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The Good Over The Bad Of Celiac
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21 posts in this topic

OK, so I would by no means consider myself an optimist. Although, it is good to look at the brighter side of things sometimes. Obviously, celiac has a lot of downside to it or there wouldn't be a forum dedicated to it.

I believe good can come out of bad. So, in your minds, what good can come out of having celiac disease?? Think creatively.

I'll start.

For one thing, it is teaching me perseverance. I've realized that I need to stick to this diet whether I feel like it's working or not. I've not had gluten for about 3 weeks and am not feeling much better.

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It has taught me to listen to my body. For years I kept saying to hub, "I feel toxic" :blink: I was right -- I was in a state of toxicity.

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Persistence and intuitiveness are what it has taught me. I never gave up trying to figure out what was wrong with me even when the doctor said nothing was. Going with my gut feelings and instincts and listening to it for my self and my kids. I "knew" something was wrong, just not what. That intuition has served me well.

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Being ill for so long taught me patience and gave me more empathy. I never lost hope that the reason for my illness would be found but that last year before diagnosis came close.

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it got me out of living on the 19th floor of a dorm, which i think is great. I have also learned how to cook and fend for myself, i just went off to college in a diff state so my mom isn't here to talk to the disabilities office or the restaurant... so i have learned that I can stick up for myself and people do listen (with the exception of a few). I have learned so much that from my almost 3 years of celiac disease its amazing, i wouldn't trade it for the world (atleast today :D )

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I'm at a point right now where I don't have too much positive to say..but if I were to pick one thing..it has taught me to be my own advocate. To speak up and not be a "shy Violet". I've been horribly shy my whole life, so this is a big change for me.

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Well since ALL food is gluten free except for wheat, barley, and rye (and oats depending on the person) this has taught me to give up a lot of the processed food I was eating and to cook more. So now instead of fixing one of those boxed rice mixes I make plain rice and spice it up, or cook it with broth, or with veggies in it, or something. We're eating much better now. I'm the only gluten free person in the house but since I'm not a short-order cook (in fact, I hate to cook) I'm only cooking one meal for everyone. (If I make them pasta I just don't bother for myself and I'll eat the salad and veggie.)

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I have been gluten free since 7/2011. I was diagnosed after extensive searching for cause of burping. I have slight gastritis but the biopsy from endoscopy showed damaged villi. Blood test confirmed celiac disease. I am one who does not have any other symptoms other than burping (still not convinced it is from celiac disease). Doctor put me on Omeprazole and I have not seen improvement from burping so I've taken myself off.

The positive side of going gluten-free for me is that I am eating more natural and healthy foods. The downside is that since I don't have symptoms, I can't tell when I am getting hidden gluten. :-(

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I have learned that I am not a lazy person. I have believed all my life that I just simply wasn't as smart or as driven as everyone else but I was wrong. My food was poisoning me.

I am smart and driven and energetic. I have accomplished things in the past 6 months that I never dreamed I was capable of and I'm just getting started.

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This may sound odd but celiacs has made me a little more social. I'm painfully shy so I don't really talk a lot. However, it seems that somehow food almost always comes up in conversations and even though I don't throw out "I have celiacs" just for a conversation starter usually it does come up when people start talking about food. I admit I have gotten annoyed when people ask me a bunch of questions about it but I do find it a little bit easier to talk to people after having explained the whole thing to them.

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Also, oddly enough, celiacs has made me healthier. Not just for the obvious reason's of improved diet but after being diagnosed I got back into working out which has helped tremendously.

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I've learned a lot about nutrition and the effects of foods on the body (not just gluten). There really are so many foods that we *can* eat, and I've discovered so many that I don't miss gluteny foods at all. I cannot ever imagine ever wanting to poison myself like that ever again! Whole and natural is the way to go!

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Having this disease is (I hope) going to make me a better cook. Not there yet, though, LOL.

I used to believe that it's never to late to learn something new, but I didn't really apply it to myself too much. Now, I have energy for the first time since I was a kid and I'm realizing how much this applies to ME now. I want to learn martial arts, and piano, and all the things I wanted to do before but didn't, because even getting out of bed felt almost too hard to do.

I've been able to show my kids that even when life-altering events hit you, you can still roll with it, get back up and keep going, and use it to make things better, even. And I was able to prove to myself that I could do it.

Coping with the cooking with this disease has also done something for my kids that I never expected: they are no longer slaves to immediate gratification. They are noticeably more patient, and understand much more the concept of having to work to get what we want (like getting up early to cook food for the day, so we can go and stay at a friends for longer), and that sometimes it takes time before we can get it. It's a huge change for them.

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I don't know about good or bad, but it's just part of who I am now.

I guess a good is that it's the first diet that I've never thought of drifting from. Like, not even an option.

And that it gave us an excuse to buy new kitchen appliances. :D

I've always loved baking and it's given me an excuse to bake more (although my husband blames my increased baking on his weight gain...)

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This post hits me right in the heart. I recently hooked up with a first cousin on a social networking site. It's been 30 years since I've seen her. I told her about my gluten sensitivity and she responded that it's great that I can deal with a disease by what I eat.

She asked if I'd heard that she has pancreatic cancer and is on chemotherapy. She's a single mom and has a 20 year old son that is severely mentally retarded. Wow. I am so not into feeling sorry for myself.

I never look at the threads that ask what you miss most.

On the good side, I have learned to challenge doctors. I know more about celiac disease than a majority of them do, via this forum and a subscription to "Living Without". We're saving money from not eating out. And we're eating better by eating whole foods vs. processed. Meals are more about what we're eating vs. cooking up something quick to eat while we're watching tv, so we're having more meaningful conversations. And both of us are learning to cook things we never cooked before. Figuring it out saved my life and quality of life.

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This post hits me right in the heart. I recently hooked up with a first cousin on a social networking site. It's been 30 years since I've seen her. I told her about my gluten sensitivity and she responded that it's great that I can deal with a disease by what I eat.

She asked if I'd heard that she has pancreatic cancer and is on chemotherapy. She's a single mom and has a 20 year old son that is severely mentally retarded. Wow. I am so not into feeling sorry for myself.

I never look at the threads that ask what you miss most.

my husband has several life- long disabilities... I sooo hear what you're saying!!!!

on a lighter note, one thing I like about being gluten- free is that I get the whole box of KinniToos or KinniKritters!! And any larabars or Kind bars we buy are mine, too!! :)

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I guess I know now to 'trust my instincts' for years I had Drs basically treating me like a hypochondriac- now all those bizarre symptoms make sense and I know I'm not crazy!

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It has helped me appreciate every day we are given and to accept what I cannot change.

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Love this post!

Being celiac has given me a great many things. Good health first of all. After being sick for so many years, realizing that a diet change can make me feel good again is amazing. I also am very thankful for the early diagnosis for both of my children. They will never have to suffer like I did. And on a vain note, I've lost 30 pounds! I went from a size 12 to a size 2. I finally feel like ME again. My entire family eats SO much healthier now. I consider celiac disease a blessing in disguise. :D

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Oh my. Where to start?

I am learning to cook, which is saving me money as well as my health. No more junk food for this girl!

I feel better, I sleep better, I have more energy.

And I understand what my Mom went through! For years and years, my poor mother was plagued with health problems. Not only did her doctor think it was all in her head, but, I am ashamed to say, so did I. It seemed that every day my Mom had a DIFFERENT complaint. One day she had a sick stomach, the next day it would be a headache, the day after that it was a backache. I was convinced she was making it all up for attention. I even told my Dad once, that I thought Mom was a hypochondriac. To my Dad's credit, he told me I was wrong, and that I should have more respect for her.

Even after she was diagnosed back in the mid-eighties, I didn't believe her "other" symptoms were real. I knew she would have digestive symptoms, but I thought the headaches, joint pain, and all the rest were fake.

Now of course, it's too late to apologize to her. :(

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    • Thankyou both! I was wondering if my high levels left much doubt on the diagnosis. I don't see the GI until the 15th Sep and I don't think I can stand to eat gluten in that time. If he tells me to I will do so after then. After 25 years of symptoms I don't think there is much chance of healing my bowel In a couple of weeks. I'm actually terrified of the damage they might find. But I think I will need the endo since there may be other things going on with me. So great they didn't put your son through the biopsy! Once I have a formal diagnosis I have my kids to worry about also. I can't even stand the thought of my daughter having a blood test. I think she would need to be sedated as she is so fearful and pain sensitive. My son is not yet 2 so I don't think they will test him. I'm feeling so off at the moment. I think I have some anxiety and reflux going on complicating things quite a bit.
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