates exercises, and this has been something I have kept up, with just my neck/head remaining stubbornly painful. However this year I developed shoulder problems and systemic inflammation which I now know was worsening celiac symptoms. These problems prevented me from obtaining any benefit from exercising, no matter how gentle, as I was just too sore and stiff. I hope that soon I can get back to it, but don't feel up to it just yet.

BTW I saw on another thread that you spend time in Croatia. We went there on holiday this year and loved it! It is just so beautiful. Best wishes.
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#24 love2travel

 
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Posted 24 September 2011 - 02:03 PM

Love2travel - I am sorry you are suffering such pain. It really makes things hard. I see from your signature that you developed conditions which are not as fixable as mine. Most of my spinal pain after the accident was alleviated by physical therapy, but I didn't really get a grip on it until I found a PT who adapted pilates exercises, and this has been something I have kept up, with just my neck/head remaining stubbornly painful. However this year I developed shoulder problems and systemic inflammation which I now know was worsening celiac symptoms. These problems prevented me from obtaining any benefit from exercising, no matter how gentle, as I was just too sore and stiff. I hope that soon I can get back to it, but don't feel up to it just yet.

BTW I saw on another thread that you spend time in Croatia. We went there on holiday this year and loved it! It is just so beautiful. Best wishes.

Thanks, Gail. I am in the middle of nearly agonizing pain at the moment - I cannot walk on my own, nor can I sit. My SI joint is out and keeps popping out nearly daily. We are to leave for our house in Croatia next Saturday so I am in a panic. Plus my sister who has never been to Europe before is to come with us - she got her passport, bought luggage, clothes, etc. just for the trip and cannot go at any other time. So, we had the talk today - I told her it is highly unlikely we will be going and she is devastated and I do not blame her. Glad you were able to spend time there - we love it so much! Our house is in Istria, just a 3-hour drive from Venice.

It is SO hard when desperate pain prevents one from doing things. I cannot tell you how much I anticipated this trip and not being able to go is difficult mentally. It is what I look forward to most.
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<p>Confirmed celiac disease February 2011 from biopsies. Strictly gluten free March 18 2011.Diagnosed with fibromyalgia April 13 2011.3 herniated discs, myofascial pain syndrome, IT band syndrome, 2 rotator cuff injuries - from an accident Dec. 07 - resulting in chronic pain ever since. Degenerative disc disease.Osteoarthritis in back and hips.Chronic insomnia mostly due to chronic pain.Aspartame free May 2011.

When our lives are squeezed by pressure and pain, what comes out is what is inside.

#25 pain*in*my*gut

 
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Posted 24 September 2011 - 05:28 PM

I used to get random blurry vision, especially at night. I couldn't watch TV, read, or even see the computer screen. This totally went away when I went gluten-free. I got gluttened last night, and one of my first symptoms was blurry vision!! Now I know! :rolleyes:
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Celiac DX 9/2011 ~ Gluten free ever since
Hashimoto's Thyroiditis 10/2011
Premature Ovarian Failure 11/2010
Rheumatoid Arthritis 10/2011
Sjogren's Disease 10/2011

"The best way out is always through" ~Robert Frost

#26 TanyaC

 
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Posted 24 September 2011 - 05:42 PM

Did anyone ever experience red burning blood shot eyes? I wake up in the morning and my eyes hurt to open and are red and bloodshot. Went to the eye doctor and he did a complete exam and found nothing. Gave me some eye drops for allergies which did not do a thing. I am hoping that being off gluten will help my eyes. As a newbie here, thanks for all the great info.

Tanya
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#27 srall

 
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Posted 25 September 2011 - 05:22 AM

I knew my stomach was killing me all the time, but until I went gluten free/casein free I did not realize that it affected my fertility, arthritis, chronic fatigue, cavities, nerve pain, dry skin, moods (rage right before my period), general confusion, lack of motivation, anxiety...I know I'm forgetting some things. This diet has over the past two years become very easy to maintain and thrive on (took several months) and I find it's so much easier to forage for organic whole foods and prepare every meal than try and muddle through life at 60%. That's no way to live.
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#28 pain*in*my*gut

 
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Posted 25 September 2011 - 08:06 AM

Did anyone ever experience red burning blood shot eyes? I wake up in the morning and my eyes hurt to open and are red and bloodshot. Went to the eye doctor and he did a complete exam and found nothing. Gave me some eye drops for allergies which did not do a thing. I am hoping that being off gluten will help my eyes. As a newbie here, thanks for all the great info.

Tanya



YES!! My dry eyes were terrible before going gluten-free! I would also get random attacks of episcleritis (red, burning eye that looks like pink eye without the goop). I had to use steriod drops in my eye. Since going gluten-free, I haven't had one attack, and my eyes are not dry and gritty. It's high allergy season here, too, and my eyes feel great!

I wouldn't be suprised if you have the same positive results! :D
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Celiac DX 9/2011 ~ Gluten free ever since
Hashimoto's Thyroiditis 10/2011
Premature Ovarian Failure 11/2010
Rheumatoid Arthritis 10/2011
Sjogren's Disease 10/2011

"The best way out is always through" ~Robert Frost

#29 anabananakins

 
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Posted 25 September 2011 - 03:48 PM

Besides the digestive stuff, and neuro stuff (brain fog, balance problems) that you commonly see listed, I finally stopped being thirsty all the time (I wanted to drink water non-stop, it was an effort to keep myself below 4 litres a day and if the doctor hadn't read me the riot act, I'd have continued to drink 5-6 litres); my ears stopped feeling so blocked and gunky) and my ankles stopped hurting when I got out of bed in the morning. Oh and I lost the puffy bags under my eyes.
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