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How Long Does It Take For Antibodies To Decrease?


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#1 Asharia

 
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Posted 25 September 2011 - 08:47 AM

I haven't been able to find any good information on how long it takes for a positive antibody blood test to return to normal on a truly gluten free diet. My antibodies are currently at 3X the normal range, but I don't know if it's possible to go back to normal within a week, a month, half a year, etc. Are there any published works on this? Even if not, I would love to hear from anyone that has personal experience with watching their numbers drop.

I am currently trying to figure out what the source of gluten cross-contamination in my diet is (my antibodies had successfully dropped to normal in 2010, but for the past 6 months have been elevated). Unfortunately there is nothing that is obviously triggering me .. I assume it is some of the processed food I am eating, like Amy's or Trader Joe's stuff, but haven't noticed any real cause and effect. In fact, I was surprised when my antibodies were still elevated at my last Dr. appointment!
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#2 ravenwoodglass

 
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Posted 25 September 2011 - 12:03 PM

Many doctors will test at the 6 month mark after you start the diet. If your antibodies had returned to normal levels and then elevated I would advise you to try and go with more unprocessed food. Many of us have had issues with CC with Amy's products and that would be the first thing I would drop.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#3 gfcolorado

 
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Posted 25 September 2011 - 01:54 PM

I just found out that my antibodies (DGP IGA) are elevated again,too and I've been searching all over for info. I also want to know if it's possible for them to be elevated from a one-time exposure or if it has to be continued. My doctor said it would have to be from continued, almost daily exposure. I had my father-in-law/retired GI research it for me and he found that the DGP results can stay elevated for up to 1 year for some people but he couldn't find anything on how much gluten is needed for it to be elevated.

Which of your tests are elevated? My TTG IGA and IGG and DGP IGG were normal but my DGP IGA was 61. It's so frustrating trying to figure out where I am getting the cc. I am going to get tested again to make sure it's not a false positive. I also get minimal symptoms when exposed to gluten so it's impossible to tell where I am getting it.

Hopefully someone can answer our questions!
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#4 T.H.

 
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Posted 25 September 2011 - 05:39 PM

I just found out that my antibodies (DGP IGA) are elevated again,too and I've been searching all over for info. I also want to know if it's possible for them to be elevated from a one-time exposure or if it has to be continued. My doctor said it would have to be from continued, almost daily exposure. I had my father-in-law/retired GI research it for me and he found that the DGP results can stay elevated for up to 1 year for some people but he couldn't find anything on how much gluten is needed for it to be elevated.


I haven't seen anything that yet that seems to have a definitive answer on this one. I was super, super gluten-free, and still testing positive a few months into the diet. I keep reading on various sites that by 6 months, there should be 'noticeable improvement.' My own doc told me it could take up to 2 years to heal, which it did for me, but partly because I had to figure out exactly what was making me sick first, you know?

The only information on elevation that I've see was from a review of celiac disease studies, and it claimed that how severely celiacs react to gluten is quite varied. Some might get hardly any damage from repeated low level cc, while some might react severely to just one gluten cc hit. That's probably worth investigating more, though.



Asharia,
if you want to list out some of the foods your eating, maybe we can help you track down what the problem might be? A lot of people here have had to go the same route, so they've got eagle eyes in picking out potential issues. ;)

Also might be of use to know if you have a gluten-free kitchen or not, what you do to prevent gluten cc in the kitchen, and if there is construction or a lot of baking in any areas you frequent. Any lip products/makeup that could be an issue, for you or a partner? Baby lotion on a little baby's tummy you kiss?

Stuff like that - loads of lovely people here who can probably help at least narrow it down for you.
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T.H.

Gluten free since August 10, 2009.
21 years with undiagnosed Celiac Disease

23 years with undiagnosed sulfite sensitivity

25 years with undiagnosed mast cell activation disorder (MCAD) 

 

Daughter: celiac and MCAD positive

Son: gluten intolerant
Father, brother: celiac positive


#5 Karla01

 
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Posted 26 September 2011 - 02:13 PM

I haven't been able to find any good information on how long it takes for a positive antibody blood test to return to normal on a truly gluten free diet. My antibodies are currently at 3X the normal range, but I don't know if it's possible to go back to normal within a week, a month, half a year, etc. Are there any published works on this? Even if not, I would love to hear from anyone that has personal experience with watching their numbers drop.

I am currently trying to figure out what the source of gluten cross-contamination in my diet is (my antibodies had successfully dropped to normal in 2010, but for the past 6 months have been elevated). Unfortunately there is nothing that is obviously triggering me .. I assume it is some of the processed food I am eating, like Amy's or Trader Joe's stuff, but haven't noticed any real cause and effect. In fact, I was surprised when my antibodies were still elevated at my last Dr. appointment!



Mine went down from the 300's to 28 after being on the gluten free diet for 6 months. My doctor hasn't rechecked them since then. I have a friend though that has never lowered hers. She remains high even on a gluten free diet.
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#6 Asharia

 
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Posted 26 September 2011 - 02:36 PM

It sounds like someone needs to do a study on this! Maybe I should change fields from ecology to celiac-studies, hah.

I have been careful about non-food products (toiletries, dog's food, etc), and I live alone. I would say my (non-dairy, non vegetable) staples are:

Frontera salsa
Frontera, Bearitos, or Tostitos torilla chips
Bearitos or Amy's refried beans
Whole Food's 365 brand beans, corn, etc.
Amy's rice mac and cheese (I am planning on cutting this out due to other Amy's processed food complaints)
Trader Joe's gluten free pancakes (I am planning on cutting this out)
Trader Joe's peanut butter
Sabra hummus
Trader Joe's gluten free rice snaps (I am planning on switching to glutino crackers)
Trader Joe's fiberful bars
Larabars
Enjoy Life Flax cereal
UDI's bagels and bread
Tinkyada pasta
Thai kitchen noodle bowls
And I have tried a bunch of different pasta sauces, sticking with the more organic ones with no obvious gluten ingredients

I eat a lot of nachos, hah.



I haven't seen anything that yet that seems to have a definitive answer on this one. I was super, super gluten-free, and still testing positive a few months into the diet. I keep reading on various sites that by 6 months, there should be 'noticeable improvement.' My own doc told me it could take up to 2 years to heal, which it did for me, but partly because I had to figure out exactly what was making me sick first, you know?

The only information on elevation that I've see was from a review of celiac disease studies, and it claimed that how severely celiacs react to gluten is quite varied. Some might get hardly any damage from repeated low level cc, while some might react severely to just one gluten cc hit. That's probably worth investigating more, though.



Asharia,
if you want to list out some of the foods your eating, maybe we can help you track down what the problem might be? A lot of people here have had to go the same route, so they've got eagle eyes in picking out potential issues. ;)

Also might be of use to know if you have a gluten-free kitchen or not, what you do to prevent gluten cc in the kitchen, and if there is construction or a lot of baking in any areas you frequent. Any lip products/makeup that could be an issue, for you or a partner? Baby lotion on a little baby's tummy you kiss?

Stuff like that - loads of lovely people here who can probably help at least narrow it down for you.


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