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      READ FIRST: Super Sensitive Celiacs Disclaimer   09/23/2015

      This section of the forum is devoted to those who have responses to gluten beyond the experience of the majority of celiacs. It should not be construed as representative of the symptoms you are likely to encounter or precautions you need to take. Only those with extreme reactions need go to the lengths discussed here. Many people with newly diagnosed celiac disease have a condition known as leaky gut syndrome, which can lead to the development of sensitivity to other foods until the gut is healed - which may take as long as one to three years. At that time they are often able to reincorporate into their diet foods to which they have formerly been sensitive. Leaky gut syndrome leads many people to believe they are being exposed to gluten when they are in fact reacting to other foods.
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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Itching-Seeking Stricter Diet Tips
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3 posts in this topic

I'v been gluten-free for about a month, same time since official diagnosis. I'd give myself an A for sticking to the diet with the only risk of contamination being from a small amount of accidental foods that do not directly contain gluten, but may have been processed on the same equipment as gluten-containing foods.

After doing more than my share of homework and reading the forums, it's obvious people with Celiac can have other food sensitivities. Mine are onions, garlic, eggs and occasionally soy. I also have a mild dust-mite allergy that acts like it's major. I actually thought I was allergic to the foods, but after passing the allergy tests, I had to keep hunting. Celiac now seems to have been cause all along.

I've had a history of mysterious itching that comes and goes like an old friend. It started back up a few weeks ago and it's relentless. I've been to two doctors who each adamantly swear itching is common in Celiac Disease. None of the over the counter antihistamines do a thing. The prescription Atarax takes a while to work and the itching only keeps coming back. (I have no other symptoms at this time that I know of, no intestinal problems, no joint aches, nothing.)

I suspect that as I elminated gluten, I increased something else, possibly eggs, food additives, and dairy. I'm going to try going on a stricter gluten-free diet for a few weeks that's just brown rice, fresh fruits and vegetables (steamed or stir fried in olive oil), nuts, peanuts, and fresh herbal teas. I'll add a variety of beans, but no soy, and fish over time. No processed foods, dairy/eggs, or sweets, restaurant foods. (Though I do use artificial or natural sweetner in tea or on bitter fruits.)

I'd appreciate websites or books referring to diets and recipes recommended for anyone doing an elimination diet for the same reasons. ;)

I'm also crossing my fingers I'll feel healthy for the first time in my life within about a year of sticking to the gluten-free diet. If not, I'm pretty sure I won't be on this forum, 'cause I'll be on the forums for looney people.

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Just recently had the same problem. Take a look at the list of foods high in salicylates and see if they are what you have been eating. That was my problem. It took a few days off them for the itching to stop but it did the trick.

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I'll admit, finding a book for this is REALLY hard, and the best I've done is find some that work partially. Most of the allergy/elimination diet books I come across seemed aimed at finding substitutions for the eliminated food, and usually it's a processed food that I'm also trying to avoid (like all the xanthan gum for those avoiding gluten, as an example).

Here's what I've seen that might have some use, however.

1. Raw food diet cook books. They are some interesting recipes that can be useful with your type of elmination diet, as they primarily use veggies and fruits, with some nuts and seeds added. Sometimes a little meat. Ani Phyo may have some that would be right up your alley: http://aniphyo.com/blog/category/recipes/

From her, I learned the idea of peeling a zucchini into strips (the whole zucchini), letting it sit in the fridge, uncovered, until the strips got soft - a few hours - and then cooking it in a tomato sauce for zucchini noodles. Works well. I'm looking at one recipe of hers right now that is just sunflower seeds and dates that she puts together in a food processor and molds into little cakes. She does have some cookbooks out, as well.

2. Paleo diet - a protein heavy diet that usually doesn't have potatoes, legumes, or grains in it. Littls to no processed foods. But lots of meat, veggies, and fruits. Here's a popular site: http://paleodietlifestyle.com/paleo-diet-recipes/

3. The Africa Cookbook by Jessica Harris had a lot of simple recipes in it that would work well on this diet, from garlicky, spicy sauce to use on salad to falafel like creations from beans. I never had a chance to try any of the recipes, but many of them looked quite nice.

A word of caution on the elimination? You may want to investigate your nuts, beans, and teas - many beans and nuts are processed in facilities that process wheat, and they do NOT have to put that on the label. That's voluntary. Some herbal teas have barley or oat grass mixed in, or in the facility where the tea is being made, so it might be worth growing your own herbs or just calling to check with the tea company, you know?

The sweetener might be worth checking too, just to see if anything is made in the facility that could be a problem.

If you're trying to avoid more additives and such, you might want to double check your salt to see what has been added to that, too. There is usually an anti-caking agent added to salt, and a corn derivative added to iodized salt to stabilize the iodine (if it's lower than a certain % of the product, some of these don't even have to be on the label).

EDIT: oh, and nearly forgot! If you look for recipes for those on sulfite free diets, they're typically onion free, so that might be able to give you some ideas. Sulfites can also cause itching, too, so it might be worth looking into that in any case.

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